[lizardlady]

Cake, I don't think I'd get approved for SSDI. The idea of going for any period of time with no income scares the crap out of me. I've had periods in my life in the past when I wasn't sure how we were going to afford food. I swore I would never, EVER go back to being that broke. It's what motivates me to drag my but to work each day.

[cakeladie]

I get that when I got so sick and could not work I thought we would lose the house. What I did not know is that my work had std and ltd I really did not know much about it other then then took like $2 out of each paycheck. I did learn when I was pregnant that the std was for short term disability and with that and my sick time and vacation time carried me through my pregnancy and delivery and until the baby got out of the NICU.

Neither my boss nor I knew what LTD was we thought it had to do something like if you had to go into a nursing home. If I am found disabled my work has to make up the difference in my SSDI. No one in my department knew that.

My life changed in the matter if minutes with that first seizure. I did not have a choice. For a year I did chemo and that year I spent more time in the hospital then at home. I was sacred 2 kids one with special needs and I made more then my husband plus our insurance was through my work. So I get it. I was up nights and I cried for hours.

The warning signs were there and I did not listen. I worry about you Christina jan Kiya and everyone. You are all good people and I know there are people out there that are getting SSDI or SSI that could work. I fought filing for SSDI but if I had not filed for it my work would have on my behalf

Just know you guys are in my heart and prayers

[Kiya]

Originally Posted by lizardlady

Wow, reading what everyone else is dealing with I feel foolish coming here to b i t c h about a fibro flare. I swear to gawd even my hair hurts. I'm so exhausted I fell asleep sitting up on the sofas the last two nights.

I've got to work four more years before I can retire. Times like this I think I'll never make it.

(((((Liz))))) Fibro flares = hell. We all know it. Don't feel bad about talking about it, k? This IS the fibro page, after all Let's be honest, flares are worse than the flu. There is nothing good about a flare.
Much support to you!!

[coyoteugly11]

Having a major flare which sucks. just as I started to get on top of the mental health then the physical kicks off. Oh well off to snuggle with hot water bottles and my dogs

[January]

I got too hot and ended up with a huge histamine reaction. I have welts about the size of my palm and the length of my hand. I had to go to the Dr. for it and now I have meds to take and ointment for it.

My left eye is worse. I am having trouble seeing out of it. The next time it hurts as badly as it did last night, I'm going to give up and have someone drive me to the E.R. Hopefully they can at least numb it for a while.

The Dr. also gave me B-12 shots to help with the fibro fatigue. I can give my own shots and I am so hoping this helps. Have any of you taken B-12 and has it helped?

I am having company today. The kitchen has a few dishes in the sink. I just don't feel like cleaning it up, so I guess it will remain as it is until tomorrow. Hopefully tomorrow will be a better day.

Gentle hugs to you all.

[cakeladie]

Hi guys not sure what's up with me if I could I would just hide in the closet and sleep.

Kiya what did the doctor say? Surgery? If so when.

Jan I know you are on mexo do you know that it harms your liver ? I had to stop taking it because it destroyed my lungs and my liver. My liver has to many cysts to count. I know you are worried about your liver so I thought I would
share this info with you. I wished someone had shared it with me.

Liz you my friend are our rock. I wish I could be more like you.

Christina we miss you my friend. I hope everything is ok.

We lost bubbles. She never posts anymore and that is sad.

Thank you guys for all you do

[January]

Yes, Liz, you are very brave. I wish I could be more like you. I was thinking about you in the night last night. You are definately a role model.

Cake, I wish I could help you somehow. You are so sweet and kind.

Kiya, check in when you can. Ok?

Yes, we lost Bubbles. I miss her.

I feel like I have the flu. Yesterday I slept all afternoon, which isn't like me. I don't know if I couldn't face life or if I was that ill. Maybe both. Today I discovered I forgot to take my methotrexate. Maybe that's why I feel so rotten.

Cake, I do realize the methotrexate hurts my liver. I'm afraid to take it, but I literally can't walk without it. I can't bend my knees without it. I live all alone. There is no one to help me, so I have no choice but to take it. I think it will ultimately shorten my life, but I don't know what else to do.

I had a Drs. appt. today and I cancelled it. I just couldn't get ready and go to it. I have no energy and I ache and am running a fever. A fever is not good because it might set off the histamine allergy places again, which are just now beginning to get better.

I hope you each have a good day. I love you all.

[lizardlady]

Thanks for the kind words ladies. I don't feel like a rock or a role model. I feel like a whiny crybaby.

On top of the current flare I've come down with an upper respiratory bug. Sinuses are swollen. Ears hurt. Am exhausted. Fell asleep - sitting up on the sofa - at 8:30 last night. Am taking over the counter stuff to try and deal with it. If that doesn't work I'll go see the doc. Time for my annual check-up anyhow.

[January]

((((( Liz )))))

I hope you feel better very soon. Take good care of yourself and let us know how you are doing.

Love you!

[Gus1234U]

[January]

I'm here. I'm out of my steroid drops for my eyes, so tonight is going to be interesting. I'm going grocery shopping tomorrow and hope I don't get too hot so the monstrous hives don't come back. They are a lot better.

My panic is out of control. I don't know what any of this has to do with fibro, but I know it's all connected. My fibro is acting up to the point where I can't stand to touch my skin. There is so much I need to do but I have no energy to do it. I keep trying to tell my friends I need help, but no one listens except for you here. Thank God, literally, for all of you.

[lizardlady]

Need some cheese to go with this whine....

Am a mess. Hurt all over. Sinuses and ears hurt. Exhausted. Having chills and hot spells. Fibro fog so thick it's like I have no functional brain cells. Not sure what's fibro, what's chronic fatigue and what's upper respiratory infection. Have decided I am calling the doctor on Monday unless I do a major turn around before the.

[cakeladie]

Hey guys I did something to either my back or my side. I know I have RA and it's in my back and I know my. Muscle spasms at time in my legs but I really never had it in my back this bad. I am hunched over and the pain is real bad. B

I am so sick of being sick and tired I wanted to go to the grocery store but nope not happening. So I cried and said why me I took my night meds a little early and I have a heating /massage bad on the area that hurts plus 2 pain patches and I even took Motrin PM

I hope everyone is having a good weekend

Hugs

[January]

((((( Liz ))))) ((((( Cake )))))

I hope you both feel better very soon. I'm so sorry that you are both under the weather and feeling terrible. I am sending you good prayers and good vibes.

Does fibro cause extended hot flashes? They're not flashes; they last for what seems to be an eternity.

I got back from shopping and had infection in my eye again. I don't want to have to go back to the eye Dr. this week and start more meds. We'll see.

Everyone, I hope you have a good Sunday.

[Kiya]

Jan, they are titrating you too fast off the Clonopin. Your body is reacting big time. You've got to tell them and see if they can get it calm down. Fibro is the body attacking itself and your panic is only going to increase it. Our country really doesn't know what the heck it's doing with these medications. I know it's hard but you've got to go advocate for yourself on this!
Liz, I'm so sorry you're feeling so bad! I am in the same boat of not knowing what belongs to what, between the fatigue the pain the sore throat the sinuses… It's a mess. I sure hope you are feeling better soon!
Cake, same for you also, I'm sorry you feel so bad and I hope that you will feel better soon and be able to do the things you need to!

Hugs all!!

[January]

Kiya, thank you for telling me this. I'm not sleeping well, and my nerves are shot. I increased the klonopin 1/2 a mg. on my own. I may have to increase it another 1/2. I was trying to get off it quickly so I could get off the Dr's merry-go-round. I didn't know it could cause all these symptoms. Thank you for validating me. It means the world to me.

PS. Can going off klonopin too quickly make you have no appetite at all? I can barely tolerate looking at food, much less eating it. I'm getting malnourished again, and, come to think of it, dehydrated.

[Gus1234U]

i hope this helps your appetite, Jan ...
(try putting a little lemon juice in your water to sweeten your stomach ? )

may some sweetness come into each of your lives, and the troubles flee~~

[January]

LOL Gus. Now that takes the cake!

Thank you very much!!!!!! Love you!

[cakeladie]

Going off a med to fast can cause a boat load of issues.

Our weather has been hot one day cold and raining the next then hot muggy and raining. I am fighting a respiratory infections and last night around 12:15 am my stomach decided it wanted in on the actions. My hubby said he did not know I could move that fast. I stayed in the front room till 4 am well the front room with lots of trips to the bathroom. Then at 4 am when hubby got up at 4 am I went to lay in bed but still had to keep getting up. Finely my morning meds kicked in and I slept for a couple of hours but once up it started all over again.

There are days I just want to give up it's not fair. None of us deserves this

[January]

((((( Cake )))))

I'm so sorry you had such a horrible night. I hope tonight and tomorrow are much better for you. I hope you can get some sweet, refreshing rest tonight.

I skipped going to my gastro appt. today. I just didn't feel up to it. I didn't spend my time cleaning the apartment like I should have. I spent it sleeping. I have an appt. with the t at 10:45 in the morning and I just hope I have the energy to get it in gear and get there.

You are on my mind and in my heart, my friends.

[lizardlady]

Cake, sounds like we got the same bugs. I'm finally starting to beat the respiratory thing. Then spent Monday night in the bathroom. Missed a work related meeting yesterday morning because I had my head in the toidy. Went to bed at 7:30 last night and slept 11 hours. Could stand to still be in bed, but can't miss any work this week, too much going on.

Jan, I hope you have the energy to make it to your t appointment.

Hang in there everyone!

[January]

((((( Liz )))))

Liz, I hope you feel better. There is nothing worse than being sick and having to drag yourself to work. Let us know how you do.

I managed to go to see the t. He's a young man, who has an interesting take on things. I have to go back in two weeks. He had a pair of Michael Jackson sequined gloves that light up and they made me smile, so he gave them to me! That was nice.

I am having company on Saturday. This is someone I haven't seen in 20 years and who means a lot to me. I am giving myself Thurs. afternoon and Friday to clean the apartment. It normally wouldn't take that long, but I have to do a little bit and then sit down for a while.

I called the eye Dr. about my left eye. It's infected again. They are supposed to call me back this afternoon. I am hoping he just calls in a script, because I don't want to drive all the way back into town today.

I hope you all feel better. Thank you for reading my posts. Thank you so much for caring. I love you all.

[cakeladie]

Someone just shoot me this pain is unreal

[Kiya]

Ugh... All us sickies!!! I've been down with a bad sinus infection 14 days no I think. Finally got some Sudafed and things are starting to turn around.
Lots of long distance hugs all around!!

In the morning I have a consult for a hysterectomy with the surgeon. I'm numb at this point- no feelings. My friend blew me off and that upset me. I really have no support for this. I'm going to ask to do recovery in the psych hosp near them; medical and preemptive mental support.

Jan, I don't know about the lack of appetite. Shoot! I forgot to pick up my Meds. Anyway, I hope you can get this figured out.

Back to wellness everybody! At least as well as we can get!!
Hugs

[Gus1234U]

how you all manage to hang on is more than i can say~