[cakeladie]

No bubbles only what she posted the other day that she has been in an out of the hospital

[lizardlady]

My boss sent me home early today. The respiratory bug I came down with last week, literally, has me by the throat. I have almost no voice. I either squeak when I try to talk or sound like a bullfrog. I decided to spend some time poking around PC since I'm home.

Thankfully the cold or whatever has not triggered a fibro flare. Pain level is down to a "background" 2 or 3 and the fog is not too bad.

Funny side note - I came home and gargled with salt water and smeared Vicks on my chest. The cats have each come over taken a sniff of me and stalked off. Guess they don't like eau de Vicks!

[~Christina]

Liz

So Sorry your dealing with this . I am glad your Boss sent you home. Take care of you ! Lots of fluids, rest , sleep and plain spoil yourself.

Yeah Cats are typically not to impressed with the Vicks.. my Dog? He actually loves it and well try at any chance to lick it off me ,, Ack ,,LOL

Be good to you !

Cake ! Yes you are up and down and all around ! Your hubby must be in alot of pain or discomfort to actually " want" to go to the Doctor . my husband hates going also. I hope whatever is going on with him it will be a easy fix.. When you mention rash.. I think Shingle Thats all kinds of hellish pain. I sure hope its not.

Please take care of yourself , You have so much going on all the time.

[cakeladie]

Liz take it easy. I know hubby had been worried about me going to bed real early like 6 pm because of the pain but I can't sleep. He worries that I will get the flu bug and I can't get the flu shot because of the lupus. I hope your boss was nice about it.

Hubby good lord you would think I was taking him to his execution. He has not been to the doctor for 13 or 14 years. And that time I had buried my grandmother the week before and was back to work getting the silent treatment from my boss and her boss when I get a phone call saying that hubby was in an ambulance. When I asked what happened they said he was up on a ladder 15 feet up maybe higher and was trimming trees with a chain saw when he feel. So you can guess what pictures were flying through my head. I burst into tears when a coworker runs in from our ICU saying they called there to. I made it to the hospital in 35 minutes during morning commute plus I had to cross a bridge. Hubby had to have surgery to put his wrist back together but that is the last time he has been to the doctors.

You should have seen his face when I told him he had to take the medicine 3 times a day. He was not happy. Plus he is mad that the doctor didn't know what was wrong I think it's shingles but the doctor wants him to see a dermatologist. He was able to get an appointment on Wednesday but I have to take Sunny to the vet and he is used to me filling out the paperwork and just saying sign her. So we will see what happens

Never ending. I am so tired and I look around and there are things that need to get done and then there are things I want to do but I am tired.

Liz rest Christina I hope you have reached a new chapter and you and get some good sleep.

Also if anyone is interested in rice packs I will be making some for me and would gladly make them and mail them to any of you guys

Take care

HUGS

[January]

((((( Liz, Christina, Cake, Cake's Hubby, Everyone ))))))

I hope everyone does better. May you all get some rest. I hope hubby doesn't have shingles. Liz, if you take some garlic pills with pure concord grape juice, it will do you worlds of good. It forms a natural antibiotic.

Last night was the first time I tried to sleep in bed instead of the recliner since I had the last tooth pulled. Anything to avoid another dry socket! Ouch! I didn't sleep well at all, but it was a start. My hips and back are really hurting today. You'd think they'd hurt less sleeping in bed. What's with that?

[LettinG0]

Hugs to everyone......hope everyone improves quickly.....thinking of you all!

[Kiya]

(((((((((( hugs, everyone ))))))))))))
catching up with everyone's lives. Prayers and good thoughts and hugs to everyone!

I stopped pt for wrist today - I'm just not getting in as many exercise reps as she wants. I am overwhelmed with pretty much everything (and been sui) so I just asked for a month off where I can practice as I can and get stronger before we add anything. She agreed. The other pt for my neck saw I'd been in the ER the week before (I didn't think she saw it since she's not mentioned it in the past). but because my mood was so down and she noticed, I filled her in. She was concerned, but level, and asked if she needed to call someone. I said no. So she called a social worker (who called me the next day). It's nice to have people who actually care without freaking out. Ya know? They could have easily pigeon-marched me up the hill to psych. It's a relief that I can be open about "How much longer am I going to live like this?" and not have people panic. They get it - they work with pain patients day in and out. "I care about you. If I didn't care, I wouldn't ask". Wow. that simple, huh? Then we were silent a long time ... and she said "I hope you don't do anything - I'd miss ya." I'd miss her, too. I thanked her for caring. She gave me a hug and said "You'll make it". I said "I know - I always do."

Yesterday I talked with our building mental health gal when I got home, who also started looking for resources (found only what I had - nothing), then the hospital social worker today. Good people, all of them. Real. Down to earth. It's refreshing. I think I will be changing insurances (Medicare advantage plans) to something that can get me in with the right folks who can help my disability.

Wishing you all health, relief, comfort, and support.
Kiya

[lizardlady]

Kiya, I'm glad the person was able to listen to what you said and not freak out. Some times it helps to be able to talk about how overwhelming the pain can be, the kind of thoughts it can generate without having people freak.

My pdoc is the only one (outside of PC) I feel safe talking to about it. He is willing to listen to me talk about understanding why people with unremitting pain some times chose to end it. He'll ask if I have intent, but doesn't get all bent out of shape about it.

Possible trigger:

Then again, he's seen me through some really bad patches with my depression so I guess he is able to tell when I just need to unload versus wanting to kill myself.

[January]

((((( Kiya ))))) ((((( Liz )))))

I want you both to be safe. I want you both to feel better. I don't know how to get you there, but I am here for both of you, and everyone here, anytime. I care so much for you.

[lizardlady]

This respiratory bug has knocked me flat. My boss told me to go home the last two days. I called in today and stayed home. I'm laying around the house not doing much of anything today hope to get ahead of this. I really need to go into work tomorrow, have a couple things on my schedule I really don't want to cancel. I'm going to take Friday off if I need to though.

Cats are still unhappy about eau de Vick's! Mikey keeps coming over wanting to cuddle, but gets a whiff of the Vick's and leaves.

[Calamity Jane.]

I wonder if you can tell if fibro symptoms have physical causes or mental causes by how much better you feel when you wake up. Like even before I got the 90% relief, I'd always feel a lot better after waking up (if I managed to get a good night's sleep, and not too sleep deprived in general), and in the evening and at night my pains and discomforts would be the worst. I wonder if that's common for the people like me where the cause is for reasons of stress and not some physiological reason... Anybody have thoughts or speculation on that?[/QUOTE]

I know what you mean Andy, most people with fibro feel like s*** in the morning anyway but if you have not been too stressed and/or tired, then you wake up feeling much better than what you are used to. To me that is as close as it gets to feeling normal.

[Calamity Jane.]

''tough it out''!? that is so callous and uncaring! But I know how you feel. I got similar reactions from many docs in the UK. It was only when I moved to South Africa and my GP sent me to a rheumatologist that I actually got a proper diagnosis. I have had Fibro all my life, my mother and grandmother also had it. (Though it wasn't recognised then)

''One of the problems is that with fibro, your pain threshold is so low as to be almost nonexistent, so something that may only cause the slightest irritation to another person can be extremely painful to a person with fibro'' is what he told me and ''a mild discomfort to someone else can be agonizing to a person with fibro''

Maybe you can talk to you doc again about pain control, if you tell them often enough they might start to listen, also find whatever info., you can about it on the internet, maybe print out what you think is relevant and show it to them.

I hope you get some relief soon, but try to manage with the lowest dose you can, as you will need more as you get older so you don't want to build up a resistance to the painkillers to early or they won't work when you are older and need them more.
Trust me on that! :0

[cakeladie]

Hi CJ kinda lost with your post but welcome to the fibro thread

[~Christina]

Okay. Well Pain clinic appt tomorrow at 2 pm ! lets hope its somehow helpful and not something that will have been a waste of time.

I am also trying to get a flight to Florida ( waiting to hear back from Step son that works for American Airlines) My friend is not doing well at all. She refuses to go to the ER , I just hope I am not to late.. So right now its a " hurry up and wait" situation.

* breathe in and out * Ooooommm

[LettinG0]

Good luck with pain clinic, Christina.....and positive vibes for your friend...

[January]

What LettinGo said. I hope all goes well. Please let us know and be careful!

My mobic has finally completely gone from my system. I'm having problems even walking today. It's been creeping up on me. I took my ibuprofen for my mouth so maybe it will cut the pain somewhat. My blood pressure has dropped dramatically. I don't understand. It's supposed to go up with pain.

However, in the good news department, I slept in my bed for the first time since the last tooth removal and slept very well. Oh my goodness that was nice!

[cakeladie]

Good luck Christina let us know what happens.

Positive vibes from California for both you and your friend also hugs

[Pierro]

I feel my arms and legs are being ripped out piece by piece.. I really cant stand the pain anymore. This is no way to live is it. I am on pain meds but I might as well flush them for all the good they are doing...I walk every day because I like it but also they say it helps with Fibro.. I am at the end of my rope and I dont care anymore. I am trying to meditate, but that takes time and practice. Have any of you tried epsom salts in a warm bath. Some people say that it helps.. thats next on the list.. How do you guys cope..I am so tired but when i try to sleep its like my legs have spasms and that keeps me awake as well as the fact that sometimes I cant even stand to have a duvet over me as it hurts... I am not coping.

[cakeladie]

Have you tried heating pads or hot rice packs? They help with the pain and with the muscles hurting

[LettinG0]

Originally Posted by Pierro

I feel my arms and legs are being ripped out piece by piece.. I really cant stand the pain anymore. This is no way to live is it. I am on pain meds but I might as well flush them for all the good they are doing...I walk every day because I like it but also they say it helps with Fibro.. I am at the end of my rope and I dont care anymore. I am trying to meditate, but that takes time and practice. Have any of you tried epsom salts in a warm bath. Some people say that it helps.. thats next on the list.. How do you guys cope..I am so tired but when i try to sleep its like my legs have spasms and that keeps me awake as well as the fact that sometimes I cant even stand to have a duvet over me as it hurts... I am not coping.

So sorry you are in such misery.........gentle hugs

And yes, I have tried the warm bath with Epsom salts....it has helped me. They also make the scented Epsom salts....like lavender....which will help you relax even more.

[lizardlady]

Soaking in a hot tub with scented Epsom salts helps me. I also found a product called Batherapy that works well.

[~Christina]

Update ...

SO full history taken, I signed waivers for all Doctors that I can remember that I saw when this hellish mess started years ago. Today She injected Lidocaine into mt back , Hopefully is will Help, They re getting me a tens unit through Medicare. Also ordered a boat load of Xrays to make sure Im not dealing with more that Firo.

Hubby and I made the drive to Florida , Couldn't get a flight for days. I did the engtire drive, It went smoothly.

My friend is in rough shape , Dehydrated and stuff, But I am hoping I can push fluids on her and she will perk back up soon so I can take her back home with me .

I am tired , But I am just glad that it seems my friend will improve. She was one of the first couple people to really reach out for help me here on PC

Gentle hugs to everyone

[cakeladie]

Christina what's a tens unit? So everything went better then you thought? Have you gotten any relief yet?

I hope your friend is ok. It's very sweet of you to bring her back home with you so you can take car of her. One thing when my kids were Dehydrated was to freeze gateraid it turns into a slushy they kids love them and they get what they need. Hubby also takes them in his lunch box when he is working outside in the summer. By break time it's like a slushy now his coworkers are doing it. Just a thought

[January]

Christina, I hope you get your TENS. They help so much.

Cake, Christina can probably explain it better than I can, but a TENS puts electrical impulses deep within your muscles and heals them. They really help and they used one on my foot when I broke my leg and my foot was double the normal size. You feel the impulses, but it doesn't hurt.

Christina, I think you're a peach for helping your friend.

[cakeladie]

Thanks guys I had not heard about that before.

I channeled my inner Liz and I have chicken cacciatore in the crock pot and a home made apple pie in the oven and I cleaned the litter box. Plus I loaded the dishwasher and cleaned up the kitchen

Ok I am tired now