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#1576
Nov 05, 2015, 06:45 AM
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Hi EveDallas. Welcome. I'm going to echo what Jan said. Look for a "rheumatologist that believes in and helps people with fibro."
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 cakeladie, January, Kiya
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 EveDallas, January
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#1578
Nov 05, 2015, 08:46 AM
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Hello lettingGo. I do hope that you are not in pain, *hugs for everyone* this is a very lonely disease.. Welcome EveDallas... Keep posting. Find a good rheumatologist. That is my advice and take it from there..
Sent from my iPhone using Tapatalk
__________________
"The two most important days in your life are the day you were born.... and the day you find out why" ~ Mark Twain |
| cakeladie, January
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| cakeladie, EveDallas, January, Kiya, LettinG0
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#1579
Nov 06, 2015, 06:42 AM
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I am having a really nasty flare. Pain was so bad yesterday I was close to tears. Left work early and came home to curl up under my heated throw. TGIF so I can have a couple days to rest.
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| cakeladie, January, Kiya, ~Christina
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| January
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#1581
Nov 06, 2015, 09:57 AM
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I am currently in the land of " I hate the world" I can't take a trip to some exotic place where fuzzy tasty drinks with umbrellas are served, so I will try for a weekend sleep coma. So today I am cleaning house so it will reduce the amount of guilt I will feel if I hide from the world.
Gentle Hugs and cupcakes to everyone
__________________
Helping others gets me out of my own head ~ |
| cakeladie, Calamity Jane., January, Kiya, LettinG0
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| cakeladie, January
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#1582
Nov 06, 2015, 08:38 PM
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Jan, I'm residing in the land of "hate the world" too. My best friend called tonight and I groaned when I saw who was calling. I love talking to her, but didn't want to have to be social tonight.
People suck. This disorder sucks. The whole stinkin' world sucks.  Am going to take my nasty tempered self elsewhere in the forums..... |
| cakeladie, Calamity Jane., January, Kiya, ~Christina
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#1584
Nov 07, 2015, 07:01 PM
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Big hugs to all of you who are not your normal happy selves. I loves ya anyway!
I posted this elsewhere, but thought you might need to know that this is a real problem... After doing some research, I found out that my antibiotic can cause panic attacks. This taken by a person who has Panic Disorder. I'm so nervous and well - panicky. I have only four more days of the antibiotic to go. This, too, shall pass.
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I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
| cakeladie, Kiya
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#1585
Nov 07, 2015, 07:47 PM
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((((((( All )))))))
I have been in PC less and less... my DID system took a shaking after my former therapist finally died from cancer Oct. 10th. Other stressors and virtual disappearance of my former pnurse (who agreed to support me through an online DID program) has made it so that the Self is in jeopardy. Another internal adult (Elsa) has been spending more and more time as the front runner, which means I'm not present to remember to come to PC. It looks like Elsa is taking over - relieving me of my duties, as it were. It is sad, I feel myself fading to the back (or altogether when we stare at nothing for periods of time), but I want you all to know that I have appreciated your accepting welcome of me to the group and your care for me. I (Observer self, former front runner) will continue to think of you when I am "present" and try to get in here to say hello if poss. Elsa doesn't really connect with PC and has a lot going on to run the system... she has several times before - like our last several year absence from PC. Please take care of yourselves; treat yourselves with care, sleep, proper food, and love. I will be here when I can.... hugs, .... me
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Credits: ChildlikeEmpress and Pseudonym for this lovely image.   alt="Universal Life Church | ULC" border="0">
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| cakeladie, Fuzzybear, January, lizardlady, ~Christina
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| Bubbles&Buttercup, January, Pierro, ~Christina
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#1587
Nov 07, 2015, 09:36 PM
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Kiya - forever hugs - forever friends.
__________________
I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
| cakeladie
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#1588
Nov 08, 2015, 12:14 PM
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{*{*{*{*Kiya*}*}*}*}
Do what you need to take care of yourself. You'll be in our thoughts. 
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| cakeladie, January
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| cakeladie, January
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#1589
Nov 08, 2015, 12:27 PM
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((((Kiya)))) come back soon
 Sent from my iPhone using Tapatalk
__________________
"The two most important days in your life are the day you were born.... and the day you find out why" ~ Mark Twain |
| cakeladie, January
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| January
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#1590
Nov 08, 2015, 11:04 PM
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I have been coughing up blood for the last few days. It's part of the lupus which has destroyed my lungs. It really stinks. I will call the the doctor tomorrow but there is not much they can do. With the he added stress of what's going on with the kids plus our up coming trip it might just be to much for me to deal with right now.
I am so tired, tired of this illness and tired of being sick all of the time 
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| January, lizardlady
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| Bubbles&Buttercup
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#1591
Nov 08, 2015, 11:18 PM
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Omg this thread. I'm so glad I joined here.
I'm laying in bed with every joint and muscle in my body aching. Even my teeth. If I go to the restroom one more time, I'm going to cry. My IBS is raging out of control. I'm so home bound right now I can't even imagine a short trip to a Walgreens within walking distance. The new meds were doing so great until I started passing out from them and woke up with a stutter. Slowly the meds have left my system but I'm back to being exhausted and feeling like I got hit and runned by a Mack Truck. =( I really hope they try a new medicine soon. As I am, I can't even work. Thankfully while I try new medications, I'll be working from home so no safety issues with driving. This is a small consolation but at least I'm finally trying to get help with the pain after years of self medicating with Tylenol PM and Xanax.... Sent from my iPhone 6s using Tapatalk.
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(ᵔᴥᵔ)You'll struggle but as long as you're alive, you've got a chance.(ᵔᴥᵔ) |
| January, LettinG0, lizardlady
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| Bubbles&Buttercup
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#1592
Nov 09, 2015, 05:41 AM
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Quote:
CakeLadie, I am sorry that you are feeling so bad. Stress piled on top illness Is not a good combination at any time! I hope you are wrapped up in your heated blanket. With your advice I am getting a heated blanket, thanks for the practical advice. Can you take a hot whiskey, it may help. * hugs to all * Sent from my iPhone using Tapatalk
__________________
"The two most important days in your life are the day you were born.... and the day you find out why" ~ Mark Twain |
| cakeladie, January
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| cakeladie, January
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#1593
Nov 09, 2015, 05:47 AM
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Quote:
Hey Septembersrain, I feel helpless that you are in pain and all I can do is console you and hope that your flare goes away soon.* sending hugs* ( and moist toilet wipes) Sent from my iPhone using Tapatalk
__________________
"The two most important days in your life are the day you were born.... and the day you find out why" ~ Mark Twain |
| January
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| Septembersrain
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#1594
Nov 09, 2015, 10:49 AM
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So glad I took that Tylenol. I woke up today very sleepy but pain is minimal. Perhaps I'll have a good day.. If I can just stay out of the ladies room that is.
Sent from my iPhone 6s using Tapatalk.
__________________
(ᵔᴥᵔ)You'll struggle but as long as you're alive, you've got a chance.(ᵔᴥᵔ) |
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#1595
Nov 09, 2015, 12:32 PM
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Cake, as Pierro said, wrap up tight in that heated blanket and take care of you. Let the other things go. You are the most important! ((((( Cakeladie ))))))
SeptemberRain, welcome to the thread. I am so sorry you are sick. I have Ulcerative Colitis, so I understand the bathroom trips and being too weak to walk or stand. Do you have a good gastroenterologist? Mine made my life worth living again. I hope you have one like mine. Take good care of yourself.
__________________
I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
| cakeladie
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| LettinG0, Septembersrain
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#1597
Nov 09, 2015, 03:09 PM
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Quote:
Yeah I do. He's the one who tried me on amitriptyline. It worked so well except they think it might have caused seizures. It really did help me sleep and plugged me right up! Ahh. It's a game of playing which side effects are beatable and which aren't. I'm thinking their next try will be with Lyrica . Anyone here try that one? Sent from my iPad Mini 3 using Tapatalk. 
__________________
(ᵔᴥᵔ)You'll struggle but as long as you're alive, you've got a chance.(ᵔᴥᵔ) |
| cakeladie, January
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#1598
Nov 09, 2015, 03:14 PM
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I am on lyrica Septembersrain. I don't find it much good but it has lessened the sciatica in my legs
Sent from my iPhone using Tapatalk
__________________
"The two most important days in your life are the day you were born.... and the day you find out why" ~ Mark Twain |
| cakeladie, January
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#1599
Nov 09, 2015, 05:37 PM
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Quote:
Does it help at all with sleep? What are the side effects you experience? Sent from my iPhone 6s using Tapatalk.
__________________
(ᵔᴥᵔ)You'll struggle but as long as you're alive, you've got a chance.(ᵔᴥᵔ) |
| cakeladie, January
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#1600
Nov 09, 2015, 05:55 PM
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Sleep... Lol no. Not for me anyway. I take it in the morning and again in the evening. At first, when I started taking it, I was very tired but I wish it would make me tired now. The only side effect is that my skin crawls sometimes but to be honest, I can't say that it is lyrica. I am on a lot of meds. The side effects are endless if you read the information leaflet, but everyone is different. Sorry I can't be of more help
Sent from my iPhone using Tapatalk
__________________
"The two most important days in your life are the day you were born.... and the day you find out why" ~ Mark Twain |
| cakeladie, January
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| Septembersrain
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| Closed Thread |
This is an old thread. You probably should not post your reply to it, as the original poster is unlikely to see it.|
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My Support Forums is the online community that was originally begun as the Psych Central Forums in 2001. It now runs as an independent self-help support group community for mental health, personality, and psychological issues and is overseen by a group of dedicated, caring volunteers from around the world.
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