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  #526  
Old Feb 21, 2020, 01:29 PM
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Originally Posted by Daonnachd View Post
Some of you are aware that we live in a small, close-knit college community and that my wife was let go late last year. Members of our community have taken up a collection and anonymously given us two postal money ordes worth over $850.
That is absolutely incredible. I am so happy for you guys. There are still some good people in America...
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  #527  
Old Feb 21, 2020, 01:36 PM
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Originally Posted by bluebicycle View Post
I rarely notice any mood upswings, so my therapist or pdoc usually have to point them out to me. During those times, I literally think I am behaving normally and do not suspect a thing wrong. So, unfortunately, I cannot say if I relate to your upswings that last between 12 and 6. But I do have my therapy appts in the morning (10am) and pdoc ones in the evening (6:30pm), and when I have both appts on the same day and I appear (hypo)manic, my pdoc and therapist say the same thing, so I am inclined to believe it lasts all day when it does occur.

The problem with me is that I get psychosis regardless of mood episodes, so the psychosis can impact my behavior as well and possibly make me appear "manic," which makes things confusing (to say the least). Fortunately, though, I have not had psychosis in a while.
I really relate to this, blue. I am not sure whether my mania causes my psychosis or my psychosis causes my mania. Or what. But I definitely get psychotic completely independent of my "mood" episodes. No question about it. In fact, I don't really even like calling whatever I have a mood disorder, because it is so much more than a mood issue. Way more. I just don't think full-blown bipolar disorder with psychosis is primarily an illness of mood. It is something much more all-encompassing than that, in my humble opinion.
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  #528  
Old Feb 21, 2020, 01:42 PM
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Originally Posted by MarcusAurelius View Post
My Birthday went fine-- all plans fell through, which I as grateful for. That sounds weird, right? I wasn't up for a party. I didn't want to be around a bunch of family and friends and force hours of "fun" to happen. I just didn't want to deal with it. Well, lots of them couldn't come because of sickness so I spent a birthday with my mom and we went out to eat, came home, ate some cake and went to bed. It really was all I was wanting all along. It may be partially depression but the added stress of that situation just was too much. I truly am glad nothing happened in the end.

I came home early from work today. I got a bad quality check on a phone call. Well, it's my second one. I am very stressed out today and I was afraid of failing another monitor due to my major anxiety. I know leaving isn't a solution to the anxiety, but it's something I could afford to do and I needed it for my health. Before I continue let me explain to you the circumstance. I am in a period called "nesting", this is for my second round (new level of service) of training. Nesting is on the production floor "training"-- actually taking calls and assisting etc. Neither issue raised is major or much more than "coaching" required. But the reason they get "red flagged" is because my test scores in training were good. I had an 100% average so the higher your score, the less you're allowed to "pass with". Someone with a lower score is expected to make a few more mistakes and get graded a bit more leniently (that is -- maybe one minor mistake won't "red flag" them) It's kind of a crazy system but the idea is to help you. I'm not upset about being red flagged -- issues are issues, but I'm upset with myself that I keep making issues for myself. This job is hard enough and if I keep making mistakes they could result in major issues. Payouts or termination. Now we are nowhere near those two things right now. The issues were minor but had to be addressed but it strikes the fear button in my heart that I'm gonna end up making this situation worse than what it is. I just have to get through Monday and Tuesday next week before I see my psychiatrist. Maybe some med tweaks is whats in order to help with both depression and anxiety. We will see how that goes I guess. I don't currently take anything for anxiety, just a mood stabilizer, antidepressant and anti-psychotic.


I just hope I find peace this weekend. I feel so stressed and all I want to do is sleep. Maybe that's the best solution for me - sleep.
I hope you have a very peaceful and restful weekend!!!!
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  #529  
Old Feb 21, 2020, 01:47 PM
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Originally Posted by bluebicycle View Post
I had my therapy appointment about 2 hours ago. My therapist insisted that I set up an appointment with my pdoc instead of waiting until next Friday to see him, but I said, "that's the problem. He doesn't want to set one up for me." So I'm going to wait until next Friday to tell him that I've stopped taking my rexulti. It's not worth arguing with his useless, idiotic assistant over the phone. I've done enough of that already.

I also told my therapist that I couldn't take the akathisia anymore. I said there is nothing that is going to change my mind about this med. It's a helpful med for sure, but I don't want to have to take meds to handle side effects of other meds. I'd rather switch meds instead of increasing the size of my cocktail.

If my therapist wants to tattle tale to my pdoc, then she can go ahead. Maybe it'll make my pdoc realize that I'm just going to do what I think is best for me if you continue to ignore me.

Other than those things, my therapy appointment went pretty well. We talked about work stressors and such. I felt the whole session was productive.
Good for you for taking care of yourself, blue. I still say--new pychiatrist. This has just been ridiculous care.
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  #530  
Old Feb 21, 2020, 01:55 PM
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Originally Posted by bpcyclist View Post
I really relate to this, blue. I am not sure whether my mania causes my psychosis or my psychosis causes my mania. Or what. But I definitely get psychotic completely independent of my "mood" episodes. No question about it. In fact, I don't really even like calling whatever I have a mood disorder, because it is so much more than a mood issue. Way more. I just don't think full-blown bipolar disorder with psychosis is primarily an illness of mood. It is something much more all-encompassing than that, in my humble opinion.
I think they are still learning a lot, the diagnosticians, if they are open to learning..

papa bear said “too many inputs, fuzzy..”

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  #531  
Old Feb 21, 2020, 01:56 PM
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Well, now I've gone and done it. I signed myself up for the Seattle to Portland bike ride in Juy. 206 miles. If you are super-fit, you can do it in one day (!). I will do it in a more reasonable two and then camp out at the halfway point on Saturday night with all the normal people. I am really looking forward to it. This is the first time I have actually made any type of plan to do anything since I got out of the hospital in 2016.

Mood is okay. Still sluggish, but it's better than being horribly manic and psychotic, so I am not complaining.

Sending love and hugs to all!!!!
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  #532  
Old Feb 21, 2020, 02:43 PM
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Well, now I've gone and done it. I signed myself up for the Seattle to Portland bike ride in Juy. 206 miles. If you are super-fit, you can do it in one day (!). I will do it in a more reasonable two and then camp out at the halfway point on Saturday night with all the normal people. I am really looking forward to it. This is the first time I have actually made any type of plan to do anything since I got out of the hospital in 2016.

Mood is okay. Still sluggish, but it's better than being horribly manic and psychotic, so I am not complaining.

Sending love and hugs to all!!!!
That sounds really cool, my friend! Go for it! Even if it takes more than 2 days, it's a major thing. Enjoy the ride! To me, that would be the most significant part of the endeavor.

Though this may sound piddly in comparison to your goal, there were a few years in the past that I helped a good friend train for a 3-day 60 mile Walk for MS. We had some periods when we were walking up to 15 miles in a day, two to four days per week, though we walked on flat areas near a canal. My state has a long canal with a path maintained by the state park service. I've even canoed a good part of the canal and canoed in a couple rivers in my state. Yeah, what a ride!
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  #533  
Old Feb 21, 2020, 02:46 PM
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Needed to do some things today but couldn't get myself to leave my apartment. Every now and then I go through sort of an agoraphobic phase, this is just one of those times I guess. My anxiety is really bad lately. Might have to take my prn meds. The more I stay inside the more paranoid I get.

I see my therapist next week. I'm going to see if we can discuss ways to deal with OCD type problems, because she had mentioned in the recent past that I may also be dealing with some OCD. I have panic attacks and pure dread whenever I look at something and it's not a certain way or not as flawlessly clean as I like. I know that's not normal. And it happens every day several times a day. It's a horrible feeling. I get obsessed with certain thoughts that go through my head repeatedly that I can't get to stop. Then there's the intrusive thoughts and images, very disturbing ones.. Anyway. I need help learning how to deal with that, and may see about getting my Paxil switched to zoloft (which I've been on in the past) when I next see my psychiatrist because it seemed to work better for some of the anxiety stuff.
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  #534  
Old Feb 21, 2020, 03:37 PM
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Originally Posted by bpcyclist View Post
Well, now I've gone and done it. I signed myself up for the Seattle to Portland bike ride in Juy. 206 miles. If you are super-fit, you can do it in one day (!). I will do it in a more reasonable two and then camp out at the halfway point on Saturday night with all the normal people. I am really looking forward to it. This is the first time I have actually made any type of plan to do anything since I got out of the hospital in 2016.

Mood is okay. Still sluggish, but it's better than being horribly manic and psychotic, so I am not complaining.

Sending love and hugs to all!!!!
A double century is AWESOME!

Love and hugs to you, too.
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  #535  
Old Feb 21, 2020, 03:38 PM
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My pdoc's assistant sucks. She called *me* and I told her that I refuse to take rexulti any longer because of the akathisia. She acted surprised that I stopped the rexulti (ARE YOU F_CKING OBLIVIOUS TO THE WORLD, LADY??? In what f_cking universe would I willingly continue on rexulti when you're not helping me and I am having akathisia from hell???) and said, "come in for an appointment on Monday." So, she set up an appointment for me on Monday.

What an idiot!!

She wouldn't give me an appt before no matter how much I begged her. Now she gives me one. It's now occurring on Monday instead of Friday, and I've been begging for an appointment for how long???

Knowing her and my pdoc, they'd probably just keep trying propranolol, which would make me see even more shiny floaty stars and make me even dizzier.
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  #536  
Old Feb 21, 2020, 05:24 PM
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Hi all! So I had both appointments this week, and I start OCD outpatient therapy next month, while continuing to see my current therapist. It's like a short duration thing to get me some skills I think. The women's mental health specialist didn't think my mood chart was detailed enough so she assigned me to track for two months and then return. I am glad they are being thorough, but was hoping to try something sooner. She did say to try a calcium supplement.
I am going to a paint night tonight with my significant other and a friend. Hoping it will be fun. Sending compassion!
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  #537  
Old Feb 21, 2020, 05:47 PM
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I don't know why, but for quite a while I've had a situation where I feel just fine all day long, but in the evening I develop a feeling of malaise. Sometimes it causes a little anxiety which is likely the cause of some minor sweating. When this first started, I was taking Nexium and it seemed to help. I stopped Nexium because of a suspicion that that gave me a sudden red rash that would clear 8 to 12 hours after taking it. I haven't gotten the rash since stopping the Nexium (maybe a week ago), but the malaise continues. I'm wondering if I should finally go and buy some substitute for the Nexium (Prilosec or Zantac) or if maybe that's not the issue at all. It's not exactly indigestion all of the time. Chewable Alka Seltzers hadn't been doing much good.

One thing I have been doing a lot of is taking prn Ativan, for the anxiety that crops up in the evening. I think it has been mostly daily for a little while now. I don't think that could be the culprit. Or could it be? I'll admit that when I take the Ativan, I very soon after feel better and sleep well. Which started first? The regular evening "malaise" feeling or the Ativan taking? I don't remember.

The only major thing that has changed these past weeks is my stopping 20 mg of Latuda, at my psychiatrist's direction. 20 mg is a small dose, but I had been taking it for at least a year. I went straight from the 20 mg to 0 mg. But if that is the culprit, why only the evening malaise and not full day malaise feeling?
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  #538  
Old Feb 21, 2020, 06:01 PM
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Originally Posted by bluebicycle View Post
She said she couldn't follow me at all and that I was saying bizarre, nonsensical things. I had no idea at the time. She told me at the end of the appt that she was "concerned," and I was like, "concerned about what? huh???" (I was talking about how I wondered what would happen if a cow and a goat had a baby, and I made cheese out of the baby's milk... should I open a pizza shop? Yeah, I was not well... lol.)

Too funny!
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  #539  
Old Feb 21, 2020, 06:03 PM
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Originally Posted by BirdDancer View Post
I don't know why, but for quite a while I've had a situation where I feel just fine all day long, but in the evening I develop a feeling of malaise. Sometimes it causes a little anxiety which is likely the cause of some minor sweating. When this first started, I was taking Nexium and it seemed to help. I stopped Nexium because of a suspicion that that gave me a sudden red rash that would clear 8 to 12 hours after taking it. I haven't gotten the rash since stopping the Nexium (maybe a week ago), but the malaise continues. I'm wondering if I should finally go and buy some substitute for the Nexium (Prilosec or Zantac) or if maybe that's not the issue at all. It's not exactly indigestion all of the time. Chewable Alka Seltzers hadn't been doing much good.

One thing I have been doing a lot of is taking prn Ativan, for the anxiety that crops up in the evening. I think it has been mostly daily for a little while now. I don't think that could be the culprit. Or could it be? I'll admit that when I take the Ativan, I very soon after feel better and sleep well. Which started first? The regular evening "malaise" feeling or the Ativan taking? I don't remember.

The only major thing that has changed these past weeks is my stopping 20 mg of Latuda, at my psychiatrist's direction. 20 mg is a small dose, but I had been taking it for at least a year. I went straight from the 20 mg to 0 mg. But if that is the culprit, why only the evening malaise and not full day malaise feeling?
I don't know anything about Latuda, but it does seem odd that it would only be in the evenings were that the cause. I could definitely see the ativan causing some malaise, though--it is known to do that. Causes dragginess in some people. Klonopin really does it to me.

You also could have had a viral syndrome and the rash could have been due to that and not the nexium. Rashes are much more common with these viruses than most foks realize. I guess trying a different PPI might not hurt.

Whatever it is, I am sorry you are dealing with this and I hope you feel better soon!!!!
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  #540  
Old Feb 21, 2020, 06:48 PM
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I don't know anything about Latuda, but it does seem odd that it would only be in the evenings were that the cause. I could definitely see the ativan causing some malaise, though--it is known to do that. Causes dragginess in some people. Klonopin really does it to me.

You also could have had a viral syndrome and the rash could have been due to that and not the nexium. Rashes are much more common with these viruses than most foks realize. I guess trying a different PPI might not hurt.

Whatever it is, I am sorry you are dealing with this and I hope you feel better soon!!!!
Thanks, bpcyclist! I will try another PPI.

Ativan usually only makes me feel good. It never makes me tired unless I take it right before bed. I'm wondering if the malaise could be Ativan withdrawal. As said, I take the Ativan to rectify the malaise. Its effects don't cause it... unless it's withdrawal. I don't know. Maybe it's something else.

I take 0.5 mg Klonopin daily, and have for 10 years. I take that after the malaise begins.
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  #541  
Old Feb 21, 2020, 06:52 PM
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Originally Posted by bluebicycle View Post
My sleep is good. It's a little broken (I woke up 4 times), but I'm still getting an adequate amount.


I think I slept from 9pm until 4am? That's a solid 7 hours, which is good for me. I dislike getting 10 hours a night on rexulti. It's too much!! I used to get 7 a night prior to starting meds, so 7 is my "actual" normal. (I would go to bed at 9pm and wake up at 4am sharp without an alarm. Did that everyday since I was 9... Then it all changed when I started meds at 24. )


My therapist insists that I am sometimes hypomanic/manic even when I have "normal" sleep (like 7-10 hours), but I don't know about that. I'm sure she'll tell me today if she thinks so, though. But I guess there was one time I was getting 11 hours a night and I was speaking rapidly and tangentially, in a manic but almost psychotic manner (according to her). She said she couldn't follow me at all and that I was saying bizarre, nonsensical things. I had no idea at the time. She told me at the end of the appt that she was "concerned," and I was like, "concerned about what? huh???" (I was talking about how I wondered what would happen if a cow and a goat had a baby, and I made cheese out of the baby's milk... should I open a pizza shop? Yeah, I was not well... lol.)


So I dunno. Sleep might not mean anything. We'll see today in about an hour and I'll update this thread.


I’m glad your still getting a good amount of sleep , maybe just keep a mood journal it might show a pattern ?

Glad your feeling well.

I had a billy goat that truly was in love with my saddle mare, I’d laugh and tell him he better get a step ladder , but I though wow what an odd looking baby that would be Hahaha
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  #542  
Old Feb 21, 2020, 07:25 PM
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It's a sunny day today, but chilly. A "good" me would go and take a walk in a little while, but I dislike taking walks by myself. Doing adequate exercise has been a real issue for me for a number of years now. It's odd, considering how much of an exercise enthusiast I used to be in my youth. I did take a short walk with my sister yesterday after our lunch together, which was very pleasant, I must say. I do take short walks with Hubby on weekends. I still love dance, but the closest I come to it is "car dancing". When I try to dance in my living room, I tend to peter out.


I don't quite know what I want to do with my hair. It hasn't looked as good as I would like. Yesterday, I was looking at photo albums and saw hair cuts I had that were wonderful. The problem is, that my hair has gotten curlier and curlier over the years. A friend suggested that I let it grow longer. I'm not sure how that would work out. Plus, I don't know if long hair on me now (in my late 40s) would look like I was trying to be younger than my years -- in a negative way. Though I know many women even older than me look great with long hair, but their hair isn't a curly mop. It would be way too expensive to get my hair straightened. Trying to do so with a blow dryer and flat iron is now impossible. Even my hair stylist refuses to try. When I wear it pulled back, my husband says I look like a child. Not what I'm going for!


Oh Hair troubles, as you know I went with a short pixie cut and allowed my hair to grow out. It’s now grown out to past the middle of my back .. although I got loads of compliments on my super short cut but I just didn’t feel like me. My hair has never been this long so I’m curious to see just how long it will grow.

My hair has lots of natural curl and wave. Since I do not wash my hair more than twice a week. After a good amount of my hair in a towel , I spray in a leave in conditioner, I take the front top if my hair , thing like if I had bangs, I pull it back in a pretty flat style and use a claw clip to hold it. I then take all the rest and put it in a very tight French twist and pull it up almost on the top back of my head and use a big claw clip to hold it. My hair is thick so it take almost all day to let it dr, when I take it out I basically have my hair like in my picture here

My daughter had literal Shirley Temple Hair total curly as hell,, she started doing the same, because no heat is being used there’s no damage to the hair, her hair came out a lot more straight than she ever had with a blow dryer and flat iron.

She has slowly cut her hair shorter and shorter over the years and sides shaved and long mop top in a bright blue, teal, green, etc etc all colors I desperately wish would have been available when I was younger.

Even tho it was my idea to do super short to let my natural hair grow in, I’ll admit I cried many many times

Honestly you might want to go to a wig shop and try on some wigs with short styles. Might help you get an idea if it’s something you might like and be okay with it.

Sure Hair grows back if it’s just not a style you like but wow it can take time... it’s been almost 3 years now since I did that pixie cut.
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  #543  
Old Feb 21, 2020, 07:40 PM
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Originally Posted by bluebicycle View Post
My pdoc's assistant sucks. She called *me* and I told her that I refuse to take rexulti any longer because of the akathisia. She acted surprised that I stopped the rexulti (ARE YOU F_CKING OBLIVIOUS TO THE WORLD, LADY??? In what f_cking universe would I willingly continue on rexulti when you're not helping me and I am having akathisia from hell???) and said, "come in for an appointment on Monday." So, she set up an appointment for me on Monday.


What an idiot!!


She wouldn't give me an appt before no matter how much I begged her. Now she gives me one. It's now occurring on Monday instead of Friday, and I've been begging for an appointment for how long???


Knowing her and my pdoc, they'd probably just keep trying propranolol, which would make me see even more shiny floaty stars and make me even dizzier.


Such a cluster F Blue I hope something can be changed. And certainly make sure you question why you have gone through hell trying to get his assistant to do anything to help you. Why can’t he take 5 bloody mins to call you back when you are driven to the edge and needing to stop a meds due to lack of care !
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  #544  
Old Feb 21, 2020, 07:41 PM
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Originally Posted by yellow_fleurs View Post
Hi all! So I had both appointments this week, and I start OCD outpatient therapy next month, while continuing to see my current therapist. It's like a short duration thing to get me some skills I think. The women's mental health specialist didn't think my mood chart was detailed enough so she assigned me to track for two months and then return. I am glad they are being thorough, but was hoping to try something sooner. She did say to try a calcium supplement.

I am going to a paint night tonight with my significant other and a friend. Hoping it will be fun. Sending compassion!


I’m glad your getting this issue addressed.
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  #545  
Old Feb 21, 2020, 07:52 PM
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Originally Posted by BirdDancer View Post
I don't know why, but for quite a while I've had a situation where I feel just fine all day long, but in the evening I develop a feeling of malaise. Sometimes it causes a little anxiety which is likely the cause of some minor sweating. When this first started, I was taking Nexium and it seemed to help. I stopped Nexium because of a suspicion that that gave me a sudden red rash that would clear 8 to 12 hours after taking it. I haven't gotten the rash since stopping the Nexium (maybe a week ago), but the malaise continues. I'm wondering if I should finally go and buy some substitute for the Nexium (Prilosec or Zantac) or if maybe that's not the issue at all. It's not exactly indigestion all of the time. Chewable Alka Seltzers hadn't been doing much good.


One thing I have been doing a lot of is taking prn Ativan, for the anxiety that crops up in the evening. I think it has been mostly daily for a little while now. I don't think that could be the culprit. Or could it be? I'll admit that when I take the Ativan, I very soon after feel better and sleep well. Which started first? The regular evening "malaise" feeling or the Ativan taking? I don't remember.


The only major thing that has changed these past weeks is my stopping 20 mg of Latuda, at my psychiatrist's direction. 20 mg is a small dose, but I had been taking it for at least a year. I went straight from the 20 mg to 0 mg. But if that is the culprit, why only the evening malaise and not full day malaise feeling?


Well Zantac was taken off the market there’s a link to it and cancer . I changed to Pepcid and it works well for acid reflux, I also keep tums on hand if I need a bit more.

Why did you stop Latuda? It seems like your likely going through withdrawal even tho you were only on small dose. Did you take it morning or not?

Does your malaise and anxiety hit more before your husband gets home ? Or once he is home?

Does your feeling poorly effect your ability to prepaid meals ? Does your evening become easier as it’s closer to bed time , like skin care , brushing teeth, ect?

Taking your Ativan certainly will help you feeling better , are you okay with using more daily as opposed to just a pen ? What does your Pdoc think? Or is he already gone out of the country now?
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  #546  
Old Feb 21, 2020, 07:55 PM
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I’ve been getting frustrated that I have to sleep. But I do go to sleep and I sleep a full 8 hours. I just wish I could skip to the next day. I’m not manic and my moods have been fine for days. So I’m not sure what’s going on. This has been going on for 10 days or so. Does anyone know what it could be? It seems to be more of a restless type feeling.
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Old Feb 21, 2020, 08:56 PM
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Quote:
Originally Posted by bpcyclist View Post
I really relate to this, blue. I am not sure whether my mania causes my psychosis or my psychosis causes my mania. Or what. But I definitely get psychotic completely independent of my "mood" episodes. No question about it. In fact, I don't really even like calling whatever I have a mood disorder, because it is so much more than a mood issue. Way more. I just don't think full-blown bipolar disorder with psychosis is primarily an illness of mood. It is something much more all-encompassing than that, in my humble opinion.

Yes! This! I've been saying this for years.
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  #548  
Old Feb 21, 2020, 09:01 PM
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N3 is being a jerk again. I told him we were taking his gf home after they were at the mall and then he was coming home with me. He agreed (over the phone)- now it seems that was just a ploy to get me to come pick him up so they didn't have to ride the bus (which they also said they were going to do!). So now he's over at her place and its 9 p.m. He said he'd take the bus home, but I bet he misses the bus. *Sigh*... Geeze- give it a rest- you don't have to see each other every waking moment!
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  #549  
Old Feb 21, 2020, 09:49 PM
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The weather is improving and so is my mood! I hope my depression has peaked. I want to be well enough to go in a Scrabble tournament on March 14. So that's about three weeks away. Time enough! I got my dog out for a long walk in the sunshine and then sat out with her on my lap. Really made me feel better, so much more optimistic. It's very welcome as i had a wretched night with a fight with my dog (but all couples fight) and
Possible trigger:
So glad to have turned a corner today and put that all behind me.

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  #550  
Old Feb 21, 2020, 11:54 PM
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Maybe I have borderline?
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