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#1601
Nov 09, 2015, 07:39 PM
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Septembersrain, I'm sorry you qualify for our group. Wouldn't wish this evilness on anyone. Welcome to the group! PC is a great place, but I think the folks who post in this thread are the very bestest.
 I took Lyrica once when it first came out. I was high as a kite for days after taking one dose. I never took it again. My pdoc told me that lots of people have that kind of reaction. Don't let my response to it stop you from trying it though. Some folks here have had good results. |
 cakeladie, January, LettinG0
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 cakeladie, LettinG0, Septembersrain
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#1602
Nov 10, 2015, 07:31 AM
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Cakladie, how are you feeling today? I hope the coughing has stopped. A big thank you and all the ladies that told me about the heated throw, it is such a comfort to me and my "pains", the only problem I have now is that the kids love it too. I will have to get another!!
Sent from my iPhone using Tapatalk
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"The two most important days in your life are the day you were born.... and the day you find out why" ~ Mark Twain |
| cakeladie, January, LettinG0
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| Bubbles&Buttercup, cakeladie, January, LettinG0, lizardlady
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#1603
Nov 10, 2015, 07:34 AM
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January, Christina, lizardlady , Septembersrain and letting go. I hope I did not leave anyone out.."hugs and warmth to you all"
Sent from my iPhone using Tapatalk
__________________
"The two most important days in your life are the day you were born.... and the day you find out why" ~ Mark Twain |
| cakeladie, January
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| cakeladie, January, LettinG0, lizardlady, Septembersrain
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#1604
Nov 10, 2015, 10:19 AM
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Quote:
Morning. What plans do you all have for today? I'm finally readjusting to the extreme pain so I'm able to leave home to go get paperwork. That amitriptyline took away my pain and helped me sleep, it's still a shame I absolutely had to quit taking it. All the pain had flooded in at once. Thankfully for years I grew accustomed so I'm doing it again. I still can't drive, these suspected seizures are still occurring. I have high hopes for Lyrica but it's still a few days until I see my PCP. Got to visit the neurologist first to make sure my brain is okay. =) Sent from my iPad Mini 3 using Tapatalk. 
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(ᵔᴥᵔ)You'll struggle but as long as you're alive, you've got a chance.(ᵔᴥᵔ) |
| LettinG0, lizardlady
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| LettinG0
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#1605
Nov 10, 2015, 10:22 AM
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I went to the Dr. yesterday and she said although I am much, much better, it will take another 10-14 days to be truly well. The fibro has been acting up again, but what can I expect from all the coughing, etc.?
Everyone, please take good care of yourselves and feel the best you can. 
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I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
| cakeladie, LettinG0, lizardlady
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| cakeladie, LettinG0
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#1606
Nov 10, 2015, 10:24 AM
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That coughing sounds terrible. I know it must hurt a ton too. I really hope that you'll be feeling better soon. Having a flare is no good, especially if it lasts a long time... Sent from my iPad Mini 3 using Tapatalk.
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(ᵔᴥᵔ)You'll struggle but as long as you're alive, you've got a chance.(ᵔᴥᵔ) |
| January
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| January, LettinG0
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#1607
Nov 10, 2015, 11:11 AM
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Thank you, SeptermbersRain. For a few days, I could only take shallow, shallow breaths because my ribs and everything else were so sore. Now I can take a regular breath. Progress!!!
 Hugs to you!
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I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
| cakeladie
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| Bubbles&Buttercup, LettinG0, Septembersrain
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#1608
Nov 10, 2015, 05:51 PM
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Hey guys I went to the cardio doc and the pulmonary doc. I have to have a ct scan stat I am working on that and the cardio doc is putting me on a patch then if my. BP spikes I am to take an extra pill.
So i decided to count my pills last night. I take 26 pills at night I was shocked. Oh well I better go the front door just broke
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| January, LettinG0
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#1609
Nov 10, 2015, 08:11 PM
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A question - how the heck did the door break?!?!?!? 
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| cakeladie, January
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| cakeladie
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#1610
Nov 10, 2015, 08:19 PM
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everyone please excuse me.... I really need to let rip!
I AM SO GD TIRED OF HURTING ALL THE TIME!!!!! I'M SO DAMMED TIRED OF BEING TIRED ALL THE TIME!!! IT AIN'T FAIR!!! I DON'T DESERVE THIS!!!! I WANT IT ALL TO STOP!!!!!  Current flare has been going on for a week. Pain level is running 6-8 with spikes to 110! Yeah, I meant to type 110. I'm exhausted. I'm so danged tired I fell asleep at my desk today. Sitting straight up I nodded off. Woke up when my head fell forward.  I'm ready to throw in the towel. I won't, but it sure want to.  Okay, end of whining rant. You may return to your regularly scheduled programming at this time. |
| cakeladie, Calamity Jane., January, LettinG0
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| Bubbles&Buttercup, January, Septembersrain
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#1611
Nov 11, 2015, 12:01 PM
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Cake, Liz, I'm so sorry for what you're going through. I am sending prayers your way.
 Cake, what happened to the door? I've been sleeping in my recliner since I got this crud so I could breathe. Last night about 5:00 a.m. I couldn't take the pain anymore and crawled on top of the bed and fell asleep. When I woke up this morning, I could barely move my lower back. I am in so much pain. I have a good bed with a four inch thick foam mattress on top. I hurt. What am I going to do - I can't stand the recliner anymore and it looks like the bed makes the pain worse. I don't own a couch to sleep on so it's the recliner or the bed.
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I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
| cakeladie, Calamity Jane., lizardlady
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#1612
Nov 11, 2015, 01:43 PM
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(((((Liz))))). Liz hang in there I am praying for you
Jan the door was weird. Hubby went out to put some stuff into the garbage bin. He also changed the light in the garage and he was taking out the garbage and the old light and went to come in and he could not get through the door. The door would not open. So he got out his key and tried to open the door that did not work so I had to get up and open the door. He tried for an hour to fix it but he could not so he switched it out. So he was a very grumpy man for a while. The day before he worked in the rain and yesterday it was cold and to come home to have to mess with that. He's tired. Hopefully today will be ok I am praying
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| January, lizardlady
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| January
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#1613
Nov 11, 2015, 05:23 PM
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Just a update..
I had the IV infusion of Lidocaine. My pain was a 7 .. it dropped it to a 5 !!!! That is huge for me , as I haven't been below a 7 in practically years. The treatments had a culmitive (sp) effect. They are given at 2 week intervals, The person in the next curtained area had 4-5 bi weekly's and now does once a month and even her flares only hit a 5 ! she said she finally has her life back. So since I got some relief I will go again in 2 weeks. I feel like I have some hope, finally. Im heading to a walk in clinic, I have been fighting off this nasty URI for almost a week and Im losing the battle, Heading to the walk in clinic . Gentle hugs everyone .
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Helping others gets me out of my own head ~ |
| cakeladie, January, LettinG0, lizardlady
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| January, lizardlady
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#1614
Nov 11, 2015, 08:26 PM
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Oh Christina, I am so happy for you! I'm not happy about the URI, but I sure am happy that your pain was reduced and that you now have hope of a better life.
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I still dream and I still hope, therefore I can take what comes today. Jan is in Lothlorien reading 'neath a mallorn tree. My avatar and signature were created for my use only and may not be copied or used by anyone else. |
| cakeladie
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| cakeladie, LettinG0
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#1615
Nov 11, 2015, 09:06 PM
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EEG on Friday to see if there is anything going on in my brain to cause the passing out.
I really am hoping it was just a bad medicine side effect. Being told I can't drive, go anywhere by myself, I'm starting to feel like I'm losing my independence. It's been so hard to keep what little bit I had. This pain is increasing immensely and I'm feeling hopeless. Add in busy doctors who could care less and I'm up the creek without a paddle... Please, please let them try something new for the pain tomorrow. I can't deal with it! Sent from my iPhone 6s using Tapatalk.
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(ᵔᴥᵔ)You'll struggle but as long as you're alive, you've got a chance.(ᵔᴥᵔ) |
| cakeladie, January, LettinG0, lizardlady, ~Christina
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#1616
Nov 11, 2015, 11:01 PM
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 yahoo Christina I am so happy for you. Keep us posted on what's going on and how you are holding up. Has anyone heard from bubbles lately? I am kinda worried and I am very worried about Liz. Hugs to all 
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| January, ~Christina
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| Bubbles&Buttercup, LettinG0, ~Christina
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#1618
Nov 12, 2015, 07:33 AM
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I'm here everyone. Haven't been online the last couple of days because I had to work late. Came home, curled up with a book and a couple cats. Got some stuff going on in 3D that might keep me offline for a few days. Nothing bad, just not going to be near a computer most of Friday and Saturday.
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| cakeladie, January, LettinG0, ~Christina
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| cakeladie, January, LettinG0, ~Christina
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#1619
Nov 12, 2015, 10:11 PM
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I think my hubby is trying to drive me nuts. The new lock on the door is confusing. I can't figure out if the door is locked or not. It should be simple but it's not. Add to the fact that I have been coughing up blood and can't get that taste out of my mouth is just so gross.
I go tomorrow for my, CT scan. I saw the doctor again today but for my son and not for me. He took one look at me and said he is very concerned about me. I told him the CT is scheduled for tomorrow but he gave me antibiotics in the mean time so after tomorrow's running around I am not leaving the house. Ken only has one yard to do and he said he would do the shopping. I need lots of sleep. Like Liz said earlier I think it's not fare. I am not a mean nasty person. I help people out when ever I can I even go out of my way at times. Why do I have to have all of these medical issues. I can't just have lupus. I have to have lupus, RA, fibro, pulmonary fibrous, carpel tunnel, seizures oh I forgot to say I had a seizure last night which left me with a stutter which will go away in a couple of days but still IT'S NOT FARE Ok I am done I am going to bed. Take care everyone hugs
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| Calamity Jane., January, lizardlady, ~Christina
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#1620
Nov 13, 2015, 07:56 AM
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{*{*{*{*Cake*}*}*}*}
When will you get the results from the CT? I'm worried about you.
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| cakeladie
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| cakeladie
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#1621
Nov 13, 2015, 08:17 AM
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Here for my EEG. Not really scared but anxious as heck. =/
Sent from my iPhone 6s using Tapatalk.
__________________
(ᵔᴥᵔ)You'll struggle but as long as you're alive, you've got a chance.(ᵔᴥᵔ) |
| cakeladie, January, LettinG0, ~Christina
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| Bubbles&Buttercup
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#1622
Nov 13, 2015, 10:52 AM
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Hi there!! Good luck! How long until you get the results?
__________________
"Mental wounds still screaming, Driving me insane I'm going off the rails on a crazy train" |
| January
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#1623
Nov 13, 2015, 10:56 AM
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I'm here. Pain has been very up and down lately and now it's that magical time of the month, which for me means a lot of crying and an eff load of pain. I'll be laying around at home for a while I think.
Got my rheumy appointment on Monday, get some blood results back and I'll tell him that I basically stopped taking all my meds because they did nothing and I also need to ask if he'll write a letter for me to apply for disability so I might be able to have enough money to live. How is everyone? We need to throw some positivity in here...What's an uplifting movie you watch when feeling bad? Or a nice food you treat yourself?
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"Mental wounds still screaming, Driving me insane I'm going off the rails on a crazy train" |
| cakeladie, January
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#1625
Nov 13, 2015, 12:11 PM
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Liz I saw the doctor yesterday when I took my son he's not to happy he wants me in the hospital but knows I will be more comfortable at home and with the lupus and fibro a hospital is not always the best
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| January, LettinG0, ~Christina
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