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#376
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Quote:
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"Every moment is a fresh beginning." (T. S. Eliot) "Problems are not stop signs, they are guidelines."(Robert H. Schiuller) * * * * * * ![]() |
![]() Deilla, MimiBhaduri0
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![]() Deilla
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#377
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Quote:
__________________
‘Live for now,’ ‘This too shall pass,’ ‘Everything is happening for my good.’ |
![]() Breaking Dawn, MimiBhaduri0
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![]() Breaking Dawn
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#378
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I am doing well today. I have everything I need right now, & I've enjoyed some of my favorite things so far today.
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"Every moment is a fresh beginning." (T. S. Eliot) "Problems are not stop signs, they are guidelines."(Robert H. Schiuller) * * * * * * ![]() |
![]() Deilla, MimiBhaduri0
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#379
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It seems that each time I have a sinus infection or respiratory infection it triggers both of my rare diseases.
![]() ![]() ![]() Thursday, March 11th 2021- I have my consultation with my new immunologist. I have my fingers crossed ![]() Chronic Idiopathic Urticaria- I’ve tried several antihistamines over the years and the only one that works for CIU is hydroxyzine...unfortunately it’s a sedative. Xolair is not a good match for me...it’s too risky in regards to the side effects and other autoimmune diseases that I have. Hereditary Angioedema-I have one Firazyr injection remaining. My previous immunologist did not feel comfortable prescribing me a preventative medication. He said, the side effects were too much for my health. I’m having a day of extreme frustration. I’m tired of itchy chronic hives, not regular hives that feel like my skin is on fire ![]() I’m tired of my face, feet and hands looking like I was jumped into a gang. I’m also tired of fatigue, sore throat and runny nose. I’m tired of having so many chronic illnesses that finding treatments is difficult. I’m also so hurt that I’ve lost multiple family members. The grief is so real. I know my ancestors are in my corner and watching over me but the pain of missing my family members hurts deeply. I’ve been continuing to eat ![]()
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#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
![]() Breaking Dawn, Deilla, MimiBhaduri0
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![]() Breaking Dawn
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#380
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Hi, @Cocosurviving, I hope your new immunologist listens to you. He should. You sound very knowledgeable. And I'm so sorry you have lost so many loved ones. I know how painful that is, & it takes a long time to adjust, even to lose one. I wish you luck & spiritual guidance. Please stay in touch & let us know how things go, ok?
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"Every moment is a fresh beginning." (T. S. Eliot) "Problems are not stop signs, they are guidelines."(Robert H. Schiuller) * * * * * * ![]() |
![]() Deilla, MimiBhaduri0
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![]() Cocosurviving
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#381
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I'm doing okay today. I sort of feel numb and like I don't care anymore. I started my day early.
__________________
‘Live for now,’ ‘This too shall pass,’ ‘Everything is happening for my good.’ |
![]() 88Butterfly88, Breaking Dawn, MimiBhaduri0
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#382
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My depression is still ok. My old therapist is basically out of my mind now. Although I did have a brief thought of her this afternoon. Then I said to myself “just tell the new therapist that.”
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"Good morning starshine.... the earth says hello"- Willy Wonka |
![]() 88Butterfly88, Breaking Dawn, MimiBhaduri0
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![]() Breaking Dawn
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#383
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My depression is moderate today. I did mange to get to a virtual event which cheered me up a bit but still not feeling great.
__________________
"Although the world is full of suffering, it is also full of the overcoming of it.” – Helen Keller |
![]() Breaking Dawn, MimiBhaduri0
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![]() Breaking Dawn
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#384
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Yesterday (Wednesday) I made a lot of calls and returned emails. I’m excited and nervous about meeting my new immunologist. I hope he listens and doesn’t have an ego. I’m starting to pull through this dang sinus infection.
__________________
#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
![]() 88Butterfly88, Breaking Dawn, Deilla, MimiBhaduri0
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#385
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Miserable and uncomfortable with myself.
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![]() 88Butterfly88, Breaking Dawn, Deilla, MimiBhaduri0
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#386
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Still got little motivation.
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![]() 88Butterfly88, Breaking Dawn, Deilla, MimiBhaduri0
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#387
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Today wasn't a feel good kind of day. It was very slow at work today, but it was busy yesterday. Not only was it slow and boring at work today, I felt like I was striking out at solving some issues I was facing. Feelings of disappointments and defeat. I hope that tomorrow will be a better day.
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![]() 88Butterfly88, Breaking Dawn, Deilla, MimiBhaduri0
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#388
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I need to leave the TV off and clean the house. I'ld feel better, if I got something done today. So far this week, it's been like I just gave up. That leads to depression.
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![]() 88Butterfly88, Breaking Dawn, Deilla, MimiBhaduri0
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#389
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I'm doing okay I guess.
__________________
‘Live for now,’ ‘This too shall pass,’ ‘Everything is happening for my good.’ |
![]() 88Butterfly88, Breaking Dawn, MimiBhaduri0, Rose76
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#390
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I'm feeling down and in a funk.
__________________
"Although the world is full of suffering, it is also full of the overcoming of it.” – Helen Keller |
![]() Breaking Dawn, MimiBhaduri0, Rose76
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#391
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Feeling very isolated today and trying not to let it get to me. It will pass, but it does suck some.
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"And right here is where we store our sanity. As you can see, it's currently missing" |
![]() Breaking Dawn, Deilla, MimiBhaduri0, Rose76, Yzen
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#392
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Very slow at work today again. At least there was a nice pizza lunch. A woman at my job put it together because she's leaving and got another job. So many at the place, including myself, are going to miss her. She was always nice to me.
I came home feeling very depressed today and already dreading Monday. Isn't that silly? But I worked out and then lined up some nice music while working out and at dinner, and that made me feel better. Plus the dinner was good and so was desert that was provided for me at work. Feeling OK now. |
![]() Breaking Dawn, Deilla, MimiBhaduri0, Yzen
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#393
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I had a difficult morning but I'm doing better now.
__________________
‘Live for now,’ ‘This too shall pass,’ ‘Everything is happening for my good.’ |
![]() Breaking Dawn, MimiBhaduri0, Yzen
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#394
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The morning is half way over now and I'm half way through cleaning my place. Felt very depressed this morning. I talked to my friend last night and he depressed me a lot, which he does so many times. So I sent him a message saying that we should cool it for a while. He's very negative and critical and hardly says anything encouraging. It's very hard to let go the only friend I have.
I'll be finishing up the cleaning and then have lunch and shop. Nothing much after that. |
![]() Breaking Dawn, Buffy01, Deilla, MimiBhaduri0, Yzen
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![]() Buffy01
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#395
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Quote:
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![]() Breaking Dawn, Deilla, MimiBhaduri0, Yzen
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#396
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I been feeling really depressed lately because people lately have been extremely rude toward me.
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![]() Breaking Dawn, Deilla, MimiBhaduri0, Yzen
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#397
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It's very hard to let go of an only friend I have. The time before this time that we split up, it was very nasty. But later he tells me that he misses me a whole lot. I don't know why since he seems to have a fairly good amount of other friends. It's amazing to me on how people who do not seem likable can do pretty well with having friends. Recently I called him because I was in a bike accident. I recalled that he was in one and I wanted to know how he handle it. He was very helpful to me about it. But then we got back together and it went pretty good. Afterwards, it's back to the old crap again. |
![]() Breaking Dawn, Deilla, MimiBhaduri0, Yzen
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#398
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Saturday was decent. I never say my day is “great” and the term “good” makes me equally as uncomfortable. Why? I’ve had depression since I was 16 years of age. Depression is like any other chronic illness....chronically flaring up. I don’t like labeling my days as “great or good” because of the off chance I jinx myself. Yes, seriously and toxic positivity (which is gaslighting) will not change my view. I had a close friend with bipolar, asking about her day was a trigger.
Although I’m no longer in remission, my autoimmune diseases and rare diseases impact my life more than depression. I’m still cautious about labeling my days. Most of my flare ups happen after midnight. A few months ago, I was having a fun day. I was asked about my day and got caught up in the fun I had ![]() I **** you not, that night I had a horrible Chronic Idiopathic Urticaria flare up. I actually don’t see the purpose of sales clerks who are complete strangers asking customers about our day. A simple greeting would suffice. I doubt these sales clerks wanna hear about my crappy insurance coverage and **** load of medical bills. I usually respond with, “I’m alive.”
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#SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
![]() Breaking Dawn, Deilla, MimiBhaduri0, Yzen
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![]() Breaking Dawn
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#399
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I'm making tiny adjustments to life and hope they add up to major changes. I trying to learn to pause my reactions to things and am encouraged by it. I injured my lower back a few weeks ago and caring for my injury has been another day-to-day tiny adjustments. It is slowly healing (i hope).
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![]() Breaking Dawn, Deilla
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#400
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I'm sort of hopeful today.
__________________
‘Live for now,’ ‘This too shall pass,’ ‘Everything is happening for my good.’ |
![]() Anonymous41462, Breaking Dawn, MimiBhaduri0, Yzen
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Closed Thread |
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