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  #301  
Old Apr 07, 2016, 06:01 AM
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Pierro Pierro is offline
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Thanks ladies, it means a lot that someone cares.. Hugs to all
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  #302  
Old Apr 08, 2016, 12:18 AM
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Quote:
Originally Posted by Pierro View Post
This is the third week of this bloody pneumonia, and, although I feel better than I did , I cannot walk five steps without feeling breathless. I am so pissed off at the moment. I wish I didnt have to breathe...
Sorry guys for being such a misery guts but I just had to tell somone.
oh goodness! please take good care of yourself! Hope you heal soon!
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The Fibromyalgia check in thread.😀alt="Universal Life Church | ULC" border="0">
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  #303  
Old Apr 08, 2016, 12:20 AM
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((((Liz))))))
Yay on the horse! Boo on the flare! Hope you can get some rest and relief!
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The Fibromyalgia check in thread.😀alt="Universal Life Church | ULC" border="0">
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  #304  
Old Apr 13, 2016, 03:34 PM
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I go back to the dentist tomorrow. He's going to try to pull all four of the last remaining teeth. Oh, I hope he can do it all at once! My big brother is going to drive me there and back and that will be a huge help. Say a little, (or big), prayer for me, please.
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  #305  
Old Apr 14, 2016, 02:04 AM
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Woah - only one post in a week??? Is everyone alright?
Many prayers for you, Jan!!! Pocket rider!

I am struggling with food and how it hurts my body. Pretty much anything I like or tastes good hurts my body. All the things i'm supposed to eat taste HORRID and I can't choke them down. Meh.
Ok you all - fare thee well!!!
Thinking about you!!! Nothing is too insignificant to write! HUGS!!!!
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The Fibromyalgia check in thread.😀alt="Universal Life Church | ULC" border="0">
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  #306  
Old Apr 14, 2016, 04:23 AM
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Kelentaria Kelentaria is offline
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I would like to join y'all in the Fibro section... I have had Fibro since I was very young, but didn't get it diagnosed until last year. My doctor had no idea what it was and thought I was a drug seeking. I was like seriously? I already can't take any of the crap "drug seekers" would want anyway. He was really expensive and didn't do much of anything. After I lost my job, a blessing in disguise happened, my psychiatrist was moving to a smaller facility, so he would have less responsibilities, so he could focus more on helping the patients he has on a daily basis instead of handling ever crisis. I was upset because I had been seeing him for months and I had just finally gotten comfortable enough with him that I could talk to him about anything I needed to. So, although I didn't have 100 dollars a month to see him I made it work. Now back to the other bit, now that you know how I ended up there, I didn't know that it was not just a mental health facility, one side was also a private practice doctors office. Instead of costing me over 100 for my old doctor to jerk me around and beat around the bush, I spent 25 per office visit and my doctor went out of his way to make sure I got what needed and quite a bit more. He preformed a lot of the testing himself. Which from my experience is kind of rare because they print out the order and tell you to go somewhere else. It also doesn't help that he looks just like Matthew Broderick. (like inspector gadget and Ferris Buelar's day off. God every time this guy smiles I feel either microscopic, or I want to melt into a puddle in my shoes. Embarrassing! He is the one that diagnosed me with fibromyalgia, chronic fatigue syndrome, and chronic Migraines. I am sure there would be more diagnosise, but I had to stop testing because it got to expensive. The next test he wanted to run is a blood test to see if I have a thyroid condition, or diabetes. But more than that to properly diagnose my knees, my neck, my back, and my left wrist I need MRIs. I ran the numbers, I was looking at more than 9,000 dollars not covered by insurance because I don't have any (under federal law I have exempt status). But the best news was that I knew what was causing my pain and have a new medication to help with the pain. (Cymbalta) which paired with my EffexorXR works pretty well, until the weather changes, or I get a stiff spell, or it wears off early. Other than that significant reduction in pain. I do have to be careful though because it does interact with some of the other things I take. Mostly it just makes me sleep more during the day and dizzier than I was before. Some shaking and tremors have happened, but it is worth it.
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  #307  
Old Apr 15, 2016, 04:35 PM
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Welcome Kelentaria! You will find everyone here is very nice and supportive.

Well, the dentist was able to pull the last of the four teeth yesterday. I have stitches, but I am so relieved! The worst part is hopefully over and in 8 weeks I can go get the molds made. I am exhausted at the moment, but feeling so blessed.

Hugs to all!
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I still dream and I still hope, therefore I can take what comes today.
Jan is in Lothlorien reading 'neath a mallorn tree.

My avatar and signature were created for my use only and may not be copied or used by anyone else.
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  #308  
Old Apr 15, 2016, 05:49 PM
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Gus1234U Gus1234U is offline
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{{{{ Jan~! }}}} keep thinking of that new smile,,, just around the bend~
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  #309  
Old Apr 17, 2016, 09:45 AM
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Thank you, dear Gus. Right now I'm running a fever and am very tired, but this too, shall pass. Thank you for all your support and love going through this. It means so much to me.
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I still dream and I still hope, therefore I can take what comes today.
Jan is in Lothlorien reading 'neath a mallorn tree.

My avatar and signature were created for my use only and may not be copied or used by anyone else.
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  #310  
Old Apr 17, 2016, 12:44 PM
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Hang in there Jan. The end is in sight!
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  #311  
Old Apr 19, 2016, 05:28 PM
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Calico_91 Calico_91 is offline
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I have fibro, too!
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What a long, strange trip it's been.
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  #312  
Old Apr 19, 2016, 05:29 PM
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Thank you, Liz. I really appreciate it. I was able to eat a little bit today. Tomorrow will be an even better day!
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I still dream and I still hope, therefore I can take what comes today.
Jan is in Lothlorien reading 'neath a mallorn tree.

My avatar and signature were created for my use only and may not be copied or used by anyone else.
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  #313  
Old Apr 19, 2016, 05:31 PM
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Hi Calico. Welcome to the group. You'll meet so many nice peeps here. Again, welcome!!!!!!!!
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I still dream and I still hope, therefore I can take what comes today.
Jan is in Lothlorien reading 'neath a mallorn tree.

My avatar and signature were created for my use only and may not be copied or used by anyone else.
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  #314  
Old Apr 20, 2016, 02:29 PM
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cakeladie cakeladie is offline
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Hey everyone I am here I am just not doing to well. Lots of I seizures, stomach issues and just not doing well in general.

I hope everyone is ok. Jan I am so sorry you are going through this and I have not been around to support you I am sorry.

I guess I am just feeling sorry for myself and I wait till my husband gets home I take my night meds and eat dinner and we are in bed by 8 pm (he gets up for work at 4 am) I don't really talk to anyone but the cats and if you have time stop my my page and see their new picture.

I stay in my room till right before my husband gets home and I do a few chorus and that's it. With lupus fibro RA it's really to much sometimes but I appreciate everyone of you
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  #315  
Old Apr 22, 2016, 01:00 PM
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((((( Cake )))))

Oh Cake, it is so good to hear from you! I've been very worried about you. Just take your time and do what you can as you can. The rest will sort itself out.

I love you, Cake. You are not alone.
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I still dream and I still hope, therefore I can take what comes today.
Jan is in Lothlorien reading 'neath a mallorn tree.

My avatar and signature were created for my use only and may not be copied or used by anyone else.
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  #316  
Old Apr 22, 2016, 02:46 PM
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cakeladie cakeladie is offline
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Jan you don't know how much that means to me.

Thank you

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  #317  
Old Apr 24, 2016, 02:40 AM
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Septembersrain Septembersrain is offline
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Hi guys. How is everyone? I'm alive but my health is sorely lacking. I'm out of work again and might be forced to get on disability.

So frustrating...

Sent from S6 Edge using Tapatalk.
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(ᵔᴥᵔ)You'll struggle but as long as you're alive, you've got a chance.(ᵔᴥᵔ)
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  #318  
Old Apr 27, 2016, 06:58 PM
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I definitely don't want any cheese to go with this whine. I don't know if it's part of my fibro, IBS or a bug, but I've been best friends with the toilet today. At one point I was talking with one of the kids I work with and felt "inner rumblings". I quickly told him he should go back to class. He probably thought I was nuts. Then I sprinted to the bathroom. After the third emergency trip to the loo I decided it was time to go home. The hour commute to get home was not pleasant! Made some plain rice for dinner.

whine....

whine....

whine.....
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  #319  
Old Apr 29, 2016, 12:32 AM
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jaynedough jaynedough is offline
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Hi. I've lurked in this forum off and on. Thought it was time to say Hi.

Ive had fibro, as well as other issues for a long time. Lately, it feels like I'll never again be even semi-functioning (for some reason, my autocorrect changed that to "senior in crooning", lol)
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  #320  
Old Apr 29, 2016, 06:31 AM
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Quote:
Originally Posted by jaynedough View Post
Hi. I've lurked in this forum off and on. Thought it was time to say Hi.

Ive had fibro, as well as other issues for a long time. Lately, it feels like I'll never again be even semi-functioning (for some reason, my autocorrect changed that to "senior in crooning", lol)
Hi Jayne. I'm sorry you qualify as a member of our group (ie have fibro). Welcome! PC is a great place, but the folks who post to this thread are the best.

Don't you love autocorrect?
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  #321  
Old May 06, 2016, 06:59 AM
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Almost looks like we have abandoned this thread
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  #322  
Old May 06, 2016, 07:36 AM
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Septembersrain Septembersrain is offline
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Not quite, I just think we're all busy dealing with our own issues. Fibromyalgia is unfortunately usually accompanied by all kinds of other health side effects.

It most likely takes a lot out of us just getting by day after day.

Hope everyone is hanging in there!

Sent from my iPhone 5c using Tapatalk.
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(ᵔᴥᵔ)You'll struggle but as long as you're alive, you've got a chance.(ᵔᴥᵔ)
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  #323  
Old May 07, 2016, 12:26 AM
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The Fibromyalgia check in thread.😀
Thanks for this!
January, lizardlady, Septembersrain
  #324  
Old May 09, 2016, 05:03 AM
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January January is offline
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Hello my friends,

I'm sorry I haven't been here. I've just been so sick that I haven't been up to posting. My feet and legs doubled due to fluid and I've been stuck in bed or in the recliner. I have a desk top so it's been sort of hard to post. I'm doing some better. Today I go back to the Dr and learn if I have to go to the kidney specialist for it.

My psych meds had me sleeping at least 12 hrs a day and I got the last of my teeth removed. Yay for that, but there is a lot of pain involved in it.

I'll try to be a better participant here. I apologize for not being here for you.

Love you all!!!!!!

Jan
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I still dream and I still hope, therefore I can take what comes today.
Jan is in Lothlorien reading 'neath a mallorn tree.

My avatar and signature were created for my use only and may not be copied or used by anyone else.
Hugs from:
cakeladie, jaynedough, ~Christina
Thanks for this!
Gus1234U
  #325  
Old May 10, 2016, 02:35 AM
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~Christina ~Christina is offline
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Hey gang,

I am also sorry I haven't been around. Had an IP stay almost a month ago due to the pain and bipolar and just plain overwhelmed with life and not safe. Leaving IP I had a lot of changes I hoped to make in my life but they just haven't been working out. I need to find a new way to fit a square peg in a round hole.

Although I have been getting some relief from the weekly Lidocaine infusions I have to cut back to bi weekly due to the financial situation..

I had to take a break from PC.. self care ya know. Hopefully I will be around more and feel like I have something useful to offer anyone.

Gentle hugs and love to all. Be good to yourselves
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