[cakeladie]

Hey guys just a quick not to let you know you are all in my thoughts and prayers. I am not doing to good so if you don't hear from me it's because I can't post. My hands are shaking so badley that I can't even put on shorts or pants and my spelling and thought process is way off

Just know you guys are in my prayers each night I care greatly for each and every one if you

Take care I will post when I can
Hugs to everyone Lov ya smooches

[Pierro]

Cakelady, I do hope that you feel better soon. You too are in my thoughts and prayers.

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[Kiya]

Awww (((((cake))))) please be well!!!

That goes for y'all!!

[January]

((((( Cake ))))) ((((( Everyone )))))

I love you and I'm praying for you all.

[Bubbles&Buttercup]

Went to a concert last night with some friends and my new man.
It was amazing! Standing still for so long was killing me though and my back was hurting so badly I could hardly stand and then the amazing man pulled me over to him and asked if my back was okay and helped support me and let me lean on him.
I didn't realise how lovely it is to have someone take notice of when you're struggling and help out without being asked.

I hope you all have a person in your life that does that for you!

[Pierro]

Originally Posted by Bubbles&Buttercup

Went to a concert last night with some friends and my new man.
It was amazing! Standing still for so long was killing me though and my back was hurting so badly I could hardly stand and then the amazing man pulled me over to him and asked if my back was okay and helped support me and let me lean on him.
I didn't realise how lovely it is to have someone take notice of when you're struggling and help out without being asked.

I hope you all have a person in your life that does that for you!

Aww, that's lovely. He is very considerate.

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[Kiya]

Originally Posted by January

((((( Cake ))))) ((((( Everyone )))))

I love you and I'm praying for you all.

Back at you!!!!

[cakeladie]

Bubbles it is nice to have someone there that can understand and sympathize with you and to just hold you when you need it

Kiya I don't know what to say I wish you were feeling better I wish we all are feeling better I wish they could find something to ease the pain we are in

LettinGo. I wish you the best for your surgery and I hope when you come out of it that you feel better and that you're not in the flare

Jan I hope you feel better and I hope and pray that your teeth do not give me any more problems

Christina I wish nothing but the best for you and I hope and I pray that you get some sleep I'm not getting any sleep I'm in pain I'm frustrated and I could just sit here and cry I hope I also hope the new doctor and the shots work for you they have worked wonderfully on me so I'm praying they work for you

Pierro welcome to the group I hope you get a lot of information and support from this group we are very tight group and we are all very special people. We tend to check up on each other which is really nice if you're single or you spend a lot of time by yourself no one but the people on this thread know the agony and the pain that you go through on the daily basis

Liz I haven't been around much I can't sleep I'm in pain my blood pressure is high and just kinda want to give up I know I can't. It really sucks to be strong all the time and I don't know how much longer I can take it.

I also know that at any given time I can pm any a guy and get support. Right now my hands hurt so bad and are in like
Claws that I'm having to use the voice system on my iPad to post this info to you guys. Does this make sense?

Just know that I think of you each and everyone of you every day and I pray that you guys have a pain free day

Sending all my love cake

Also if I forgot someone I am really sorry and I didn't get any sleep last night and I hurt so bad and I and I am so tired.

[cakeladie]

Oh this is for Liz. The kitten is a terror. We have taken to calling him little s$it and he wants to nurse on everything even hubby

[~Christina]

Sorry I haven't been as attentive and helpful here as I would like. I am snowed under with loads of things that need done. I think things will ease up by this time next week .

Gently hugs everyone, Be kind to yourselves.

[Kiya]

I'm ok.... pushing through.... lots of issues are up. Dissociation being tops. Then Migraines, and the usual body pain, fatigue, and panic. Slept 3.5 hours today between headache and dissociation; fear of finally putting pt over the edge with DID swap outs. But she said she's cool with it. Wish I were as cool with it and only had to deal with it for 45 minutes a week
Hugs to you all!!!! Hoping you all can feel just a little bit better tomorrow at least!

[lizardlady]

Cake, you don't have to be strong all the time. It's okay to given and feel like poo for awhile. There are times I give myself "pity party time." I tell myself I can have a set period of time to rant, rave, whatever I need to do about the fact it all sucks.

[LettinG0]

((((Everyone)))))

Welcome Pierro

I'm afraid I will forget someone so hope EVERYONE is hanging in there and maybe feeling a bit better...........

I have to put my surgery off for a few weeks so I won't lose my job over it.....I have a crappy job but it's a job.....will probably be another month....

Thanks to everyone for all of the sweet support...

[cakeladie]

Liz I am so tired of always being the strong one.

[Pierro]

Thank you lettingGO and indeed everyone that so warmly welcomed me. I am going to see my rheumatologist on Monday, today I am angry with him because he left me with pain. I know this is irrational but I feel like that today. My arms are ready to fall off, he gave me ixprim for pain and I may as well take nothing because they don't touch the pain I have in my arms or in my neck. I am sorry for ranting today. I am off work with a bad bout of depression and I don't know if it's depression or fibromyalgia that is making me this way. The two conditions I have seem to melt together so I can't distinguish between them. I want to go back to work in the next couple of weeks and I am afraid that I won't be able to cope with being back. I need to go back for financial reasons , of course the bills keep coming in and it is a very expensive time of year coming up! Sorry for ranting so long, but I can't say this to my husband although he has been supportive I can't help but think he hates me for being off. Any suggestions on anything/ everything mentioned above. My brain don't work anymore and I just want to see an end to all this pain,as I know you all do. *hugs and best wishes to all*

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[Kiya]

soooooooooo sick. not keeping food in... not able to eat. not the flu, but some stomach issue with migraine. really weak and still have to go teach today. 3 days ago I only had oatmeal for breakfast and dinner, with a slice of turkey and cheese for lunch. yesterday I skilled breakfast, had the same lunch, and only broth for dinner. today, nothing so far, but I guess I will have to have broth for lunch if I am to not pass out. oh I take that back, I had rice milk this morning because I felt ill with my pills - and promptly lost that. probably my meds, too. I feel like death warmed over.
blarg.
hugs to you all

[LettinG0]

(((kiya)))))

So so sorry you are so sick.....thinking of you

[January]

((((( Kiya )))))

Sending healing thoughts and prayers your way. I'm so, so sorry you are sick. Can you perhaps keep some yogurt or kefir down? It might work.

[lizardlady]

Originally Posted by Pierro

Thank you lettingGO and indeed everyone that so warmly welcomed me. I am going to see my rheumatologist on Monday, today I am angry with him because he left me with pain. I know this is irrational but I feel like that today. My arms are ready to fall off, he gave me ixprim for pain and I may as well take nothing because they don't touch the pain I have in my arms or in my neck. I am sorry for ranting today. I am off work with a bad bout of depression and I don't know if it's depression or fibromyalgia that is making me this way. The two conditions I have seem to melt together so I can't distinguish between them. I want to go back to work in the next couple of weeks and I am afraid that I won't be able to cope with being back. I need to go back for financial reasons , of course the bills keep coming in and it is a very expensive time of year coming up! Sorry for ranting so long, but I can't say this to my husband although he has been supportive I can't help but think he hates me for being off. Any suggestions on anything/ everything mentioned above. My brain don't work anymore and I just want to see an end to all this pain,as I know you all do. *hugs and best wishes to all*

Pierro, I believe if you took any healthy human being and subjected them to ongoing pain day after day they would be depressed too. What helps me is to focus on the idea that the current flare will eventually pass. Some times it works, some times it doesn't.

Something else that helps is something I mentioned to Cakeladie. I give myself permission to have pity party. I'll tell myself I have X amount of time to feel crappy and sorry for myself. Somehow giving myself permission to feel bad helps.

A soak in a tub of hot water helps me.

I have an electric heated throw that I wrap up in that really helps. I've been known t set the A/C really cold so I can wrap up in it in the summer.

[cakeladie]

(((((((((Kiya))))))))). I wish there was something I could do. Positive vibes and hugs coming to you from California

[lizardlady]

Sorry, I haven't posted much lately. I'm not fit to be around. Stress at work is through the roof the last few weeks. I'm ready to rip someone's head off and shout down the hole. I'm restricting where I go at PC and what I post because I'd like to tear some people a new one. Need I say that the stress is causing my fibro to flare? Oh yeah, a cold front went through this week. They are guaranteed to trigger a flare. I'm not sure I'm human right now.

[cakeladie]

Pierro costco currently has the throws Liz is talking about for under $40. I was wrapped in mine this morning. It helps a lot

[~Christina]

Well I am scheduled for a Lidocaine IV infusion on Nov 10th ! I hope it helps... if even a little bit.

I have been using my tens unit it helps a little while its zapping me.. But cant stay wired to it 24/7 .

Gentle hugs to all

Ps... Do something nice for yourself , daily!

[cakeladie]

I have a pounding headache that just will not go away

[January]

Everyone hang on tight. This is the time of year the weather gets us all. The heating wrap sounds lovely.

I hope the infusion works. Be sure and let us know.

Pierro, be patient with yourself and give yourself permission to grieve over your pain. It's always alright to talk to us here because we understand.

I thought I had pneumonia, but I have a horrible Upper Respiratory Infection that is viral. The coughing has made the fibro a lot worse in my back. Thank God I've got a gem of a PA and she gave me two scripts for cough and maybe the pain will calm down. I'm up in the middle of the night because I can't sleep because of the pain and the coughing. (I'm not sure I'm making any sense at all.)

I'm sorry I'm not doing roll call. I am afraid I will miss someone, but know I love you all.

(((((( Friends )))))