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Member Since Sep 2022
Location: USA
Posts: 240
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#741
@HALLIEBETH87 I'm sorry that happened to your friend. My pdoc actually wonders if covid is causing people to develop POTs because he has multiple patients right now with a new POTs diagnosis when, up to this point in his career (30 some years I believe) he had one or two patients total with POTs. I know at least one of his other patients with it got it after covid as well. I had multiple covid tests done when I got sick (at home and by a doctor) but they all came back negative so I guess it was something else.
This afternoon, I messaged my neurologist to ask about a possible alternative medication than the corticosteroid. Sadly, I chickened out and didn't have the guts to say because I'm worried it will trigger bipolar symptoms. I just said, based on side effects I had with other steroids, I'm worried about taking this one. The IV I got yesterday has definitely helped somewhat, but I still got dizzy standing after standing for not that long so, if the IV won't help with those symptoms and there is no medicine alternative, I might give the corticosteroid a try. I'm waiting to see how this week goes symptoms wise before making any final decisions. __________________ Lamotrigine: 300 mg Bupropion: 150 mg Risperidone: 3 mg |
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Manarinorange
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Member
Member Since Feb 2023
Location: Ontario; long-time member, just under other names
Posts: 462
1 3,258 hugs
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#742
I came across a joke that eases my anguish over my weight:
"I'm a compulsive overeater, which is better than an apathetic overeater!" |
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LadyShadow, MuddyBoots, unaluna
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Wise Elder
Member Since Apr 2015
Location: US
Posts: 9,508
(SuperPoster!)
9 10.7k hugs
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#743
Tomorrow is meet the substitute therapist day. I'm not looking forward to it. Nothing against her. She's just not someone I know and am comfortable with and it takes me a long time to get comfortable with new people.
Then I have to do a huge grocery shopping and I hate Walmart where I'll get most things. Kinda stressful day... __________________ Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1700 mg & 100-2 PRN,. 1.5 mg clonazepam., 50 mg Seroquel |
bizi, Crazy Hitch, JaneOnceMore, June08, LadyShadow, Manarinorange, MuddyBoots, raspberrytorte
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Wise Elder
Member Since Apr 2015
Location: US
Posts: 9,508
(SuperPoster!)
9 10.7k hugs
given |
#744
Quote:
__________________ Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1700 mg & 100-2 PRN,. 1.5 mg clonazepam., 50 mg Seroquel |
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JaneOnceMore, LadyShadow
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Member
Member Since Jun 2024
Location: Washington
Posts: 158
234 hugs
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#745
Quote:
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LadyShadow, Mountaindewed
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Member
Member Since Jun 2024
Location: Washington
Posts: 158
234 hugs
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#746
Quote:
Quote:
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June08
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Member
Member Since Jun 2024
Location: Washington
Posts: 158
234 hugs
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#747
Today was boring again. My son called asking me for money for an eighth. Then he called back for money for a lighter. I knew he would go through it so fast. I guess the staff told him not to share it like he was and he didn't listen. I doubt he's gone on any outings. He's frustrating.
All of us sisters in the family have health problems. My oldest sister that's still alive and lives in Eugene Oregon is having health problems won't tell us what it is and she is drinking a ton since my other sister died that lived with her. She was the vice president of a insurance company in Salem Oregon. Then the sister that just had a stroke and is having surgery on the 29th. Then my other sister who does not drink is having problems with her liver enzymes. She is having a lot of hip pain and they just did an mri on it but she can't take ibuprofen and is completely burnt out. She is also having problems with severe fatigue. They gave her something for it but now that they are trying to figure out what's wrong with her liver she can't take them. It's just a mess. Then I'm having my health problems. It's unbelievable that all of this is happening at the same time. My sister that I'm really close with has pulled back from me bc I said something about her husband and his political view's. She is like his slave. He can't do anything for himself. She got that ablation surgery where you get your uterine lining burnt off so you don't have periods anymore and the recovery time is very painful. She bought those Costco pre-made dinners and he couldn't be bothered to put it in the oven or take it out and dish himself as plate It's ridiculous! I really don't like the dude! |
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Legendary
Member Since Oct 2004
Location: usa
Posts: 11,474
19 2,788 hugs
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#748
Quote:
I read an article about the prevalence of POTS diagnosis following COVID illness. its interesting and sad. __________________ schizoaffective bipolar type PTSD generalized anxiety celexa, prazosin, risperdal and prn klonopin and helpful cogentin |
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bizi, LadyShadow
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June08
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Legendary Wise Elder
Member Since Jun 2016
Location: Where the sidewalk ends
Posts: 38,098
(SuperPoster!)
8 9,430 hugs
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#749
Quote:
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LadyShadow, raspberrytorte
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Monster on the Hill
Member Since Sep 2020
Location: by the river
Posts: 5,152
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#750
Quote:
CM asked if I wanted to add anything else to the authoritarianism. Haldol, hell-dol, but yeah, better than fking around and getting people to shoot me "in self-defense" I don't want to die I just want a stabbing. __________________ [Insert thought-provoking and comedic quote here] |
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Monster on the Hill
Member Since Sep 2020
Location: by the river
Posts: 5,152
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4 5,850 hugs
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#751
Tactile hallucinations are the worst hallucinations.
__________________ [Insert thought-provoking and comedic quote here] |
bizi, June08, LadyShadow, raspberrytorte
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Legendary
Member Since Oct 2004
Location: usa
Posts: 11,474
19 2,788 hugs
given |
#752
__________________ schizoaffective bipolar type PTSD generalized anxiety celexa, prazosin, risperdal and prn klonopin and helpful cogentin |
bizi, LadyShadow, raspberrytorte
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Grand Magnate
Member Since Oct 2017
Location: La Porte, TX
Posts: 3,637
6 264 hugs
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#753
Thankfully, I haven't had tactile hallucinations, just auditory and visual, but tactile sounds like it would be horrible to deal with.
I'm doing OK today. My mood is still level, my sleep good. I remember dreaming last night and I wanted to remember it when I woke up but I just couldn't. That's how a lot of my dreams are, I just can't remember them once I wake up. This morning, I went for a walk/jog. The moon was still out when I left, a very bright full moon, so that was nice to see. Tomorrow I see the pdoc and on Thursday the gynecologist. Ugh, I hate having so many doctors' appts. I just saw the rheumatologist last week, and in September, I see the dermatologist. Can't wait to be done seeing all these doctors. Kind of worried about the dermatologist; I have a couple moles I'm suspicious of, and with my coloring, the dermatologist usually finds moles to remove and biopsy. __________________ Bipolar 1, PTSD, anorexia, panic disorder, ADHD Seroquel, Cymbalta, propanolol, buspirone, Trazodone, gabapentin, lamotrigine, hydroxyzine, There's a crack in everything. That is how the light gets in. --Leonard Cohen |
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Legendary Wise Elder
Member Since Jun 2016
Location: Where the sidewalk ends
Posts: 38,098
(SuperPoster!)
8 9,430 hugs
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#754
I asked my therapist this morning if feeling better after
Possible trigger:
I feel ok today. I didn't sleep the greatest. I fell asleep at 11 and I woke up at 5:30. Both me and my therapist were like "yeah when we log off we're gonna go get another coffee." She seemed slightly distracted and kinda off but she doesn't take her personal problems into work so it really wasn't all that noticeable. I could use a nap tbh. My moods are fine. I'll be out of valium by tommorow morning and I haven't heard from the pharamacy but I'm not panicking. It said it was under review. Idk if that is bad or not. Now it says its being processed. I forgot my stress gummies until just now. I didnt take my AM meds until I got up. Last edited by Mountaindewed; Aug 20, 2024 at 10:21 AM.. |
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Wanderer of Distant Stars
Member Since May 2012
Location: North Carolina, USA. Originally New York
Posts: 25,681
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12 13.3k hugs
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#755
A bit on edge again even though I slept really good last night. The CPAP didn't mess up, thank God, but it is so frustrating that my neurologist doesn't answer the phone or emails - I have a message hanging out in their portal from them that's so stupid because I can't get in because my phone number changed. They are just so stupid to send me a message to a portal I can't even get into - so frustrating.
Just agitated, but I think I will get better as the day progresses. Have to do laundry and a few other things while I am working today. Working things out with my boyfriend as the days progress, I think I need to focus on myself more than anything. I hate to say it, but as much as I am overjoyed about stopping the Lithium, my moods have shifted a lot. I seem to be in a very weird headspace I don't really understand. I hope everyone has a fantastic, productive Tuesday - @BeyondtheRainbow - Walmart is my monthly nemesis too. I hate going there so much, but they literally have everything I need. __________________ Tales of Love, Motivation, and An Interesting Journey - Please Subscribe to my Website on WordPress: Inspired Odyssey's Path to Wellness and Love |
bizi, Blue_Bird, June08, Manarinorange, Nammu, raspberrytorte
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bizi, Manarinorange, raspberrytorte
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Crone
Member Since May 2010
Location: Some where between my inner mind and the solar system.
Posts: 73,345
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#756
Well the pain is tolerable I’m saving my pills for lunchtime in hopes I can eat something or I’ll be drinking ensure again. I certainly wasn’t expecting the surgery yesterday. I thought the appointment was just to check that everything was fine and then schedule the surgery. But I have to say it worked out because I had no opportunity to get anxious about it! So hurrah.
My eating problem has gotten better I’m hoping that means I can cancel the upper scope procedure. I guess it just took time for the meds to work. I’m no longer in pain when I eat. The other health problem continues. I received a letter from the clinic asking me to call? Why aren’t they using the portal? I hate calling and dealing with the auto robo machines. But I see I did get a message from them this morning on the portal. So maybe I can schedule though the portal. Yeah, me three. I don’t like Walmart either but they are the only place I can get my chai, and they usually have everything else so I can get it in one stop. I consider it a necessary evil. __________________ Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
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bizi, Manarinorange
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Legendary Wise Elder
Member Since Jun 2013
Location: Middle Earth
Posts: 37,222
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#757
I pushed myself a little too hard today. Didn’t sleep well. Slept about 5 hours according to my Fitbit. I woke up at 5am, at 6am I got on the treadmill for 30 minutes. Then I facilitated a coffee event in my building. Then I walked to the bus stop and took the bus to my new pharmacy which was stress inducing cause I have never been on that route before and I get nervous doing new things/going new places. Now I feel like my engine is running out and it’s only 1pm.
I’m hoping to take a couple hours to chill then around 3:30 clean my apartment some, practice violin and start cooking dinner. Hopefully my energy comes back after a couple hours relaxing. Like I feel like a wind up toy that ran out of energy. I kind of just want to lay here for the rest of today lol Tomorrow I have a therapy appointment. I’m doing good for the most part. My anxiety hasn’t been too bad and when I dissociate or get anxious I’m able to use coping skills to deal with it. I started using that 54321 grounding technique. My mood has been good and stable thanks to my meds and self care. I’ve been exercising most days. I find that helps my mood and anxiety a lot. I don’t have much going on this coming weekend. Just my volunteer shift with the cat rescue. Other than that just the typical stuff. Exercise, clean, violin, spend time with my boyfriend, spend time with my kitties , and do my other hobbies. Hope you all are having a good start to the week! __________________ “All the darkness in the world cannot extinguish the light of a single candle.” -St. Francis of Assisi
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bizi, JaneOnceMore, June08, LadyShadow, Nammu, raspberrytorte
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Legendary
Member Since Oct 2004
Location: usa
Posts: 11,474
19 2,788 hugs
given |
#758
worked my 1o hour shift yesterday and working 10 hr again today. then homework tonight. practicum from 9-5 tomorrow and therapy tomorrow night at 6. i switched to in person not telehealth bc i dont want my husband near by and able to possibly hear.
still mad at my pdoc. ugh. she broke HIPAA! ive goten so much **** down the last three days!!!!! then thursday bright and early i leave for louis __________________ schizoaffective bipolar type PTSD generalized anxiety celexa, prazosin, risperdal and prn klonopin and helpful cogentin |
bizi, JaneOnceMore, LadyShadow, raspberrytorte
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Legendary Wise Elder
Member Since Jun 2016
Location: Where the sidewalk ends
Posts: 38,098
(SuperPoster!)
8 9,430 hugs
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#759
I'm kinda frustrated. I slept for an hour which was ok. But I woke up confused. Although I'm 31 so I should just deal with things. I ate a bowl of Lucky Charms. Lol
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LadyShadow, raspberrytorte
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Legendary
Member Since Oct 2004
Location: usa
Posts: 11,474
19 2,788 hugs
given |
#760
__________________ schizoaffective bipolar type PTSD generalized anxiety celexa, prazosin, risperdal and prn klonopin and helpful cogentin |
bizi, LadyShadow
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LadyShadow
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