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Default Mar 29, 2022 at 01:14 PM
  #161
Hi all, I'm in a rush to go file stupid taxes, so I will be back later to read over all of your posts. I'm just quickly dropping by to vent. Before I vent the GREAT news is that Sidney's glucose numbers have been stable for 2 days!!!! Stable and in a good range. I have my fingers crossed and prayers said.

Now my vent. I spoke with my pdoc's very sweet nurse. I had left a message last Thursday telling her that I was having extreme anxiety and asked that she speak with the pdoc to approve a 300mg increase in Gabapentin. So 1,200 to 1,500. I finally heard back from the nurse this morning. She gave me the message from my pdoc, that b****. The pdoc said "Life has its ups and downs. I won't authorize an increase in Gabapentin."

I hate that woman. Hate her. I have to plead for her understanding. It's not right. It is sooo stressful.

I told the nurse that I increased the Gaba by 300mg. on Saturday and by Sunday the anxiety had become manageable. A "normal" anxiety. I was furious. I told the nurse that either that b**** approve the increase or I'm going to another clinic. At the age of 59 I'm fully aware that "life has its ups and downs." And at this age I have learned not to take shite sitting down. I will fight and scratch to get what I know I need. First off, if the appointment with that b**** doesn't go as I want it to I will make a LOUD complaint to her supervisor. Beyond that I will make it clear that I am dissatisfied with the clinic (they are very much in need of patients right now) and will be seeking healthcare somewhere else.

I am furious. Absolutely beside myself. I am trying to be smart about my complaints and not go crazy on someone. So, breathe. Breathe.

Thanks for listening dear ones. I would appreciate some good vibes. And if anyone has any suggestions on how to communicate with a stubborn psychiatrist, please let me know. See you after awhile.

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Default Mar 29, 2022 at 01:33 PM
  #162
Yeah I figured this would happen. My primary won't call in my zofran to the pharamacy because he says its been 2 months and having nausea for 2 months is not normal. So in order for him to refill it I'll need to see him. **** I just don't want to go back to the doctors again. I swear its just my anxiety or the melatonin I'm taking or something. I just get nauseated a lot I don't think it warrants a doctors visit but he won't budge. Some peoples doctors don't take them seriously because of their mental illness.. My doctors see past my mental Illness but take me a bit too seriously about my physical health and see stuff that I don't think is there. I'll have to see what I can do. Maybe I'll try going without the zofran and see how bad things really get. Or just wait until after I get my lab work from Thursday and see if theres anything to worry about from that.

Edit: I feel like if theres a legit issue going on its still with the hematricrit. But I ate 2 pieces of pizza and I feel really sick right now. So my mom is wondering if its food related. So I guess I'll go see the doctor and see if he can do a full allergy test or something. I know I have mentioned before seeming to have an issue with dairy.

Edit again: so I have an appointment for tommorow afternoon. I'm gonna look at my food log tonight to see what I eat a lot of that could be causing an issue. Overall I eat pretty healthy and I eat basically the same things. I do wish he would just give me the zofran without an appointment. Its not even a controlled substance but he said I need an appointment.

Last edited by Mountaindewed; Mar 29, 2022 at 04:12 PM..
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Default Mar 29, 2022 at 03:59 PM
  #163
Hey BethRags, I do not have suggestions on how to communicate with a stubborn psychiatrist, I wish I did

Thanks for sharing the great news about Sidney's glucose numbers.

''life has its ups and downs''... Yeah, that's similar to what they said to me. Dismissive, invalidating, ''tantalisingly'' brief

I'm sorry that nurse is such a *****. It's hard not to hate those who are supposed to ''help'' us who are only ever harmful, I can relate.

I hate, hate, hate having to plead and beg them for some, a crumb, of understanding

Good for you for fighting and scratching to get what you know you need. I hate it that anyone has to do this!

Yes, its necessary to be smart about any complaints we make re these people. They make it so freakin hard for any of us to be ''making the best of ourselves'' in the face of their lack of respect and regard for our humanity.

Hugs and respect to you dear BethRags. I'm sending good, calm and peaceful vibes

Quote:
Originally Posted by BethRags View Post
Hi all, I'm in a rush to go file stupid taxes, so I will be back later to read over all of your posts. I'm just quickly dropping by to vent. Before I vent the GREAT news is that Sidney's glucose numbers have been stable for 2 days!!!! Stable and in a good range. I have my fingers crossed and prayers said.

Now my vent. I spoke with my pdoc's very sweet nurse. I had left a message last Thursday telling her that I was having extreme anxiety and asked that she speak with the pdoc to approve a 300mg increase in Gabapentin. So 1,200 to 1,500. I finally heard back from the nurse this morning. She gave me the message from my pdoc, that b****. The pdoc said "Life has its ups and downs. I won't authorize an increase in Gabapentin."

I hate that woman. Hate her. I have to plead for her understanding. It's not right. It is sooo stressful.

I told the nurse that I increased the Gaba by 300mg. on Saturday and by Sunday the anxiety had become manageable. A "normal" anxiety. I was furious. I told the nurse that either that b**** approve the increase or I'm going to another clinic. At the age of 59 I'm fully aware that "life has its ups and downs." And at this age I have learned not to take shite sitting down. I will fight and scratch to get what I know I need. First off, if the appointment with that b**** doesn't go as I want it to I will make a LOUD complaint to her supervisor. Beyond that I will make it clear that I am dissatisfied with the clinic (they are very much in need of patients right now) and will be seeking healthcare somewhere else.

I am furious. Absolutely beside myself. I am trying to be smart about my complaints and not go crazy on someone. So, breathe. Breathe.

Thanks for listening dear ones. I would appreciate some good vibes. And if anyone has any suggestions on how to communicate with a stubborn psychiatrist, please let me know. See you after awhile.

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Last edited by Fuzzybear; Mar 29, 2022 at 04:17 PM..
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Default Mar 29, 2022 at 04:01 PM
  #164
So I'm not feeling much better. I did 3 of my activity sheets. I started my mood calendar again. Because at a least it's a way to get my feelings out. I'm hoping thing will get better but it looks grim. I've been here before though. hopefully it'll get better. I don't see pdoc for 3 months now. I have to just deal. Miguel graduates in a couple of weeks. This sucks but whatever.

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Default Mar 29, 2022 at 04:27 PM
  #165
I'm sorry you're not feeling much better (( hugs )) Thanks for sharing. Are the activity sheets helpful? Or the mood calender?

I think the mood calendar sounds like a good idea as a way to get feelings out.

I'm not sure it would help me much though... unless at least I had someone to share it with who wanted to know (a pdoc who listened might work I suppose).... Maybe it could though, I'd rather share it with me than with someone who didn't get me...

I can imagine that Miguel graduating in a couple of weeks must be stressful (and must suck). I'm hoping that things get better for you soon! Keep sharing, I enjoy your posts (and I know others do also)

Three months is a long time to wait for the next appointment (I won't share what the pdoc said when I asked if I could see him more often .....)

I'm sending calm and positive thoughts


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Originally Posted by Miguel'smom View Post
So I'm not feeling much better. I did 3 of my activity sheets. I started my mood calendar again. Because at a least it's a way to get my feelings out. I'm hoping thing will get better but it looks grim. I've been here before though. hopefully it'll get better. I don't see pdoc for 3 months now. I have to just deal. Miguel graduates in a couple of weeks. This sucks but whatever.

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Default Mar 29, 2022 at 05:02 PM
  #166
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Are the activity sheets helpful? Or the mood calendar?
The mood calendar is on my phone called Emoods. My activity sheets are from this FB group that is doing a study on mom's with "brain fog". I think it's helping I don't know. I tend to feel I have clarity when depressed which is dangerous.

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Default Mar 29, 2022 at 05:19 PM
  #167
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The mood calendar is on my phone called Emoods. My activity sheets are from this FB group that is doing a study on mom's with "brain fog". I think it's helping I don't know. I tend to feel I have clarity when depressed which is dangerous.

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Default Mar 29, 2022 at 07:11 PM
  #168
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Hey BethRags, I do not have suggestions on how to communicate with a stubborn psychiatrist, I wish I did

Thanks for sharing the great news about Sidney's glucose numbers.

''life has its ups and downs''... Yeah, that's similar to what they said to me. Dismissive, invalidating, ''tantalisingly'' brief

I'm sorry that nurse is such a *****. It's hard not to hate those who are supposed to ''help'' us who are only ever harmful, I can relate.

I hate, hate, hate having to plead and beg them for some, a crumb, of understanding

Good for you for fighting and scratching to get what you know you need. I hate it that anyone has to do this!

Yes, its necessary to be smart about any complaints we make re these people. They make it so freakin hard for any of us to be ''making the best of ourselves'' in the face of their lack of respect and regard for our humanity.

Hugs and respect to you dear BethRags. I'm sending good, calm and peaceful vibes

Thank you, Fuzzy dear. Your post is very understanding and validating. It gives me courage.

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Default Mar 29, 2022 at 07:18 PM
  #169
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I got high (on oxy)

How are you feeling?


I felt high on the extra Gabapentin I took on Sunday (never felt that from Gabapentin before or since) and it felt good. I needed the mental break desperately. But I don't have addiction issues.

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Default Mar 29, 2022 at 07:20 PM
  #170
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Today is a so-so day both mentally and weather wise. A bit warmer( finally) and partly sunny. I’m dragging cause I went down on my sleep meds. But I’m not yet going up on the latuda or taking the prn. I’m holding those in reserve for when the physical symptoms start.

Thinking of going to the $5 movies 🍿 today. There’s one that sounds fun, the lost city I think it was called. A comedy mostly. If I go to the 4pm show it should still be light out for the drive back. We’ve no movie theater here any more and have to drive east or west to go see a movie.

Did you go to the movie? I love movie theatres. There's such a nice one, it's so close I can see the lights from my bedroom window, and I'd go more often if they'd show better movies

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Default Mar 29, 2022 at 07:35 PM
  #171
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Did you go to the movie? I love movie theatres. There's such a nice one, it's so close I can see the lights from my bedroom window, and I'd go more often if they'd show better movies
No. It was so grey and cold and windy. I just couldn’t face the 40 minutes drive and it would have been dark and raining when I came out. I didn’t go. The theater is a very nice one and have captions available, but nah. If theaters weren’t so cold I might have gone but I was cold and the thought of being cold for two hours and then driving in the dark, nope. Maybe next week if the movie is still there. Yeah not a lot of good movies playing, too many violent ones.

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Default Mar 29, 2022 at 07:39 PM
  #172
Tax stuff is done. Yay. I'm completely exhausted. I feel I have barely any stamina any more.

I'm burning about the situation with my psychiatrist. I have tried and tried with her and it's always the same brick wall. For one thing, we've never met in person, only by telehealth. I think that created a negative situation from the word go. I'm going to search around online this evening for psych services and see what I come up with.

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Default Mar 29, 2022 at 07:44 PM
  #173
Good luck Beth hope you find something good.

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Default Mar 29, 2022 at 07:46 PM
  #174
Good luck with finding a new pdoc BethRags

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Default Mar 29, 2022 at 07:47 PM
  #175
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Tax stuff is done. Yay. I'm completely exhausted. I feel I have barely any stamina any more.

I'm burning about the situation with my psychiatrist. I have tried and tried with her and it's always the same brick wall. For one thing, we've never met in person, only by telehealth. I think that created a negative situation from the word go. I'm going to search around online this evening for psych services and see what I come up with.

Beth, I've had really good luck with going to a large teaching hospital. I don't know how far you are from one but if it's an option it may be worth looking into. There are so many cliniciians that I think it's more likely to find someone that works for you. To be fair I followed my pdoc from private practice to the teaching hospital so some of what I like may have to do with her but I have lots of access to her (she's been amazing with communicating with me through patient portal during this breast cancer scare), I have 60 minute appointments that supplement my therapy, I always get called back if I even need to call, etc. It also is really good that there are so many doctors because second opinions are readily available, something you might benefit from. It's let me be on both Emsam and clozapine, neither commonly used much less used in conjunction. Etc. It just really works for me and might for you.

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Default Mar 29, 2022 at 09:09 PM
  #176
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Pituitary gland Adnoma? I was told I had something similar (they called it a ''tumour'' but that was a crap GP. Nothing showed up on the MRI. I had blood tests and high prolactin was found repeatedly, when we were trying for a baby.

A GP sent me for an X RAY ...

The hospital told Papa bear and I ..

''We have not done X RAYS for this for many years...''

Yikes

I hope you will be ok

Much love Christina

PS I was told I needed a root canal but the dentist said there were other options as the severe pain had stopped and it had become a ''chronic low grade infection''.... I decided to go for the root canal but the dentist I was referred to told me his ''success rate'' and although he was a lovely person who actually listened to me.... he said he thought it might be better to go to the specialist who only performed root canals (multiple visits...) or it would be ''safe'' to leave it as the pain wasn't severe.

Eventually I had to have the tooth pulled. (sorry if tmi)... it's fine now. It's the only tooth I've had pulled, its a back tooth and the dentist said it's healing well.

I'm sorry about all the falls

Staying in bed for a few months, a year or longer, sounds appealing ...if only to avoid all the aggravating **** ......

Much love

I think they leaned more towards calling something on pituitary gland a adnoma maybe it has to get to a certain size and they call it a tumor ?? I dunno

I am really nervous about the root canal. I’ve never had one. I love my dentist he’s never hurt me , he gives me like 2 times the amount of novacaine than my husband lol but this oral surgeon is new to me. So yeah I’m going to be a nervous wreck. I do hope it can be completed in one visit. It’s 1.5 hours away !

Much love Fuzzy

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Default Mar 29, 2022 at 09:10 PM
  #177
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No. It was so grey and cold and windy. I just couldn’t face the 40 minutes drive and it would have been dark and raining when I came out. I didn’t go. The theater is a very nice one and have captions available, but nah. If theaters weren’t so cold I might have gone but I was cold and the thought of being cold for two hours and then driving in the dark, nope. Maybe next week if the movie is still there. Yeah not a lot of good movies playing, too many violent ones.

Yes, the violence isn't my thing, either. I completely understand. I very, very seldom drive at night anymore. I used to enjoy night driving, but I don't now. Sometimes a warm, cozy night in is just the thing.

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Default Mar 29, 2022 at 09:20 PM
  #178
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Beth, I've had really good luck with going to a large teaching hospital. I don't know how far you are from one but if it's an option it may be worth looking into. There are so many cliniciians that I think it's more likely to find someone that works for you. To be fair I followed my pdoc from private practice to the teaching hospital so some of what I like may have to do with her but I have lots of access to her (she's been amazing with communicating with me through patient portal during this breast cancer scare), I have 60 minute appointments that supplement my therapy, I always get called back if I even need to call, etc. It also is really good that there are so many doctors because second opinions are readily available, something you might benefit from. It's let me be on both Emsam and clozapine, neither commonly used much less used in conjunction. Etc. It just really works for me and might for you.

I didn't see you here earlier and was wondering how you're doing tonight.

Your suggestion is excellent. When I lived in my hometown, which is a city, I went to psychiatry at a huge teaching hospital. It was fantastic. I went there for years. Then they stopped taking my insurance, but I still kept going, just not as often. I paid $90 per session out of pocket. A while after that they raised the cost to $135 per session. That was beyond what I could pay, plus I moved to a town some distance away. I so wish I still had that option, though. Something I really appreciated about the teaching hospital was that there wasn't just one person basically dictating how my whole life felt. Teaching hospitals are a team. Way too many pdocs, in my experience, are wackos who shouldn't be making decisions about patients without anyone consulting with them (the pdoc).

Anyway, I'm really glad you do go to a teaching hospital, and that your psychiatrist is so supportive with everything you're having to deal with at this time.

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Default Mar 29, 2022 at 09:32 PM
  #179
Thank you to each of you for your support. It sure means a lot to me!

I'm sitting here crying because Sidney's glucose number went up quite a bit this evening. 2 days of wonderful, then up. The people in the feline diabetes group assured me that it happens. I don't know, I just kind-of fell apart. But I refuse to stay down. Maybe I just needed to cry a bit.

I have been checking possible medication management situations online, and I have come up with a couple. Tomorrow I will call my health insurance and find out if they can assist me. Having a pdoc I can't trust flattens me. And my therapist is no winner lately, either. Who knows. I so dislike the clinic I go to since they changed location...maybe a better place is coming my way.

I can hear the train from my apartment. It's loud. I usually like the train horn, but sometimes lately it makes me feel so sad. Sometimes it's so hard to see a future.


Geez, I need to watch a show or something and make a change in my thoughts.

I'm wondering how Pinny is doing? I hope she checks in in (her) morning. I hope the covid hasn't got her down too badly.

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Default Mar 29, 2022 at 09:47 PM
  #180
Anyone using Tapatalk that can tell me how to do the @ thing ?? I’m clueless lol

Soupe yes I remember you had an Adnoma after taking Invega. It’s a good chance that mine is from Invega. It’s good to know that yours went away. If have one more fall I’m going to ask to get it down sooner.

Beth !!! Argh at your damn shyt Pdoc ! Ridiculous. I agree you need someone new. Even if she finally agrees I’d starting looking for someone new and someone you can see in person. Tele health annoys the hell out of me.

Spend almost all day on the porch ! Love the weather altho my allergies are ramping up. Bradford pear trees are gorgeous but ugh one of the worst for allergies. Oh well back on Claritin I go

Gave all 3 dogs a bath today. They are so soft and smell amazing now lol

Anyway I see Richard tomorrow and have no idea what to talk about. Something will pop up.

Hugs my friends

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