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  #276  
Old Apr 05, 2020, 03:48 AM
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Wild Coyote Wild Coyote is offline
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A Warm Hello to All!

It certainly already feels like this world-wide alarming health threat has gone on for months here in the U.S.

Due to abnormalities in my immune system, along with immune suppressive medications, I have been in isolation for over 3 weeks now. It's feels like it's been 6 months already.

I have discontinued some of the immune suppressant for two weeks now. I could not have imagined I'd be in such extreme pain. I'll be calling my doctor tomorrow. to come up with a better plan.

Prior to this approach to treating Psoriatic Arthritis (PsA), I had several years of treatment with P;laquenil, which is the antimalarial med frequently used in RA, PsA. This is the same med the President often mentions as a part of the POSSIBLE treatment to shorten the course of the viral infection..

Much Love, Comfort and Wellness to All
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  #277  
Old Apr 05, 2020, 06:37 AM
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Sunflower123 Sunflower123 is offline
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Quote:
Originally Posted by Wild Coyote View Post
A Warm Hello to All!

It certainly already feels like this world-wide alarming health threat has gone on for months here in the U.S.

Due to abnormalities in my immune system, along with immune suppressive medications, I have been in isolation for over 3 weeks now. It's feels like it's been 6 months already.

I have discontinued some of the immune suppressant for two weeks now. I could not have imagined I'd be in such extreme pain. I'll be calling my doctor tomorrow. to come up with a better plan.

Prior to this approach to treating Psoriatic Arthritis (PsA), I had several years of treatment with P;laquenil, which is the antimalarial med frequently used in RA, PsA. This is the same med the President often mentions as a part of the POSSIBLE treatment to shorten the course of the viral infection..

Much Love, Comfort and Wellness to All
Much Love, Comfort and Wellness to you as well. I’m sorry you are in such pain. I hope you can get something worked out. Thinking of you.
Hugs from:
Fuzzybear, ~Christina
Thanks for this!
~Christina
  #278  
Old Apr 05, 2020, 06:48 AM
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Sunflower123 Sunflower123 is offline
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Yesterday was the perfect day to sit out in the yard and read in the sun. Today looks to be much the same. I’ll take it!

I’ve got to go out for food and medicine tomorrow. My sister is making me a mask and I’ve got disposable gloves and wipes. I’d rather stay home but we do what we must!

Warm regards to all and hugs to those that are struggling.
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Thanks for this!
~Christina
  #279  
Old Apr 05, 2020, 06:52 AM
fern46 fern46 is offline
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Quote:
Originally Posted by Wild Coyote View Post
A Warm Hello to All!

It certainly already feels like this world-wide alarming health threat has gone on for months here in the U.S.

Due to abnormalities in my immune system, along with immune suppressive medications, I have been in isolation for over 3 weeks now. It's feels like it's been 6 months already.

I have discontinued some of the immune suppressant for two weeks now. I could not have imagined I'd be in such extreme pain. I'll be calling my doctor tomorrow. to come up with a better plan.

Prior to this approach to treating Psoriatic Arthritis (PsA), I had several years of treatment with P;laquenil, which is the antimalarial med frequently used in RA, PsA. This is the same med the President often mentions as a part of the POSSIBLE treatment to shorten the course of the viral infection..

Much Love, Comfort and Wellness to All
I am sorry the pain continues to increase. I have been hoping that perhaps there would be a short increase while your body adjusts to the med change and then maybe things would get a little better. I continue to send love your way my friend. You're setting an amazing example for all as to how we can gracefully handle an extreme challenge. I am amazed at your strength.
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  #280  
Old Apr 05, 2020, 08:14 AM
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wildflowerchild25 wildflowerchild25 is offline
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Yesterday was a good day. It was my birthday, so RS coined me breakfast. His parents came over to work on the yard with us. Now I know what you’re thinking - that is NOT proper social distancing! But R’s reasoning was this: he works in close proximity with his dad every day (they work for the same company) so if his dad were to get it, RS would probably get it, which means he’d bring it home here and his dad would bring it home to RS’s mom, so we’re all interconnected anyway. I rolled my eyes at him but what can I do? Plus they were outside at least and always around six feet away from each other bc they were working in other parts of the yard.

My brother and his wife called me via FaceTime and we had a drink together virtually. Then RS bought me a pizza and I had the cheesecake I bought last time I went to the grocery store for dessert. So it was an ok birthday considering we couldn’t go out!

I figured out how to video chat with my grandma so that nice. We both have a chrome book so I was able to teach her how to use google hangouts over the phone. It was nice for her to be able to see my son! We got to see my grandfather as well.

I’m trying to adjust mentally to the fact that this could go in for many, many months. It’s hitting me hard.
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That’s life. If nothing else, that is life. It’s real. Sometimes it
f—-ing hurts. But it’s sort of all we have.
-Garden State
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  #281  
Old Apr 05, 2020, 08:29 AM
Anonymous35014
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@wildflowerchild25: Happy belated birthday!

Glad to hear your day was decent.
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Wild Coyote
  #282  
Old Apr 05, 2020, 08:48 AM
Anonymous46341
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Happy belated birthday, wildchildflower! I'm glad you had nice day!
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Wild Coyote, wildflowerchild25
  #283  
Old Apr 05, 2020, 09:06 AM
Anonymous32451
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hard to feel that great when you're not really doing to much with yourself, and what you want to eat isn't in the house

slightly less suicidal but isn't helping matters.
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  #284  
Old Apr 05, 2020, 09:54 AM
Anonymous46341
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~Christina, Wander, and Wild Coyote, I'm sorry to read that you are all in such pain. I hope it eases quickly. I wish there was something that could help. Do you think that stress exacerbates it?
Hugs from:
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Wild Coyote
  #285  
Old Apr 05, 2020, 09:55 AM
Anonymous46341
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I have nothing much to say. I feel mildly paralyzed, in a sense. I don't know what to do. I will ask my pdoc if I can lower or eliminate my morning dose of Seroquel XR.

Of course it's been nice having hubby working from home, and yet I now yearn for more time alone. We do spend time in other rooms, but hubby does dictate (to a degree) how we spend some of our time. He'll be meeting his friend later on to go for a bike ride. I'll be glad that he's out of the house.
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Wild Coyote, ~Christina
  #286  
Old Apr 05, 2020, 10:07 AM
Anonymous43918
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I feel good. Not sure if it's a hypomanic or a euthymic good though. I am running around the house singinging and I kept getting up trying to write this and I am a perpetual motion machine
but yeah, good sober vibes here
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Thanks for this!
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  #287  
Old Apr 05, 2020, 11:04 AM
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Nammu Nammu is offline
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Quote:
Originally Posted by wildflowerchild25 View Post
Yesterday was a good day. It was my birthday, so RS coined me breakfast. His parents came over to work on the yard with us. Now I know what you’re thinking - that is NOT proper social distancing! But R’s reasoning was this: he works in close proximity with his dad every day (they work for the same company) so if his dad were to get it, RS would probably get it, which means he’d bring it home here and his dad would bring it home to RS’s mom, so we’re all interconnected anyway. I rolled my eyes at him but what can I do? Plus they were outside at least and always around six feet away from each other bc they were working in other parts of the yard.

My brother and his wife called me via FaceTime and we had a drink together virtually. Then RS bought me a pizza and I had the cheesecake I bought last time I went to the grocery store for dessert. So it was an ok birthday considering we couldn’t go out!

I figured out how to video chat with my grandma so that nice. We both have a chrome book so I was able to teach her how to use google hangouts over the phone. It was nice for her to be able to see my son! We got to see my grandfather as well.

I’m trying to adjust mentally to the fact that this could go in for many, many months. It’s hitting me hard.
Happy birthday!!!
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…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
Desiderata Max Ehrmann



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  #288  
Old Apr 05, 2020, 11:52 AM
Anonymous35014
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Doing alright today. Mood is fine.

My guitar lesson teacher called me again today and said that he's cancelling lessons until further notice (for obvious reasons) rather than starting back up on May 4th. He said he is doing Skype lessons, but I don't think I want to do those. It's just not the same as playing guitar in person. I mean, I can cope with teletherapy and telepsychiatry, but guitar? Nah. I need someone to look at my technique in person. It's okay though. Now I can spend more time perfecting things.

Anyway, I have to take out the trash, but I'm deathly afraid of opening the dumpster chutes. They're always germy and gross! I think I'll just use a plastic grocery bag and open up the trash locks by putting my hand in the bag. But my trash is piling up.

I'll go around 7pm or 8pm today when no one is around. I should be fine, I think. Just really anxiety inducing when you just know people have coughed into their hands and then touched the locks.
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  #289  
Old Apr 05, 2020, 12:13 PM
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Fuzzybear Fuzzybear is offline
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I'm feeling angry.

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  #290  
Old Apr 05, 2020, 12:16 PM
Anonymous35014
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Quote:
Originally Posted by Fuzzybear View Post
I'm feeling angry.

What's wrong, Fuzzy?

You don't have to share if you don't want to, of course.
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Thanks for this!
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  #291  
Old Apr 05, 2020, 12:29 PM
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bpcyclist bpcyclist is offline
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Rough day yesterday. Really rough. Just sort of realized out of nowhere that my father, whom I certainly do love, really, really screwed me over a few years ago when I needed him most. Not sure why I have given him such a pass on all that... Details don' t really matter, but he had a chance to help me in a way that would have no impact whatever on him, personally--and he elected not to do so. Had I not pulled off a complete miracle, which I did, that decision on his part would have sent me back to the hospital for another 18 flipping months. Thanks, dad!!!

You know, he did not visit me once in the 5 years I was there. I think my lifelong worship of him has occasionally clouded the accuracy of my perceptions of how he has actually, at times, treated me. This realization made me quite sad, on a day on which I was already fairly hopeless. Oh well...

Anyway, finally just gave up and made myself get out on the bike. Freezing outside and pouring. 3 1/2 hours, nobody out at all. Some cute bunnies, though--that made me happy, briefly. Hands were so numb when I finished that I could not get my keys out. Took me a couple of hours to stop shivering and warm up finally.

But at least I did something. Besides sitting around, feeling awful. Progress, not perfection, I spose.

Hugs and love to all!!!!!!
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  #292  
Old Apr 05, 2020, 12:32 PM
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downandlonely downandlonely is offline
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Sorry about your Dad. I admire the way you exercise to help deal with your MI symptoms. I need to do something like that.
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  #293  
Old Apr 05, 2020, 12:38 PM
fern46 fern46 is offline
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Quote:
Originally Posted by bpcyclist View Post
Rough day yesterday. Really rough. Just sort of realized out of nowhere that my father, whom I certainly do love, really, really screwed me over a few years ago when I needed him most. Not sure why I have given him such a pass on all that... Details don' t really matter, but he had a chance to help me in a way that would have no impact whatever on him, personally--and he elected not to do so. Had I not pulled off a complete miracle, which I did, that decision on his part would have sent me back to the hospital for another 18 flipping months. Thanks, dad!!!

You know, he did not visit me once in the 5 years I was there. I think my lifelong worship of him has occasionally clouded the accuracy of my perceptions of how he has actually, at times, treated me. This realization made me quite sad, on a day on which I was already fairly hopeless. Oh well...

Anyway, finally just gave up and made myself get out on the bike. Freezing outside and pouring. 3 1/2 hours, nobody out at all. Some cute bunnies, though--that made me happy, briefly. Hands were so numb when I finished that I could not get my keys out. Took me a couple of hours to stop shivering and warm up finally.

But at least I did something. Besides sitting around, feeling awful. Progress, not perfection, I spose.

Hugs and love to all!!!!!!
There's some really great processing occuring here. Kudos. And hugs.
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Thanks for this!
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  #294  
Old Apr 05, 2020, 12:46 PM
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Fuzzybear Fuzzybear is offline
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Quote:
Originally Posted by bluebicycle View Post
What's wrong, Fuzzy?

You don't have to share if you don't want to, of course.
The ''insanity'' in the world..
And I was today again reminded of that mean T who said I could not consult anyone else in the clinic where he had practised on me I had done nothing to him. I suppose he was worried he would get found out for what he was.
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  #295  
Old Apr 05, 2020, 12:48 PM
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Fuzzybear Fuzzybear is offline
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I admire people who do not poke others.
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  #296  
Old Apr 05, 2020, 12:57 PM
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Fuzzybear Fuzzybear is offline
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Originally Posted by BirdDancer View Post
~Christina, Wander, and Wild Coyote, I'm sorry to read that you are all in such pain. I hope it eases quickly. I wish there was something that could help. Do you think that stress exacerbates it?
Thinking of all of you
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  #297  
Old Apr 05, 2020, 01:00 PM
Anonymous46341
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Quote:
Originally Posted by bpcyclist View Post
Rough day yesterday. Really rough. Just sort of realized out of nowhere that my father, whom I certainly do love, really, really screwed me over a few years ago when I needed him most. Not sure why I have given him such a pass on all that... Details don' t really matter, but he had a chance to help me in a way that would have no impact whatever on him, personally--and he elected not to do so. Had I not pulled off a complete miracle, which I did, that decision on his part would have sent me back to the hospital for another 18 flipping months. Thanks, dad!!!

You know, he did not visit me once in the 5 years I was there. I think my lifelong worship of him has occasionally clouded the accuracy of my perceptions of how he has actually, at times, treated me. This realization made me quite sad, on a day on which I was already fairly hopeless. Oh well...

Anyway, finally just gave up and made myself get out on the bike. Freezing outside and pouring. 3 1/2 hours, nobody out at all. Some cute bunnies, though--that made me happy, briefly. Hands were so numb when I finished that I could not get my keys out. Took me a couple of hours to stop shivering and warm up finally.

But at least I did something. Besides sitting around, feeling awful. Progress, not perfection, I spose.

Hugs and love to all!!!!!!
Hi bpcyclist. I haven't felt that articulate lately, but do feel compelled to tell you that I understand a little bit how you feel about your dad not visiting you. Though I wasn't in the psych hospital for five years straight, I guess I clocked a total of about a full year's worth of days in, with 2 to 6 week hospitalizations separated by days, weeks or months. Plus PHPs/IOPs. I mentioned recently that my husband was the only person that ever visited me there. My dad never once did, nor did he call me. No one else did.

I don't know the reason(s) why your dad stayed away from you. I kind of know why my father did. In my case, I don't like the reasons, but they are what they are.

Has your father been different at other times of your life? My dad has always been approximately the same.
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  #298  
Old Apr 05, 2020, 01:06 PM
Anonymous45023
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Happy (belated) Birthday, wildflowerchild!!
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bpcyclist, Wild Coyote, wildflowerchild25, ~Christina
  #299  
Old Apr 05, 2020, 01:42 PM
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Moose72 Moose72 is online now
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Happy late birthday, wildflowerchild!
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Qui Cantat Bis Orat ingrezza 80 mg
Propranolol 40 mg Benztropine 1 mg
Vraylar 3 mg
Gabapentin 300 mg
Klonopin 1 mg 2x daily
Mania Sept/Oct 2024
Mania (July/August 2024)
Mania (December 2023)
Mixed episode/Hypomania (September 2023)
Depression, Anxiety and Intrusive thoughts (September 2021)
Depression & Psychosis (July/August 2021)
Hugs from:
bpcyclist, Wild Coyote, ~Christina
Thanks for this!
bpcyclist, Wild Coyote, wildflowerchild25, ~Christina
  #300  
Old Apr 05, 2020, 01:52 PM
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Moose72 Moose72 is online now
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Of all the stupid things to do! I wanted a treat so I went to Starbucks. Of course, its the only Starbucks open for miles because they have a good drive-thru I guess. So I got in line where you get out of line. That is- the LINE wrapped all the way around the building! Well, I got the drinks, BUT stuck in the line, my car started to overheat! The temperature needle was above half, and it usually sits right below. I have a history of this with another car; with that one, once the needle went above half, it would go all the way to "H"! I'd have to either turn the car off or if I couldn't stop, turn the heat on immediately and blast it to get the heat out of the engine. This helped a little. So that's what I did today. It worked. When I left, I kept the heat on for a bit. Oh of course, I had the windows down. Once I was driving, I turned the heat off and it went back to normal. In the case of the old car, a fan was broken so it couldn't cool itself. I don't know why this car did that today, except I was in that stupid Starbucks line for half an hour! Lucky for my friend, because when I was one car away from ordering, she said, "If you go by starbucks can you get me a drink?" I said, "Actually..." so that was nice for her. So I left it on her porch and she came out and got it. Unfortunately, her dog got out and ran away! I sat in my car while she chased it, but she did eventually get it back in the house.
__________________
Qui Cantat Bis Orat ingrezza 80 mg
Propranolol 40 mg Benztropine 1 mg
Vraylar 3 mg
Gabapentin 300 mg
Klonopin 1 mg 2x daily
Mania Sept/Oct 2024
Mania (July/August 2024)
Mania (December 2023)
Mixed episode/Hypomania (September 2023)
Depression, Anxiety and Intrusive thoughts (September 2021)
Depression & Psychosis (July/August 2021)

Last edited by Moose72; Apr 05, 2020 at 02:05 PM.
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Thanks for this!
bpcyclist, ~Christina
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