The Fibromyalgia check in thread.😀

cakeladie · Sep 29, 2016, 08:35 PM

Welcome Lucy

cakeladie · Sep 29, 2016, 08:38 PM

Jan this for me has been the week from h e l l. Or I should say the last two weeks. Our weather went from 104 to 75 in just a couple of days. My head is pounding and every inch of me hurts. I needed that extra pain med to sleep through the night I could go to sleep right now but then hubby would say I am not spending any time with him. It's no win situation.

I just want this pain to go away just for a day or even for a few hours. Someone please help

January · Sep 30, 2016, 04:32 AM

Welcome to the thread Lucy.

Cake, I'm so sorry you're in such pain and that you can't sleep, too. I've slept 1/2 hr tonight and it's 5:30 a.m. This isn't good for either of us. Soft hugs for you!

cakeladie · Oct 01, 2016, 03:02 PM

Well I am really kinda mad and irritated. I belong to a lupus forum and lupus is hard to dx. People come on the forum with their list of symptoms and want us to tell them they have lupus which we can't. They go to a rhemy the doc runs text nothing comes up bad so the doctor says I believe you have fibro and people don't want that dx. It's almost like they think fibro is not a real and painful disease. Hello it is. I have a massive migraine and only opened up my ipad because I received an email from someone so I thought I would stop in here and on the lupus site.

I really just don't get people

January · Oct 02, 2016, 11:13 AM

Oh, fibro is so real! Those people had better accept their dx and learn some behaviors that will help them! If not, they'll just suffer even more.

I went shopping yesterday and am so sore I can barely move. I've tried to explain to my friends that more exercise does not mean I'll lessen the pain, but they don't understand and think I'm lazy. Grrrrr.

Does anyone here have dry mouth? I have Sjogrens and it comes with dry eyes and dry mouth. My dry mouth is getting progressively worse and I need tips. I've read everything I can on Sjogrens and they recommend using xyletol candy and I can't do it since it's a laxative and I have colitis. Do any of you have any ideas? The artificial saliva has has it in it, too.

Thanks for the help, my friends.

lizardlady · Oct 02, 2016, 11:50 AM

Jan, would sucking on ice chips help?

January · Oct 02, 2016, 05:12 PM

I don't know, but I'll sure try it. Thanks, Liz.

cakeladie · Oct 04, 2016, 06:20 AM

We went from it being hotter then hell now it's freezing so hubby turned on the pellet stove so I had to take extra meds head ache is full force. Thank you Mother Nature and guess what? It's supposed to get hot this weekend. I think I will just stay in bed

Gus1234U · Oct 04, 2016, 07:52 AM

i was told to use Biotene mouth rinse, for dry mouth. and my eye doc gave me some single-use drops, in their individual little droppers.. they really work~
hope they help you, Jan~

January · Oct 05, 2016, 01:12 PM

Well, my eye matted shut and I went to the eye specialist. Sure enough, I have a bacterial infection in both eyes. He said I'm not contagious, that it's bacteria from my skin that somehow got in my eyes. Who knew?

I have a stinking feeling that my regular doctor misdiagnosed me with pink eye and gave me the wrong kind of antibiotic drops. I think it gave time for the infection to bloom again and hit me hard.

Of course this is just guess work on my part...

It will all get better. It must.

Thanks for reading this!

cakeladie · Oct 06, 2016, 06:41 AM

Yay another migraine lucky me and I can't find Sunny the cat

lizardlady · Oct 06, 2016, 05:57 PM

Jan, I had an eye infection that sounds like what you have years ago. The eye doc told me that it's pretty common. He told me to be sure to clean the gunk that builds up around eyes normally really well. It's a prime location for the bacteria to grow.

Cake, I hear ya about weather woes. Hurricane that's approaching us is causing me to flare. Did you find Sunny?

cakeladie · Oct 06, 2016, 06:26 PM

Found Sunny I think the boys (cats) are mad I ran out of their treats

Kiya · Oct 07, 2016, 01:01 AM

Today I was given Naproxin for my fibro pain glares. Doc said she'd tather I take alieve. I can't get the bottle open :/ I meant to take it with me so she could open it and I forgot. Sad. I thought I'd have to fight for Naproxin but she actually gave me 90!
She's very worried that I have been without a therapist and p nurse for 6 weeks or more and that I'm doing a Valium titration on my own. But what choice do I have? I am trying to find a provider, there's just a bunch of hurdles. I really don't want to end up back in psych due to not having meds. There's gotta be a way. Stay calm and find it.
Wishing you all well!

Gus1234U · Oct 07, 2016, 05:04 AM

may you have ease, and the causes of ease~

January · Oct 07, 2016, 05:16 PM

Today has been really difficult. I worked the last two evenings sanding and refinishing a dresser and today I can barely move. I've managed to wash a load of clothes and change the trash bag, but not carry the bag out to the dumpster. My friends here think I'm lazy and it hurts so much. I know I'm not being lazy, but they just don't understand. I'm hanging on for all I'm worth. I'm not trying to avoid life. I'm trying to live it to the fullest that I can. I am so lonely and depressed today....

cakeladie · Oct 07, 2016, 06:39 PM

Jan I am in the same boat. My house used to be spotless and now I can only do one chore at a time and even that is to much. I have been struggling with migraines lately. I found 2 lumps on the back of my head. I believe they are more bone tumors. I don't want to eat I watch the clock to see when I can take my next meds. This is no life

Kiya · Oct 08, 2016, 06:53 PM

:'( cake ((((( hugs )))))

Kiya · Oct 08, 2016, 06:59 PM

I am also depressed, moody, angry. Trying to get things done with no will or motivation, and lots of body pain and panic. My success today is that I didn't go back to bed. Oh and that I reached out to an acupuncture gal to see if she can see me for $20 to help with the nerve pain stemming from my neck and radiating everywhere. It's unnerving to have that icy hot feeling through my whole left side (including face) and now spreading to my right arm. Scares me.
Hugs all!

January · Oct 09, 2016, 11:29 AM

My friend came and helped me clean out closets, move furniture, etc., yesterday. It heped a lot, but my oh my, I'm sore. We still have lots of work to do to get this place spic and span, but I won't be doing it today. I'm going to be lucky to be able to shower today. I have a lot of questions for my rheumy on the 12th.

Gus1234U · Oct 10, 2016, 10:11 AM

January · Oct 10, 2016, 10:58 AM

Thank you for the flowers, Gus. I love dogwoods. They made me smile.

I go back to the eye specialist today because my eye matted shut again and I'm in a lot of pain. Also, I'm pretty sure I have a bladder infection, but I can't get into see my Nurse Practitioner until Thurs.

I ordered a book on Sjogrens because I can't find much info. on it. I wish I could find books on Fibro and Chronic Fatigue.

I hope everyone has a better week than last week. I love you all!

cakeladie · Oct 12, 2016, 05:20 PM

Well I have a massive headache again thanks to the weather. We are supposed to get rain by Friday one minute it is 90° and then the next minute it's raining I wish mother nature would make up her mind

I went today and I picked up my burial plot kind of creepy but it had to be done I came home and I went to the bank and then I stopped and got our dinner came home and I took my meds early and now I just want to go to sleep hopefully I will be able to get some good sleep soon

I've been thinking about you guys and I hope you guys are all OK

Sending hugs to everyone of you

January · 08:35 PM

I hope you feel better, Cake. ((((( Cake )))))

I went to the rheumy today. My knee buckled in front of her and I got a big, whopping shot of cortizone in it. She confined me to the house for the next 48 hrs and told me to stay off it as much as possible. This is my last chance with cortizone for that knee. If this doesn't work I can't have anymore and have to get an MRI done on it.

I had planned to stop by the store on my way home, but I couldn't and I can't find anyone to bring me some groceries. Oh well, I'll make do. A country gal can survive!

The Dr. is sending me back to the heart doctor. I don't want to go. I don't like going to the one I saw. If the heart doctor has no answers, I have to go to a lung specialist. I'm worn out thinking about it.

My doctor is absolutely boiling mad at my Nurse Practitioner for taking me off my pain med! She is going to write my family Dr. a letter! Talk about being in the middle! I feel like I'm stuck in the crossfire and I'm very uncomfortable in situations like that.

We are increasing the methotrexate to try to help with the pain.

That's all the news that is the news at the moment...

Love to you all.

January · Oct 12, 2016, 08:30 PM

I talked to my brother tonight. If he feels up to it tomorrow, he's going to pick a few things up at the grocery and bring them to me. That's a relief.

I'm feeling very lonely again tonight. I really needed someone to listen. I tried to explain what's happening to my "IR" friends and not one of them got it. Not one. Truly, truly the only people who really understand me are my PC family. I am so thankful for all of you.

PS. I had to cancel my appt. with the Nurse Practitioner because I'm not supposed to be walking. If I have an infection, it will just have to wait. I also had to cancel appts with my T and the dentist. I would say I'm going to use the time off to clean, but if I do, I'll be on my leg and I can't. The dust will just have to wait, too!

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