The Fibromyalgia check in thread!

porcupine2 · Mar 12, 2012, 07:44 AM

Quote:

Originally Posted by Twilightsky

My back is popping in all different areas. It is my Stenosis. I still fear having the surgery.

That sounds horrible Twilight - I can't even imagine what pain you go through. So debilitating. I know I complain about my aches and pains a lot but there are so many that have it worse than I do. Keep us posted re the surgery. We're here for you!

Twilightsky · Mar 17, 2012, 04:42 PM

Hey Ya all, thank you for your support. No am not sure if I will have the back surgery yet. I am still debating wondering if it will make it better or worse. I still am walking and I would like to keep it that way. As for my pain Porcupine being worse, I don't see that. I think pain is pain and we have all done Our share of suffering. I am so sorry you all have to suffer too. I love this site so much and I love all of you too. (((HUGS)))

wisewoman · Mar 22, 2012, 10:04 PM

I have a friend who was diagnosed last summer with Poly myalgia rheumatica. She was recently diagnosed with fibro and is always in terrible pain. Her doc gives her nothing for pain and she is on a waiting list for a pain clinic that specializes in relaxation and meditation. I seriously don't see that this will help her a real lot and I know docs hesitate to give narcs but she is not a drug abuser and has a very low quality of life. Anyone have experience with this? She goes to PT with a great therapist that has helped my back enormously. Thanks

Twilightsky · Mar 23, 2012, 01:05 AM

I moved to Colorado and it was hard to find a doctor to help me as well. I had to get so bad that I ended up in the hospital before I got the help I needed. I am so sorry that your friend has to suffer like that. Shoot I suffer with Meds at times. (((HUGS))))

lizardlady · Mar 24, 2012, 09:12 PM

Wisewoman there is some evidence that meditation and relaxation help reduce pain. Jon Kabat Zinn (I think that's his name) wrote a great book about mindfulness training for pain reduction. Sorry I don't remember the title of the book. I've been listening to the companion CD. If I remember I'll post about how it goes.

porcupine2 · Mar 25, 2012, 07:00 AM

I'm laughing today but yesterday was a different story. I was trying to remove the filter from my A/C window unit and accidentally pushed the A/C out the window!! Then trying to retrieve it was the worst idea I ever had as I am paying the price now....I feel like my arms are dislocated from my shoulders from trying to carry the dang thing. It is now sitting at the bottom of my porch stairs waiting for a good samaritan to help me put it back in. You've got to admit - if I had a video it would have gone viral.

lizardlady · Mar 25, 2012, 11:54 AM

Porcupine, I'm sorry that happened to you. I'd come carry the dang thing back in for you if I could.

At the same time I've gotta thank you for the funny image you created for me. I'm seeing a Porcupine wit it's front legs all stretched out cartoon style with an A/C unit dangling fom their hands. I know I've got awarped sense of humor.

lizardlady · Mar 27, 2012, 09:24 PM

Weather is changing here. I hurt.

gardenangel · Apr 01, 2012, 08:02 PM

lizard Lady, I'm sorry that you hurt. Can you tell me more about what type of weather makes your fibro hurt more?

Thanks

porcupine2 · Apr 02, 2012, 07:29 AM

the weather is changing here too. I notice that my pain is worse on days when the barometric pressure is low. it's also worse during the days before and following a full moon. I've been trying to keep track of this and now that monsoon season is here I'm sure I'll have a lot of opportunity.

lizardlady · Apr 02, 2012, 09:24 PM

Gardenangel, changes in the weather make me hurt. Changes in barametric pressure, both increases and decreases, make me hurt. Cold makes me hurt. I can tell when a weather front is moving in long before the weatherman announces it.

gardenangel · Apr 02, 2012, 11:42 PM

LL - thanks for the reply. I have been wondering if the weather is playing a part in how much I hurt - especially after several days of manageable pain. Than, BAM, I ache so much. I am going to start keeping a weather chart. Hoe did you first begin to notice that the weather plays a part?

lizardlady · Apr 04, 2012, 05:45 PM

Quote:

Originally Posted by gardenangel

LL - thanks for the reply. I have been wondering if the weather is playing a part in how much I hurt - especially after several days of manageable pain. Than, BAM, I ache so much. I am going to start keeping a weather chart. Hoe did you first begin to notice that the weather plays a part?

Oh boy do I hear you about the BAM days gardenangel!

I'm not sure how I started to notice weather effects me... I guess I just started to notice a correlation. Then I read somewhere that weather effected fibro pain so I paid closer attention.

sabby · Apr 08, 2012, 12:37 PM

I, too, have more pain when the barometric pressure gets lower and storms move in. I'm usually not too bad if it's just a small cloudy/rainy situation, just if they are bigger storms that don't move on too quickly.

I never correlated anything to the phases of the moon but I think I will check it out to see if that is something that affects my pain levels as well.

Then, there are those BAM times when there seems to be no weather issues or anything real stressful or that I've done anything physically stressful to warrant a massive amount of pain/exhaustion/foggy brained time....it just happens, like other things happen....

I've got a physical schedule for the 20th. It will be interesting to see what the doc is going to suggest for the issues I'm having now. I've been on cymbalta for a couple of years at 60mg. It just doesn't seem to be doing the trick like it used to for whatever reason.

I wish for others, relatively pain free days and clearer minds.

porcupine2 · Apr 09, 2012, 07:07 AM

yep - thunderstorms are on their way......I can barely walk thru my house

lizardlady · Apr 13, 2012, 08:49 PM

Between the current fibro flare and arthritis pain -
I'm so friggin' tired of hurting!!!!!

sabby · Apr 14, 2012, 07:16 AM

Gentle hugs to you Lizardlady. I'm so sorry you are hurting so much. I do hope that your rant helped you to release some of the frustration and pain. You go girl!!!

Sending you healing thoughts and keeping you in my prayers.

porcupine2 · Apr 22, 2012, 07:53 AM

Tomorrow I have an appointment with my doctor and I decided to bite the bullet and take the medical cannabis application form with me. I already have the 2nd certification from a specialist but I'm so nervous - I'm not used to the stuff being legal. I am convinced it will help with my sleep and pain at night, as right now I am lucky to get 3-4 hours each night. The worst he could do is say no, right?

sabby · Apr 22, 2012, 02:32 PM

I can only imagine how weird this must be feeling for you. I do hope that the dr approves your request though. You deserve to have something that can help you sleep and help with your pain. Keeping you in my thoughts and prayers!

porcupine2 · Apr 25, 2012, 06:45 AM

Quote:

Originally Posted by sabby

I can only imagine how weird this must be feeling for you. I do hope that the dr approves your request though. You deserve to have something that can help you sleep and help with your pain. Keeping you in my thoughts and prayers!

Well, I chickened out. But I still have another appointment this week, this one with my psychiatrist. I'd qualify under PTSD, and if not, I'll just keep buying the stuff anyway. I just don't like being paranoid that I'll be caught.

lizardlady · May 24, 2012, 09:06 PM

Today is Day 2 of the flare from Hades. I hurt so badly today I sat at my desk and wanted to cry. Couldn't sleep last night I hurt so badly. Not sure I'm going to be able to get to sleep tonight either.

poosers61 · May 26, 2012, 04:54 AM

a couple days late but I feel for ya.. my flare up just began tonight.. waiting to see what is going to happen. Hope yours is better now..

poosers61 · May 26, 2012, 05:03 AM

Hi Y'all I am new to this forum.. It took me a while to find the Fibro section but I found it. I am having a major flare up tonight and unable to sleep even tho my eyes are drooping. I just need a place to vent. Not much of a support system around me these days. WHO wants to talk to a SAD SACK that can only talk about how much she hurts... or forgot to take her meds.... or couldn't sleep again last night. My husband is the worst but I better not get started on him right now.. anyway I have read some of your messages and see that most are feeling the same as me and am hoping to be able to vent and discuss problems and make some new friends...

sabby · May 27, 2012, 10:59 PM

Welcome to the forum (((((( poozers61 ))))))

I'm sorry you are suffering so much right now. It is hard for others to understand how we are feeling when we don't "look" sick. I'm actually kind of lucky because I have daughters and friends who understand when I'm unable to be who I really am because I'm suffering.

Vent away here....that's what this place is for. You are not alone by any stretch of the imagination!

sabby