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  #426  
Old Nov 25, 2019, 01:48 PM
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~Christina ~Christina is offline
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Originally Posted by BirdDancer View Post
We already saw some pelicans today. When I see one again, I will think of you, Christina, and will be hoping you feel a little better.


Hubby developed cold-like symptoms and coughing from either the statin he started taking, or the new blood pressure med. I'll admit he quit the statin, and went back to the lower dose blood pressure med. Since arriving in Florida (Gulf coast), he thinks he's feeling better.


Thanks so much

I’m sorry your husband is feeling this way.. I hope stopping the statin clears this up quickly so you can enjoy your trip.
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  #427  
Old Nov 25, 2019, 01:55 PM
fern46 fern46 is offline
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Originally Posted by bpcyclist View Post
Well, after that positive post I made yesterday, I gave up and got in bed. I guess that's where I go when I just can't do it anymore. Fell asleep at some point around 3ish and finally woke up at about 515--this morning. Some sort of bizarre miracle, since I normally can't sleep.

Took all my meds almost 2 hours ago and still just wiped out. Usually, the Provigil and the Wellbutrin do a good job of waking me right up for the day. Oh well.

Thank you so very much Jennifer, Nammu, and WC for your kind words and support. I am so grateful. And to everyone who didn't post but who had positive thoughts or vibes--thanks so much to you.

And just to clarify a few things, since I'm kinda newish and since someone was wondering. I have childhood-onset BP 1, but it was not formally diagnosed until 2005 (massive manic/psychotic episode, kinda like last week). I don't think I am outting myself at this stage by just coming out and saying that, while I was a laser surgeon by training, most of my income came from designing surgical lasers for companies in the Bay Area and the UK. I lived on an airplane, mostly overseas, and I think this was a bad career choice for my bipolar stuff.

Anyhoo, I again became psychotic in June of 2007, when I believed I had to somehow get from my house on the river to the Alano Club, three miles uptown, in three minutes' time or a nuclear bomb would detonate. It was Friday rush hour. That drive is maybe twelve minutes in those conditions. When it became clear I wouldn't make it, I became despondent, having let down my city, and drove my SUV head-on into the Fremont Bridge abutment at 60 mph. Right before I struck the concrete, I had the single most spiritual experience of my life. Suddenly, everything but me just disappeared. The car interior, the street, cars, bridge--everything. Just--gone. All replaced by the most gorgeous, perfect, vivid, bright, white tunnel lined by these lights that were just flawless and wondrous. It was perfect. And I knew. My faith wasn't for nothing.

I have spent massive amounts of time in the hospital. Tons of med changes. After my car incident, the vast majority of my family excommunicated me, so that I only have contact now with my elderly dad, who is great, and my partner/non-partner/don't even know what we are anymore... and my wonderful 11 year-old daughter, Kensie.

So, that's way more than enough--sorry. Last thing is that ending my own life is not an option, even though I really want to do it sometimes. The reasons are spiritual/religious. My religion does not permit suicide. I guess that's a good thing, given how I feel about my life sometimes.
Thank you for sharing your story with us. I feel grateful to know a bit more about you. Your career sounds like it was fulfilling, but I could see how the pace and all of the travel might break you down after a while.

I am bummed that you've had to endure another cycle recently and that the symptoms are still occurring. One majorly depressive or manic episode is enough for a lifetime and it is worse when you add psychosis to the mix. I hope it is not impossible for you to see just how strong you are.

You're a professional warrior now. It isn't the career you wanted and you don't want to do this work, but it is the work before you. You had to train all on your own and without an army around you to fight with you. You found your fellow warriors now. You can gather up the lessons learned and strategies offered here. You can let others carry you for a while when you feel you cannot walk. You will find your way through and maybe just maybe it will get easier one day. Keep battling though. You have a beautiful 11 year old reason to fight and a faith that lets you know you are not alone and you have purpose here.

Footprints in the Sand Poem | Beautiful Poem from Only the Bible.com
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  #428  
Old Nov 25, 2019, 02:15 PM
fern46 fern46 is offline
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Originally Posted by BirdDancer View Post
Easy on time flight. Easy drive to the hotel. The sun is shining.
Beautiful! Enjoy BirdDancer
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  #429  
Old Nov 25, 2019, 02:30 PM
Anonymous41462
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@bpcyclist: Wow, that's a really impressive career you had! I was a computer programmer. Other lives tho. Now we are warriors, as @fern46 says!

@BirdDancer: That's a great photo! The sky is so cool! Glad to hear your trip is off to a good start!

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  #430  
Old Nov 25, 2019, 03:24 PM
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Wild Coyote Wild Coyote is offline
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Originally Posted by Blue_Bird View Post
I actually didn't have any panic attacks yesterday and none so far today as well. I'm so happy about that! It was getting really frustrating. Hoping the anxiety continues to improve.

The agency my case manager is with gets turkey baskets donated from churches to bring to people who struggle financially and need turkeys and all the stuff needed to make Thanksgiving dinner. They brought mine over today and I'm very excited! I'm definitely thankful for that.

Not a whole lot going on this week. I'm having coffee with my sister on the weekend at Denny's, really looking forward to that

Fantastic!
It's such a huge relief to have the panic attacks subside!

Wow! What an agency! It's exactly as it should be! We have a duty to attend to the needs of our community! So happy for you!

Ihope you have a happy Thanksgiving!
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  #431  
Old Nov 25, 2019, 03:31 PM
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Originally Posted by ~Christina View Post
My safety plan is rather long ...it’s really starts off when I have had say a rough 5/6 days in a row , no sleep , increased pain. It’s about hurdles.

For me it’s I must talk to certain people, but it has to be in order ( another hurdle) if I need to say call my daughter but she’s busy at work or involved in stuff and can’t talk well then I just have to wait, it could be hours or the next day until I can , ( more time to do rational thinking) then it’s time to talk to B then C... D is texting as she lives in Cape Town South Africa plus different time zones, so it’s often a wait ...also there is a step I drive to my T’s office and just sit in the car and look at the damn building, it does bring me some comfort , Ive been going there over 8 years , my T now only working 3 days a week so if I’m a mess on Thursday I gotta make it til Monday , so again more time to gather up rational thought. I absolutely refuse to call his cell, I am his only client that has his number actually..well once , I did have to call it while he was out of the office for 5 weeks due to surgery and I was in a real bad place.

The goal is to put as many hurdles in place between you and making a terrible choice.

Catastrophic thinking is something everyone needs to really pay attention too... last week I came here and made a post. Was very frantic ! But with in a little over a day I forced myself to basically turn on logic and common sense reasoning and re read my post I can’t tell you how many times.

It’s was truly just catastrophic thinking. Black and white only.

Personally right now I have to keep a close eye on that as I’m struggling with numerous health problems

So maybe write up a safety plan for yourself.. the longer the better.

Oh yeah I also have to drive to a local park. There’s a lake and lots of Ducks ,I often go there to just think and feed those greedy monsters

Hurdles !
This is a great idea! Thanks for sharing it with us!
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  #432  
Old Nov 25, 2019, 05:32 PM
yellow_fleurs yellow_fleurs is offline
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Originally Posted by ~Christina View Post
Your not ruminating silly lol

As for your friends reaction ? I think I’d be a bit annoyed/hurt / angry even. I think friends reaction was a bit rude and offputting

Your in a situation where hormones are likely a big portion of the problem. Yes Bipolar in the mix? Probably. But our overall health easily plays into how mental illness steers the boat sometimes.

If you trust your Pdoc I’d defiantly go in for a visit.. can you bring up your unsure about diagnosis ?

You can always get a second opinion too. A fresh set of eyes never really hurts anything

Thanks Christina. Okay, maybe I was just ruminating about ruminating Yeah I did feel a little hurt that maybe he wanted me to know he didn't think my mood symptoms were severe enough or something, even if a professional saw them and diagnosed me. But could have just been out of concern. However, I guess it's not healthy for me to make assumptions about what he meant so I am just going to focus on what I think I should do and trust the professionals. I do trust my pdoc, so I think I'll start with a visit with him.
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  #433  
Old Nov 25, 2019, 05:36 PM
Anonymous328112
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Got another headache at work again. My headache medicine (Excedrine) just doesn't seem to kick in fast enough. I sincerely think it's the room and temperature that causes me to get like that -- I feel better almost immediately in cooler air.


I'm tired today. Just another day. Nothing new.
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  #434  
Old Nov 25, 2019, 05:41 PM
yellow_fleurs yellow_fleurs is offline
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Originally Posted by ~Christina View Post
Okay zero sleeps last night (boo hiss)

I numerous things I can do around the house to occupy a lot of time. But will my husband agree to take down all the curtains so I can wash them again it’s only been 4-5 weeks since I did them last.

I have very poor balance so I can not trust myself on even the small step stool needed.

I just gotta say it : my lungs are junk! Just pure trash and if the giant hippo sitting on my chest would go away that would be just swell !
Zero sleep is no good (yeah I know you don't need me to tell you this). Is this a mood thing do you think or due to the breathing or something else? Sorry to hear that you're still struggling to breathe. Hope you get more sleep tonight and your breathing improves soon
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  #435  
Old Nov 25, 2019, 05:42 PM
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Scooter9 Scooter9 is offline
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Got 4 hours it sleep last night.

I see my pdoc tomorrow. I hope she doesn't stop the Mirapex.

Although I'm not sleeping well, I am feeling a little better. My thoughts aren't as negative as they were before and I think that's starting to help.

I'm not out of the woods yet. I feel not so good at the same time. Plus I've gotten into doing something that's not good for me (doesn't involve money) but which makes me feel better, strangely enough.

Hoping for some sleep and a good appointment.
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  #436  
Old Nov 25, 2019, 06:17 PM
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~Christina ~Christina is offline
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Originally Posted by raging vortex View Post
I had quite a traumatic weekend with triggers and thoughts (suicidal and other stuff), but today I am just trying to focus on christmas and the planning (this afternoon I am going to put up my tree, and use that as a distraction)


plus: I am listening to christmas music. anything to try not to think about stuff.


I’m glad you are focusing on Christmas stuff. Stay safe
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  #437  
Old Nov 25, 2019, 06:20 PM
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~Christina ~Christina is offline
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Originally Posted by yellow_fleurs View Post
Thanks Christina. Okay, maybe I was just ruminating about ruminating Yeah I did feel a little hurt that maybe he wanted me to know he didn't think my mood symptoms were severe enough or something, even if a professional saw them and diagnosed me. But could have just been out of concern. However, I guess it's not healthy for me to make assumptions about what he meant so I am just going to focus on what I think I should do and trust the professionals. I do trust my pdoc, so I think I'll start with a visit with him.


Sounds like a good plan. FYI I have ruminated or my rumination
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  #438  
Old Nov 25, 2019, 06:27 PM
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~Christina ~Christina is offline
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Originally Posted by yellow_fleurs View Post
Zero sleep is no good (yeah I know you don't need me to tell you this). Is this a mood thing do you think or due to the breathing or something else? Sorry to hear that you're still struggling to breathe. Hope you get more sleep tonight and your breathing improves soon


I think it’s just kinda of a perfect storm. I have my general insomnia , but my pain is much higher than normal as I had to stop my biologic for my PsA pain because it’s the reason Im having this ongoing major breathing problem and my fibromyalgia is in an uproar.

Yep perfect storm of utter shyt

Eventually things will improve but I have zero idea of “ when” Half life of Humira is 3-6 months !!!! My rhuemy really wants to wait for my breathing to return to normal before we start another med... but if I have a huge skin flare or the pain just gets absolutely unbearable we might need to start something else.

It’s always something
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  #439  
Old Nov 25, 2019, 06:30 PM
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Nammu Nammu is offline
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Long day. Went to the nursing home three times today. The first she was out doing physical therapy, the second time there was 4 staff in her room. She's coming home Thursday. The third time I just popped in with a thank you card for her to sign and a therapist popped in for more pt.

Mum's neighbor did all the leaves on our lawn! That was so nice of her. The snow plow guy who also does our lawn stopped by with some tall flags to mark our driveway ( we're expecting a lot of snow) he told her he wasn't going to get to the leaves so our neighbor decided to do them. I went out and got her a box of candy and a card. Stopped by so mum could sign it. And dropped off another book for her to Read.

I've gotten lax about getting to bed by midnight. It's been 2 am the last couple of nights. Having the tv all to myself I've started watching movies that go until late. I figure as long as I don't have to be anywhere in the morning it doesn't really matter.
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  #440  
Old Nov 25, 2019, 06:34 PM
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Nammu Nammu is offline
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Originally Posted by ~Christina View Post
I think it’s just kinda of a perfect storm. I have my general insomnia , but my pain is much higher than normal as I had to stop my biologic for my PsA pain because it’s the reason Im having this ongoing major breathing problem and my fibromyalgia is in an uproar.

Yep perfect storm of utter shyt

Eventually things will improve but I have zero idea of “ when” Half life of Humira is 3-6 months !!!! My rhuemy really wants to wait for my breathing to return to normal before we start another med... but if I have a huge skin flare or the pain just gets absolutely unbearable we might need to start something else.

It’s always something
I hope your breathing clears up soon and no other flare ups happen. You need at least 3 months of good health, you deserve a break from this crap.
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  #441  
Old Nov 25, 2019, 06:44 PM
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Sunflower123 Sunflower123 is offline
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Originally Posted by Nammu View Post
Long day. Went to the nursing home three times today. The first she was out doing physical therapy, the second time there was 4 staff in her room. She's coming home Thursday. The third time I just popped in with a thank you card for her to sign and a therapist popped in for more pt.

Mum's neighbor did all the leaves on our lawn! That was so nice of her. The snow plow guy who also does our lawn stopped by with some tall flags to mark our driveway ( we're expecting a lot of snow) he told her he wasn't going to get to the leaves so our neighbor decided to do them. I went out and got her a box of candy and a card. Stopped by so mum could sign it. And dropped off another book for her to Read.

I've gotten lax about getting to bed by midnight. It's been 2 am the last couple of nights. Having the tv all to myself I've started watching movies that go until late. I figure as long as I don't have to be anywhere in the morning it doesn't really matter.
I’m glad to hear your mum is on the mend and will be home Thursday.

That’s great that the neighbor did the leaves.

It’s nice that you’re getting the TV to yourself for a few nights.
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  #442  
Old Nov 25, 2019, 06:57 PM
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Wild Coyote Wild Coyote is offline
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Originally Posted by Scooter9 View Post
Got 4 hours it sleep last night.

I see my pdoc tomorrow. I hope she doesn't stop the Mirapex.

Although I'm not sleeping well, I am feeling a little better. My thoughts aren't as negative as they were before and I think that's starting to help.

I'm not out of the woods yet. I feel not so good at the same time. Plus I've gotten into doing something that's not good for me (doesn't involve money) but which makes me feel better, strangely enough.

Hoping for some sleep and a good appointment.
I am also constantly trying to cut deals with my pdoc so she does not take my Mirapex away! Funny!

I am not great, yet am better than I was without it and I truly do not want to lose my new friend, MIrapex!

Each week we cut a deal where I will try to get more sleep and she will let me stay at the same dose until we meet again. Last week, brought my sleep patches in for "show and tell" and as a bargaining chip to keep my MIrapex.
What we won't do for MIrapex!

I have stopped my compulsive new hobby,, thankfully. Not even tempted.

I hope you can get some sleep.
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  #443  
Old Nov 25, 2019, 07:26 PM
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Pookyl Pookyl is offline
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Doing ok bipolar wise. I’ve been given the go-ahead by my cardiologist to stay on my anti-psychotics which is a relief. I’m so stable on them I would’ve hated to change meds.

Anxiety wise not as good. Went out for a rare dinner out with DH last night and it got the better of me. I had to take a Valium half an hr into dinner. (Could feel a panic attack coming on.) It was either that or bolt out of the restaurant.
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  #444  
Old Nov 25, 2019, 08:33 PM
Anonymous41462
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It was mostly a grim day, berating myself for overeating. Our condo meeting was interesting tho. I go to events mostly for the entertainment value, to see people and hear them talk. As in Overeaters Anonymous. As i used to go to government meetings for entertainment when i was more active. At one meeting one guy called the other guy a potato head! Haha! Tonight the person i most enjoyed was this bumbling man who spoke soooooooo slowly and said simple things. I REALLY liked him! I love bumbles! Bus drivers really like to help me when i'm bumbling. "To act or talk in an awkward or confused manner." I'm a lovable bumble! I'm going to start a collection of bumble bee brick-a-brack! By the laws of aerodynamics a bumble bee shouldn't fly yet it does!

My doctor and i made a plan for the slide into depression i feel coming on. Med changes. So it's nice to be making some adjustments that may help protect me over the Winter.

Buzz!!!
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  #445  
Old Nov 25, 2019, 08:48 PM
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~Christina ~Christina is offline
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Originally Posted by Nammu View Post
Long day. Went to the nursing home three times today. The first she was out doing physical therapy, the second time there was 4 staff in her room. She's coming home Thursday. The third time I just popped in with a thank you card for her to sign and a therapist popped in for more pt.


Mum's neighbor did all the leaves on our lawn! That was so nice of her. The snow plow guy who also does our lawn stopped by with some tall flags to mark our driveway ( we're expecting a lot of snow) he told her he wasn't going to get to the leaves so our neighbor decided to do them. I went out and got her a box of candy and a card. Stopped by so mum could sign it. And dropped off another book for her to Read.


I've gotten lax about getting to bed by midnight. It's been 2 am the last couple of nights. Having the tv all to myself I've started watching movies that go until late. I figure as long as I don't have to be anywhere in the morning it doesn't really matter.


Yeah that’s pretty typical when someone goes to rehab to build up strength, PT is always cracking the wipe lol

Honestly enjoy having the tv to yourself , it is true if you don’t HAVE to be somewhere go to bed whenever!

Ahhh that’s a great neighbor. I honestly would freak out if we got a lot of snow here regularly.. They never do anything to roads I need to get back and forth on to town. One year we were forecasted to get 1-2 at most .. well it stalled right over our head and we got 13 inches. We were literally stuck at home for 7-8 days , which was fine we had no where to be.. even in town it took a couple days to clear out important roads LOL
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  #446  
Old Nov 25, 2019, 08:48 PM
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~Christina ~Christina is offline
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Originally Posted by Nammu View Post
I hope your breathing clears up soon and no other flare ups happen. You need at least 3 months of good health, you deserve a break from this crap.


Of that sounds amazing !! Thanks
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  #447  
Old Nov 25, 2019, 09:26 PM
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wildflowerchild25 wildflowerchild25 is offline
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Work went pretty well today. My student was suspended so no running after him. I was put with this adorable little girl with this high squeaky voice. It sounded so cute When she said **** you, ***** LOL. I didn’t mind her. Nothing I haven’t dealt with before.

RS put up our Christmas lights today! They are so beautiful. We will put up the tree after thanksgiving. My son and I will do that as RS is working his side job Friday and Saturday.

Not much to report other than that!
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  #448  
Old Nov 25, 2019, 09:37 PM
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Nammu Nammu is offline
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Originally Posted by ~Christina View Post
Yeah that’s pretty typical when someone goes to rehab to build up strength, PT is always cracking the wipe lol

Honestly enjoy having the tv to yourself , it is true if you don’t HAVE to be somewhere go to bed whenever!

Ahhh that’s a great neighbor. I honestly would freak out if we got a lot of snow here regularly.. They never do anything to roads I need to get back and forth on to town. One year we were forecasted to get 1-2 at most .. well it stalled right over our head and we got 13 inches. We were literally stuck at home for 7-8 days , which was fine we had no where to be.. even in town it took a couple days to clear out important roads LOL
13! That's a lot of snow for anyone much less a place that doesn't have the equipment to deal with it! I'm resigned to the fact we're getting significant snow but hoping its on the lower end of the forecast cause Friday/ Saturday it's supposed to snow a lot again. Oh, joy( said not at all joyfully) winter has arrived
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  #449  
Old Nov 25, 2019, 09:45 PM
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~Christina ~Christina is offline
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Originally Posted by Nammu View Post
13! That's a lot of snow for anyone much less a place that doesn't have the equipment to deal with it! I'm resigned to the fact we're getting significant snow but hoping its on the lower end of the forecast cause Friday/ Saturday it's supposed to snow a lot again. Oh, joy( said not at all joyfully) winter has arrived


I truly was hoping was another mild winter but our weather man out of Nashville posts lots of stuff on Facebook and always responds to people. He told me to go ahead and pull out the much warmer clothes this year, I was legit bummed
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  #450  
Old Nov 25, 2019, 11:23 PM
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Nammu Nammu is offline
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Originally Posted by ~Christina View Post
I truly was hoping was another mild winter but our weather man out of Nashville posts lots of stuff on Facebook and always responds to people. He told me to go ahead and pull out the much warmer clothes this year, I was legit bummed
I checked with farmers almanac, "a wild ride" fridget temps and hefty snow for most of the country. Mild in the western thrird. I guess it's time to move to New Mexico!
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