[Wild Coyote]

Originally Posted by ~Christina

Anyone on Humira shots ?

No. Still afraid of Enbrel.

I hope Humira works for you !

[Wild Coyote]

A Warm Hello to All!

I have read through the posts for the past two days. I am sorry so many of us are having a rough time.

I am hoping to have the time and the energy to comment more on posts, a bit later today.

I have been so very busy (for me) and stressed to the max. I am wiped out!

I hope to take a nap, soon. I am so tired I cannot think straight.

Love to All!

Big hugs to all that need it. Scooter mentioned that autumn is not that far off. Autumn is usually my best time of the year, mood-wise. I really hope it brings lots of relief and joy to everyone else, as well. I find it pleasurable because the temperatures become more comfortable, the trees are splendorous with lots of colors, and there is a smell and feel that can't be compared to.

The counter installers are currently at my house. Of course there are some issues, one of which is a plumbing issue. My husband just talked to my brother. He'll be coming tomorrow evening, so we won't have a running kitchen sink until then, at the soonest. When in dire need, we call 1-800-BRO-THER. He always gets a great meal, plus some cash. The installers have done a couple "extras" beyond the norm, as well. We'll give them a nice tip.

We did a lot of prep both yesterday and today for the counters. Of course with stuff out of cabinets, we have plenty of spring cleaning type projects planned. I've already put new contact paper on many of the shelves. I'll finish up the ones without stuff in them. Then I'll move on to the upper cabinets.

[Blueberrybook]

I am exhausted. Can’t keep up with the posts, sorry about that.

I really hope the iron anemia is not returning. I am very tired today and cold too. I think I overdid it this AM. H mowed the lawn on Saturday, but the grass clippings needed to be swept off the sidewalk and driveway before the nit picky HOA woman made her Monday round...I finished it but was soaked in sweat and dizzy and dehydrated.

I have had food, plenty of water to drink, but I am so sleepy, I think I will try to nap after posting this.

[Sunflower123]

I had an appointment with my NP today. I was there for an hour and 25 minutes (the pool kept whispering my name) discussing med changes that she eventually decided to discuss with my old pdoc. I’m finally happy and functioning and she wants to make med changes. To streamline she said. She said it will be a change and changes are hard. You want to do this now? When I just got stable? Can I have one or two more weeks of feeling good before we start?

I do understand and appreciate her concern that I’m on three medications in the same class and the possibility of tardive dyskinesia. I just wish I didn’t have to go through an adjustment process when I’m stable for the first time in years.

I’m going to head down to the pool and just float the stress away.

Warm wishes to everyone and many hugs to those that are struggling.

[Sunflower123]

Originally Posted by BirdDancer

Big hugs to all that need it. Scooter mentioned that autumn is not that far off. Autumn is usually my best time of the year, mood-wise. I really hope it brings lots of relief and joy to everyone else, as well. I find it pleasurable because the temperatures become more comfortable, the trees are splendorous with lots of colors, and there is a smell and feel that can't be compared to.

The counter installers are currently at my house. Of course there are some issues, one of which is a plumbing issue. My husband just talked to my brother. He'll be coming tomorrow evening, so we won't have a running kitchen sink until then, at the soonest. When in dire need, we call 1-800-BRO-THER. He always gets a great meal, plus some cash. The installers have done a couple "extras" beyond the norm, as well. We'll give them a nice tip.

We did a lot of prep both yesterday and today for the counters. Of course with stuff out of cabinets, we have plenty of spring cleaning type projects planned. I've already put new contact paper on many of the shelves. I'll finish up the ones without stuff in them. Then I'll move on to the upper cabinets.

I like autumn as well. It’s a good time for me and the temperatures are bearable.

I got quite a chuckle about the number you call when in dire need. That’s a nice set up for both sides.

Best wishes on your project.

Originally Posted by Jennifer 1967

I like autumn as well. It’s a good time for me and the temperatures are bearable.

I got quite a chuckle about the number you call when in dire need. That’s a nice set up for both sides.

Best wishes on your project.

I wonder how many others like autumn, in terms of moods?

It's actually an even better set up for my husband and me. Meaning my brother's help. He's a licensed electrician, and a really good one. He's a treasure!

Unfortunately, our dishwasher didn't fit so they dragged it to our garage. No dishwasher until we buy a new one and get that delivered. I assume they'll set it up. If not, that's another call to Bro.

[fern46]

Originally Posted by BirdDancer

I wonder how many others like autumn, in terms of moods?

It's actually an even better set up for my husband and me. Meaning my brother's help. He's a licensed electrician, and a really good one. He's a treasure!

Unfortunately, our dishwasher didn't fit so they dragged it to our garage. No dishwasher until we buy a new one and get that delivered. I assume they'll set it up. If not, that's another call to Bro.

Autumn is my favorite season. I experienced psychosis last November though. I'd be lying if I said I wasn't a little afraid of it now. I am hoping for a better time this year!

[wildflowerchild25]

Originally Posted by bluebicycle

What makes you worried that you'll lose him? Did something bad happen recently?

No, nothing bad. I think I’m a bit traumatized by my husband suddenly passing away like he did. I love RS very much and if he left me or anything happened to him I would be broken for a long time. I thought I’d be married for a long time and that didn’t happen so it’s hard for me to trust that things will be ok.

Figured that out all on my own, my therapist didn’t help me

[~Christina]

Originally Posted by Wild Coyote

No. Still afraid of Enbrel.


I hope Humira works for you !

Enbrel really helped me for about 16 months. Give it a whirl !

[~Christina]

Originally Posted by Nammu

Not been sleeping well at all. Keep waking up all though the night. So no dreams, I miss my dreams. Getting irritatable. My daughter called yesterday morning that she was coming over today. I'm hoping she feeds the kids first as we don't have kid friendly foods. Texted her at 3:30 am to tell her not to come early as both of us were still up and not sleeping yet. Think the Ambien has pooped out. It's a different brand and doesn't work at all.

Ambien quit on me years ago. My Pdoc at the time put me on low dose Doxipin 50 mg, it allowed me to fall asleep more naturally , I didn’t feel like I was chemical forced to sleep. Worked for years , maybe ask your Pdoc about it.

I’m the same I have no kid food in my house. lol !

Hope you have a good day

[~Christina]

Originally Posted by Wild Coyote

A Warm Hello to All!


I have read through the posts for the past two days. I am sorry so many of us are having a rough time.


I am hoping to have the time and the energy to comment more on posts, a bit later today.


I have been so very busy (for me) and stressed to the max. I am wiped out!


I hope to take a nap, soon. I am so tired I cannot think straight.


Love to All!

Massive hugs ! My friend

[~Christina]

Originally Posted by Jennifer 1967

I had an appointment with my NP today. I was there for an hour and 25 minutes (the pool kept whispering my name) discussing med changes that she eventually decided to discuss with my old pdoc. I’m finally happy and functioning and she wants to make med changes. To streamline she said. She said it will be a change and changes are hard. You want to do this now? When I just got stable? Can I have one or two more weeks of feeling good before we start?


I do understand and appreciate her concern that I’m on three medications in the same class and the possibility of tardive dyskinesia. I just wish I didn’t have to go through an adjustment process when I’m stable for the first time in years.


I’m going to head down to the pool and just float the stress away.


Warm wishes to everyone and many hugs to those that are struggling.

To be honest Med changes often terrify me , it’s the unknown. Hope your changes are a good thing ...

Enjoy that pool !!!

[~Christina]

Oh wow we are only like 15 posts away from needing a new Thread!!!

Took hubby for more labs today. He is still very weak and still has really no memory of the last 10-12 days, which is a good thing. Both arms are bruised from wrist to shoulders between IV’s and all these blood draws and it’s all very sore. That’s going to take months to fade away.


This 4 week trip is still looming over my head. Ugh

We see Doctor Wednesday and my husband agrees he will go by the doctor advices, ummm we will see.

He also has to see a endocrinologist, a MRI shows a flat area on his pituitary gland. So more things to worry about.

I’m still running on adrenaline and just taking charge, my typical response to any kind of crisis.

Hugs and cookies to everyone

[Wild Coyote]

I did get a short nap, thankfully. I was on my last legs too early in the day today. Seriously.

I had worked on disability paperwork for approx 8 hours yesterday. The .gov now requires we set up "mysocialsecurity' accounts online. I am not sure of just how long this has been a requirement. (?)

I type in my info and they keep telling me that I am not me.
Eventually, I was locked out for 24 hours. I have not tried again because... I am only going to give them the same info. Lol. I will try it in the morning, will manipulate some info (like use an old address) and I might be me again???

They say they will make our accts more secure if we provide info from one of 3-4 credentials of their choice. Well, a big fat "No" on that one, too! I am seriously not me! How sophisticated a system!

I have been trying to get this all done and ready for a face-to-face meeting with a Social Security Rep. later this week. My days are so demanding every day of this week, needed to work on this early in the week.

Have also been working on electronics, almost non-stop, for every break I might have had. Some have been offline for a couple of months (since the computer fiasco) and need updates in order to work properly.

Here I am, a little wired. Just set up a huge workhorse of a printer!!! A monster!!! Lots of instructional videos available!!! So very helpful. I LOVE HP branded electronic devices. HP is wonderful about customer service!!!

Okay, going to read here some more now.

Oh and by the way, I LOVE the Fall!!! I so wish it were a longer season!!! I just "come alive" in the Fall!!!

Oh, Jennifer!!! Hilarious piece about your NP wanting to mess with your meds, even though you are feeling quite stable!!! Just confounds me!!!

Love All Around!!!

[Nammu]

Oh, that SS thing is a huge headache. I have serious memory issues and have no idea what car I owned when or what my last address was. You want numbers and names ask a computer! There are whole decades I've forgotten how nice to know my government has that information and can reassure me that I'm not who I think I am.

[Victoria'smom]

We went to NCF today and toured it. Miguel is applying to it. He likes there better then the other schools BUT their dorms seem to suck but that's okay. I wish we could have ate there but they're closed during the summer. So we just ordered pizza. He's finishing his application tomorrow. They're nontraditional but that may be a better fit for him it's certainly the smallest school in the state system. They have an event where they hold mock classes for student to see what it's like.

[Wild Coyote]

Originally Posted by Nammu

Oh, that SS thing is a huge headache. I have serious memory issues and have no idea what car I owned when or what my last address was. You want numbers and names ask a computer! There are whole decades I've forgotten how nice to know my government has that information and can reassure me that I'm not who I think I am.

Well expressed!
I "think" I am going to have to lie in order to complete the process of securing the Soc. Sec. online Acct. It seems to defeat the purpose!

On a lot of these computer issues, one might first be able to sign-in with old info. and then change the info once into the account.

Anyhow, what a royal pain!!!

[sadveiledbride]

I am trying not to jinx it but I feel okay at this moment. I seem to be regretting lots of things lately and embarrassing myself. Maybe I overthink too much. This depression is kicking me though and I seem buried in a hole. I had a real bad weekend. Today was an improvement I guess. I did some regrettable **** though. Maybe a good night's sleep will help with how I feel.

[~Christina]

Originally Posted by Wild Coyote

I did get a short nap, thankfully. I was on my last legs too early in the day today. Seriously.


I had worked on disability paperwork for approx 8 hours yesterday. The .gov now requires we set up "mysocialsecurity' accounts online. I am not sure of just how long this has been a requirement. (?)


I type in my info and they keep telling me that I am not me.

Eventually, I was locked out for 24 hours. I have not tried again because... I am only going to give them the same info. Lol. I will try it in the morning, will manipulate some info (like use an old address) and I might be me again???


They say they will make our accts more secure if we provide info from one of 3-4 credentials of their choice. Well, a big fat "No" on that one, too! I am seriously not me! How sophisticated a system!


I have been trying to get this all done and ready for a face-to-face meeting with a Social Security Rep. later this week. My days are so demanding every day of this week, needed to work on this early in the week.


Have also been working on electronics, almost non-stop, for every break I might have had. Some have been offline for a couple of months (since the computer fiasco) and need updates in order to work properly.


Here I am, a little wired. Just set up a huge workhorse of a printer!!! A monster!!! Lots of instructional videos available!!! So very helpful. I LOVE HP branded electronic devices. HP is wonderful about customer service!!!


Okay, going to read here some more now.


Oh and by the way, I LOVE the Fall!!! I so wish it were a longer season!!! I just "come alive" in the Fall!!!


Oh, Jennifer!!! Hilarious piece about your NP wanting to mess with your meds, even though you are feeling quite stable!!! Just confounds me!!!


Love All Around!!!

You need one day totally stress free, no tech issues!!!

Anything the government has there hands in will be a cluster F ! I’m so sorry you can’t seem to prove you are YOU ! Crazy !

Glad you got a nap ,bet it felt great

Hugs!!!!!

As some of you guys know, people at my work have the ability to work from home whenever they want (although they do encourage you to go into the office for productivity purposes). Well, there was this one guy who hadn’t shown up to work in about a year or so. No one knew why, but he just worked from home even though he lives like 20 mins from the office. (Suspicious much?) Turns out that he changed his gender. He was transitioning this whole time. It came out of the blue.

I knew that he and his wife had talked about having kids, but man, I feel bad for the wife. She was totally blindsided apparently. (And yes, they’ve divorced.)

I have no problem with LGBTQ people and I don’t care what people do with their lives as long as they’re not hurting anyone. So, like who you like, practice whatever religion you want, whatever. However, I do think it was a sh_tty thing to do, especially since he admitted to wanting to be a girl ever since he was little and especially since his wife wanted kids. I feel like he was stringing her along this whole time, because it seems like he was trying to fit in at her expense. I mean, I do feel bad that many transgender people (or LGBT people in general) have a hard time fitting in and getting accepted, but what he did was very hurtful to his wife.

On one hand, I want to support him and his transition, but on the other hand, I feel like it was pretty sh_tty to put someone through that. I mean, he admitted he likes men because he genuinely feels he was born a girl, and I have no problem if he feels that way, but is it wrong of me to wonder if he ever loved his wife in the same way a straight man would love his straight wife? I’m sure he didn’t go out of his way to make his wife miserable and I’m sure he didn’t intend to hurt her, but am I wrong for thinking he was selfish? Am I wrong for thinking he should have never married a woman in the first place knowing he likes men? Am I wrong for being disgusted with his behavior?

[fern46]

Originally Posted by bluebicycle

As some of you guys know, people at my work have the ability to work from home whenever they want (although they do encourage you to go into the office for productivity purposes). Well, there was this one guy who hadn’t shown up to work in about a year or so. No one knew why, but he just worked from home even though he lives like 20 mins from the office. (Suspicious much?) Turns out that he changed his gender. He was transitioning this whole time. It came out of the blue.

I knew that he and his wife had talked about having kids, but man, I feel bad for the wife. She was totally blindsided apparently. (And yes, they’ve divorced.)

I have no problem with LGBTQ people and I don’t care what people do with their lives as long as they’re not hurting anyone. So, like who you like, practice whatever religion you want, whatever. However, I do think it was a sh_tty thing to do, especially since he admitted to wanting to be a girl ever since he was little and especially since his wife wanted kids. I feel like he was stringing her along this whole time, because it seems like he was trying to fit in at her expense. I mean, I do feel bad that many transgender people (or LGBT people in general) have a hard time fitting in and getting accepted, but what he did was very hurtful to his wife.

On one hand, I want to support him and his transition, but on the other hand, I feel like it was pretty sh_tty to put someone through that. I mean, he admitted he likes men because he genuinely feels he was born a girl, and I have no problem if he feels that way, but is it wrong of me to wonder if he ever loved his wife in the same way a straight man would love his straight wife? I’m sure he didn’t go out of his way to make his wife miserable and I’m sure he didn’t intend to hurt her, but am I wrong for thinking he was selfish? Am I wrong for thinking he should have never married a woman in the first place knowing he likes men? Am I wrong for being disgusted with his behavior?

It is a difficult situation for all involved. I think it is hard to truly understand unless you've walked in these shoes. Wrong is subjective. It is up to you to judge yourself. If it were me, I'd try to focus on empathy for her and compassion for her ex wife.

[fern46]

I had several vivid dreams last night, but nothing disturbing that triggered me. I feel stable today and ready to face whatever the day brings.

I am taking an online training class today. I stay at home with my kids, but I enjoy keeping my skills sharp. The topic deals with my favorite work subject, so it should be a good experience. My kids are awesome and a lot of fun, but it is nice to do something adult during the day from time to time.

[Wander]

Saw my pdoc today. After a brief discussion on PTSD and how I can move forwards from here we agreed my meds are spot on. However, we did talk about my lack of creativity and its possible link to Lithium. Right now I can’t risk coming off Lithium but if the Bipolar stays stable for some time I might.

So basically I’m doing well but I’m very fragile. I can’t handle much stress so I have to be careful. I’m free from others controlling me finally but I often still don’t feel safe. Being free and in control of my life is new to me. Tomorrow I see my T. It will be great to continue chatting with him about all this. I’m so ****ing lost. It hurts.

Christina, that's a bummer that your husband still has more tests to come and questions to be answered. I think that if he forgets days, it could be because of a touch of trauma? I'm glad he's open to what doctors suggest in terms of your upcoming trip. I wonder if there would be some kind of compromise with it? Maybe you and hubby stay home, but have one of his friends/relatives visit soon for just a short bit (days vs. weeks). I don't think his class reunion is really that important, but that's just my view on class reunions.

Wild Coyote, I hope the SS stuff finally gets resolved. Somehow I missed some of that conversation (or didn't understand) but I agree that places ask for too much information sometimes.

Miguel'smom, I hope Miguel gets in the place he likes best.

sadveiledbride, it's great that today is a better day. Please please savor this and try to put any negative stuff out of your mind. We can't change the past, but we can savor the present and move in as positive ways as possible into the future.

bluebicycle, I must concur with fern46 about your transgender work colleague. Though I definitely feel for his wife and family I also feel for the pain and conflict he (she) has surely felt for most of his/her life. I am not a member of the LGBT community, but I do understand at least a little bit about the pressures and pain in feeling one has to be untrue to themselves, sometimes. We never fully know another person's journey or struggles, especially one quite different than our own. I'm sure he did love his wife, though. That is also a pain he has to deal with. Losing her, in a sense. It's not 100% his wife's pain. As for working from home for a full year, I can certainly understand if he has had fear about returning with a new gender identity. It's likely the same fear he has had all along. As we need therapy and time to accept and process our challenges, so does he. Honestly, I am happy for him that he finally broke free of his chains. It is sad that it hurt those close to him, too. However, as I wrote to sadveiledbride above, he must look at the present and find peace and happiness in the future. So must his ex wife and family.

Wander, I'm happy for you that you're having an open conversation with your doctor. That's wonderful that you are feeling free from too much control!