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  #151  
Old May 11, 2023, 10:06 PM
Soupe du jour Soupe du jour is offline
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I had a fight with my sister today. It's gotten to be too much. I did kind of apologize to her at the end, but really I'm not happy with the situation and am worried how things will progress when I leave the US. And yet I want to go home (to CZ) so much! I worry about her, which is part of the problem. I feel nothing I can do will change anything. Long story!

She and I went to see an art auction house representative today. I became shocked that she became frantically hyper at one point. I had to tell her when we were alone that she was, and that she needed to calm it. She said some very embarrassing things, despite. She was out of her element. Anyway, it's over. I fear the painting will likely perish in the future.

Tomorrow is my birthday. Another May gal here! After a complete breakdown, Hubby said he will take me to the shore tomorrow. I will forego seeing my sister. I told her we'd see each other the day after. I need a break! I yearn for the sea breezes and sounds...the sun on my shoulders...walking hand in hand with my Love in the sand...and a nice seafood lunch. Plus a long look across the Atlantic towards home! Only days after we finally reach that place will be our 25th wedding anniversary.
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Psych Medications:
* Tegretol XR (carbamazepine ER) 800 mg
* Lamictal (lamotrigine) 150 mg
* Seroquel XR (quetiapine ER) 500 mg

I also take meds for blood pressure, cholesterol, and tachycardia.
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  #152  
Old May 11, 2023, 10:35 PM
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So, I finally, at long freaking last, had my gastroenterology appointment today. It's bonkers that they scheduled this nearly a year ago, but here we are.

Part of my physical health issues revolve around a one-in-a-million genetic disorder that can affect my entire body, but particularly involve my GI tract. Think tumors, growths and the like. So, the doc scheduled a colonoscopy for me, something I've had the dubious pleasure of having semi-regularly since 19. Besides that, he got in contact with an oncologist (since this genetic disorder also carries an increased risk of cancers at a much younger age) to see if they would act as a care coordinator for the various doctors and specialists.

On a more immediate note, I've got to figure something out to address this reflux. Again, there's no obvious trigger other than laying flat in bed. Probably gonna have to find a way to sleep propped up for a while. The GI doc wants me to double up on the Prilosec my PCP prescribed for a month and see how that fares. Just gotta find a happy medium!

On a fun note, I'm revisiting a book that I've loved since childhood, Matilda. I saw and loved the movie with Danny Devito back in the day and the same for the recent musical. It seemed like time!
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Fear is the mind-killer.
Fear is the little-death that brings total obliteration.
I will face my fear.
I will permit it to pass over me and through me.
And when it has gone past, I will turn the inner eye to see its path.
Where the fear has gone there will be nothing. Only I will remain."
-Litany Against Fear (Dune)
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  #153  
Old May 12, 2023, 08:45 AM
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@Soupe du jour Happy Birthday 🎁🎂🎊🎉🎈
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…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
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  #154  
Old May 12, 2023, 09:53 AM
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Happy happy birthday to you and many more!
bizi
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lamictal 2x a day
haldol 2x a day
cogentin 2x a day
klonipin , 1mg at night,
fish oil coq10
multi vit,, vit c, at noon, tumeric, caffeine
Remeron at night,
zyprexa,
requip2-4mg





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  #155  
Old May 12, 2023, 10:40 AM
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JaneOnceMore JaneOnceMore is offline
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@Soupe du jour:

H@pPy BiRtHd@Y!!!
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  #156  
Old May 12, 2023, 11:01 AM
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Scooter9 Scooter9 is offline
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Happy Birthday @Soupe du jour!
__________________
* Dx: Bipolar II (finally, after years at Bipolar NOS)
* Rx: minimal dose of Lamictal

My avatar picture is a photo of the Whirlpool Galaxy I took in April 2023. I dedicated this photo to my sister who passed away in July 2016.
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  #157  
Old May 12, 2023, 11:08 AM
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Scooter9 Scooter9 is offline
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The Seroquel didn't work last night, I got up at 230am, so about 4 hours of sleep.

I'm only taking 25mg, maybe I need more? This dose worked for me in the past but I guess things have changed.

Also tactile hallucinations are up along with anxiety. I'm seeing shadows in the corner of my vision. What a pain.
__________________
* Dx: Bipolar II (finally, after years at Bipolar NOS)
* Rx: minimal dose of Lamictal

My avatar picture is a photo of the Whirlpool Galaxy I took in April 2023. I dedicated this photo to my sister who passed away in July 2016.
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  #158  
Old May 12, 2023, 04:11 PM
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raspberrytorte raspberrytorte is offline
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Quote:
Originally Posted by Scooter9 View Post
The Seroquel didn't work last night, I got up at 230am, so about 4 hours of sleep.

I'm only taking 25mg, maybe I need more? This dose worked for me in the past but I guess things have changed.

Also tactile hallucinations are up along with anxiety. I'm seeing shadows in the corner of my vision. What a pain.
I can feel your sleeping pain! I know for me I need to take 100mg of seroquel in order for it to make me sleepy. Anything lower and it doesn't work. You probably just need to up your dose!

Good luck!
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The darkest of nights is followed by the brightest of days. 😊 - anonymous

The night belongs to you. 🌙- sleep token

"What if I can't get up and stand tall,
What if the diamond days are all gone, and
Who will I be when the Empire falls?
Wake up alone and I'll be forgotten." 😢 - sleep token
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  #159  
Old May 12, 2023, 04:15 PM
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raspberrytorte raspberrytorte is offline
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Quote:
Originally Posted by Samicat View Post
Got some writing done but didn't take my bike out because I didn't want the bother of putting on sunscreen etc. I will take it out tomorrow or Saturday.

My novel is progressing sooooo slowly and I keep having revelations about things I want to add or change. I think this is normal for me but it's frustrating. I'm on the revised Chapter 6 (some of the material I wrote earlier and removed will be put later in the novel).

I'm a bit nervous about the heat wave coming soon to my area. It's supposed to hit about 94 degrees Farenheit. I hadn't even taken my shorts out yet! So I shaved my legs today and going to paint my nails lol.

Novel writing is like running a marathon, whereas a short story is like a sprint. You have to keep the momentum going for 60000+ words! So don't worry about it going slowly

Sigh. I have to shave my legs too. Really don't feel like it! Lol
__________________
The darkest of nights is followed by the brightest of days. 😊 - anonymous

The night belongs to you. 🌙- sleep token

"What if I can't get up and stand tall,
What if the diamond days are all gone, and
Who will I be when the Empire falls?
Wake up alone and I'll be forgotten." 😢 - sleep token
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  #160  
Old May 12, 2023, 04:51 PM
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Samicat Samicat is offline
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Quote:
Originally Posted by Soupe du jour View Post
I had a fight with my sister today. It's gotten to be too much. I did kind of apologize to her at the end, but really I'm not happy with the situation and am worried how things will progress when I leave the US. And yet I want to go home (to CZ) so much! I worry about her, which is part of the problem. I feel nothing I can do will change anything. Long story!

She and I went to see an art auction house representative today. I became shocked that she became frantically hyper at one point. I had to tell her when we were alone that she was, and that she needed to calm it. She said some very embarrassing things, despite. She was out of her element. Anyway, it's over. I fear the painting will likely perish in the future.

Tomorrow is my birthday. Another May gal here! After a complete breakdown, Hubby said he will take me to the shore tomorrow. I will forego seeing my sister. I told her we'd see each other the day after. I need a break! I yearn for the sea breezes and sounds...the sun on my shoulders...walking hand in hand with my Love in the sand...and a nice seafood lunch. Plus a long look across the Atlantic towards home! Only days after we finally reach that place will be our 25th wedding anniversary.

Happy Birthday! and Happy Anniversary in advance!!!
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  #161  
Old May 12, 2023, 04:53 PM
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Samicat Samicat is offline
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Quote:
Originally Posted by Aurelius710 View Post
So, I finally, at long freaking last, had my gastroenterology appointment today. It's bonkers that they scheduled this nearly a year ago, but here we are.

Part of my physical health issues revolve around a one-in-a-million genetic disorder that can affect my entire body, but particularly involve my GI tract. Think tumors, growths and the like. So, the doc scheduled a colonoscopy for me, something I've had the dubious pleasure of having semi-regularly since 19. Besides that, he got in contact with an oncologist (since this genetic disorder also carries an increased risk of cancers at a much younger age) to see if they would act as a care coordinator for the various doctors and specialists.

On a more immediate note, I've got to figure something out to address this reflux. Again, there's no obvious trigger other than laying flat in bed. Probably gonna have to find a way to sleep propped up for a while. The GI doc wants me to double up on the Prilosec my PCP prescribed for a month and see how that fares. Just gotta find a happy medium!

On a fun note, I'm revisiting a book that I've loved since childhood, Matilda. I saw and loved the movie with Danny Devito back in the day and the same for the recent musical. It seemed like time!

You can raise the head of your bed by putting wooden blocks under the feet, but obviously too high and you will slide off the bed. Also, you can use a foam bolster to raise your head and shoulders.


I used a combination of these when I had bad reflux. I raised the head of the bed and also used a bolster pillow. It really helped! I hope something works for you.
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  #162  
Old May 12, 2023, 04:54 PM
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BeyondtheRainbow BeyondtheRainbow is offline
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Happy Birthday @Soupe du jour !!!
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  #163  
Old May 12, 2023, 05:00 PM
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Samicat Samicat is offline
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I'm worried about my husband

Poor guy has been vomiting on and off for hours. He gets this about once or twice a year, where he vomits all day and then it finally stops. His doctor thinks it's some kind of migraine, but migraine meds don't help. There's also something called Cyclic Vomiting Syndrome, that I think he might have.

I actually injected him with an anti-nausea med (it was prescribed and the pharmacist showed me how). I'd never injected anyone so that was a bit scary, and then it did nothing even though I'm pretty sure I did it right (I also watched a YouTube video with a nurse showing how to inject into a muscle).

He also takes Gravol suppositories. I'm honestly not sure if anything works but he eventually stops vomiting.

Once we went to hospital after it went on for 10 hours, and they put him on an IV to rehydrate him and give him more nausea meds. He doesn't want to go to hospital but we will have to if this keeps up.

It's so weird, like a "vomit" switch is clicked in his brain and won't turn off, even though he's retching nothing. It takes him several days to recover, and he's been in a bad way mentally lately. He doesn't know anyone except his brother in our new city, and he was learning guitar but had to stop because of tendonitis (for now at least) so he's bored.

I just hope it stops soon.
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  #164  
Old May 12, 2023, 05:36 PM
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Mountaindewed Mountaindewed is offline
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I don't feel good. But I don't think I can do anything except wait it out. My GI doctor called me today and set up a follow up ER appointment for the 26th. Maybe if I lose enough weight she'll freak out and do something sooner then August. I ate some stuff for breakfast but then I felt sick after some noodles and that was mid morning. Since then I've been able to stomach watermelon and thats it. Right now I'm watching some super old Nickeloden game show called Legends Of The Hidden Temple. Its kind of annoying but it was the least anxiety provoking thing semi interesting thing I could find. Idk. I just feel kind of sad and sick today.
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  #165  
Old May 12, 2023, 06:53 PM
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Husband finally stopped vomiting and had some water, then I made him a smoothie with fruit and yogurt. His temperature was normal the whole time.
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  #166  
Old May 12, 2023, 07:36 PM
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Victoria'smom Victoria'smom is online now
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We have to get rid of our car. I was doing really well about it until my dad called. They don't understand not being able to walk far makes me feel so broken. I'm going to be more trapped in the house. This isn't fair. We've done everything right and we're still getting screwed. Now I'm home alone which I don't do well with until who knows when while the boys walk to the impound to try and get the car back. Spending the last of our money for the month. My world just got a whole lot smaller and I don't like it.
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  #167  
Old May 12, 2023, 10:48 PM
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Quote:
Originally Posted by Samicat View Post
I'm worried about my husband

Poor guy has been vomiting on and off for hours. He gets this about once or twice a year, where he vomits all day and then it finally stops. His doctor thinks it's some kind of migraine, but migraine meds don't help. There's also something called Cyclic Vomiting Syndrome, that I think he might have.

I actually injected him with an anti-nausea med (it was prescribed and the pharmacist showed me how). I'd never injected anyone so that was a bit scary, and then it did nothing even though I'm pretty sure I did it right (I also watched a YouTube video with a nurse showing how to inject into a muscle).

He also takes Gravol suppositories. I'm honestly not sure if anything works but he eventually stops vomiting.

Once we went to hospital after it went on for 10 hours, and they put him on an IV to rehydrate him and give him more nausea meds. He doesn't want to go to hospital but we will have to if this keeps up.

It's so weird, like a "vomit" switch is clicked in his brain and won't turn off, even though he's retching nothing. It takes him several days to recover, and he's been in a bad way mentally lately. He doesn't know anyone except his brother in our new city, and he was learning guitar but had to stop because of tendonitis (for now at least) so he's bored.

I just hope it stops soon.

One of my clients Daughter has Cyclic Vomiting Syndrome.
I don't think there are any meds to prevent this and she

goes to the hospital on a fairly regular basis.
It is such a retched thing to wrap your head around.

You feel so badly for him and want to help.
I feel sorry for you both.
((((((HUGS)))))
bizi
__________________
lamictal 2x a day
haldol 2x a day
cogentin 2x a day
klonipin , 1mg at night,
fish oil coq10
multi vit,, vit c, at noon, tumeric, caffeine
Remeron at night,
zyprexa,
requip2-4mg





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  #168  
Old May 12, 2023, 10:58 PM
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bizi bizi is offline
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Quote:
Originally Posted by Samicat View Post
And chicken run!

And curse of the were rabbit!!

claymation movies are wonderful to watch we have several of them.
__________________
lamictal 2x a day
haldol 2x a day
cogentin 2x a day
klonipin , 1mg at night,
fish oil coq10
multi vit,, vit c, at noon, tumeric, caffeine
Remeron at night,
zyprexa,
requip2-4mg





Hugs from:
Samicat
  #169  
Old May 12, 2023, 11:02 PM
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bizi bizi is offline
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Quote:
Originally Posted by Miguel'smom View Post
We have to get rid of our car. I was doing really well about it until my dad called. They don't understand not being able to walk far makes me feel so broken. I'm going to be more trapped in the house. This isn't fair. We've done everything right and we're still getting screwed. Now I'm home alone which I don't do well with until who knows when while the boys walk to the impound to try and get the car back. Spending the last of our money for the month. My world just got a whole lot smaller and I don't like it.
I am confused. Sorry for the confusion, they are looking for your car at the pound but your first sentence was "we have to get rid of our car"?
I am sorry for the added stress.
bizi
__________________
lamictal 2x a day
haldol 2x a day
cogentin 2x a day
klonipin , 1mg at night,
fish oil coq10
multi vit,, vit c, at noon, tumeric, caffeine
Remeron at night,
zyprexa,
requip2-4mg





  #170  
Old May 13, 2023, 01:19 PM
Soupe du jour Soupe du jour is offline
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Thanks for all of the birthday wishes, MSF Friends.

@Samicat, thanks, too, for the anniversary wishes. I'm glad your husband's vomiting finally stopped. I certainly recommend if it happens again that he seek further help in getting to the bottom of it. I had terrible vomiting with migraines in the past, but was helped rapidly from (sumatriptan) injections. Some doctors simply quickly pick the first explanation that comes to their heads.
__________________
Dx: Bipolar type 1

Psych Medications:
* Tegretol XR (carbamazepine ER) 800 mg
* Lamictal (lamotrigine) 150 mg
* Seroquel XR (quetiapine ER) 500 mg

I also take meds for blood pressure, cholesterol, and tachycardia.
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  #171  
Old May 13, 2023, 01:26 PM
Soupe du jour Soupe du jour is offline
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The situation with my sister is getting very stressful, thanks to my terrible brother-in-law. I fear he wants to jip me of some of my inheritance. That won't happen! My sister is like his pawn. Her emails and texts to me are getting aggressive and downright crazy, as well as some of her actions. It's a little better when I see her face-to-face, but then it starts up again. I fear inheritance stuff will again affect us negatively. It's so sad! It ruins relationships. Hubby urged me to take an Ativan after I said that my sister and brother-in-law would deep down wish that my plane home to Czech Republic would crash and result in my (and Hubby's) death, too.
__________________
Dx: Bipolar type 1

Psych Medications:
* Tegretol XR (carbamazepine ER) 800 mg
* Lamictal (lamotrigine) 150 mg
* Seroquel XR (quetiapine ER) 500 mg

I also take meds for blood pressure, cholesterol, and tachycardia.
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  #172  
Old May 13, 2023, 01:42 PM
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Scooter9 Scooter9 is offline
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I got accepted into the IOP program my pdoc referred me to. I start on Monday and it runs every weekday. That's going to cause problems with my gym schedule but I guess it's a trade-off.

Hopefully something good comes out of this.
__________________
* Dx: Bipolar II (finally, after years at Bipolar NOS)
* Rx: minimal dose of Lamictal

My avatar picture is a photo of the Whirlpool Galaxy I took in April 2023. I dedicated this photo to my sister who passed away in July 2016.
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  #173  
Old May 13, 2023, 01:59 PM
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Samicat Samicat is offline
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Quote:
Originally Posted by Soupe du jour View Post
The situation with my sister is getting very stressful, thanks to my terrible brother-in-law. I fear he wants to jip me of some of my inheritance. That won't happen! My sister is like his pawn. Her emails and texts to me are getting aggressive and downright crazy, as well as some of her actions. It's a little better when I see her face-to-face, but then it starts up again. I fear inheritance stuff will again affect us negatively. It's so sad! It ruins relationships. Hubby urged me to take an Ativan after I said that my sister and brother-in-law would deep down wish that my plane home to Czech Republic would crash and result in my (and Hubby's) death, too.

I'm glad you are standing up for yourself. It would be a shame if the inheritance ruins your relationships with your siblings, but that can hopefully be mended at some point. I know several people who were cheated out of inheritances (including both my parents) by family members or close friends. In one case a woman ended up homeless because she lived with her mother and received disability, and her brother coerced the mother (who had dementia) into leaving the house to him on the agreement he would take care of his sister. I feel RATHER strongly about this issue!!!! How someone behaves with money is a true test of character I think.
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Soupe du jour, VerMOZZica
  #174  
Old May 13, 2023, 02:03 PM
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Samicat Samicat is offline
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@Soupe du jour - thanks for your comments about my husband. He will follow up with a different doctor. I also read that marijuana can stop vomiting (and also cause it in high, prolonged doses but that is another issue) and I read on several reputable medical sites that the brain system involved in Cyclic Vomiting Sydrome is the endocannabinoid system. Since my husband smokes a tiny amount every few days anyway (it's legal here), it seems worthwhile to try if he gets the vomiting again.
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  #175  
Old May 13, 2023, 04:55 PM
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Nammu Nammu is offline
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Ooooo what a day. I put out the canned goods for the mailman( we’re having an area wide food drive) took the two old vacuums to the electric goods drop off. When I got back my sister and bil were here to get all the large stuff out into the garage. Then we discovered the basement got water in it from all the rain and several of my boxes got wet. So we had to empty all the wet boxes. I’m sooo mad, a box full of expensive art books was ruined and I had to throw them out. They were closes to the water and just soaked it up. They were the books I most wanted to keep! Then my nephew and bil hauled out the big furniture. The antiques and China cabinets. Then I went though the kitchen putting out all the kitchen stuff that I don’t use. The house looks so empty now. And still I’ve not heard anything back. I’ve emailed and left messages. I’m starting to really worry that I’m going to end up homeless.
__________________
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…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
Desiderata Max Ehrmann



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