[lizardlady]

Just realized I haven't checked in in awhile. Head cold is finally gone. Other people who had it warned me it took about two weeks to clear up. Took me about that long.

Jan, Belle's reaction to the cold is similar to BG's. He spent last night curled up in front of a fire wearing his blanket. Who says critters are dumb? He will come to me and ask to have his blanket or vest put on when it's cold.

Fibro and CFS seem to have settled into background noise. Either that or I'm so tired from work I can't sort out fibro/CFS stuff from plain old exhaustion.

[January]

((((( Liz )))))

I'm so glad your cold is better! Two weeks! Ugh!

Belle was shivering today because it was so cold in here so I let her lay down on the heating pad again. She ate the corner of it! Two weeks ago she ate all the wiring out of my electric blanket. Thank God it wasn't plugged into the socket. She just loves to destroy things. It's most frustrating.

I'm so glad BG likes his blanket and is staying warm. Maybe I need to buy a baby's blanket for Belle. She has two bigger ones.

I'm glad your pain has faded into the background. That's a good sign.

[Gus1234U]

a little somepin differnt....

[lizardlady]

Jan, BG's blanket is like a small horse blanket.He wears it kind of like a coat. You could probably find a dog sweater at Wal-Mart for Belle for less than $10.

This is my old dog Al (RIP) wearing a similar blanket.

[Gus1234U]

[January]

Thank you for the cartoons and flowers Gus. That was really nice.

I'm so sorry about Al, Liz. Truly.

Well, I have some news. First the good news. I do not need knee replacement. I need arthroscopic surgery to remove broken bone and to insert Sinvisc in the knee. I don't know if I'll need it on the other knee.

I honestly can't remember if I told you, but I have to have shots in my spinal cord and PT on my legs.

I went back to visit my Gastro today. Due to an emergency, he wasn't there and I was forced to see his new assistant. Not the rude one, a new one. You're not going to believe this, but she jerked me off all my colitis medicine just like the other did, including the new ones the specialist gave me just last week.

I explained to her what was going to happen to me, but she was adamant. She says tests show my pancreas has stopped working and has "dried up" and so she put me on pancreatic enzymes. I am so frustrated and so afraid. I've cried on and off all evening out of fear and anger.

The people I've talked to this evening have one and all told me to just trust her and take the enzymes. They don't get it. I can't take care of me, keep my Dr's appointments and take care of Belle when I get in the shape I know I'm going to be in soon.

[Gus1234U]

maybe all those other meds were just covering up for what the pancreas enzymes will fix, Jan~ (Hope Hope Hope)

(that's also one of the reasons i keep a 'stash' of meds, so I can decide when to change them... )

[January]

Maybe so Gus. I just don't know. There is another diagnosis, but I'm too embarrassed to write about it in public.

I called the pharmacy to check if the prescription was called in for Zenpep. It costs $3,000 per prescription! My stars! Are they crazy? I have only an $8 copay, thank Heavens, but $3,000? According to the woman I saw yesterday I'll have to take it or something like it for the rest of my life. I did a lot of research last night. Apparently if you have a nonfunctioning pancreas and don't take the enzymes, you die.

I can't say what I really believe because I'll break the no religion rule.

Where is Cake? Has anyone heard from her?

I love you all.

[Kiya]

:O ((((( Jan!!! )))))

I went back to visit my Gastro today. Due to an emergency, he wasn't there and I was forced to see his new assistant. Not the rude one, a new one. You're not going to believe this, but she jerked me off all my colitis medicine just like the other did, including the new ones the specialist gave me just last week.

I explained to her what was going to happen to me, but she was adamant. She says tests show my pancreas has stopped working and has "dried up" and so she put me on pancreatic enzymes. I am so frustrated and so afraid. I've cried on and off all evening out of fear and anger.

The people I've talked to this evening have one and all told me to just trust her and take the enzymes. They don't get it. I can't take care of me, keep my Dr's appointments and take care of Belle when I get in the shape I know I'm going to be in soon.
[/COLOR][/QUOTE]

[Kiya]

Where is Cake!?

How is Christina?

Hugs everyone!

[childofchaos831]

Jan, could you possibly just say that you don't want to stop your current meds and start the new one until you speak to the doctor himself?

For me, personally, I would be really uneasy about someone I had never met before making such big changes all of a sudden and not being able to even talk to the doctor first... I'm not trying to say she doesn't know what she's doing, however there is a big difference btwn a doctor and an assistant to me, amount of school, etc. There is also a reason that a PA cannot run their own clinic without a doctor overseeing things.

I would want to talk to him at least...

Now, for me, I have been feeling awful lately, pain, depression, etc. Allergies added in, and now possibly an infected (injury). I really just want to hide from the world, but I am still forcing myself to go be social.

Started PT for my back this week. Sore, but not worse than before... really just getting tired of all of this.

[January]

((((( Kiya & Child )))))

I told the assistant that I did not want to give up my medicine. I was strident about it. She absolutely refused to let me keep them. I am going to call the office on Monday and try to make an appointment with the specialist. The office staff really like me, and I like them. They'll help me if they can. I might get by with getting an appointment the week after I swallow the camera.

I'm sorry you are in such pain, Child. Please take care of that infection! Also, if you can, please write more often so we know how you're doing.

Christina is having a really rough time. She posted and said she just couldn't talk right now.

Cake is MIA. I am worried that she's in the hospital. If anyone hears from her, please let us know if you can. Let's all send her good thoughts and prayers.

[childofchaos831]

Thanks Jan. I try to write, but my brain gets the better of me most of the time... I think it's weird that she took the meds away, I have never had a medical professional do that even when they were taking me off the meds...

I am going to be so sore and achy tonight and for a fee days probably... have to make a trip to another city, roughly 3 hr drive... about 1/3 of the way there now. Driving back home tomorrow. Then next weekend, another trip, different city, about 4 hrs away, drive there Saturday and back Sunday.

[Gus1234U]

[cakeladie]

Hi everyone I am still alive but not doing to well. Can't sleep or if I do sleep I wake up with my heart reaching drenched in sweat.

Life here is not to great. The other day I got a text from her abusive boyfriend with a big bite mark. Then I got a text from her with finger marks where he tried to strangle her. She had to bit him to get him to let go. Most of her stuff was already in her blazer but her birth control and her makeup was still at his house. His mom said unless she gave them $65 she would not get any of it back. She came home and we talked and we thought finely it's over. But nope. He kept texting me saying he was going to harm us and that he was going to call the police and say that my husband is a drug dealer. That was on a Friday.

I found out Monday she went back to him. So I told her I was going to disconnect her phone and the blazer which she drives will be sold at by the end of the month. She did show up her one day. To get some clothes. I thought it was interesting that she had her overnight bag with her but didn't say anything

So with not getting enough sleep the high dose of pred, the pain, the stress etc I have had enough. I had a really bad night either Wednesday night or Thursday night and she calls me at 8 am and went off on me. Saying stuff like I didn't know if she was dead or alive or if she slept in the park etc. and I will not know if because I am turning off the phone. I lost it. She is only thinking of herself and no one else and she will end up killing me.

So I am not answering her calls or texts. Then she starts calling the house phone. My doctors are so worried I am going to have a stroke it's not funny but she could car less. And the sad thing is ken and I talked about when phone. I was going to tell her since her dog is going into surgery that I will would either let her keep it on till after the surgery or until she got her tax return. Then she attacked me.

Last Friday she physically attacked me to.

Sorry I have not been here for you guys. You mean the world to me. I have two children and I tried to be the best mom I could but I can not keep up with the abuse.

I see the rhemy this up and coming week I don't want to but unless I go in she will not give me my meds.

Ken has been working strange hours so that's partly why I am not sleeping well.

I feel like a failure

I don't have the energy to address everyone but I hope everyone is ok. I feel bad for Christina and Jan and Liz and everyone. I also worry that services that we require will be taken away with this new President

Take care everyone and just know I care about each and everyone of you

[cakeladie]

Sorry for the long post and I hope it makes sense

[Mindful55]

Hi all 😀

Been on PC for 3 years. I really wanted to post, then felt uncomfortable as my Fibromyalgia is not as painful as you.
Currently having IV Fusion monthly with magnesium for the fatigue & pain. Not perfect, but with the others mess..livable.

[Kiya]

((((((Cake))))))
Sooo much to handle!!! Too too much. Never need to apologize! Wish there were something we could do for you
Keeping you in my thoughts!!!!
💖

[Kiya]

Originally Posted by Mindful55

Hi all 😀

Been on PC for 3 years. I really wanted to post, then felt uncomfortable as my Fibromyalgia is not as painful as you.
Currently having IV Fusion monthly with magnesium for the fatigue & pain. Not perfect, but with the others mess..livable.

Hi- always feel free to post, no matter what!! We're all at different stages at any given time

[Kiya]

I hurt. I know that's a hard thing for everyone in here to grasp
It changes; the surgery, my skin, the depression, the PTSD memories... Not wanting to eat, being sick when I do eat. Smh.
Little ball of misery. Be cuter if I were covered in fur, had whiskers, and big liquid eyes

[childofchaos831]

Originally Posted by Mindful55

Been on PC for 3 years. I really wanted to post, then felt uncomfortable as my Fibromyalgia is not as painful as you.
Currently having IV Fusion monthly with magnesium for the fatigue & pain. Not perfect, but with the others mess..livable.

I felt the same sometimes, and also for me, I don't like to feel like I am complaining all the time. The way I was raised, I was taught that no one really cared. It's hard for me to grasp sometimes that people do actually care, irl treatment team (I cried in pdoc's office recently cuz I could see it in his eyes) and irl friends and even internet friends, who have never actually me, like y'all.

But please, always feel like you can post. There is pretty much always someone around.

Also, spoke to a friend with medical experience about the possible infection. I'm gonna get it looked at tomorrow, when I get back from the weekend road trip. Which will probably only add to the soreness... after spending probably 6 hours in car tomorrow, I get to go to the ER and have it looked at... yay...

[January]

Mindfulness, you are just as important as anyone here! Please feel free to post. We are one big family, and now you are part of it, too. I am so sorry you are hurting and that you have to take the IV's. Welcome, welcome!

Mindful, I'm so glad you are going to the E.R. to check that infection. You can't be too careful. I hope your road trip doesn't make you too sore. Please let us know what is going on with you.

Cake, I'm so glad to hear from you. Please don't let daughter abuse you. Save the texts from the boyfriend. Show them to the police. He can be arrested because of those texts. At the very least, you can get a protective order against him. I think you are doing the wise thing about daughter.

You are not a failure, hon. You truly are not. You are wrong about you. It's not your fault, Cake. It truly isn't. Listen to your head and not your guilt on this one. I know it's easily said and hard to do.

Please keep us posted as you can. I wish I was there with a big bat to protect you.

I, too, am very afraid of what's happening to our benefits. You are not alone.

I love you all. You are my family.

[childofchaos831]

So the ER doc said the sutures were just really irritating it. Once those were out, it started looking a lot better.

Really really hurting today. PT tomorrow. Hoping he can help my shoulders or something. I don't know. Lower back hurts too, but neck and shoulders are stiff... hmph.

Also, saw pdoc today, not fun. Depressed with su feelings, and psychosis stuff... really don't wanna go IP but not sure if I can keep holding out like this...

[January]

Child, please do whatever it takes to keep you safe. You are very special and important.

I'm so glad you got the sutures out and your wound is looking much better.

[childofchaos831]

I am trying. It seems like I'm fine earlier in the day, and then as the evening comes it get worse... the hard part is I feel trapped or locked up in IP which only makes things worse... if it came down to it, I would definitely go if you life depended on it tho.