Roll Call 21

Erti · Apr 02, 2014, 10:30 AM

Thanks SP... that makes me feel a bit better.

costello · Apr 02, 2014, 12:23 PM

Quote:

Originally Posted by cybermember

But lately I've been noticing odd behavior coming from my housemate.

Wow. It does sound like some kind of dementia. I know Alzheimers can effect the sense of smell. I wonder if it can effect taste too.

Apr 02, 2014, 01:02 PM

Quote:

Originally Posted by punkybrewster6k

Yes, yes they do. Hostle and depressing. For me at least is seems....

Sent from my SCH-S720C using Tapatalk 2

I know I posted in the bp forum yesterday. Anyway a woman responded back with do u even know?....you know, like I was stupid.

They can really be rude. What's funny is I guarantee I know way more about what we were talking about than her. I blocked her.

Apr 02, 2014, 01:24 PM

Well I start the latuda today. We're starting at a low dose so my body can adjust and hopefully I don't get insomnia again from it.

I have to go get them they had to order them. The last couple of days I've been taking risperdal. But I'm out. Risperdal helps me soooo much but the weight gain sucks.

I hope the latuda works... if not then we're gonna try invega. If that doesn't work it will have to be risperdal.

I wish this was easier.

punkybrewster6k · Apr 02, 2014, 01:39 PM

Quote:

Originally Posted by newtus

im in cali but so nervous. everyones coming over and seeing me and im all shy. my dads not here to protect me. my moms not either ( not that she really would) but still. im alone. my psychotic symptoms are so bad that i dont even know what to say about them. its jus ugh. maybe i need a xanax to tie me over

Good job. You did the plane ride.
You got this newtus. You really do.
Im proud of you! Try to stay focused on enjoying yourself. (((hugs)))

Sent from my SCH-S720C using Tapatalk 2

punkybrewster6k · Apr 02, 2014, 01:51 PM

Just got back from the big meeting with a room full of doctors for Bean. Starting Clozaril tonight, she is on the federal list for it now.

I cried.

I was hoping they would tell me her problem was from taking so many meds over the years and I was praying that when they flushed all the meds from her body, it would show that she was better now.
(sigh) im upset.

Sent from my SCH-S720C using Tapatalk 2

cybermember · Apr 02, 2014, 02:45 PM

Quote:

Originally Posted by costello

Wow. It does sound like some kind of dementia. I know Alzheimers can effect the sense of smell. I wonder if it can effect taste too.

Honestly, I know nothing about the effects of dementia, or Alzheimer's for that matter, and my fear is that this could be the early signs of either or. But what I do know is that dementia gets worse over time and would eventually require someone to take care of him of which I'm in no position to do. I'm thankful I can just take care of myself without me flipping out on myself if that makes sense.

I have a friend who's mother died of Alzheimer's and have to ask if her mother had issues with taste. My friend did tell me that her once gentle mother became so combative at one point she punched her home aid/nurse in the face. Now that's some scary stuff!

Apr 02, 2014, 04:46 PM

Quote:

Originally Posted by sunshine1995

Hope u feel better willow.

Thanks Sunshine

Quote:

Originally Posted by KUREHA

My nurse is coming tomorrow, she's going to be able to tell I stopped taking my meds.
I don't know how many times I need to say I'm not sick though.

Hope it goes ok

Quote:

Originally Posted by cybermember

But lately I've been noticing odd behavior coming from my housemate. In the past 3 months my housemate hit a parked car with a woman in it while parking next to her in a grocery parking lot. He has the early stages of glaucoma due to him having diabetes, so clearly his vision sucks. So, now I do all the driving for grocery shopping because I don't trust him while I'm in the car with him driving. Then we were all watching a movie on the DVD player and right in the middle of the movie he gets up and shuts off the DVD player thinking that the movie we were watching was on cable. Mind you, he put in the movie in the DVD player in the first place. And then the other night he says my meat sauce tasted odd and threw out the dish. This guy is only going to be 58 this year, which is not old. My housemate's father had his leg amputated due to complications from diabetes and then eventually died of Alzheimer's disease. After his father died, my housemate then had a spare room and wanted to help me out so I moved in, of which I am truly grateful. But still, knowing my housemate's medical history and where it looks he might be headed is scary to watch as it unfolds before my very eyes.

That sounds difficult. Are you going to bring it up with your housemate? Recommend seeing a Dr?

Quote:

Originally Posted by punkybrewster6k

Just got back from the big meeting with a room full of doctors for Bean. Starting Clozaril tonight, she is on the federal list for it now.

I cried.

I was hoping they would tell me her problem was from taking so many meds over the years and I was praying that when they flushed all the meds from her body, it would show that she was better now.
(sigh) im upset.

I hope Bean does well on clozapine and can come home soon.

*Willow*

justmeandmyhead · Apr 02, 2014, 05:01 PM

Quote:

Originally Posted by punkybrewster6k

Just got back from the big meeting with a room full of doctors for Bean. Starting Clozaril tonight, she is on the federal list for it now.

I cried.

I was hoping they would tell me her problem was from taking so many meds over the years and I was praying that when they flushed all the meds from her body, it would show that she was better now.
(sigh) im upset.

Sent from my SCH-S720C using Tapatalk 2

Can understand why you hoped that hun. Sorry bean is suffering I hope the clozaril will help. Don't give up hope hun she sounds like a fighter x

justmeandmyhead · Apr 02, 2014, 05:02 PM

I've had really bad muscle spasms in my face neck and legs from the depot has been awful. They've given me some procyclidine to help it and it's really worked. I feel sooo relaxed!

newtus · Apr 02, 2014, 06:19 PM

i hope bean does well punky.

i find it sad people have to be on a federal list for it but they do. its that rough.

cybermember · Apr 02, 2014, 06:31 PM

Quote:

Originally Posted by WeepingWillow23

That sounds difficult. Are you going to bring it up with your housemate? Recommend seeing a Dr?

*Willow*

My housemate almost hit a parked car in the grocery store parking lot a couple of months prior to this parking lot accident of which I complained for him to get his eyes checked. After this recent accident I complained again about his eyes and he said he got new contacts since then and there was no progression of his early stage glaucoma. I'm sure that was to make me feel better but it wasn't enough for me to keep allowing him to drive for grocery shopping with me in the car. Also he has ADHD so his attention span is all over the place and so I really hate the way he drives. Oh, look at this! Oh, look at that! It just makes me crazy and I feel unsafe.

costello · Apr 02, 2014, 09:03 PM

Quote:

Originally Posted by cybermember

But what I do know is that dementia gets worse over time ...

I believe there are some dementias which are reversible. It depends on the cause.

Quote:

I have a friend who's mother died of Alzheimer's and have to ask if her mother had issues with taste. My friend did tell me that her once gentle mother became so combative at one point she punched her home aid/nurse in the face. Now that's some scary stuff!

My mother has some kind of dementia, although she's not diagnosed. She's never had a very good sense of smell. Now it's non-existent. http://www.the-scientist.com/?articl...erating-Brain/

My friend's mom is like your friend's mom. A kind, generous woman who has become extremely rude and foul-mouthed (although not violent). My mom is the opposite. She used to have a pretty quick temper; now she's kind of soft and sweet and vague. So the personality changes don't have to be negative.

newtus · Apr 02, 2014, 09:13 PM

its harder for me to keep up with roll call cause im away from my phone much more in cali.
so forgive me if i miss something.

(((hugs)))

to all of you

newtus · Apr 02, 2014, 09:15 PM

heres a pic of the mountains tho

Roll Call 21

Apr 02, 2014, 10:14 PM

Newtus I am so proud of you! You did it! Have tons of fun!

blackwhitered · Apr 02, 2014, 10:51 PM

I'm trying to think of how to describe how I feel, but it's hard to explain.

I think the Geodon is helping with my negative symptoms. Like socialization. I can't remember the last time I felt lonely. I usually don't make an effort to go out or meet people. I had a few friends but unless I was obligated to go somewhere with them, I didn't. Sometimes didn't leave the house for long periods of time. But now on the Geodon, I feel like I actually want to do things... It's weird because it's not something I usually think about. The Geodon doesn't do everything... still having weird/distressing thoughts and some hallucinations... but this is a step. Never thought I would be so excited about being lonely, ha.

Sometimes psychotic · Apr 02, 2014, 10:59 PM

Quote:

Originally Posted by blackwhitered

I'm trying to think of how to describe how I feel, but it's hard to explain.

I think the Geodon is helping with my negative symptoms. Like socialization. I can't remember the last time I felt lonely. I usually don't make an effort to go out or meet people. I had a few friends but unless I was obligated to go somewhere with them, I didn't. Sometimes didn't leave the house for long periods of time. But now on the Geodon, I feel like I actually want to do things... It's weird because it's not something I usually think about. The Geodon doesn't do everything... still having weird/distressing thoughts and some hallucinations... but this is a step. Never thought I would be so excited about being lonely, ha.

I was like that on abilify...my pdoc actually called it a side effect :/

blackwhitered · Apr 02, 2014, 11:00 PM

Hell, while I'm being positive I might as well mention that I've only had one nightmare since I got back from the hospital. Before I went in, it would be an understatement to say that half of my dreams were nightmares. And I was getting sleep paralysis like twice a week. I wonder if it has anything to do with psychosis. I have my suspicions, but what do I know.

And I lost the extra weight I gained on Seroquel!

The downside of Geodon is that mixed with thorazine, it gives me galactorrhea. And it makes me sooo tired. Like bordering on narcolepsy tired. I have to nap a lot. And sometimes I get dystonia/muscle stiffness. So far it's worth it though.

blackwhitered · Apr 02, 2014, 11:03 PM

Quote:

Originally Posted by Sometimes psychotic

I was like that on abilify...my pdoc actually called it a side effect :/

Meh, it's not really a bad thing for me so I wouldn't consider it a side effect. It just feels like I'm more motivated to do things. Not lonely as in depressed.

Abilify was hell for me. Couldn't move even with Cogentin, could barely write, had a bad tremor, no energy, etc. And then it made me super depressed. And it didn't even really work at 25mg...

Sometimes psychotic · Apr 02, 2014, 11:08 PM

Quote:

Originally Posted by blackwhitered

Meh, it's not really a bad thing for me so I wouldn't consider it a side effect. It just feels like I'm more motivated to do things. Not lonely as in depressed.

Abilify was hell for me. Couldn't move even with Cogentin, could barely write, had a bad tremor, no energy, etc. And then it made me super depressed. And it didn't even really work at 25mg...

Didn't bother me much I really didn't know it was a drug effect until I decreased the dose...the only issue was it correlates strongly with a need for me to be constantly doing something like I couldn't just sit and relax and daydream...

blackwhitered · Apr 02, 2014, 11:21 PM

Quote:

Originally Posted by Sometimes psychotic

Didn't bother me much I really didn't know it was a drug effect until I decreased the dose...the only issue was it correlates strongly with a need for me to be constantly doing something like I couldn't just sit and relax and daydream...

Oh, that's what Abilify was like for me. Severe akathisia. Geodon gave me akathisia at first, but now it's pretty much gone. I can still relax. I just don't want to spend all day in my room for days on end like I normally do. Does that make sense?

justmeandmyhead · Apr 03, 2014, 12:01 AM

It's 6am here an I'm still awake. Just can't sleep. Guna feel awful for the rest of the day now

Apr 03, 2014, 12:14 AM

I hope everyone had a better day than me.

Punky I hope bean gets better with the new med.

Blackwhitered, I think it's good u want to get out. I have that problem too, I isolate a lot.

Newtus, I hope ur having fun.

Cracking hope ur ok, you never really talk about what's going on with u. But I hope ur ok.

Willow

Gretta, hope ur doing ok.

Sometimes, hope ur doing ok.

Ok I think that's it, I think, lol.

Apr 03, 2014, 12:23 AM

Sometimes, would u mind figuring out what the difference is between latuda and risperdal. Like what nuerotransmitters they work on. I think latuda must work on norepinephrine bc it creates anxiety in me. Just wondering if u wouldn't mind. I looked but didn't totally understand it. I'd appreciate it when u have the time.

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