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  #801  
Old Dec 27, 2014, 02:36 AM
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Quote:
Originally Posted by catonyx View Post
I don't have much that wouldn't be suitable for public forums.

Hopefully I can get to a place where I can post more... Or maybe I just need to take a chance.

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  #802  
Old Dec 27, 2014, 03:44 AM
Anonymous200320
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Originally Posted by NowhereUSA View Post
Maybe it would. I really liked the book by Brene Brown, Daring Greatly. It could be freeing to get to know someone and very slowly open up to them. My T is always telling me to "be open" and to accept the love of those around me (which I groan and roll my eyes at because soooooo fluffy). That being said, I've become more open with my husband and my best friend and it's been incredibly affirming.
My T is always telling me to be more open with my H. Or no, he isn't telling me to do anything as such - he never does that - but he keeps asking me pointed questions that suggest that he thinks it would be a good idea, and when confronted, he admits that he does think so. I keep working on making him understand that it is not possible and would not be a good idea, but it is uphill work. I'm glad he doesn't talk about accepting love, though. That would be too embarrassing. (And he shares my dislike of Brene Brown. That woman rubs me the wrong way - I have tried watching a TED talk with her but I had to switch off after a few minutes.)
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catonyx
  #803  
Old Dec 27, 2014, 05:09 AM
Anonymous200320
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No new election to Parliament in March. I am so relieved.
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  #804  
Old Dec 27, 2014, 05:20 AM
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Originally Posted by JustShakey View Post
Take a chance. And sometimes I find thinking about how to word things so they're not too identifying to be oddly helpful...

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I will have think about that...

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  #805  
Old Dec 27, 2014, 05:24 AM
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catonyx catonyx is offline
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Quote:
Originally Posted by stopdog View Post
I don't think most people are as unique and findable as they think and most other people are not paying all that much attention to begin with. For example, I am not particularly unique and I don't think I would recognize even a close friend of mine who was posting anonymously unless they did something wildly identifying like giving their name, location, and date of birth. I found, reading thread dating back a few years, that people seem to fall into categories but other than that are not all that distinguishable from others in that category.

Well, I wish that was the case. Believe me, I'd rather just fit in. There is one aspect that is very identifiable to anyone I know. Even with leaving out personal info and birth date.

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  #806  
Old Dec 27, 2014, 05:31 AM
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People are unique, that is the only universal common denominator we have... but that doesn't mean that it can't be possible to find things one has in common with others.

And there are things that I have posted that would identify me without a doubt to a small group of people. The key is, I think, not to post words that would come up in an online search, such as names of places or people or pets.
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  #807  
Old Dec 27, 2014, 05:53 AM
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This is probably my anxiety medication speaking... Maybe I'll delete it later when I come to my senses.

I have a child who was recently born with a very rare disease. I am her caregiver and will be for life. I have to see things I'd rather not see. She has to endure things that no child, or person for that matter, should. The future is muddled with different visions that are of varying degrees of difficulty and only time will tell how it really goes.

There are regular every day things that we can't do with her and others that we have to be incredibly careful of. We have to be cautious daily to ensure she never requires hospitalization or suffers worse consequences.

The things I want for her life are lost in the mix along with the visions of our family doing various things over the years. We will still do things, yes, but they will be different.

I struggle to deal with all this. I find myself wrapped in a mess of depression and anxiety and I am very alone. I wish I could find someone who knew how I feel and truly understands exactly what I am faced with.

I hate to say it, but I've never had mental health issues in my lifetime. I have always gotten through whatever I'm faced with, but for the first time ever I can't just get through it as it is my life. I have lost grip on myself and my mind. I struggle with how out of control I feel. I am worried that I will never gain that control back.

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Anonymous200320, Anonymous37917, BonnieJean, CantExplain, unaluna
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  #808  
Old Dec 27, 2014, 05:55 AM
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That's about as vague as it gets, however so much is left out.

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  #809  
Old Dec 27, 2014, 06:28 AM
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Quote:
Originally Posted by Mastodon View Post
No new election to Parliament in March. I am so relieved.
You find voting stressful?
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  #810  
Old Dec 27, 2014, 07:00 AM
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Originally Posted by CantExplain View Post
You find voting stressful?
No, this is nothing to do with me personally - it is difficult to decide whom to vote for, but that's not a big problem. The March election was to be an extra election. ( https://en.wikipedia.org/wiki/2014_S...Cabinet_crisis ) I am relieved because I cannot see that a new election would lead to a more stable situation in Parliament, and there is a real risk that the neo-Fascists would gain from another election.

Last edited by Anonymous200320; Dec 27, 2014 at 09:25 AM.
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  #811  
Old Dec 27, 2014, 07:20 AM
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Thank you for sharing that, catonyx. It sounds like you're in a really difficult situation.
Thanks for this!
catonyx
  #812  
Old Dec 27, 2014, 07:41 AM
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Originally Posted by catonyx View Post
I have lost grip on myself and my mind. I struggle with how out of control I feel. I am worried that I will never gain that control back.

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It sounds like an extremely difficult situation in which you find yourself. Your reaction and feelings, although very painful and disorienting, seem like normal ways of trying to cope with and handle it.

You say you're on meds but I hope that you're able to have a therapist to talk with on a regular basis. PC can be a great support, too.
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  #813  
Old Dec 27, 2014, 09:15 AM
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I struggle to deal with all this. I find myself wrapped in a mess of depression and anxiety and I am very alone. I wish I could find someone who knew how I feel and truly understands exactly what I am faced with.
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I know a lot of parents of children with special health care needs, and what you're sharing is painfully familiar. If you were in the US, you could get matched with another parent through a support program (Parent to Parent). I can't find any in Canada, but often hospitals have parent support groups. Or find a P2P on facebook to join. The good thing about a program like P2P is that they match parents who are further along in the journey, even if it's not the exact same journey. The emotions are the same. The fears and struggles and exhaustion.

Thank you for sharing what you can of your story. I hope you get the support you need, not just here and in therapy, but from other parents like yourself.
Thanks for this!
catonyx
  #814  
Old Dec 27, 2014, 09:26 AM
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Quote:
Originally Posted by BonnieJean View Post
It sounds like an extremely difficult situation in which you find yourself. Your reaction and feelings, although very painful and disorienting, seem like normal ways of trying to cope with and handle it.

You say you're on meds but I hope that you're able to have a therapist to talk with on a regular basis. PC can be a great support, too.


Yes. I only take them when I have bouts of anxiety.

I realize it is normal, but still not fun at all.

I have been seeing a T. I'm on a three weeks break for the holidays. Only 1/3 of the way through. 2 weeks to go.


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  #815  
Old Dec 27, 2014, 09:31 AM
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Originally Posted by licketysplit View Post
I know a lot of parents of children with special health care needs, and what you're sharing is painfully familiar. If you were in the US, you could get matched with another parent through a support program (Parent to Parent). I can't find any in Canada, but often hospitals have parent support groups. Or find a P2P on facebook to join. The good thing about a program like P2P is that they match parents who are further along in the journey, even if it's not the exact same journey. The emotions are the same. The fears and struggles and exhaustion.

Thank you for sharing what you can of your story. I hope you get the support you need, not just here and in therapy, but from other parents like yourself.

Yeah there isn't anything here. My T suggested some contacts to try and find a group of parents in similar situations, but no luck.



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  #816  
Old Dec 27, 2014, 09:36 AM
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Today I am trying a new bread recipe. And a new egg poaching technique.
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  #817  
Old Dec 27, 2014, 09:39 AM
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Originally Posted by stopdog View Post
Today I am trying a new bread recipe. And a new egg poaching technique.

Mmmmm now I'm hungry.

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  #818  
Old Dec 27, 2014, 09:40 AM
Anonymous100330
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Yeah there isn't anything here. My T suggested some contacts to try and find a group of parents in similar situations, but no luck.



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You can find them online.
  #819  
Old Dec 27, 2014, 09:47 AM
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Originally Posted by licketysplit View Post
You can find them online.

I've looked locally.

As far as online goes, I've come across a few blogs written by parents of children with the same disease... However the child has either passed away or has a more severe case. And the blog is outdated.

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  #820  
Old Dec 27, 2014, 10:00 AM
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You don't need to find parents who have a child with the exact same condition in order to get support and understanding. You might be surprised by how similar the challenges are. If you are on facebook, do a search for parent to parent or special needs children or parent support. I'm sure there are also yahoo.ca groups. You don't need someone in your community in order to find support and understanding. You can find it throughout the world. It doesn't diminish the specific challenges and pain you're going through, but the commonalities will help you feel less alone.
  #821  
Old Dec 27, 2014, 10:02 AM
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catonyx catonyx is offline
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Quote:
Originally Posted by licketysplit View Post
You don't need to find parents who have a child with the exact same condition in order to get support and understanding. You might be surprised by how similar the challenges are. If you are on facebook, do a search for parent to parent or special needs children or parent support. I'm sure there are also yahoo.ca groups. You don't need someone in your community in order to find support and understanding. You can find it throughout the world. It doesn't diminish the specific challenges and pain you're going through, but the commonalities will help you feel less alone.

True. I guess I was hoping to find someone dealing with the same disease. It's rare though so I kind of expected not to find anything.

I'll have a look.

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  #822  
Old Dec 27, 2014, 10:05 AM
Anonymous200320
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How do you poach your eggs, sd?
  #823  
Old Dec 27, 2014, 10:36 AM
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Usually very badly. This method is to tie them in a piece of wrap and place in the water.
How to Poach Eggs in Plastic Wrap. Perfect Poached Eggs Every Time!
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Please NO @

Selfishness is not living as one wishes to live, it is asking others to live as one wishes to live.
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Well Behaved Women Seldom Make History - Laurel Thatcher Ulrich
Pain is inevitable. Suffering is optional.
  #824  
Old Dec 27, 2014, 11:21 AM
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NowhereUSA NowhereUSA is offline
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Originally Posted by Mastodon View Post
My T is always telling me to be more open with my H. Or no, he isn't telling me to do anything as such - he never does that - but he keeps asking me pointed questions that suggest that he thinks it would be a good idea, and when confronted, he admits that he does think so. I keep working on making him understand that it is not possible and would not be a good idea, but it is uphill work. I'm glad he doesn't talk about accepting love, though. That would be too embarrassing. (And he shares my dislike of Brene Brown. That woman rubs me the wrong way - I have tried watching a TED talk with her but I had to switch off after a few minutes.)
I don't think she's the greatest thing since sliced bread but I found her helpful for me. What helps one person may not help another I have vulnerability issues, severe ones. I think I appreciate her neurotic take on things which is funny because I absolutely wouldn't want a T who was like her. I didn't watch her TED talk so I can't speak to that.

It's like those ASMR videos. I had someone suggest them to me. Some people feel a weird sensation and they love it. Other nothing. I listened to a video and I couldn't make it through ten seconds, I wanted to reach in and punch her repeatedly to make her stop doing whatever the hell it was she was doing.

I just closed the window instead O.o I tried a couple of those videos and they just pissed me off.

Yet apparently millions of viewers love her whispery voice. Just thinking about it is like nails on a chalkboard :: shudder ::
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  #825  
Old Dec 27, 2014, 11:23 AM
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I find Brene Brown soothing to listen to and she puts me to sleep. The actual meaning of what she is saying I find worthless, but her speaking voice itself reminds me of my grandmother and is quite comforting to me.
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Please NO @

Selfishness is not living as one wishes to live, it is asking others to live as one wishes to live.
Oscar Wilde
Well Behaved Women Seldom Make History - Laurel Thatcher Ulrich
Pain is inevitable. Suffering is optional.
Thanks for this!
CantExplain
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