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  #501  
Old Apr 10, 2020, 10:14 PM
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Wild Coyote Wild Coyote is offline
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Originally Posted by Innerzone View Post
Well, doing better today, thank you for asking. Last night was VERY rough. It started ramping up and I jumped in the shower and put on "well sufficient" jammies just in case I had to go to the hospital, though I was DETERMINED not to. As long as I could take it, minute by minute. Was working my mind HARD doing my little amateur version of biofeedback. It went on for hours like that. Ugh. Shockingly, eventually I was able to get some sleep, though I couldn't bear laying down. That area still isn't right, but hopefully it won't go nuts again like last night.

I LOVE THIS!! (Black olive fan here...)
I hope you feel better soon! Well...ASAP!
Much love to You!
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  #502  
Old Apr 10, 2020, 11:26 PM
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Originally Posted by childofchaos831 View Post
Well, the modafinil isn't working anymore... we're falling asleep in IOP again. During check in while people are talking. We try to fight it, and we just can't. We called our neurologist this morning and talked to the medical assistant and she was gonna ask the doctor but we didn't hear back today... they do close at 1 on Friday though. So hopefully Monday. At least it's the weekend and we can sleep if we need to...

Mood wise, we could be a little better but it's not awful. We don't get our Abilify for another week which will be the 5 week mark. A week late. We're a little nervous about that. We're already having some psychosis, hallucinations and delusions. Hoping it doesn't get too bad.

We relapsed over the weekend on alcohol. The PTSD stuff got really bad... We haven't had any since Tuesday.

Well, that's our current life in a nutshell.
Sorry you are having trouble with the modafinil Sometimes, a dose increase can help. I was on 600 mg at one point!

Hope the psychosis does nto get too bad. Hang in there!!!!
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  #503  
Old Apr 10, 2020, 11:30 PM
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Originally Posted by whatever2013 View Post
@bpcyclist: I was in Corfu in 1987! Just missed you!

In my own news, i got a little boost today when i re-arranged some furniture to get more light in here. I know things are improving when i re-arrange the furniture! It was the third day of my withdrawal from Lamictal yesterday (with doctor's agreement of course) and i was so tired and sleepy i slept for 12 hours. Good times!

The news continues to be troubling. I only watch a national one-hour program on our public broadcaster as it's so well-done. My IRL support group has set up a "warm line." This is a mental health support number you can call to chat for half an hour with a peer-support worker when you need connection but are not in crisis. I really should call. It's got limited hours tho and isn't available statutory holidays which is when i need it most, but i guess they're doing what they can. They've started a Facebook lounge and several online events. It's really a good organization!

I am wondering if COVID-19 will change the world permanently? Like if even after a vaccine is found, we will still continue to conduct more of our lives online? It's fine with me!
That is a crazy coincidence!! Did you take the ferry from Brindisi?

I do think things are going to be different for a long time, I do. I think it is going to be a struggle for all of us, unfortunately.

Prayers for all of us!!!
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  #504  
Old Apr 11, 2020, 07:02 AM
Anonymous35014
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I don't feel right today. I'm just hoping today will be an "off day" and that things will return to normal tomorrow because I feel really, really weird right now... I just don't feel right and can't pinpoint what it is.

As far as sleep goes, I fell asleep at 9pm and woke up at 6am, but I had to take a klonopin to make sure I slept. Kinda sucked. Also, I skipped my rexulti because I think it's been f***ing with me as of late. I don't know what to do about it, but I apparently have a pdoc appt on April 16th. I think this will be my last appt because I can't deal with Tweedledumbass and Tweedledee.
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  #505  
Old Apr 11, 2020, 07:39 AM
fern46 fern46 is offline
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Originally Posted by bluebicycle View Post
I don't feel right today. I'm just hoping today will be an "off day" and that things will return to normal tomorrow because I feel really, really weird right now... I just don't feel right and can't pinpoint what it is.

As far as sleep goes, I fell asleep at 9pm and woke up at 6am, but I had to take a klonopin to make sure I slept. Kinda sucked. Also, I skipped my rexulti because I think it's been f***ing with me as of late. I don't know what to do about it, but I apparently have a pdoc appt on April 16th. I think this will be my last appt because I can't deal with Tweedledumbass and Tweedledee.
Hey Blue. I wanted to be honest and say I'm concerned. You've mentioned your therapist didn't understand your special connections to others and that you've been watching tons of YouTube. The feeling of the presence has also returned. You've had these kinds of behaviors in the past and they didn't lead to great places. This seems like a bad time not to take your meds.

You stopped taking the Rexulti a few weeks ago and it got very out of control to the point you were in crisis as recently as last week. These medications take a while to work properly and they wreak havoc on the mind when you suddenly shift the levels. Rebound psychosis is a big concern and it seems like that has happened to you a few times recently.

I'm glad you have an appointment soon, but I think you should continue to take your meds as prescribed until you are able to discuss it with your doctor. You've been on a roller coaster for a while and I suspect tinkering with your meds plays a significant role. Rexulti may not be the right choice forever, but bad things happen when you stop it and your insight devolves.
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  #506  
Old Apr 11, 2020, 10:41 AM
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Fuzzybear Fuzzybear is offline
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A friend (not in this part of the forum) has told me he/she is probably going to leave pc. I am feeling a bit sad and disappointed.

Kind thoughts to all
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  #507  
Old Apr 11, 2020, 10:52 AM
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Sunflower123 Sunflower123 is offline
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Originally Posted by Fuzzybear View Post
A friend (not in this part of the forum) has told me he/she is probably going to leave pc. I am feeling a bit sad and disappointed.

Kind thoughts to all
I’m sorry Fuzzy. It’s tough when people we care about leave.
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  #508  
Old Apr 11, 2020, 11:24 AM
Anonymous45023
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okay for Potato salad
Quote:
Originally Posted by fern46 View Post
Hey Blue. I wanted to be honest and say I'm concerned. You've mentioned your therapist didn't understand your special connections to others and that you've been watching tons of YouTube. The feeling of the presence has also returned. You've had these kinds of behaviors in the past and they didn't lead to great places. This seems like a bad time not to take your meds.

You stopped taking the Rexulti a few weeks ago and it got very out of control to the point you were in crisis as recently as last week. These medications take a while to work properly and they wreak havoc on the mind when you suddenly shift the levels. Rebound psychosis is a big concern and it seems like that has happened to you a few times recently.

I'm glad you have an appointment soon, but I think you should continue to take your meds as prescribed until you are able to discuss it with your doctor. You've been on a roller coaster for a while and I suspect tinkering with your meds plays a significant role. Rexulti may not be the right choice forever, but bad things happen when you stop it and your insight devolves.
THIS.
Very well said, so I really don't have anything to add that comes to mind, but please take what fern says to heart. It's definitely a pattern we've seen play out many times for you. Please don't mess with your meds, ok? It never leads anywhere good.
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  #509  
Old Apr 11, 2020, 12:36 PM
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Blue_Bird Blue_Bird is offline
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Almost done cleaning my apartment. Just have to vacuum my room then I'm finished. Have a couple packages arriving today (some food I bought). I ordered a can of mixed nuts and had no idea just how big it would be, look at this picture! 3lbs 8 oz. I've ordered a bunch of non perishables so I don't have to go to the grocery store frequently. I'll just save those trips to get fresh stuff like meat and produce. This way I'll only have to go like 2 times a month.

Anyway, I'm having a gaming day.. playing stuff on my Nintendo Switch. I'm looking forward to Easter tomorrow. Even though it's just me here I'm making a nice dinner and will watch a mass service live-streamed since churches are closed.
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File Type: jpg Mixednuts.jpg (256.4 KB, 9 views)
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PTSD
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  #510  
Old Apr 11, 2020, 12:54 PM
Anonymous46341
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Originally Posted by Blue_Bird View Post
Almost done cleaning my apartment. Just have to vacuum my room then I'm finished. Have a couple packages arriving today (some food I bought). I ordered a can of mixed nuts and had no idea just how big it would be, look at this picture! 3lbs 8 oz. I've ordered a bunch of non perishables so I don't have to go to the grocery store frequently. I'll just save those trips to get fresh stuff like meat and produce. This way I'll only have to go like 2 times a month.

Anyway, I'm having a gaming day.. playing stuff on my Nintendo Switch. I'm looking forward to Easter tomorrow. Even though it's just me here I'm making a nice dinner and will watch a mass service live-streamed since churches are closed.
Happy Easter, Blue_Bird!

That large can of nuts would last no more than a week, in my husband's hands.
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  #511  
Old Apr 11, 2020, 01:05 PM
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Blue_Bird Blue_Bird is offline
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Quote:
Originally Posted by BirdDancer View Post
Happy Easter, Blue_Bird!

That large can of nuts would last no more than a week, in my husband's hands.
Thanks BirdDancer, same to you! That's funny, they're definitely a delicious snack
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PTSD
Social Anxiety Disorder
Anorexia Binge/Purge type
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  #512  
Old Apr 11, 2020, 01:31 PM
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Nammu Nammu is offline
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Oo my sister and BiL drove by today. They drove an hour to deliver food and masks! Yay! We now have cloth mask we can wash and wear! They just wanted to get out of the house! Ordinarily they are very social, this must be so hard on them. It was a nice break to stand in the window and talk to real people!
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  #513  
Old Apr 11, 2020, 01:32 PM
fern46 fern46 is offline
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Quote:
Originally Posted by Fuzzybear View Post
A friend (not in this part of the forum) has told me he/she is probably going to leave pc. I am feeling a bit sad and disappointed.

Kind thoughts to all
Sorry Fuzzy. Maybe they will come back one day. It hurts to lose a friend.
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  #514  
Old Apr 11, 2020, 01:44 PM
Anonymous45023
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Hey, back already.

I just got a call from an elder friend (and fellow BPer), who landed in the hospital with a broken bone and another more serious problem that will require surgery that's being delayed till the bone heals. (I don't feel is my place to get any more specific). Please keep this person in your thoughts if you could. Thanks!

(P.s. This is NOT covid related, TG.)
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  #515  
Old Apr 11, 2020, 01:47 PM
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Nammu Nammu is offline
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Quote:
Originally Posted by Innerzone View Post
Hey, back already.

I just got a call from an elderly friend (and fellow BPer), who landed in the hospital with a broken bone and another more serious problem that will require surgery that's being delayed till the bone heals. (I don't feel is my place to get any more specific). Please keep this person in your thoughts if you could. Thanks!

(P.s. This is NOT covid related, TG.)
Oh, hope their bones heal quick.
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  #516  
Old Apr 11, 2020, 03:11 PM
yellow_fleurs yellow_fleurs is offline
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Hi everyone. I am still around, but without my normal schedule am a bit all over the place and forgetting to check in as much. I am also just stressed out and tired from it all. I joined a CSA where I can pick up weekly food without running into people, and am handwashing my laundry so as to avoid the laundromat. I might be a little depressed, but I think that's situationally normal at the moment. I am super lucky considering the state of the world right now and cannot complain, however. I am doing teletherapy every couple of weeks. It's a little weird and I feel a little bit like my mental health treatment is on hold, especially because I haven't heard anything about continuing my OCD treatment, but other than that I am glad I still have that support of my therapist. I am afraid they are getting a little sick of me because outside of the OCD therapy which is with someone else, I don't really even know what to work on right now. However, I do not really want to stop therapy during a stressful time like this.

Anyways I hope everyone and their friends and family are doing well.
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  #517  
Old Apr 11, 2020, 04:47 PM
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Daonnachd Daonnachd is offline
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Just spent something near to an hour on a facetime chat with a couple of friends in the UK. What a wonderful surprise.

Ring somebody and have a chat.
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  #518  
Old Apr 11, 2020, 05:03 PM
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~Christina ~Christina is offline
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Quote:
Originally Posted by Blue_Bird View Post
Almost done cleaning my apartment. Just have to vacuum my room then I'm finished. Have a couple packages arriving today (some food I bought). I ordered a can of mixed nuts and had no idea just how big it would be, look at this picture! 3lbs 8 oz. I've ordered a bunch of non perishables so I don't have to go to the grocery store frequently. I'll just save those trips to get fresh stuff like meat and produce. This way I'll only have to go like 2 times a month.

Anyway, I'm having a gaming day.. playing stuff on my Nintendo Switch. I'm looking forward to Easter tomorrow. Even though it's just me here I'm making a nice dinner and will watch a mass service live-streamed since churches are closed.

Ahhh my Husband would Mow through those , Bird Dancers

Enjoy them
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  #519  
Old Apr 11, 2020, 05:09 PM
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~Christina ~Christina is offline
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Quote:
Originally Posted by yellow_fleurs View Post
Hi everyone. I am still around, but without my normal schedule am a bit all over the place and forgetting to check in as much. I am also just stressed out and tired from it all. I joined a CSA where I can pick up weekly food without running into people, and am handwashing my laundry so as to avoid the laundromat. I might be a little depressed, but I think that's situationally normal at the moment. I am super lucky considering the state of the world right now and cannot complain, however. I am doing teletherapy every couple of weeks. It's a little weird and I feel a little bit like my mental health treatment is on hold, especially because I haven't heard anything about continuing my OCD treatment, but other than that I am glad I still have that support of my therapist. I am afraid they are getting a little sick of me because outside of the OCD therapy which is with someone else, I don't really even know what to work on right now. However, I do not really want to stop therapy during a stressful time like this.

Anyways I hope everyone and their friends and family are doing well.
I think its pretty common to feel stressed right now, sucks. Your T is not getting sick of you

With such a change in how we can interact with people and our treatment provider, I had a session with both my T and Pdoc, And it was okay but yes felt odd.. I miss the smell of my T's dusty office, odd I know but it smells like a old book store and I love that smell..

Im glad you have popped in and let us know how your doing. I'm always around if you need and ear
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  #520  
Old Apr 11, 2020, 07:32 PM
Anonymous41462
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@bpcyclist: I went directly to Corfu from Athens, about a 16-hour journey overnight, with buses and ferries several times so i don't remember much about it other than that it was exhausting.

In my news, it was sunny here today and i got a nice boost of energy. I fixed up my place some more. The more work i put into it, the more i like it here! I love my home! Now i don't urgently crave a nice hotel. Really worth putting the work in. I have the balcony doors completely cleared, curtains and all, and it looks fabulous and my view is captivating! We have wet weather coming tho so i don't know what to expect. My mood is not that reliable yet this early in Spring. Hypomania is trying to start tho, i can feel it!
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  #521  
Old Apr 11, 2020, 08:08 PM
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LadyShadow LadyShadow is offline
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I've been level and taking my meds, even though my stress and anxiety levels are high due to trying to claim unemployment in New York - which is a mountain of stress in itself.
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  #522  
Old Apr 11, 2020, 08:41 PM
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~Christina ~Christina is offline
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I can not even explain the level of pain I am in today.. I have spent most of the day in bed and crying, which is something I rarely do, as it doesnt really help I just get that massive headache crying causes, who needs that? ..

.I have hit that damn wall.. It hurts to breath. My husband is feeling totally helpess.. I have to remind him that this has happened 100's of times, eventually it will ease, tomorrow or in a week.

I'm trying any distraction I can think of.. With all this pain my go to coping skill is impossible, I simple cant clean
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  #523  
Old Apr 11, 2020, 09:29 PM
Anonymous45023
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Quote:
Originally Posted by ~Christina View Post
I can not even explain the level of pain I am in today.. I have spent most of the day in bed and crying, which is something I rarely do, as it doesnt really help I just get that massive headache crying causes, who needs that? ..

.I have hit that damn wall.. It hurts to breath. My husband is feeling totally helpess.. I have to remind him that this has happened 100's of times, eventually it will ease, tomorrow or in a week.

I'm trying any distraction I can think of.. With all this pain my go to coping skill is impossible, I simple cant clean
Oh sweetie!! I'm so sorry you're hurting so badly!! I'm seriously getting my magic wand out and waving it your way!!
(It's homemade from a Halloween costume, with sparkles -- but it's worth a try!!)

Ok. Back now. Yes, seriously. Oriented myself to face your direction and waved it with intense intention. And look out, 'cause I'm gonna do it a bunch more!!
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  #524  
Old Apr 11, 2020, 09:43 PM
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~Christina ~Christina is offline
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Quote:
Originally Posted by Innerzone View Post
Oh sweetie!! I'm so sorry you're hurting so badly!! I'm seriously getting my magic wand out and waving it your way!!
(It's homemade from a Halloween costume, with sparkles -- but it's worth a try!!)

Ok. Back now. Yes, seriously. Oriented myself to face your direction and waved it with intense intention. And look out, 'cause I'm gonna do it a bunch more!!
Thanks !!!!!! Yes Please wave it
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  #525  
Old Apr 11, 2020, 09:44 PM
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Nammu Nammu is offline
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My wands are packed away in the basement but I'm sending intense purple healing rays.
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…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
Desiderata Max Ehrmann



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