Still sick after two weeks and like 5 doctors!

I have all of this!

Symptoms that are common to both Crohn's disease and ulcerative colitis include:

Diarrhea.
Belly pain and cramping.
Blood in the stool. (Previously)
Loss of appetite.
Losing weight without trying.
Feeling extremely tired.

One of my tests came back indicative of intestinal inflammation too. I don’t see my doctor till next week. At least my yeast infection should be gone by then!

Are you more at risk for Crohn's after the NEC and surgery?

I have had illeitis a whole bunch of times in the past. That’s a direct result of my surgery. I’ll have to look up NEC and Crohn’s.

Found this. Thought you might appreciate this item(s) I saw in Official journal of the American College of Gastroenterology | ACG.

ImageTwo Cases of Crohn's Disease in the Setting of past Necrotizing Enterocolitis: 943
Kozuch, Patricia
Official journal of the American College of Gastroenterology | ACG, September 2008,103():S370-S371
Supplement Abstracts Submitted for the 73rd Annual Scientific Meeting of the American College of Gastroenterology: CLINICAL VIGNETTES

Official journal of the American College of Gastroenterology | ACG

Had a thought. Maybe it’s fish? I don’t have an allergy to it but it is a new food. Maybe it’s an intolerance?

“ Food allergies and Crohn's disease
Children with inflammatory bowel disease (IBD), including Crohn's disease, report a high rate of food allergies. There's a significant overlap between food avoidance and concerns for allergies. ”

At the ER for 3 hours now. Got here at 1. I had salmon at 8 and at 12:30 my lips were numb- they got that way right after I ate the fish and my tongue was swollen. At 12:30 I decided I wasn’t just dehydrated. I called the nurse at my primary’s office and eventually she told me all her protocols told her I need to go to the ER. It got rapidly worse. At the ER I got IV Benadryl which made me extremely loopy! Lots of blood tests. I had low potassium (from diarrhea I guess). They gave me a supplement . Well I was just told I am going home soon. I do feel better. Nothing is swollen anymore. I need to get a ride home somehow. They’re going to help me.

Now I have a terrible dry mouth from all that Benadryl! They aren’t sending me home till I can give them another urine sample to test for a UTI. I’m gonna call the dentist about my dry mouth.

Back at the ER! Same thing! Ate an omelette at a restaurant.

My allergist says that lip and tongue swelling aren’t reactions to salmon! Bull!

What do they say it's from.

He hasn’t said. We have an in person appointment on Wednesday.

Google says…

The most plausible explanation for the increase in respiratory rate is that prednisone may pass through the blood-brain barrier and stimulate the breathing centre. Another hypothesis was that the shortness of breath was due to hyperventilation induced by psychological effects.
https://www.njmonline.nlPDF
episodes of shortness of breath induced by prednisone - NJM

I took my first prednisone around 2 pm today after sleeping 16 hours straight as I didn’t sleep for almost 2 days and 20 minutes later I started shaking and hyperventilating. I’d also eaten life cereal at the same time but I ate it a last night without a problem. I called the primary office’s nurse line and they said I was gasping and hyperventilating and I was talking in pauses and not very coherently. She said to to the ER. I took an extra klonopin before bed after I got home just to take the leftover symptoms away but I am breathing and talked my normally now. I also almost passed out twice. Once right before the ambulance arrived outside on the steps and once hours later in the ER bathroom. I had to grab the bar in the bathroom fast so I didn’t fall or pass out.

I'm sorry you're going through so much trouble. Hopefully they can figure it out.

Thank you. I hope so too.

I am not a kid but I’m definitely avoiding food. Not only seafood now but eggs and omelettes. I just ate a small bowl of cinnamon Life cereal. I already hadn’t been eating earlier in the week because of my Crohns-type symptoms. I ate the cereal the other day without taking prednisone and was fine. Now it’s been a week or so. I’d say I hadn’t been eating for the previous 3 weeks basically except the omelette and salmon and life cereal yesterday and today.

My discharge papers from yesterday say “Diagnosis hyperventilation from medication reaction to prednisone “.

https://www.njmonline.nl/getpdf.php?...ical%20effects.

This is a pdf about prednisone inducing hyperventilation.

Now I’m having vaginal bleeding! It’s kinda like the beginning of a period- pink/red but a bunch on the TP . Google says this can be from the yeast infection which today will be my 4th day treating it out of 7. My last period was November 10. They keep telling me I’m in menopause but you can’t definitively say that until it’s been a year since your LMP. You can still have periods in perimenopause, right?

Just ate Arby’s with FWB. I asked about allergens before I ordered. He said everything fried gets done in the same 3 fryers including the fish so I just got a beef n cheddar and a fountain pop. He had the manager who was making the food change his gloves before he made my sandwich and told him I’m allergic to fish. FWB was pretty depressed. I tried asking him about his kids but he said he didn’t want to talk about them! So I told him about N3. He just had a birthday- 65! We’ve known each other 20 years now! It wasn’t the best get together we could’ve had even though we hadn’t seen each other in several weeks maybe even a month. He said maybe I’m allergic to Benadryl 🤣 He think my allergies are psychosomatic. He said he’d never go to the hospital just because his lips were numb and his tongue was swollen!

Dont yell at me, but i would not be going out to eat if i were illing. I am guaranteed the runs from Panera in Brighton, and the Chili's at Arborland - i have just enough time to walk across the parking lot to a mall bathroom!

When i got home from the hospital after my ministroke, even tho i am the one person in a million who loves hospital food (its hot and they bring it to me and i do NO WORK!), I was so glad to get home to my little cans of chicken and tuna and make myself a very plain sandwich. I felt like i had finally found who i really was! Weird, i know!

Yeah I probably shouldn’t have but my apartment is so messy I didn’t want him coming up. I think I’m ok. Don’t feel bad and. It’s been a while since we ate.

I think I’m chronically dehydrated. I’ve been in the ER 3 times in four days and every time I need IV lactated ringers, magnesium and potassium! I drink bottled water with electrolytes and pee a lot so I’m confused as to why I’m dehydrated still. Chills is a symptom of dehydration and I’ve been having those for weeks.

My thoughts on the last several confusing weeks!

Is it Thursday yet? That's when I see my primary doctor again. I am thinking I could have sibo- small intestinal bacterial overgrowth. I have a short small intestine with no valve between it and my large intestine. I used to get illeitis an infection of the ilium . My intestines were inflamed a bit according to my labs. (before steroids at the hospital). I've had diarrhea. And this can lead to dehydration and electrolyte imbalance which is why at 3 ER visits this week I've needed IV lactated ringers, IV magnesium and potassium. Electrolyte imbalance and dehydration can lead to dizziness or feeling like you could faint. Dehydration can also dry out your vagina causing a disturbance in its micro biome causing a yeast infection. I guess it can lead to lack of appetite- an intestinal inflammation- and weight loss. But now that they gave me steroids in the hospital that might help that. I dunno. This may be why I'm dehydrated despite the multiple IVs of fluids and electrolytes. And dehydration can cause you to feel tired and faint. A swollen tongue can be from dehydration not an allergy necessarily. So maybe my allergist is right that I don't have food allergies despite my symptoms like swollen tongue and tightening throat even though they told me at the ER that a salmon allergic reaction is what caused my symptoms a few days ago. Could be all of the above. Well, I'm just babbling at you again! I'm going to try to go to church tomorrow but we'll see. Would like to see N3 even though he's got a big exam coming up next week in his math class that he needs to study for.

The diarrhea is back. Must be my digestive system didn’t like the Arby’s, unaluna! That was only 7 hours ago too. My dr did mention that maybe my small intestine isn’t digesting the food and just sending it back out instead of absorbing the nutrients.

“ small intestinal bacterial overgrowth (SIBO) commonly results when a circumstance — such as surgery or disease — slows the passage of food and waste products in the digestive tract, creating a breeding ground for bacteria. The excess bacteria often cause diarrhea and may cause weight loss and malnutrition.”

I did get some “Liquid IV” packets the other day so maybe that’ll help at least keep my electrolytes balanced?