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#1
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I'm thinking about stopping my antipsychotic; the one (aripiprazole/abilify) that almost completely stops my auditory hallucinations, and has few side effects, if any. Mad, right? There's this logical part of me that sees that stopping it when it's working so well is a stupid thing to do, but I have this feeling that I *have* to stop it. It's been creeping up on me for a few weeks now and the feeling is starting to override the logic. Every night it's a daily battle with myself to see whether I will swallow the pill or not: it's exhausting!
I feel so guilty for everything. Every tiny thing that's bad in the world that cannot even possibly be my fault, I feel guilty for. Mostly I feel guilty for existing when others who deserve to live more than I do are dying. Maybe that's part of the reason I want to stop my antipsychotic? Because if the voices come back to berate me for every little thing I do wrong, then somehow my guilt might lessen because I'm being punished in some small way. They were always right about me: I am a horrible person. I'm not having a good time of it lately, but it's been worse this week. My family's away on holiday and so I'm isolated and staying in bed more and more. They come back on Friday and so I'll be up and pretending everything is fine, but it's not; not deep down. My parents will be cross if I stop my antipsychotic. So will my pdoc. Is that enough of a reason to keep taking it? IDK... Sorry, I'm just rambling because I'm feeling lonely. Ignore me ![]() *Willow* |
![]() costello, fishsandwich, Gr3tta, Tsunamisurfer
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#2
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Is it like if the voices aren't berating you, you feel like you have to do it to yourself for them? And if they're doing it for you you can almost relax a bit? I could relate to that. I'm sorry it's so lonely with part of your family gone. I'm glad they'll be home soon. Maybe hold off on deciding what to do until they get back? To see if you feel different with everyone there? Please take care.
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#3
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Sorry you're having a hard time, Willow.
![]() It could well be. Certainly an idea worth exploring. I was reading in Mary Boyle's Schizophrenia : a scientific delusion? something to the effect that people tend to feel more depressed when the hallucinations and/or delusions are removed by medication. (I might have that wrong. I'm basing it on my memory.) That would make sense if the hallucinations are filling some kind of emotional need.
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"Hear me, my Chiefs! I am tired; my heart is sick and sad. From where the sun now stands I will fight no more forever."--Chief Joseph |
#4
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filling an emotional need...
hm. interesting. they filled a need for me for a long time. in fact.......his name was Jesse. we hung out and talked about everything. he was mostly auditory and has been visual a few times. then he became neutral to me. many times mean. for me right now if anything the void they fill is me getting to talk to people. them. they arent necessarily nice right now. i cant have convos with them. but ive heard commentary before. its annoying. but its like someone is with me. that cares. because jesse started as commentary and saved me from stuff like telling me not to do things. and not to talk to certain people. he told me hed be my friend. which is what i needed.
__________________
"We're all born to broken people on their most honest day of living"
The Dopamine Flux www.thedopamineflux.com Youtube channel https://www.youtube.com/user/MozePrayIII |
![]() costello
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#5
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Thanks for the support guys
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![]() *Willow* |
![]() fishsandwich, Gr3tta
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![]() Gr3tta
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#6
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![]() *Willow* |
#7
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i miss mine when i hear true silence.
even if they were mean. because i wasnt alone. reminds me of any relationship ive had. im the kind to always say to always go back to the abuser and say sorry when it wasnt even my fault. i did it because i desperately needed friends or someone to talk to. id be willing to be verbally abused in many friendships of people my age in the past because they knew how hard it was for me to make new friends and they knew if i lost them id have no one else. well right now i have no one.
__________________
"We're all born to broken people on their most honest day of living"
The Dopamine Flux www.thedopamineflux.com Youtube channel https://www.youtube.com/user/MozePrayIII |
![]() Gr3tta
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#8
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![]() ![]() ![]() *Willow* |
#9
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So my family got back yesterday from their holiday. It's been nice so far and I'm not fed up of them yet! lol Mainly because my little siblings have been out at a party most of today. Went to a summer fete today and had coffee with my parents to catch up, which was very nice, especially with no annoying children around.
![]() Today was going well, until my Mum read in the paper about a young guy who died in hospital of dehydration, because none of the nurses would give him a drink, no doctors acted on his high sodium blood levels and, when he got aggressive (a sign of major dehydration and high sodium levels) they just sedated him and stuck him in a side room, where he died. The level of incompetence is astounding, even to me who didn't even finish medschool! The stupid thing is that I feel incredibly guilty about his death, like it was me involved. I know that I would've been a crap doctor and done stupid things like this and so I'm feeling guilty for all the potential deaths I could've caused had I graduated. I know it's silly to get so upset when I'm never going to be a dr now and can't make deadly mistakes...but I am ![]() Last night I was totally convinced that stopping my antipsychotic is the thing to do. I mean, why would the voices exist if not to punish me?! I still feel guilty about my neighbour's suicide attempt months ago when I was called upon to do CPR. Did I do the right thing? Maybe she really wanted to die? If I'd been faster getting her down and better at CPR, maybe she wouldn't have brain damage? I felt all this at the time, but thought I'd 'gotten over it' - now with my guilt about every bad thing in the world, it's coming up all over again. Also I wonder if I pushed her to do it - you see I think about hanging myself all the time and my bedroom is next to hers (we live in a terraced house) and I just keep thinking that she picked up on my toxic energy and got my thoughts in her head, and that's why she did it. And I feel so guilty ![]() I'm such a bad person ![]() *Willow* |
![]() costello, fishsandwich
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#10
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If you were a bad person, you wouldn't feel bad about any of it, would you? I think the fact that you feel so much empathy towards others, even when you didn't know them personally, just goes to show that you are a good person.
It would be easier to be a badun wouldn't it? Then you wouldn't care. But you do, so I say you are good. For whatever that's worth. ![]() |
![]() pachyderm
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#11
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__________________
Psychiatric Survivor "And just when I've lost my way, and I've got too many choices . . . . I hear voices!" http://www.youtube.com/watch?v=oLCfb54e_kM |
#12
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![]() The guilt hasn't been as bad as it was on Saturday, but it seems to come in waves. I've been trying to distract myself from it by keeping occupied. I guess it's all the depression making me feel guilty for things I haven't done? Quote:
![]() I'm on day 5 off aripiprazole/Abilify. I was certain Fri night that I should stop it (after I'd taken my last dose), then unsure Sat morning and forgot to take it Sat night, which I took as a sign that I should stop it...IDK A part of me thinks that I should take it; a part of me is worried that I'll be told off when my CPN/parents/pdoc find out I've stopped it (I know I'm a grown-up, but I'm a massive people pleaser) ![]() IDK IDK IDK! I'm so confused by it all - meds, voices, guilt, punishment. Sometimes I wish I had someone I trusted who could tell me what to do, because often it makes little sense to me, but I don't really trust anyone, not even my family. Which makes me feel guilty because I know it upsets them that I don't trust them ![]() IDK. I'm waffling again - sorry! ![]() *Willow* |
![]() fishsandwich, Tsunamisurfer
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#13
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Well you have the acronym "IDK" in my head now, thanks to you, and it really is the only answer I have. IDK!!
I guess my own experience of coming off meds was really similar. I was worn down to a point where I kind of had accepted that taking meds would be the easy way out (if that makes any sense) -- especially socially, in terms of pdoc/CPN/family pressure. It was really tough to come off and face all that uncertainty and lack of support from those people. It was the right decision for me, though. Me, I'm not so much guilty as angry about everything, so yeah. IDK!! A big part of my 'coming off' was reading lots about psychiatric survivors and knowing that there were people who had escaped the system and lived to tell about it and did great things once they were out. So was having something to do every day and having at least one person who saw things the way I did and who could support me. IDK IDK IDK I guess the thing is that coming off meds . . . it doesn't work unless you know how you're going to cope. There is an incredible amount of pressure to stay on them, and you have to be galvanised to fight that AS WELL AS being ready to cope with your actual problems. It's really tough. I wish I could say more to help you.
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Psychiatric Survivor "And just when I've lost my way, and I've got too many choices . . . . I hear voices!" http://www.youtube.com/watch?v=oLCfb54e_kM |
#14
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PS: I think it's perfectly possible to have a life whilst you hate yourself/are guilty/whatever words adequately describe what you feel. It's how I live. I'm not a happy person, but I manage (often if only because of Mssrs. Cadbury and Marlboro, but yeah).
__________________
Psychiatric Survivor "And just when I've lost my way, and I've got too many choices . . . . I hear voices!" http://www.youtube.com/watch?v=oLCfb54e_kM |
#15
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PPS: I got my fancy handbag; now whenever I carry it I think of you
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__________________
Psychiatric Survivor "And just when I've lost my way, and I've got too many choices . . . . I hear voices!" http://www.youtube.com/watch?v=oLCfb54e_kM |
#16
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I haven't DECIDED to come off psych meds as I'm still taking my lamotrigine... IDK (sorry! lol) Decided implies that I've thought this through and have reached a decision, but this is much flimsier than that. I have periods of certainty and then periods where I think I've made a mistake and so I really just don't have a clue what I'm doing. Quote:
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![]() Thanks for your replies fish ![]() *Willow* |
#17
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Plus I wanted to escape from psychiatry. The whole system is insane and demeaning and I wanted none of it. I just got ahold of all my old medical records, including years of reports the pdoc sent to my GP. It's insane what he wrote. One day, he said I was "giggly" and "dressed in an uncharacteristically revealing manner which seems seasonally inappropriate" (the letter was dated July). This was a reason to put me on lithium apparently. Another refers to my "delusion" that I was accepted to Oxford at 16, but admits that my parents corroborated the claim and that I did get five A-levels at 16. I dunno, **** like that just made me want out forever. Quote:
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I want to feel not sad and not angry myself. Happy would be a miracle. If I figure out a way, I'll let you know ![]()
__________________
Psychiatric Survivor "And just when I've lost my way, and I've got too many choices . . . . I hear voices!" http://www.youtube.com/watch?v=oLCfb54e_kM |
#18
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I'm not anti-psychiatry or anti-meds in general, and I haven't been treated that badly by healthcare professionals, so I don't plan to get out of the system yet. I've accepted that I have severe depression and I would like that to get better, and so I'm still willing to drug myself to try to free myself from this evil depression. It's the psychotic stuff that I struggle with. Part of me thinks that it's the nature of the beast; that I'm confused because of the psychosis and that I should take the meds - maybe this wanting to be punished and this excessive guilt is part of it and could be medicated away?? Part of me doesn't want to believe that there's anything wrong with my reasoning and thinks I've made the whole thing up for attention or something (I haven't exactly worked out why though...) and so don't 'need' antipsychotics. Quote:
Normally I'm hugely in favour of plans and making decisions. I find life very stressful if I don't have things planned out. At the moment though I'm so indecisive I can't even pick an outfit to wear each day!! Never mind important decisions! ![]() Quote:
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![]() *Willow* |
#19
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I've heard a lot of theories about what causes the weight gain. Abnormal interactions in the stomach acid is a big one I've heard, and usually the recommendation is to take very powerful antacids. (Or just mainline Rennie if your doc won't give you a scrip??) Also I've heard about anti-inflammatory diets, which I was always too lazy to try but probably wouldn't hurt. Exercise never hurts and would probably help with the depression, too. I'm actually less hallucinatory when I'm running, and marathoning is sufficient punishment for even the most masochistic amongst us. :P Also, dare I ask if you actually weigh an overweight amount?? Women are forced to obsess over what we weigh, but it's usually counterproductive. Quote:
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Psychiatric Survivor "And just when I've lost my way, and I've got too many choices . . . . I hear voices!" http://www.youtube.com/watch?v=oLCfb54e_kM |
#20
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PS: I think one of the healthiest things I ever did was to learn not to evaluate my life/decisions/unhappiness through the lens of the diagnosis I was given. I learned to be stupid, chaotic, disorganised, rude, angry . . . even happy . . . without wondering how it fit into that psychiatric way of looking at the world. I wonder if you could work towards that.
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Psychiatric Survivor "And just when I've lost my way, and I've got too many choices . . . . I hear voices!" http://www.youtube.com/watch?v=oLCfb54e_kM |
#21
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I see my CPN on Tues. My last one was very pro-choice about meds and psychiatry, and so I could talk through my confusion without being pushed one way or the other. Just talking it through out loud was often enough to help me reach a decision. I'm hoping that new CPN is equally as open-minded because I have no-one else IRL to run this by (everyone else is pro-meds). Thank for all your responses fish ![]() ![]() *Willow* |
#22
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Here's to hoping!
__________________
Psychiatric Survivor "And just when I've lost my way, and I've got too many choices . . . . I hear voices!" http://www.youtube.com/watch?v=oLCfb54e_kM |
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