[silentandscared]

DCIS Non invasive Breast Cancer

Treatable surgery and radiotherapy and then Tamoxifen maybe

So confused, so sad, so mad, so disbelieving, want to talk about it , then want to forget, family history will this be me soon maybe not now but next time, anut died yesterday on day l find out, grandmother died of it too, should l just agree too have double matectomy now so it wont come back......l dont know, maybe it will be ok, maybe can find strength, maybe im not weak, maybe just maybe it will be ok............i just dont know but then l suppose no point worrying what will be will be..........take it as it comes
sorry know im rambling but just had to get it out somewhere so ill shut up now........its just that i'm so very scared and dont know what too domaybe should just scream and shout and let it all out........maybe thats what l need

mandyx

[cantstopcrying]

Oh sweety, I'm so sorry. This is so very hard. My great-grandmother, grandmother, and great aunt died of breast cancer and my aunt had it and had a double mastectomy. My mother has anxiety attacks every time it's time for her mammogram. Please know I'm sending you thoughts and prayers.

[Perna]

Very hard. I've heard though that the "preventative" masectomies don't necessarily prevent it. I'm so glad it was caught in situ and isn't a regular cancer. Everyone has cancer cells in their body, it is just that some "happen" and some don't. I had in situ cancer cells in a polyp found during a colonoscopy.

I hope you have a counselor or someone to talk to about all this. It sounds really upsetting, especially with your family history.

((( SAS )))

I'm sorry you are faced with this. My mom had breast cancer along with her lung cancer. It is scary stuff, especially when it's familial. You feel like a ticking time-bomb.

Knowledge is power. I would suggest learning everything you can about it before you make any decision. Maybe even get a second opinion. The more you know, the better the consultations will be.

We're here for you.

[silentandscared]

Originally Posted by Perna

Very hard. I've heard though that the "preventative" masectomies don't necessarily prevent it. I'm so glad it was caught in situ and isn't a regular cancer. Everyone has cancer cells in their body, it is just that some "happen" and some don't. I had in situ cancer cells in a polyp found during a colonoscopy.

I hope you have a counselor or someone to talk to about all this. It sounds really upsetting, especially with your family history.

i THOUGHT THE IN SITU SOUNDED GOOD

thought oh so dont have cancer.......wrong just confined within the duct...not cells but a tumoursorry

[silentandscared]

Originally Posted by Orange_Blossom

((( SAS )))

I'm sorry you are faced with this. My mom had breast cancer along with her lung cancer. It is scary stuff, especially when it's familial. You feel like a ticking time-bomb.

Knowledge is power. I would suggest learning everything you can about it before you make any decision. Maybe even get a second opinion. The more you know, the better the consultations will be.

We're here for you.

The more l find out the scarier it gets....statics for later 50/50 so l dont know good or not????
Heads a mess cant think straight think just need to switch it all off for a while but maybe a second opinion is a good way to go....stupid but l dont want to loose my breasts...l just dontsorry but the tears are coming thick and fast
Thank you for caring

[cantstopcrying]

Sweety it's not stupid. It's scary. A 2nd and even 3rd opinion would be good.

[gimmeice]

((((((((((((((((( mandy )))))))))))))))))))

I am so sorry that you are going through this, a second opinion does sound like a good idea. I also agree that having a counselor or someone to do talk about this with would be of great benefit for you. I am sending you lots of safe, gentle hugs.

[silver_queen]

((((((((((( silent ))))))))))

[nightbird]

Dear Silent,

The good news is this is caught in an early stage, Dear Person.

The thing that helps many of us... is to get some good reading materials that are current, like the Anti-Cancer books Dr's are writing themselves, who have had cancer and survived to research up to the minute, and help us...

It also helps to get on this right away, not put it off for a better time, because there is no better time.

There are support groups and information areas where you live that you can call up and see for direction and updated information, like start checking out your Cancer societies there, and search the web.

These are invaluable steps, btw.

Starting to diet where one cuts out sugars and foods that aren't best for the person with cancer is another good start.

So, seeking out education, support and the right foods for now should keep you busy while you are waiting for the Dr's to form your treatment plan.

Meanwhile, you have us, and we have just begun a cancer group here at PC also, so, you are welcome to all the support we can muster.

BellaRuth Naperstak... you know how I love her, right?
Well, I got to know her guided imagery tapes and affirmations thru my own battle with the 'C'.

She has one that I highly recommend to start with - Fighting Cancer - I beleieve that's the title, anyway, I have done all of her cancer tapes for my treatments and they helped me tremendously.

Try and stay positive Dear Silent, as that I found helps us too!

The mind-body connection is real, and here, in this area, we can help ourselves to heal quickly and lessen discomforts alot.

www.healthjourneys.com I believe is the website to order those tapes I told you about. Or check amazon. But health journeys is BellaRuth's site.

Stay strong... read .... empower yourself and hopefully you will assemble together a good health team that will all meet your health goals quickly.

PM anytime.

You will make it through this! Say this to your mind and body over and over until you know it! Also, remind your body how it has the ability to heal, and help you in this time.... treat your body and your psyche like gold, Dear Silent, as you need to be strong and determined to make your healing happen... and you can do that with help.

My positive thoughts go out to you for the courage and strength to do what you have to, whatever it takes, to make your recovery happen.

You can do it!!!! I have every faith in you!

Love and Peace,
night
xoxo

[silentandscared]

Originally Posted by nightbird

Dear Silent,

The good news is this is caught in an early stage, Dear Person.

The thing that helps many of us... is to get some good reading materials that are current, like the Anti-Cancer books Dr's are writing themselves, who have had cancer and survived to research up to the minute, and help us...

It also helps to get on this right away, not put it off for a better time, because there is no better time.

There are support groups and information areas where you live that you can call up and see for direction and updated information, like start checking out your Cancer societies there, and search the web.

These are invaluable steps, btw.

Starting to diet where one cuts out sugars and foods that aren't best for the person with cancer is another good start.

So, seeking out education, support and the right foods for now should keep you busy while you are waiting for the Dr's to form your treatment plan.

Meanwhile, you have us, and we have just begun a cancer group here at PC also, so, you are welcome to all the support we can muster.

BellaRuth Naperstak... you know how I love her, right?
Well, I got to know her guided imagery tapes and affirmations thru my own battle with the 'C'.

She has one that I highly recommend to start with - Fighting Cancer - I beleieve that's the title, anyway, I have done all of her cancer tapes for my treatments and they helped me tremendously.

Try and stay positive Dear Silent, as that I found helps us too!

The mind-body connection is real, and here, in this area, we can help ourselves to heal quickly and lessen discomforts alot.

www.healthjourneys.com I believe is the website to order those tapes I told you about. Or check amazon. But health journeys is BellaRuth's site.

Stay strong... read .... empower yourself and hopefully you will assemble together a good health team that will all meet your health goals quickly.

PM anytime.

You will make it through this! Say this to your mind and body over and over until you know it! Also, remind your body how it has the ability to heal, and help you in this time.... treat your body and your psyche like gold, Dear Silent, as you need to be strong and determined to make your healing happen... and you can do that with help.

My positive thoughts go out to you for the courage and strength to do what you have to, whatever it takes, to make your recovery happen.

You can do it!!!! I have every faith in you!

Love and Peace,
night
xoxo

Dear Night

Thank you so much for all your words and guidance . Today l am calmer which is a good start l suppose and am going to spend today looking up some of the things that you have said.
Waiting for all this to happen is hard but maybe its good as it allows me to feel all that need to feel. l do trust the drs and know they will only do whats neccessary so for today at least l will rest, research and arm myself with as much info as possible.
Take care Night and thank you
Mandyxx

[silentandscared]

Ok so ive read and read and read.......too much in my head, too many decisions to make......dont even want to think of it.......will call tomorrow and delay surgery need to speak with T about all thison Tuesday thats if she is back this week....she doesnt know yet ben off sick.........cant do surgery til ive spoken with her........teen alter very distressed , mad even cant settle her......need to first before can do anything.....madness, panic, fear and sadness all coming back with force.Funeral on Thursday have to travel 300 miles for that too cant do surgery befor ethe funeral its just too much......need to speak with T first........sorry know im rambling but just have to get all this out all these different opinions radiotherapy yes or no, meds yes or no, lumpectomy or just proceed with double mastectomy ?????better safe than sorry ?????idk.....does any one know.....how do you decide.......how can it all be sorted in my head......need to switch it all off.... think l try some guided imagary again, need to forget and try to sleep some..............sorry

[multipixie9]

my mom died of breast cancer, it was widely spread before she got to a doctor. she'd had some symptoms for over 18 months before she discovered a lump in her breast. even then she put off going to doc for another week.

i need to get a mammogram and a full checkup, whatever you do for a woman who's had a hysterectomy. i have neglected these exams because it triggers my alters soooo much. i feel i am behaving stupidly but the fear and hesitation to go do it is freaking strong!!!!

i need some mental help with this, not just another "suck it up and don't be stupid" lecture from someone at the doctor's office. i know good and well it is stupid to put it off but i have no one to go with me and i can't do it without anti-anxiety meds. i just realized i need to ask my daughter sarah to take me. she would do it willingly and not begrudge the time and effort, besides she hates her job, she'd probably love a day off (LOL). silver lining to every cloud, hunh?

leslie and the pixies

[madisgram]

oh, silent , getting another doctor's opinion on this would be helpful. the more info you have the better to make wise decisions. at least that's always been the case for me. keep us posted on how you r doing, k? hey and shouting it out is healthy too...it doesn't solve the prob but it releases some of that anxiety building up inside you.

[silentandscared]

Originally Posted by madisgram

oh, silent , getting another doctor's opinion on this would be helpful. the more info you have the better to make wise decisions. at least that's always been the case for me. keep us posted on how you r doing, k? hey and shouting it out is healthy too...it doesn't solve the prob but it releases some of that anxiety building up inside you.

Thank you Madisgram
Yes another opinion is what l need l think saw doc today and asked to refer to the research hospital she said ok. Surgery was postponed til next Monday but T cant come so now wait for referral to other place but if not T available to come the following week and has spoken with the surgeon. Now have to make tat decision wait til week on Monday, or wait for th referral to research hospital( QE super hospital) haha or proceed next monday on my own without T being there. Just dont know all a mess surgeon say ok if need to wait......sometimes head says ok to wait other times get it out now......just confused......

[(JD)]

The good thing about "in situ" is it isn't an emergency...it can wait for you to make some decisions and investigate.

I think you're over-reacting on the double masectomy. This is a simple extraction of small lumps who's cancer hasn't ventured outside of it's place nor into the rest of the body. Just do this for now and feel comfortable with it.

Usually radiation is done for several weeks and then the 6 months checks.

If it should occur again IF then you have had time to think about what you would do "IF" and won't be REacting to news. With technology moving along as it is, you may not ever need such radical surgery in the future either.

Think healthy thoughts. Your body completely replaces itself every 7 years...

Now breathe...

[silentandscared]

Yes once again total over reaction hey but then hey thats me. Have all the facts and data so maybe should have known better than to even post this but at the time it seemed like a good idea to post it here but maybe l was very wrong.

My aunt who we will bury on Thursday thought she had time and so did my grandmother too....... but now they are both not here....so should l be be worried .........anxious.......want or need to discuss this stuff thought that was the purpose of being hereso that l couls say all the things buzzing in my head

[cantstopcrying]

You say whatever is in your mind, sweety. It's your post! If it were me, I would wait until t is available.

[free2beme]

(((sas)))

take a deep breath............you have information

you know options...........you know what you need

this is your choice.............you get to decide

we are here for you

Originally Posted by silentandscared

Yes once again total over reaction hey but then hey thats me. Have all the facts and data so maybe should have known better than to even post this but at the time it seemed like a good idea to post it here but maybe l was very wrong.

Of course you should post here

It helps me a lot to post things on these boards....it helps me to get things out of my head, think them through, look at them, get other's opinions, ideas, and experiences. It never ever helps us to be alone with our scary thoughts, whatever they are.

My mom had the kind of breast cancer that you are talking about...but also the type that's not "in situ". She ended up having a mastectomy because of the other one. She also had chemo. She's very healthy now and all of her follow up mammograms, etc. have been clear.

My dad died of colon cancer, and then my mom had breast cancer (both in their 50s) so I am very scared of cancer. I need a mammogram myself, I've never had one because I am younger than 40, or whatever the age is when they usually start. I understand the fear that the word "cancer" strikes in your heart!

Take your time, and post whenever and whatever you need to.

[silentandscared]

Originally Posted by earthmama

Of course you should post here

It helps me a lot to post things on these boards....it helps me to get things out of my head, think them through, look at them, get other's opinions, ideas, and experiences. It never ever helps us to be alone with our scary thoughts, whatever they are.

My mom had the kind of breast cancer that you are talking about...but also the type that's not "in situ". She ended up having a mastectomy because of the other one. She also had chemo. She's very healthy now and all of her follow up mammograms, etc. have been clear.

My dad died of colon cancer, and then my mom had breast cancer (both in their 50s) so I am very scared of cancer. I need a mammogram myself, I've never had one because I am younger than 40, or whatever the age is when they usually start. I understand the fear that the word "cancer" strikes in your heart!

Take your time, and post whenever and whatever you need to.

Thank you so much for your kind words, yes my mind is still in turmoil and l had rescheduled for monday but T cant be there so my option is go ahead without her or wiat til the following week so she can be with me. I am favouring the later and think thats what l will do.........scared yes very scared.....l know the reality and that it will hopefully turn out well trying to focus on that but very up and down at the moment so days good some not so good. The funeral the other day for my aunt was very difficult and had me imagining all sorts but thanks to a good friend from pc reality is back in place and im calmer although fear still lies deep within. Cancer to me is also very scary after loosing many close ones including the father of my first child at the age of only 26........it can and doeshave bad effects and lasting memories.......it is those that sit deep within l know its different but l cant make the fear dissolve no matter what l try
so thank you once again.........l think l will need to post as it gets nearer and l will try to stay focused on the thing in hand although l cant promise

Mandyxx

[nightbird]

How are things going, Dear silent?

I hope you know that relaxation and guided imagery can help you remain calmer through this... and it is difficult and frightening for the most part, but once you decide what treatements and road you want to take, you can rely on your medical team to accomplish this, be vigilant, and show up for each treatment, and before you know it... you are getting through it.

It helps to take it one step at at a time, and not look at the whole thing as something to solve at once.

If you can, stay in the moments, in the day, in the present, and these times add up to the completion and we experience much less anxiety.

BTW, attivan and any medications you need to get through this experience is usually available from your medical doctor overseeing your treatment. It is not at all uncommon to need some help for anxiety, and any discomforts, and you will receive this aide as they want you to focus on your body, your responses and your healing and not on the fright or stress we experience - because we are only human... so don't ever be afraid to ask for some help if you need it...okay?

That is what I hope you will consider, staying in the moments, in the present, and not take on the big picture while you have to take your treatments a day at a time....

It worked for me anyway, and ALSO, this was invaluable, write out all the steps you are taking each day... if not each day, at least bring a notebook to appts. and log what you are eating and such. It helps everyone on your team to know where you are at, and you can get better communication from them.

If you can, join a support group and if you really want to get some positive people around you also try finding a qi gong group. Or some yoga group, or any exercise class where healing is the focus - from health issues, it's gentler and so, so supportive.

If you can, down the road, see a nutritionist.

See, there are many things you can do to become active in your recovery, but you do have to take things day yo day, week to week, or your head will spin... only kidding about that part. ( ;

Check out some things in cancer survivors here, I think some stuff has been put up there that you can view, and also, just look at this time as a total healing experience... I did, and that helped me also.

I gave myself over to healing and once I made that commitment, windows and doors just started opening up for my health and goal to be well.

I wish the same for you!

Love and Recovery,
night

xoxoxo

[silentandscared]

Night

Once again a dep caring person bringing me back too reality which l think is what l need right now. The guided imagary and visualisations stuff that we have been practising is as you say helpful to place me in the calming moments. Trying very hard to stay in the here and now which has been proving very hard but today feeling more hope so maybe am being to see through the thick dark clouds. Focusing now on that while its here and go for the surgery and said to T today to not let me cancel again lol....how she would do that im not sure but for now here today l think l am ready for the next step and for now that is all l can think about ,one step at a time then we will await the next step
Thank you so much for all your kind words and wisdom ,l really appreciate them

Peace, health and happiness to you dear one
Mandyxx

[Zorah]

((((((((((silent))))))))))
thinking of you, & sending all good wishes your way

[silentandscared]

Hi everyone who posted here

Justwanted to give you a quick update and to say thank you very much..............had the surgery for the removal of the two lumps..........surgeons remarks after the surgery were the best he could have hoped for tumour contained with in the duct with no visual evidence of any spread or breakthrough to other areasso all this sounds promising and l know l panicked and ranted alot and was scared beyond believe so although it was hard to actually go in to hospital and im very sore now it was all worth it in the long run...... so once again thank you for your support and kingness but most of all your patience with me........................results now may be available on the 29th but right now not really thinking about that...... for now at least step one is complete

love mandyxx