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  #76  
Old Oct 02, 2019, 11:42 AM
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Nammu Nammu is offline
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Quote:
Originally Posted by ~Christina View Post
Hey everyone, trying to catch up, I had to take a step out of internet land and sort some stuff out and lose myself in ER and Shameless.. I totally lost track of days. Sleep is a on going struggle.

Well my Asthma despite the additional inhaler is I guess dug it’s heels in , still right side.. so Boom I’m going back on steroids, they can really screw up my Bipolar so it’s a slippery damn slope, but hey ! a girls gotta breath.

As some of you might remember the whole Florida trip fiasco, well I told my husband that the trips just can not go for more than 2 weeks. He doesn’t understand 100% how hard they are for me but he certainly doesn’t want me to suffer , so I felt a compromise was needed , I can’t just demand only 7 days. It’s not fair to him, so 2 weeks, we both feel it is fair. At least next trip I’ll have a date I know we will head home. Mentally this will really help. I’m glad I spent time deciding how best to start the conversation. I didn’t want him to feel defensive.

Saw my Rheumatologist last week , my liver enzymes have been a bit elevated. Started about May, so again it’s still elevated CBC and kidneys are fine thankfully.

So I will be referred to a GI for a liver work up . I already know I have a fatty liver. So we shall see, I’m not going to work myself up into a panic..

Hugs for anyone needing one, cookies too

Oo we'll send you healing vibes that the steroids do what they're supposed to do but don't affect the bipolar. glad you worked out a compromise. That's the great thing about partnership, compromise.
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  #77  
Old Oct 02, 2019, 11:49 AM
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After three days of no sleep I took two ambien, and it worked! I slept 6.5 hours straight and then turned over and got another 3 hours! Psyically I'm feeling so much better today. My back doesn't hurt at all! But the tolerance will just build back up. I really got to make an appointment to see the doc,.... don't want this convo tho
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…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
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  #78  
Old Oct 02, 2019, 02:08 PM
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Just been reading some new data about optimism and pessimism and it does not look good for me. The non-optimists are as much as 35% more likely to die than their cheerful counterparts. This is not good for me, as I spend a ton of time dealing with SI and a lot of negative thoughts and energy and rumination. Just really a constant and never-ending struggle for me. Anyhoo, they said not to fear, negative people. This can be changed. So, today, I am starting on a new program of intentionally attempting to be positive and to see the positive wherever it is in my life. Even if I feel like garbage. Let's hope it works!
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  #79  
Old Oct 02, 2019, 03:11 PM
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Originally Posted by bpcyclist View Post
Just been reading some new data about optimism and pessimism and it does not look good for me. The non-optimists are as much as 35% more likely to die than their cheerful counterparts. This is not good for me, as I spend a ton of time dealing with SI and a lot of negative thoughts and energy and rumination. Just really a constant and never-ending struggle for me. Anyhoo, they said not to fear, negative people. This can be changed. So, today, I am starting on a new program of intentionally attempting to be positive and to see the positive wherever it is in my life. Even if I feel like garbage. Let's hope it works!
Good luck with your new intentions. I know you can do it! It just takes some awareness, some dedication and some practice. I think it will truly change your life! It has changed mine and I have seen this transform the life of friends.

This community is largely positive and/or appreciates the positive. It's helpful to me to be around other people also working on finding the positives in life.

My Best to You!!!
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  #80  
Old Oct 02, 2019, 03:13 PM
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Originally Posted by Nammu View Post
After three days of no sleep I took two ambien, and it worked! I slept 6.5 hours straight and then turned over and got another 3 hours! Psyically I'm feeling so much better today. My back doesn't hurt at all! But the tolerance will just build back up. I really got to make an appointment to see the doc,.... don't want this convo tho
Days/nights of not sleeping can be so very trying!
It feels great, I know, to finally sleep!
I hope you will continue to get some decent sleep!

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  #81  
Old Oct 02, 2019, 03:23 PM
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Originally Posted by Scooter9 View Post
Oh man! I'm feeling really low again today... second time in 7 days. What a pain.

It would be nice to get into bed and stay there today but I'm at work and have several meetings today.

I increase my dose of Mirapex tomorrow, following pdoc's directions.
Is there any chance the Mirapex is adding to your feeling low?
It made me feel a bit sleepy at first. Yet, within a 4-6 days, I was feeling less depression. I coul d feel the change.

Of course , it could also be simply the course of your depression as it waits to adjust to the MIrapex? So hard to know.

I realize you have been trudging through, hoping to find something to help you. You have been doing this for a long time now. You so deserve a break from this! I hope you will get a break soon.
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  #82  
Old Oct 02, 2019, 03:38 PM
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My wedding was very simple. The ceremony took place at the church I grew up in, the reception was in the church basement with food my ex and friends fixed, we were vegetarians so made things like humus and tabula from scratch. My aunt made the cake. It was a fall wedding and the colors deep green and gold, so she used fall leaves and a deep green fountain, was beautiful. My biggest thrill was getting to use my mother's wedding gown. It was 1940's elegant, we just reworked the neckline.


Sounds wonderful!!!
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  #83  
Old Oct 02, 2019, 03:55 PM
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My old job called this morning. They have a position for me as a sub until They can get me full time employment. I took it. I resigned from my job this morning. Before I went in this morning there were the familiar feelings of depression, self harm, anxiety, etcetera. I just know I can’t get better if I stay where I’m at. I know some people on here may disagree with my decision but I feel it is best for me. I will be getting insurance through the marketplace as soon as my old job can send me a letter stating that I do not have insurance there anymore. That will hold me over until I can become a full time employee again.

I’m not sure how I feel. Part of me feels relieved, part of me feels like a failure. And of course the underlying depression. At least I have the support of my family.
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  #84  
Old Oct 02, 2019, 04:02 PM
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Originally Posted by wildflowerchild25 View Post
My old job called this morning. They have a position for me as a sub until They can get me full time employment. I took it. I resigned from my job this morning. Before I went in this morning there were the familiar feelings of depression, self harm, anxiety, etcetera. I just know I can’t get better if I stay where I’m at. I know some people on here may disagree with my decision but I feel it is best for me. I will be getting insurance through the marketplace as soon as my old job can send me a letter stating that I do not have insurance there anymore. That will hold me over until I can become a full time employee again.


I’m not sure how I feel. Part of me feels relieved, part of me feels like a failure. And of course the underlying depression. At least I have the support of my family.


You made the right decision for you and that’s what we all do on a daily basis. Glad they have the sub job available.
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  #85  
Old Oct 02, 2019, 04:10 PM
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Originally Posted by wildflowerchild25 View Post
My old job called this morning. They have a position for me as a sub until They can get me full time employment. I took it. I resigned from my job this morning. Before I went in this morning there were the familiar feelings of depression, self harm, anxiety, etcetera. I just know I can’t get better if I stay where I’m at. I know some people on here may disagree with my decision but I feel it is best for me. I will be getting insurance through the marketplace as soon as my old job can send me a letter stating that I do not have insurance there anymore. That will hold me over until I can become a full time employee again.

I’m not sure how I feel. Part of me feels relieved, part of me feels like a failure. And of course the underlying depression. At least I have the support of my family.
Hey Wild, You know yourself best! You have to do whatever you feel is best for you and for your family. Please do not be concerned about how others feel or think. I am sure everyone means well; yet, the bottom line is you need to do whatever you need to do. Those of us caring for you will get behind you on your decisions for your well-being and for your life!

I do hope this change will help you in a big way!
We are here for you!
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  #86  
Old Oct 02, 2019, 04:12 PM
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Man oh man do I hate prednisone! Got a couple broken hours of sleep , I have that “achey pit “ feeling in my stomach. Ugh !!

My husband and I both got our Flu shot yesterday. Hopefully you will be lucky like last year and not catch the flu or anything at all.

My GI appt is for October 29th to start a full work up on my Liver.

Well I need to get to cleaning. I haven’t vacuumed in 3 days !! I typically run it daily so I’m stressed over it.

Hope everyone is having a good afternoon
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  #87  
Old Oct 02, 2019, 04:22 PM
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I was so busy doing stuff that I just haven't had time to get food, so I gave up and ordered domino's.

I don't even like Pizza Hut, but I was gonna order from them since they're a lot closer and I haven't eaten all day. However, apparently they "don't deliver on Wednesdays." No wonder no one goes there anymore!! Apparently they don't want to do business with anyone!!

Oh well. Considering my uncle now has diabetes, I probably shouldn't have done Domino's. But I'm starving and have nothing, and I don't want to go out.

Had a good day overall, though, work wise. Got a lot of stuff done. Hoping to finally wrap up this project after a few long months.

I guess I'm going to eat my feelings now when the pizza arrives... at some point.
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  #88  
Old Oct 02, 2019, 04:26 PM
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I got a LOT organized in terms of the paperwork! Off to social security in the morning.
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  #89  
Old Oct 02, 2019, 04:40 PM
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Originally Posted by Wild Coyote View Post
Is there any chance the Mirapex is adding to your feeling low?

It made me feel a bit sleepy at first. Yet, within a 4-6 days, I was feeling less depression. I coul d feel the change.


Of course , it could also be simply the course of your depression as it waits to adjust to the MIrapex? So hard to know.


I realize you have been trudging through, hoping to find something to help you. You have been doing this for a long time now. You so deserve a break from this! I hope you will get a break soon.
Thanks WC.

I think it's just the course of my depression... low and lower.

I don't think the Mirapex has started working yet. I just hit 1mg and my pdoc wants me to get to 2mg and wait there for a few weeks to see how it goes. I'll get to 2mg late next week.

No side effects so far and I'm not sleepy, which is good. No nausea too.

I'm literally hanging on, going day to day, and hoping to find something that works.

All I want to do is get to my baseline. I've had 2 baseline days during the last 2 years and it would be great to maybe see a few baseline days in a month or possibly a week.

Nice to be among people that get it.
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  #90  
Old Oct 02, 2019, 04:50 PM
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Originally Posted by Scooter9 View Post
Thanks WC.

I think it's just the course of my depression... low and lower.

I don't think the Mirapex has started working yet. I just hit 1mg and my pdoc wants me to get to 2mg and wait there for a few weeks to see how it goes. I'll get to 2mg late next week.

No side effects so far and I'm not sleepy, which is good. No nausea too.

I'm literally hanging on, going day to day, and hoping to find something that works.

All I want to do is get to my baseline. I've had 2 baseline days during the last 2 years and it would be great to maybe see a few baseline days in a month or possibly a week.

Nice to be among people that get it.
At least the MIrapex is not making you ill.
You may feel a lot better at 2 mg and/or maybe a bit more. I tend to do well at 1-1.5 mg twice daily. I know we are all different.

When you get to a higher dose, it may or may not disturb your sleep. I take it twice daily and I take a higher dose in the morning and a lesser dose at dinner time.

I hope it starts working for you soon and you get some much deserved relief!
Keep us in the loop!
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  #91  
Old Oct 02, 2019, 06:00 PM
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Originally Posted by Wild Coyote View Post
Off hand, I am thinking your "confusion" as to whether or not the trigger is real or not is, perhaps, a part of the dissociation?


What happens when you think of it as real?


If, for instance, a hallucination set us off, would the hallucination be considered "real?" It was/is real enough to trigger us. Identifying the trigger is important, whether or not we can determine if the trigger is real. It really triggered us!


I am hoping you will be able to find a way out of the dissociation soon and can enJOY life.
I tried taking my thorazine twice last night and it did nothing for the trigger... So I guess it is real, which just makes it worse I think... I didn't sleep at all because I was scared of having more nightmares but I'm going to bed soon (it's only 6pm here) because I'm exhausted... And I had the first part of a root canal done today sour of the moment... So I'd rather fall asleep before the numbing wears off all the way.
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  #92  
Old Oct 02, 2019, 08:22 PM
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Originally Posted by bpcyclist View Post
Just been reading some new data about optimism and pessimism and it does not look good for me. The non-optimists are as much as 35% more likely to die than their cheerful counterparts. This is not good for me, as I spend a ton of time dealing with SI and a lot of negative thoughts and energy and rumination. Just really a constant and never-ending struggle for me. Anyhoo, they said not to fear, negative people. This can be changed. So, today, I am starting on a new program of intentionally attempting to be positive and to see the positive wherever it is in my life. Even if I feel like garbage. Let's hope it works!
Interesting! I know I feel better when I am in a positive state. Do you have a link you could share to what you read?

I don't like to deny my negative feelings. I stuffed them down too much in the past and that was really unhealthy for me. My truth is my truth. However, I don't like to give them more power than they deserve. I use them like clues to show me where something is wrong or needs attention and then I try to heal that by applying something positive. I feel like I can cancel out the negativity once I acknowledge it and then pair it with its opposite. There are at least two sides to everything.
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  #93  
Old Oct 03, 2019, 01:46 AM
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Another semi-productive day. I started depressed, laying on the couch until maybe 12 PM. I took my meds. I then just realized I have not been taking both of my ADs. I am taking a CBD soft gel from a new, less expensive source. I am noticing no effect at 25mg. The previous source at 15mg appears to be more effective. Both sources have their products lab tested, so there should be no difference. But there is. I will receive another shipment of the product that works tomorrow.

I took down my synthesizers to clear out the cabling off of the floor. I washed the floor, and then put three coats of wax on it. I then cleaned the sofas, the keyboards and their stand, and the TV stand. Yesterday, I did this to the kitchen, both the pickup, cleaning, and waxing. So I have two really clean and tidy rooms with shining wax floors. I have never seen it so good. My next step is waxing the hallway tomorrow, and maybe even cleaning the bathroom!

I am focusing on putting structure in place, and having attainable daily goals. I think this can help me allot. This will include taking regular showers. I will have to work on this last part.
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Last edited by Tucson; Oct 03, 2019 at 02:05 AM.
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  #94  
Old Oct 03, 2019, 02:35 AM
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2:23 am and prednisone has the reins. My normally racing minds is going even faster. I smell smoke.

Sleep seems impossible , I took my Xanax, a neurontin and I added a Doxipen.

I’ll eventually just stare at my wall and hope I accidentally doze off or just zone out a bit. But I must force myself to be horizontal to rest my body at least.

Unfortunately this is how my body reacts to prednisone. I only take it when I have no other choice. This Asthma flare is now in its 4th week so push came to shove.

I have 10 days worth, I doubt I can do full 10 days and my Doctor knows it screws up my Bipolar so I’m going to push hard to do at least 7 days. But I can’t do more than 5 days of zero sleep.. that would certainly put me IP

Fingers crossed this finally settles things down.

Oh yeah and I have the lovely side effect of always being hungry too ! Boo hiss !

Everything will taste like metal by day 5 ...... yet I’ll still want to eat like I’m on high dose zyprexa.

Woohoo go me !
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  #95  
Old Oct 03, 2019, 03:10 AM
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2nd night in a row of just 4 hours of sleep. Better than nothing I guess but frustrating too because I'm bored. I want to go to the store but it's only 4am right now and I need to wait till it's light out. There are two stores I need to go to. Then I need to write a letter for my college and take a nice long walk since it should be cooler out today.
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  #96  
Old Oct 03, 2019, 08:01 AM
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Originally Posted by childofchaos831 View Post
I tried taking my thorazine twice last night and it did nothing for the trigger... So I guess it is real, which just makes it worse I think... I didn't sleep at all because I was scared of having more nightmares but I'm going to bed soon (it's only 6pm here) because I'm exhausted... And I had the first part of a root canal done today sour of the moment... So I'd rather fall asleep before the numbing wears off all the way.
Root canals can be trying. I hope you were able to get some sleep!
Do you see apdoc and/or a therapist?
I hope you have a betterday!
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  #97  
Old Oct 03, 2019, 08:12 AM
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Originally Posted by ~Christina View Post
2:23 am and prednisone has the reins. My normally racing minds is going even faster. I smell smoke.

Sleep seems impossible , I took my Xanax, a neurontin and I added a Doxipen.

I’ll eventually just stare at my wall and hope I accidentally doze off or just zone out a bit. But I must force myself to be horizontal to rest my body at least.

Unfortunately this is how my body reacts to prednisone. I only take it when I have no other choice. This Asthma flare is now in its 4th week so push came to shove.

I have 10 days worth, I doubt I can do full 10 days and my Doctor knows it screws up my Bipolar so I’m going to push hard to do at least 7 days. But I can’t do more than 5 days of zero sleep.. that would certainly put me IP

Fingers crossed this finally settles things down.

Oh yeah and I have the lovely side effect of always being hungry too ! Boo hiss !

Everything will taste like metal by day 5 ...... yet I’ll still want to eat like I’m on high dose zyprexa.

Woohoo go me !
No, stop you! Lol!

I am not sure of how this goes for you. I used to have to use sedating meds with pulses of high predisone doses/trials.

When I'd had access to an excellent herbalist, she'd made me two different extracts, one for daytime and one for sleep. (For when I was on high doses of prednisone.) It really helped. Nothing has helped since. courses of steroids for asthma are usually very high. Even though I take 15 mg/day (chronically), I often become psychotic at 20 mg.

Please be very careful. I am very concerned about you.
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  #98  
Old Oct 03, 2019, 08:15 AM
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Originally Posted by Blue_Bird View Post
2nd night in a row of just 4 hours of sleep. Better than nothing I guess but frustrating too because I'm bored. I want to go to the store but it's only 4am right now and I need to wait till it's light out. There are two stores I need to go to. Then I need to write a letter for my college and take a nice long walk since it should be cooler out today.
Any reason you are not sleeping well?
Are you esxperiencing any anxiety about school?
I hope things settle for you, soon.
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  #99  
Old Oct 03, 2019, 08:34 AM
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Originally Posted by Wild Coyote View Post
Any reason you are not sleeping well?
Are you esxperiencing any anxiety about school?
I hope things settle for you, soon.
Thanks WC , just had racing thoughts the past few nights making it hard to fall asleep and when I do I wake up a few hours later. Could be because I had coffee yesterday. I used to be able to drink coffee all day long with no problems now I can't seem to tolerate more than a cup once in awhile , more than that send my anxiety through the roof lately. So I bought some decaf and herbal caffeine free tea today. It could be anxiety about school too like you said, I'm a bit stressed over a few things right now but am trying to make the best of it

Hope you're doing well
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“All the darkness in the world cannot extinguish the light of a single candle.” -St. Francis of Assisi


Diagnosis:
Schizoaffective disorder Bipolar type
PTSD
Social Anxiety Disorder
Anorexia Binge/Purge type
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bpcyclist, Wild Coyote, ~Christina
  #100  
Old Oct 03, 2019, 08:52 AM
childofchaos831's Avatar
childofchaos831 childofchaos831 is offline
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Member Since: Nov 2016
Location: Texas
Posts: 5,037
Quote:
Originally Posted by Wild Coyote View Post
Root canals can be trying. I hope you were able to get some sleep!

Do you see apdoc and/or a therapist?

I hope you have a betterday!
I see both a pdoc and a t but I won't see either til next week. I think I'm gonna take the day off from school again and just do PHP today. I'll work on my project at home, and hopefully finish it today or tomorrow. Then I can get an idea of what they have been working on in class.
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Diagnoses:
PTSD with Dissociative Symptoms, Borderline Personality Disorder, Generalized Anxiety Disorder, Fibromyalgia and Chronic Pain
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