[backsters12]

In 05 i started having awful pain worse ever at 50 and unexplained fatiaque so i never took medicine for anything but i did like to have a few drinks here and there, so i would have a glass a wine at night and take tyneol for pain i did that for 2 years, then in 07 since i am/was lpn our mother had alizemizers so i started taking care of her in 07 she died in my arms i am told and the next thing i remember is i am coming out of a coma of 7 days and i had bitten my tongue almost off )it has healed back but no feeling) and left side nerve damage so i am not disabled. They put me under behavidoral help and i was put on so many meds, for 4 years i did that but i was wacked out and still have fibro brain fatigue and awful pain and regonize the weather controls pain. No medicine and no more drinking 2 years nothing but i do not have a life, i do so much for others vouleenterrr on my good days, but then bam and i am down and out again, i want to be able to go back to a new type of job to have extra income, but how can i when one day is good and then the next i can't do anything...i know i will have to take pain medicine some day i can not live with this pain so bad it makes me vomit!!!! Is there anyone out there, like this that dr's tell you you are bipolar and other things and it is fibro??? Maybe you do not considered this under your psych central but this fibro and cause depression, mood changes, isolation, thank you for reading this

[Travelinglady]

Last two nights, so much pain I had a hard time finally getting any sleep. Oh, well, I know I'll have another remission at some point. I am feeling a lot of stress from various life issues. I truly think that makes my fibro worse!

[lizardlady]

Originally Posted by PAYNE1

Last two nights, so much pain I had a hard time finally getting any sleep. Oh, well, I know I'll have another remission at some point. I am feeling a lot of stress from various life issues. I truly think that makes my fibro worse!

(*(*(*(*Payne*)*)*)*)

Stress definitely makes fibro worse!

[Twilightsky]

Hi everyone. Sorry I haven't been around much. I have been in the hospital as much as out lately. My fibromyalgia is acting up but it is because my sclerosis and MS are too. They want to do surgery on my back I still have not given them a decision as of yet. I need your psayers and support as well as you all have mine. I am sorry to hear that ya all are hurting as well. Lots of love and hugs go out to you ALL!!!!!

[backsters12]

Originally Posted by sabby

Welcome to the forum (((((( poozers61 ))))))

I'm sorry you are suffering so much right now. It is hard for others to understand how we are feeling when we don't "look" sick. I'm actually kind of lucky because I have daughters and friends who understand when I'm unable to be who I really am because I'm suffering.

Vent away here....that's what this place is for. You are not alone by any stretch of the imagination!


sabby

You are so right about people who do not understand, this past weekend was the worse, and today even though the weather is better, I am exhausted, and for the first time in a long time, I feel fed up, Was it because this past weekend I lanned ahead for the first time and wanted to be part of my church helping the community, food bank, etc., and litterly I could not drive, focus, pain was over the top, I do not take meds, but no one can tell me that there is a medicone out there I could have taken the last few days in order for me to function???? I am grateful to read that your daughters understand, I often wondered why my daughter does not take one moment to care about me does never check on me or ask me how i am??? She calls me to just vent, and before when I was working and doing well, she would always call and complain they could not pay there bills and of course I would send them money and bought all there furniture etc., now I can't I need and want to go back to somekind of job??? Ideas, Blessings and Prayers Lehigh Valley Pa is nice today,

[backsters12]

Originally Posted by sabby

Welcome to the forum (((((( poozers61 ))))))

I'm sorry you are suffering so much right now. It is hard for others to understand how we are feeling when we don't "look" sick. I'm actually kind of lucky because I have daughters and friends who understand when I'm unable to be who I really am because I'm suffering.

Vent away here....that's what this place is for. You are not alone by any stretch of the imagination!


sabby

did i send to you??

[Twilightsky]

My heart and prayers are with you ALL!

[Travelinglady]

Hope those who have had a bad week will be better this week! I had a pretty good week overall. It's nice to have a reprieve.

[sabby]

I'm glad you had a good week PAYNE1! This heat is killing me in so many ways. I can't deal very well with it. I hope it breaks soon.

((((((TwilightSky)))))) Thanks hon....hope you are finding some relief too.

[DoxieLady]

Originally Posted by Anonymous81711

I thought we could have a thread like neurotalk does to check in and tell how we are doing day to day or week to week ect.

So how is everyone doing?

I'm in a pain flare unfortunately, not too bad yet but its pretty ouchy, i might go to our little hospital tonight if it gets any worse.

Hi and hope everyone is having a good day, or the best that you are able to have. i have fibromyalgia among many other illnesses. Today, i just have alot of swelling and some minor pain. My dr had me on 3 different meds for it and i was doing great, hadn't felt that good in years, i could even make fists with now stiffness or pain. No pain at all and minimal swelling throughout my body. But, then i started having severe GI problems and after almost 3 months i was diagnosed with IBS. My dr thought maybe if we dropped 1 of the 3 meds it may improve my IBS. in less than a week, all my fibromyalgia came back, i could no longer make a fist... So, i called my dr and he told me to start taking the med again. Now, im just waiting for it to kick back in and hope it gets the fibromyalgia back in check.

[Travelinglady]

woke up with lots of pain, but has eased up some. This darn damp weather seems to make things worse for me, anyway.

Thinking of all of you with this aggravating problem called fibromyalgia....

[Wren_]

hi ..... i've just found this thread ... i'm finding most people around me (medical) don't believe in fibro as a diagnosis which makes it hard to get help and makes it mostly a lonely and painful journey ... thinking of all of you

[GoingBananas]

Hey tigergirl I just joined too and have been diagnosed by an internal medicine Dr who is very well respected in his field and still I am met with indifference at most turns when I have tried to get help with this. Most Drs seem like they do not even hear me and I am about ready to give up but what does that mean? Where do i go then? I have tried to teat it on my own and you can guess how that worked. I have tried all the medications he has recommended and have had very little if any reprieve. Some days the pain is the only thing I can literally see. if anyone knows or has any ideas for where I could even begin with this I will sure listen.

[lizardlady]

Gentle hugs for everyone else effected by TS Isaac. Changes in barometric pressure are a pain - literally!

[sabby]

Hey all my fellow fibro sufferers. Checking in with all of you to see how you are doing. How is the change in seasons affecting you?

I've been up and down with the pain and flares. I seem to be having a lot more issues with the foggy brain and it's really ticking me off. Honestly at times, it makes it hard for me to concentrate and remember what needs to be done. And, it has affected my work here as an admin. I'm working hard at bringing myself back to an acceptable space when I'm here so I am feeling a bit better in that department.

The weather is so changeable right now and I feel like I'm on a roller coaster. I never know what to expect....every single day is a crap shoot it seems. I love the cooler weather though, that is a big plus for me. Summer heat is a real killer for me, especially when it's humid.

I'm starting back on the neurontin that my doc prescribed for me. Having not had a job since the end of March and no income until this month from SSDI, I haven't had the money to afford my meds. I've been lucky to have been approved for some free meds through the prescription assistance group at our local hospital. They have been able to get my 4 top meds for me from the manufacturer for free. I'm blessed and very happy and I hope the neurontin kicks in very soon!

I hope you are all doing well. The holidays are coming and if any of you are like me, we end up having extra work to do so that our families have enjoyment. I'm not sure where I will find the energy to do all the baking I like to do, but I'm hoping I can find it somewhere!


sabby

[lizardlady]

Thanks for asking Sabby. I'm having a really rough go this week. I hurt so badly the last few days. I feel like someone is jabbing me with an ice pick. The fog is so bad I feel like my brain has turned to pudding. Got a case of the sorry for myselfs tonight.

[sabby]

Awww lizardlady, I'm so sorry you are feeling so rotten. I hope you enjoyed your own personal pity party....I've been having them for myself too lately!

I had the most interesting experience this evening. I was sitting in my easy chair in my bedroom watching television. The chair is right next to my bed, which is a queen sized bed....and it's all mine....LOL. Anyhow, I was online at the same time and I realized I would be able to read things better if I had my reading glasses on.

So, I got up from the chair, gingerly slid by my computer so not to knock it off the folding chair (yeah, great set up at the moment LOL), walked around the end of the bed to the other side of it and stood there, totally dumbfounded!!!

What the hell did I just get up from the chair and come over here for???? I looked at my bedside table and saw my big red water bottle and thought to myself, "no, that's not what I wanted" and it took another second or two to realize it was my glasses I was looking for. And the only reason I figured it out was because they were sitting right next to my water bottle!

Talk about brain fog!!! I was really taken back by that. I know I forget from time to time why I walk into a room, I think most of us have done that a time or two, but to totally loose what I was going to do in the 2.3 seconds it took me to get out of my chair and walk around my bed????? It really scared me for a few moments. And I'm still a bit shaken by it. But I do have to say, it's pretty funny in the grand scheme of things that is....LOL.

I hope you are feeling better very soon LL....please take wonderful care of yourself!

[sabby]

Weather change on it's way and ahead of it is my pain level on the rise. ugggh, this one is a tough one. I'm not looking forward to winter.

[tew1063]

Hello, I'm Tammy and I have Fibromyalgia, newly diagnosed. Don't know very much about it. Wish I did. I do know that I'm in a lot of pain, and I have more bad days then good. I get tired and need a nap every single day, and that is not at all how I used to be.
I take Lyrica for my Fibro and it works pretty good.. I also take a pain medication called Exalgo. I've never heard of that till I went to the doctor yesterday and he changed my pain med.
Anyway, it's not a good day for me today...Storm coming our way, and barometric pressure is kicking my butt. I'm hurting, bad.
Hoping to have a good day anyway.
Be blessed

Originally Posted by Anonymous81711

I thought we could have a thread like neurotalk does to check in and tell how we are doing day to day or week to week ect.

So how is everyone doing?

I'm in a pain flare unfortunately, not too bad yet but its pretty ouchy, i might go to our little hospital tonight if it gets any worse.

[tew1063]

Yesterday was a BAD day for me. I woke up with a terrible Migraine, and my Fibro pain was in full swing. I swear, weather changes do this to me a lot. But that was not the whole picture for me. My Fibro doctor changed my pain meds because INSURANCE refuses to pay for what he had me on. That makes me so angry sometimes. Don't they realize that the doctors are trying to help us?
I just recently found out I have Fibromyalgia, and I've had it for years. I was in an auto accident in 08 that left me disabled. I have spinal nerve damage and crushed vertebra in my lumbar spine. I also had a disc replacement in my cervical spine in 09. I get such horrendous migraines, 3-4 times a week. I'm on Lyrica, and now Exalgo to try and fight the pain I'm in. For the depression, I take Cymbalta which also haw other properties in it to help with pain. Still, the migraines just won't quit. I wish the insurance companies would let our doctors alone so they can leave us on the medications that Work!!!
Done venting now. Have a blessed day, eveyrone.

[tew1063]

I have Fibromyalgia and Chronic Pain from it. I get sever migraines, one of which I am praying to stave off from as i write this.
My husband has MS, so he can honestly relate to what I'm going through. As much as I hate that he has MS, I am very thankful that he understands me.
I hope you are having a good day. As for me, I'm just needing a little support right now. It is awful to get these migraines, as I'm sure you know. Unfortunately I get them 3-4 times a week, every week. A gentle hug would be great about now. That and a nice, deep massage might help. I'm just afraid to get one because I don't know if I can handle it any more.
God bless and keep you.
Tammy

Originally Posted by Anonymous81711

I thought we could have a thread like neurotalk does to check in and tell how we are doing day to day or week to week ect.

So how is everyone doing?

I'm in a pain flare unfortunately, not too bad yet but its pretty ouchy, i might go to our little hospital tonight if it gets any worse.

[tew1063]

Today is a good day for me. I have no migraine, which is not normal for me. I tend to get them 3-4 days a week.
I haven't seen anyone else posting here, but I choose to continue to check-in. It helps to know there is a place to go and share, even if no one is listening.
Have a great day, everyone. Bless you

[Travelinglady]

Hey, I hear ya! I have had some rough days this week, but I am managing. I was put on extended release Tramadol for other pain on Friday, so I'm hoping it will help the fibro, too.

[Travelinglady]

At least we're heading into spring where I live. Yay!

[gruvingal]

I was diagnosed with fibromyalgia in 1996. Since then I have had a lot of ups and downs. If I get sick or one of my injuries is bothering me the fibro gets worse. I am waiting to have an MRI to find out what is wrong with my neck and lower back. I am scared s***less because the thought of living the rest of my life in pain because of something besides the fibro is almost more than I can even think about dealing with. I also fear having to apply for disability and depending on the system. I have no retirement or medical insurance. I did until I quit my office job in 1998 because I could no longer handle being in a call center with all those people. I just pray it is something that can be fixed.