[~Christina]

They are going to want to do 163235 blood tests which isnt a problem.. Medicare actually pays 100% on that. I know they are going to want a Neuro opinion and then because I have Bipolar I am automatically looked at sideways. I am going to be told if I take meds for Bipolar my pain will go away. My Pdoc is fine with me being off psych meds for now.. None of them help with my pain, if they did I would guzzle them down and jump for joy.

I am going to start calling on Monday.. Hurry up and wait and hope I can keep it together...

You guys are great

[lizardlady]

Originally Posted by ~Christina

then because I have Bipolar I am automatically looked at sideways. I am going to be told if I take meds for Bipolar my pain will go away.

Oh gawd it pisses me off when that happens. I can tell when a doc gets to the part of my medical history that says I'm on anti-depressants. Their whole demeanor changes. NOT EVERYTHING IN MY LIFE IS CAUSED BY DEPRESSION!!!

[January]

I am so sorry this is happening to you. I know very well the part where they read down to the bipolar med section and then change. They treat you like you're some form of alien from space. I hope and pray you can find some real help.

[~Christina]

I had forgottn yesterday that I had my annual physical scheduled for today. So I went and my Gp told me that due to all the regulations about pain medication given by GP's. He simply can not help me at all. He feels terrible he is going to get me into a pain management Doctor and see if something can be done. I did ask for him to add the blood test for Cortisol levels to be done along with my normall stuff. I am sure its very elevated.

Will I actually get some help? I dunno. I hope so.. hard for me to really have faith an getting someone... anyone to actually help me at this point.

Gentle hugs everyone. Take best care of yourself

[cakeladie]

That really makes me mad Christina. He just does not have the balls to do it which means he might be doing something he is not supposed to.

I have been trying to repeat what Jan keeps saying this to shall pass. I know I am ranting a little but I have a sick cat and I have not slept and my back is killing me.

But what really p***es me off is that I can get pain meds for the cat but Christina can't ? What is this world coming to. Now don't get me wrong I am sure the cat is in pain but so is Christina. I am to give the cat pain med every few hours and he can't tell me he's in pain but Christina can tell you she is in pain but her butt head doctor will not give her any meds. I bet if he got hit with a baseball bat he would need something for the pain. Good lord all mighty. How unfair.

Ok I will stop for now. Lack of sleep is sure turning me into a raving maniac

[~Christina]

Cake I agree 100% . I do beleive my GP when he was telling me he is sorry that he can't help me. The Goverment is taking more and more control over what Doctors can and can not do. But its gone to the extreme in my area.. I " hope " whoever I see at a pain clinic will be helpful and not be an assshat and thinks Fibro is just a bunch of HooHaa nonsense, like so may Doctors think. I have Bipolar so that automatically makes me a "risk" to most all Doctors about anything .. I can have bronchititis and coughing out a lung need antibiotics and I have been looked at like a 3 headed cow asking for a TUTU.. soon as they see " Bipolar"

Please take care of you, Get rest and relax your body

[cakeladie]

It's not fair

[Kiya]

Hi all (and gentle hugs),
read through everyone's Grrrrs! Right there with you. GRRR! I got my Medicare Advantage plan stuff today letting me know that things I was told were NOT covered this year actually WERE covered, but won't be next year. I'm having them go back and submit those.
ALSO, my part D deductible (get this) will go from ZERO this year to... wait for it... $200 next year!!! a $200 increase???? FOR REAL? Several things will no longer have copays, but will be added to the deductibles.... oy!
I will have to call for help and see what options I have. Oh, and the plan I was on, I chose because there would be no Premium. Next year there will be a $19 a month Premium. NOT HAPPY.
Here's another catch.... in theory, If I have to pay premiums and deductibles, it is reduced some from my rent. But ONLY once I have been paying on it. It precludes upcoming payments. But I get to deduct those the year after. That's really (not) helpful when I need the money available to me in advance. Thank you HUD. Oh and Medicare is once again paying even less next year than the 2% decrease this year. WTG.

Soooooo... I am in PT for neck and wrist/hands. I have been crying through my hand exercises. In part from pain and part from frustration in the things I used to be able to do easily, now I struggle with (especially when I have to do 20 reps of them).
Yesterday I nearly had a DID alter swap out - we were working with these Velcro stripped rollers on a Velcro board. A. it sucks. B. The noise just about sends my hyper-sensitive ears and brain through the roof. I nearly walked out. I didn't feel like I could say "I can't do this, PLEASE stop!" because they've kinda guilted me with "we waived your co-pays (because it's the damn law) so you have to be extra-dutiful in your exercises and MUST MAKE it to EVERY SESSION." all the way home with my hurt arm limp in my lap. Frustrated.
I'm supposed to do 5 exercises, 20 reps, 3 times a day. @_@
I'm so tired, I'm not getting in my neck exercises (different pt).
Blarg.... fighting another migraine. Woot.

Ok so I've added my rant Oh yeah and I still don't have a med subscriber. But I also don't know what insurance I will have. YAY! I love not knowing important stuff like that! :/
Hugs

[cakeladie]

Oh Kiya I am sorry. Medicare confuses me to. Some law was just passed or changed and I got a letter saying for the next 2 months they were taking out $300 each month to mak up from when the law went into affect. That's a total of $600 that's a lot of money. Then I got another letter saying they were only going to do it for one month. Then take $100 out each month for medicare. I don't think they know what they are doing half the time.

I have Humana for my meds and I like them so far.

Sending you gentle hugs

Hey haven't heard from Liz or bubbles. Both live alone and I am a little worried. I hope they are ok.

Hugs to all

[lizardlady]

I'm here everyone.

I haven't been online the last few nights. I'm so exhausted I come home and crash on the sofa and stare at the idiot box until I crawl off to bed. I'm so tired I woke up at 7:20 yesterday morning. I have to leave the house by 7:30 to get to work on time. I was only about 20 minutes late. We won't talk about how fast I drove.

Hurt like holy bejeebers too. Same old same old....

[lizardlady]

Stumbled across this tonight. It is a great article about having a chronic illness. It's not specific to fibro, but I think y'all will like the article.

I Suffer From a Chronic Disease and I Want People to Stop Telling Me to 'Get Well' | Rachel Garlinghouse

[Kiya]

:O That sounds quite odd. I wonder if there's anyone you can talk with to confirm that they really do know what they're doing! We have a group here called SHEBA (which might not be how it's spelled) that really know their stuff. Or call your case manager through Aging and Disabilities services (whatever your version there is). Yike! I'm sorry!

Originally Posted by cakeladie

Oh Kiya I am sorry. Medicare confuses me to. Some law was just passed or changed and I got a letter saying for the next 2 months they were taking out $300 each month to mak up from when the law went into affect. That's a total of $600 that's a lot of money. Then I got another letter saying they were only going to do it for one month. Then take $100 out each month for medicare. I don't think they know what they are doing half the time.

I have Humana for my meds and I like them so far.

Sending you gentle hugs

Hey haven't heard from Liz or bubbles. Both live alone and I am a little worried. I hope they are ok.

Hugs to all

[January]

Oh, my dear friends, I wish I could gather you all up in a gentle hug and tell you everything is going to be all right. But sometimes, with chronic diseases, things are not all right ... they are managed the best they can be.

What is happening to you, Christina, and you, Kiya, is an outrage. Surely there is someone, anyone in the medical community who will speak up for the two of you. Christina, I know what's it's like to be bipolar and have my pain ignored, but my pain isn't as bad as yours. Kiya, if you can't do it, you can't do it and tell them!

I went to the rhuemy yesterday. I explained about my teeth and the hard time I'm having with losing them all three or four at a time. They said with the Sjogrens it was inevitable and that it's also inevitable that the fibro would be flared. Trying to survive a dry socket on tylenol and advil has about done me in. I must be a big baby because it's taken the spit fire right out of me and now I'm afraid to go ahead on the 1st and have more removed. Pardon my raging fear.

I had to have a cortizone shot in my hip and hopefully that will help a lot. She numbs the area really well before she injects it so it's not painful, per se.

I am really dehydrated. It comes with Sjogrens and makes the fibro worse. This too, shall pass. I swear, you guys, this too, shall pass.

I love you all.

[~Christina]

Awww January

I'm so sorry you are having to deal with the on going pain of these removals. no doubt it is raging up your Fibro across the board.

Gentle hugs

[~Christina]

Well. I have an Appt for a pain clinic Doctor on the 8th. I am not getting all hopefully and shyt. Im not being negative..I'm just be more od a realistic . Maybe this will help or maybe I will just be turned away.. and told to Meditate, eat healthy diet and exercise( all the things I do anyway)

Anyway... anyone have plans for the weekend?

[lizardlady]

Originally Posted by ~Christina

Anyway... anyone have plans for the weekend?

I plan to sleep until I wake up tomorrow, then roll over and go back to sleep.

My to-do list is about a mile long. I am going to give into my exhaustion and not do much of anything all weekend. I did my grocery shopping on the way home tonight so I don't have to leave the farm for anything until I go to work Monday.

[cakeladie]

Well I might just jump off the nearest bridge. I can't continue to medicate and give the cat IV's and not get any sleep. Plus dealing with the lupus fibro and RA pain I feel like I am letting everyone down and I kinda would just like to jump off the bridge

[lizardlady]

Cakeladie, no jumping off any bridges, you hear?

[Bubbles&Buttercup]

Originally Posted by cakeladie

I know we have all been in pain and trying to manage but I just noticed we have not heard from bubbles in a while. I hope she is ok

Hey, I'm here.
Been in hospital and then a mental health 'Recovery' place and then hospital again for the last few weeks. I'm back home now and they've put me on Cymbalta, telling me it'll help the depression and fibro. So far I just feel really sick.

Sorry to see everyone is having such a hard time.

And thank you Cake for noticing that I'd been gone.

[cakeladie]

No thanks needed. I missed you. Since I am pretty much home bound I look at you guys has family so I feel useful when I can send you a message to see how you are doing etc.

With the cat sick and me not feeling good I haven't even hit the sewing machine and boy are there a lot of cute halloween and Christmas stuff out there

Christina for what it's worth I will say a prayer that the pain management doctor is a good doctor and will help you.

Liz stay in bed with the cats and rest.

Jan lord I do not know how you are holding up I totally dislike going to the dentist.

If I forgot anyone I am sorry. It's been a rough day lots of crying

[Kiya]

best luck with it, Bubbles... I hope it will help. I could not take Cymbalta. Please take good care of you!!

[Kiya]

((((((((Cake))))))))) No jumping. Or other means. One moment at a time. Nap when you can. Ask for help, try new resources. Love and hugs!

[Kiya]

((((((((((Jan!!)))))))))) No you are not weak or a baby - that is SO MUCH to deal with. I also don't know how you're getting through it. xoxoxox

[Kiya]

((((((((((((Christina and Liz)))))))))))))) There's everyone.

I did have a meltdown right before yesterday's pt session and swapped out into a little who decided to do a puzzle 15 min before I had to leave. refused to go until it was finished (thankfully a 24 piece Rapunzel one). Had cried before that, afraid we couldn't speak up. But speak up I did and pt understood to the best of her ability - went easy on me and moved out my next apnt so I have time to get these exercises in.

[January]

Yay Kiya! Good for you for speaking up!

Yay for everyone. We all have a plan for the weekend except poor Cake who is going to medicate the cat... My plan is the do the laundry and pay the bills today. That's my plan....

Bubbles it is so good to hear from you. It is so good to hear from everyone.

Thank you all for the kind words. You make me feel so validated and it means so much to me.