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  #26  
Old Dec 11, 2023, 03:04 PM
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I've only been on it for three (?) weeks now. Until today I noticed no side effects from it.

I was put on it to hopefully lose some weight.
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  #27  
Old Dec 11, 2023, 03:08 PM
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Quote:
Originally Posted by BeyondtheRainbow View Post
Topamax made me sick. I think mainly diarrhea but also nausea. I take 25 mg because it does seem to have some benefit but I doubt it is much. Anything over 25 mg is impossible.
Do you take it primarily for mood stabilization, or are you on it for weight control?
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  #28  
Old Dec 11, 2023, 03:11 PM
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Today is a really good day. My mood is pretty good, I am getting through each day getting used to my husband.
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  #29  
Old Dec 11, 2023, 03:44 PM
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My daughter is on topamax for weight management. She says things just don't taste right.
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  #30  
Old Dec 11, 2023, 03:57 PM
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Quote:
Originally Posted by BeyondtheRainbow View Post
Topamax made me sick. I think mainly diarrhea but also nausea. I take 25 mg because it does seem to have some benefit but I doubt it is much. Anything over 25 mg is impossible.
I started it for migraines but stay on it for mood stability. I was hoping for weight loss as a side effect but my dose is too low.
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  #31  
Old Dec 11, 2023, 04:08 PM
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Quote:
Originally Posted by Victoria'smom View Post
My daughter is on topamax for weight management. She says things just don't taste right.
Yeah. My oatmeal tasted like snot or something, and I made it the way I normally do and usually it's good! I had to make myself finish it (because I don't like throwing food out).
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  #32  
Old Dec 11, 2023, 04:09 PM
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Quote:
Originally Posted by BeyondtheRainbow View Post
I started it for migraines but stay on it for mood stability. I was hoping for weight loss as a side effect but my dose is too low.
Oh okay. I REALLY hope it helps me lose weight!
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  #33  
Old Dec 11, 2023, 04:17 PM
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I had several really low days. It has passed now, I'm feeling better.

The depression just eased off, it's still present but not as bad as it was for those several days. I'm still scoring high on the PHQ-9.

I went to the gym and had a good workout, and now I'm tired but it's a good tired. I'm still having coordination issues but that might get better with practice. I bought a big protein shake on the way home.

I see my pdoc tomorrow, I'll tell her about the low days. Maybe she'll change my meds. I'll also discuss ECT with her - my family doesn't want me to do it.
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  #34  
Old Dec 11, 2023, 04:23 PM
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  #35  
Old Dec 11, 2023, 04:24 PM
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I took topamax way, way back, oh about twenty years ago. Don’t remember that it did anything positive or negative. Didn’t need to lose weight but was hoping for an increase in mood. But nothing.

I keep putting off washing clothes. Ugh it’s such a chore now that I have to use a laundry room. Really really need to get it done tho.

I was feeling sort of in the dumps. Grey weather for days now. But I went downstairs to play dice. The lady with the dice didn’t show up so I just sat with a few others and we chewed the fat. Was a fun reminiscing of old times. We did the Minnesota good bye for 40 minutes. Feeling much better now. Got my mail. And cut all the cardboard up so it’s ready to take down to recycling.
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  #36  
Old Dec 11, 2023, 04:41 PM
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I am starting to reduce my moring Topamax. Man I didn't realize how much brain fog and word salad it caused! I'm down 50mil from 75 and I'm able to talk to people. The lady at the cafe asked if I needed help and I said "oh, no. I've been helped already." Before I would have just looked at her cluelessly and then to my mom for her to answer for me.

It does cause weight loss at least for me, but you end up gaining it back eventually even if you still are taking it. I've heard that from other people too.
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Last edited by Mountaindewed; Dec 11, 2023 at 04:59 PM.
  #37  
Old Dec 11, 2023, 04:59 PM
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So I'm having massive anxiety and sh thoughts. Feel like I can't breathe and my chest is being ripped apart. Can't tell anyone. I told h about the anxiety, not about the thoughts or paranoia or sh. He wants to come home now but can't. I'm worried he can tell I'm not alright. I just want the ****en medicine so I can take it. Why does it have to be on backorder? I'm honestly thinking a little sh is harmless. But I know they won't trust me if I do that. I know he can't read my thoughts but I kinda don't at the same time like it's a possibility.
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  #38  
Old Dec 11, 2023, 05:09 PM
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@Victoria'smom

It sucks your meds are on back order. When should you be getting them?
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The night belongs to you. 🌙- sleep token

"What if I can't get up and stand tall,
What if the diamond days are all gone, and
Who will I be when the Empire falls?
Wake up alone and I'll be forgotten." 😢 - sleep token
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  #39  
Old Dec 11, 2023, 05:17 PM
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I just couldn’t stand it anymore! I was up till early this morning unable to sleep, afraid of what the Lunesta might do. I gave up at 3:30 and took it and fell asleep before it kicked in- I think! Crazy dreams ensued and I woke up at 11:30 a.m. feeling that falling into my own body feeling over and over again. I got up and talked with my non-boyfriend for hours as usual. I kept experiencing the sensation of starting the same moment in time over again from millisecond to millisecond though it SEEMED to be the normal progression of time it felt like I was stuck. N3 picked me up and he and his gf and I went to Chili’s for a late lunch. I didn’t dare drive myself. While at the restaurant I felt that I was floating next to and along with my body which eased along as I walked to and from the bathroom. I knew then that it was a good thing that I didn’t drive.

I left a message for my case manager and then called the people who intervene between patients and their providers to get my side effect experiences to my Pdoc. Soon after, I got a call from my case manager who said she’d gotten the message from Clinical Coverage that I’d called and said my Pdoc said to stop the Lunesta tonight for good and that she was putting me on Rozerem. Just for seven days. Apparently, it works with melatonin in your body. Melatonin supplements have done nothing for me so I expect this will be the same but we’ll see. Tonight, either way, will be long as I will be without any sleep aid at all.
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  #40  
Old Dec 11, 2023, 05:36 PM
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I called my pdoc office and explained about the trintellix and how very down i am and sine hes gone to part time he has no opening til next august and is trasnferring me. so now i have to see someone new and cant see them til jan 10th. i cant stop crying. i cant take this right now. i trusted him and he was nice and idk if ic an trust this shane guy. im just doing really ****** today and cant quit crying. he said there was nothing he could for me bc hes booked and i need to be seen. i JUST saw him dec 5 when he put me on that hellish med.

i just need a long drive to mysefl
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  #41  
Old Dec 11, 2023, 05:38 PM
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Quote:
Originally Posted by raspberrytorte View Post
@Victoria'smom

It sucks your meds are on back order. When should you be getting them?
We'll I have to call tomorrow and see if they were sent out. If not I have to wait until I get back from my parents house. The 20th. Then I have to take them for a week and get an EKG. Then I have the pdocs on the 8th. So we shall see. I'm not telling pdoc any of this. H says pdoc can't help if I'm guarded but he can't help anyway.
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  #42  
Old Dec 11, 2023, 05:48 PM
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Hailie Beth I'm so sorry. Maybe this Shane guy will be good. Is there a cancellation list you can get on? Since they say you need to be seen.
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  #43  
Old Dec 11, 2023, 05:56 PM
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I finally said eff it after putting it off since October and I got my flu and covid shots today. The flu shot was fine. The covid one felt like I was getting my lip pierced again. It hurt like hell. I'm worried about side effects. I do have nausea and a headache. I had a bad cough but a cough drop is helping. We'll see what tommorow brings. Today was the only day that really made sense to get them with my plans these next 2 weeks and things getting bad again.

Hopefully the side effects are just minor.
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  #44  
Old Dec 11, 2023, 06:00 PM
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Quote:
Originally Posted by Victoria'smom View Post
Hailie Beth I'm so sorry. Maybe this Shane guy will be good. Is there a cancellation list you can get on? Since they say you need to be seen.

Yeah they put me on it. but i have a really really really hard time with new providers and this is the second one to leave in a year. i have a difficult time trusting them and i really need help as im not mysfl at all right now. i cant quit freaking crying like a big baby. i have a lot of stuff going on and wish i could just see my regualr pdoc one more time but hes booked solid. he sent me a nice message but i dont have it in my heart to reply today. maybe this new guy will be good-idk. i hope. i just need help.
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  #45  
Old Dec 11, 2023, 06:27 PM
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Quote:
Originally Posted by HALLIEBETH87 View Post
I called my pdoc office and explained about the trintellix and how very down i am and sine hes gone to part time he has no opening til next august and is trasnferring me. so now i have to see someone new and cant see them til jan 10th. i cant stop crying. i cant take this right now. i trusted him and he was nice and idk if ic an trust this shane guy. im just doing really ****** today and cant quit crying. he said there was nothing he could for me bc hes booked and i need to be seen. i JUST saw him dec 5 when he put me on that hellish med.

i just need a long drive to mysefl
What a ****** way to treat your patients!! I hope Shane is good. Is there an after-hours number you can call to at least talk with somebody??
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  #46  
Old Dec 11, 2023, 07:15 PM
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Idk what happened but I’ve gone down a really negative spiral in the past few days. I had my ECT treatment on Friday and usually I feel fine aside from tiredness and soreness the next day. My thoughts have taken a pretty negative turn. Lots of SI. I’m really close to buying a pack of cigarettes and I’m only stopping myself because I know RS will be upset. I haven’t smoked since IP last year and I only smoked bc I couldn’t have my nicotine vape. But it’s like the vape isn’t enough and I want to d— anyway so maybe I can get cancer through smoking. I know that’s awful and I know I don’t want cancer and it’s an insult to anyone fighting or passed from cancer to even think that. I’m just desperate for an end.

I’m so tired of being like this. I think the ECT treatment really made me down because I’m just so tired of it. I’m so frustrated that it’s the only thing that keeps me out of depression. I couldn’t remember what I got RS for Christmas and I think that’s what really got me down. Not only that but I have to take five different meds just to keep even and they still don’t work for depression. I’m tired of being this way. I suppose I’d feel the same if I had a physical chronic illness. Sometimes it’s just enough already.

I’ve had SI for probably about a month now. Mostly passive but still. I don’t understand why people want to live. Like people are actually scared of dying and I don’t get that. I would welcome it. I’m only here for my son.

I don’t know. I’m just so tired. And I can’t tell RS any of this, it will just scare him. I see my therapist tomorrow. I don’t really see how she could help. I see my pdoc on Wednesday too, but again, I don’t see how he could help. It’s clear medication does **** all for me.

I’m over it.
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  #47  
Old Dec 12, 2023, 12:26 AM
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Damned pharmacy tech cared more about going home on time than anything else! Thanks to his laziness I never picked up my new med for sleep and even after taking Benadryl I’m still awake. I give up.
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  #48  
Old Dec 12, 2023, 03:43 AM
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Well… I’m not really doing so well since Richard retired. Sudden retirement due to health so no closure. 14 years together. I check the obituaries in his town every couple days. It’s just hard

I work hours a day on my Diamond art. I have a huge elephant one. We binge watch stuff. I try to stay busy busy. I am staying in bed to much but it’s been cold and who wants to leave a comfortable warm bed ?? Not me !

Steve’s got to have a heart echo done Wednesday and then wear a holter Monitor for 48 hours.

We have our plans ready to head down to see the kids the 22nd and plan to head home late Christmas night.

DREADING the entire trip.

Here’s my latest Diamond Art I finished . I might actually mount it on foamBipolar Check-In #78
board and hang it.

Sent from my iPhone using Tapatalk
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  #49  
Old Dec 12, 2023, 05:31 AM
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~Christina- WOW that's gorgeous. I'm so you're having trouble. Lean on us if you want/need to.
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  #50  
Old Dec 12, 2023, 10:42 AM
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Quote:
Originally Posted by ~Christina View Post
Well… I’m not really doing so well since Richard retired. Sudden retirement due to health so no closure. 14 years together. I check the obituaries in his town every couple days. It’s just hard

I work hours a day on my Diamond art. I have a huge elephant one. We binge watch stuff. I try to stay busy busy. I am staying in bed to much but it’s been cold and who wants to leave a comfortable warm bed ?? Not me !

Steve’s got to have a heart echo done Wednesday and then wear a holter Monitor for 48 hours.

We have our plans ready to head down to see the kids the 22nd and plan to head home late Christmas night.

DREADING the entire trip.

Here’s my latest Diamond Art I finished . I might actually mount it on foamBipolar Check-In #78
board and hang it.

Sent from my iPhone using Tapatalk
I wish the kids could travel up to see you two at your home. That trip is so hard on you.
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