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  #476  
Old May 17, 2020, 09:26 AM
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Originally Posted by BirdDancer View Post
Conflicts are already cropping up between my siblings and me in regards to my father. I know that it will become extra stressful, not that it isn't already stressful. I'll spare people here of the details. My sister is still doing the lion's portion of the work. I am preparing letters for our dad's upcoming neurologist and psychiatrist appointments. Oh how I hope my father won't refuse to go to these appointments!!!! They are so important!

My husband is under great stress, despite not getting laid off. Actually, he now thinks being laid off or taking the package would have been the better situation. Of course with this pandemic, that would have been difficult. I really hope that a vaccine is created and distributed asap. My husband and I will be first in line to receive it.

I have decided to stop talking to my psychiatrist about our potential future move to Europe. His input makes the situation only more difficult. I'll only talk to my therapist about it. My psychiatrist has volunteered to look over the write-up I'm creating for my dad's upcoming neurologist appointment. That's kind of him. He can certainly provide input on how best to structure it (and on some content) to be as effective and helpful as possible.

Believe me when I write that my siblings and I wished our dad's LTC insurance would have paid towards the assisted living. If they did, perhaps our dad would have just stayed there permanently. At this time, I don't think our father even wants to come home. Sadly, we'd rather he not, too. The reason LTC refused is because they use the alcohol abuse as an excuse. According to his policy, even mental illness would cause an exemption. So, basically his LTC regards these issues as the person's fault.
You've been under a tremendous amount of stress for a very long timer now. I admire your ability to hang in and to get through it.
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  #477  
Old May 17, 2020, 10:37 AM
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Rough couple of days around here. Been trying to work through some longstanding conflict wiht the ex. Nearly impossible. Best thing by far would be no contact, but just not possible. She is calmer now, so, microscopic progress, I guess. Ugh. Very hard for me to be around folks who are incapable of empathy.

Also now battling maybe the worst respiratory infection I have had in years. Sneezing nonstop. Wheezing like crazy. Weird. Never had anything remotely like this before. No shortness of breath or anything. But upper airway is so irritated, it is really quite miserable--and I just never feel that way about my physical life. Not febrile, so, okay so far. Will just have to keep an eye on it.

Hope everyone is well. Hugs and love to all!!
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  #478  
Old May 17, 2020, 10:46 AM
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Originally Posted by bpcyclist View Post
Rough couple of days around here. Been trying to work through some longstanding conflict wiht the ex. Nearly impossible. Best thing by far would be no contact, but just not possible. She is calmer now, so, microscopic progress, I guess. Ugh. Very hard for me to be around folks who are incapable of empathy.

Also now battling maybe the worst respiratory infection I have had in years. Sneezing nonstop. Wheezing like crazy. Weird. Never had anything remotely like this before. No shortness of breath or anything. But upper airway is so irritated, it is really quite miserable--and I just never feel that way about my physical life. Not febrile, so, okay so far. Will just have to keep an eye on it.

Hope everyone is well. Hugs and love to all!!
Are you going to get tested for COVID-19? I'm not saying you have it, but those symptoms you described are typically the first signs of a coronavirus infection. Then shortness of breath usually comes later. And most people do describe coronavirus as the worst respiratory infection they've ever had. I mean, it is SARS-CoV-2... severe acute respiratory syndrome. So please, do get tested in case you need extra care. Don't try to wait it out. Call your GP or someone who can help you figure out what's going on.
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  #479  
Old May 17, 2020, 02:13 PM
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Originally Posted by bluebicycle View Post
Are you going to get tested for COVID-19? I'm not saying you have it, but those symptoms you described are typically the first signs of a coronavirus infection. Then shortness of breath usually comes later. And most people do describe coronavirus as the worst respiratory infection they've ever had. I mean, it is SARS-CoV-2... severe acute respiratory syndrome. So please, do get tested in case you need extra care. Don't try to wait it out. Call your GP or someone who can help you figure out what's going on.
Thanks, blue. Yeah, I don't really know what to do or anything. I am afraid if I show up in a clinic that everyone will freak, because it is quite obvious I have a respiratory thing going on. No hiding it. I guess maybe I should call and ask them what they thing I ought to do.

It is just a really weird one this time. I have never =, ever had so much constant, continuous airway irritation--tons of it. Bizarre.

Thanks for the encouragement. I am a terrible patient, like all nusrses and doctors. I blow everything off. Will try not to do that this time.

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  #480  
Old May 17, 2020, 03:29 PM
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Originally Posted by BeyondtheRainbow View Post
I'm so sorry it's stretching on like this. Not being able to breathe is awful. I had whooping cough (allergic to shots) 10 years ago and my sats would dip into the 80s after a bad "whoop" and it just felt terrible.

I'm doing ok. My family issues are stable I guess. I tried to write about it and I just can't put it into words yet.

If anyting I'm too relaxed . All I want to do is sleep. I'm up now because I had slept 3 hours before I woke up at 12:30. I'll get back to sleep and sleep another long time. Depression sleep. It's been a long time since I've had it.

Continuing to pray for You and Steve. He's very lucky to have you.

N2 can't have the pertussis vaccine either because she had seizures and high-pitched screaming after her first dose. She's never caught whooping cough, so far, knock on wood.
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  #481  
Old May 17, 2020, 03:34 PM
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Originally Posted by Moose72 View Post
N2 can't have the pertussis vaccine either because she had seizures and high-pitched screaming after her first dose. She's never caught whooping cough, so far, knock on wood.
I hope she never does. It was horrible. I was working in home health and am pretty sure I caught it from a patient so at least I know/knew I was at high risk and took that risk. We knew one person had it and I explained that I couldn't safely treat her. I went to another person's house and after I knew what whooping cough sounded like I knew that was what she had and that she was where I probably caught it (looking back). By the time I was symptomatic she wasn't testing positive anymore. I'm fairly sure I spread it to quite a few of my patients but they were diagnosed with "pneumonia". Some of them even said "this feels like whooping cough" and I couldn't say "well..........probably is".

I really hope your daughter never gets near anyone with it. If she ever suspects she has she needs to really advocate for a test before taking any antibiotic. The antibiotic only helps protect others from her and makes it so the test isn't accurate but it does let her know she's had it so delaying it won't hurt her and she won't feel good enough to do anything anyway. Honestly you pretty well know but it's good to be sure. It also lets the health dept. know that there has been a case and probably are more. I took the antibiotic b/c I didn't know (I think the doctors were trying to cover the healthcare professional spreading it through 3 counties) and so never was swabbed when I should have been.
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  #482  
Old May 17, 2020, 04:23 PM
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Originally Posted by BeyondtheRainbow View Post
I hope she never does. It was horrible. I was working in home health and am pretty sure I caught it from a patient so at least I know/knew I was at high risk and took that risk. We knew one person had it and I explained that I couldn't safely treat her. I went to another person's house and after I knew what whooping cough sounded like I knew that was what she had and that she was where I probably caught it (looking back). By the time I was symptomatic she wasn't testing positive anymore. I'm fairly sure I spread it to quite a few of my patients but they were diagnosed with "pneumonia". Some of them even said "this feels like whooping cough" and I couldn't say "well..........probably is".

I really hope your daughter never gets near anyone with it. If she ever suspects she has she needs to really advocate for a test before taking any antibiotic. The antibiotic only helps protect others from her and makes it so the test isn't accurate but it does let her know she's had it so delaying it won't hurt her and she won't feel good enough to do anything anyway. Honestly you pretty well know but it's good to be sure. It also lets the health dept. know that there has been a case and probably are more. I took the antibiotic b/c I didn't know (I think the doctors were trying to cover the healthcare professional spreading it through 3 counties) and so never was swabbed when I should have been.

Thanks for this! I had to tell N2, also, that when they give you a "tetanus shot", its now got the pertussis vaccine added on. It used to just be DT now its DTP- or some variant of that, I forget. Like how there is DTaP, too. That is the one N2 had- DTaP. So much for it not causing so many side effects.

I will let her know about not taking antibiotics until she gets tested.

I've heard of that before: Diagnosing people with pneumonia when they really have whooping cough. Its like they don't even look for pertussis anymore.
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  #483  
Old May 17, 2020, 07:18 PM
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Originally Posted by BirdDancer View Post
Conflicts are already cropping up between my siblings and me in regards to my father. I know that it will become extra stressful, not that it isn't already stressful. I'll spare people here of the details. My sister is still doing the lion's portion of the work. I am preparing letters for our dad's upcoming neurologist and psychiatrist appointments. Oh how I hope my father won't refuse to go to these appointments!!!! They are so important!

My husband is under great stress, despite not getting laid off. Actually, he now thinks being laid off or taking the package would have been the better situation. Of course with this pandemic, that would have been difficult. I really hope that a vaccine is created and distributed asap. My husband and I will be first in line to receive it.

I have decided to stop talking to my psychiatrist about our potential future move to Europe. His input makes the situation only more difficult. I'll only talk to my therapist about it. My psychiatrist has volunteered to look over the write-up I'm creating for my dad's upcoming neurologist appointment. That's kind of him. He can certainly provide input on how best to structure it (and on some content) to be as effective and helpful as possible.

Believe me when I write that my siblings and I wished our dad's LTC insurance would have paid towards the assisted living. If they did, perhaps our dad would have just stayed there permanently. At this time, I don't think our father even wants to come home. Sadly, we'd rather he not, too. The reason LTC refused is because they use the alcohol abuse as an excuse. According to his policy, even mental illness would cause an exemption. So, basically his LTC regards these issues as the person's fault.
Im sorry that there is conflict between you and your siblings.. But it always unlikely that 3 people can decide on help for a parent. Im glad you can have your Pdoc help you compose a letter, I think that will be a huge benefit.

Do you think its possible that as things calm down COVID wise that your husband may be able to take an early retirement??? So many companies have cut staff in half yet as always expect everyone to double , triple or even more the work load, So not fair but it happens alot even before this Plague.

That is crazy that the LTC wont pay because of Alcohol or mental illness.. Like WTH??? Can you check with a lawyer to see if anything can be done?

I hope things will calm down for you and your father can get squared away somehow.. Remember to take care of yourself during all this
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  #484  
Old May 18, 2020, 02:04 AM
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Wishing my T appointment was this week, but alas, it is a week and a half away. There is SO much in my head that it just might explode. I'm not up to talking about it all here.

I'm kind of unsure how I feel about a tele-T-appt.. It's not so much the tele part itself, but that because people are home, I don't have the sense of privacy I would at the office. Do I make a tent of covers?(!) (Kidding? Maybe?) I don't know.

I should probably let rip on paper, just dump it all out, then shred it. It's been a very long time since I've had a T appointment. Like a year and a half I think?(!) Gah. Can it really be that long?!

I'm not sure I like the new situation. The people are fine (I saw them for a short time a few years ago), but the newer insurance sees psychiatry as a short term thing. This of course makes no sense for certain dxs. I don't get it, but there ya have it. It's all well and good when I'm doing well, but...

I'm just kind of babbling. I've got a lot of anxiety going about this situation. I am firm in my mind on one count. The rest is a jumble of contrary emotions.
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  #485  
Old May 18, 2020, 04:10 AM
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Quote:
Originally Posted by Innerzone View Post
Wishing my T appointment was this week, but alas, it is a week and a half away. There is SO much in my head that it just might explode. I'm not up to talking about it all here.

I'm kind of unsure how I feel about a tele-T-appt.. It's not so much the tele part itself, but that because people are home, I don't have the sense of privacy I would at the office. Do I make a tent of covers?(!) (Kidding? Maybe?) I don't know.

I should probably let rip on paper, just dump it all out, then shred it. It's been a very long time since I've had a T appointment. Like a year and a half I think?(!) Gah. Can it really be that long?!

I'm not sure I like the new situation. The people are fine (I saw them for a short time a few years ago), but the newer insurance sees psychiatry as a short term thing. This of course makes no sense for certain dxs. I don't get it, but there ya have it. It's all well and good when I'm doing well, but...

I'm just kind of babbling. I've got a lot of anxiety going about this situation. I am firm in my mind on one count. The rest is a jumble of contrary emotions.
A tent of covers Heck, ya!

I am never alone on telemed/therapy days. I have a roaming family member.
This does have an impact upon which topics I address. The platform my provider uses, doxy.me, also has a chat box where I can mention a topic and/or can discuss a topic, etc. I also use earbuds so nobody can hear her talking. It is possible they might hear me.

I hope your appointment goes well. I realize it's a few days away.

Sure, "let it rip!"

Please take great care! Much Love
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  #486  
Old May 18, 2020, 07:26 AM
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I woke up feeling like I NEED to self harm. Not sure if it was something in my dreams or not. I can’t remember having a bad dream but maybe I did. Right now I’m fighting it because it doesn’t make sense. But my chest is tight and I feel like I’m freaking out. I took my morning dose of haldol so I’m hoping that calms the agitation. I’m sure it will. I just have to wait it out.
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  #487  
Old May 18, 2020, 07:47 AM
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I woke up feeling like I NEED to self harm. Not sure if it was something in my dreams or not. I can’t remember having a bad dream but maybe I did. Right now I’m fighting it because it doesn’t make sense. But my chest is tight and I feel like I’m freaking out. I took my morning dose of haldol so I’m hoping that calms the agitation. I’m sure it will. I just have to wait it out.
I think it's great you're able to recognize that the urge doesn't make sense. Perhaps your urges come down to the fact you're just anxious and agitated and subconsciously want a distraction or relief of some sort. It really does sound stress related, based on what you've been posting over the past month.

All that said, have you thought about playing games with your son for 30 mins in the middle of the day or doing something with RS to release some stress? For many people, it can help to socialize for as little as 15 mins, even if you're stuck in quarantine. Heck, you can use Zoom, Google Hangouts, FB video chat, Skype, etc. to talk to people if no one is around. I am certain you have a lunch break during the day, no? Do something you genuinely enjoy during that break. If you've got frozen food, just pop a meal in the microwave for 1-3 mins and spend the rest of your lunch break with RS, your son, etc..
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  #488  
Old May 18, 2020, 10:07 AM
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Originally Posted by wildflowerchild25 View Post
I woke up feeling like I NEED to self harm. Not sure if it was something in my dreams or not. I can’t remember having a bad dream but maybe I did. Right now I’m fighting it because it doesn’t make sense. But my chest is tight and I feel like I’m freaking out. I took my morning dose of haldol so I’m hoping that calms the agitation. I’m sure it will. I just have to wait it out.
The kind of SH you tend towards is not something I struggle with at all, so forgive me if this is not helpful...

Can you get outside for a good walk? Get yourself away from your particular temptation? It seems like being agitated and nearby to trouble would be a bad combo. Kind of a pressure cooker, ya? So getting out from that might be helpful. I don't know what sort of walk you'd find most helpful -- a brisk one or a mellower one full of mindfulness, like looking at trees and flowers and maybe even interesting buildings. Hopefully shifting from your current focus. Also expending that sort of (negative/exasperating) energy agitation brings.

I hope you feel better soon.
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  #489  
Old May 18, 2020, 12:16 PM
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Thank you blue bicycle and innnerzone! I do play games with my son sometimes, I would like to play more. When it’s nice, which hopefully it will be more often, we like to go for walks. I do not get a “lunch break” per se but I only work until 1pm, so after that I’m free. Thank you for all the suggestions!
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  #490  
Old May 18, 2020, 01:51 PM
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Welp, still physically not well, but did get a big bosst emotionally. My daughter, whom I have been trying to connect with for a long time, wrote me a long note. So thrilling for me. She has been wondering about her family heritage a lot--she is the baby of the family. So,m I have strated writing her the whole story, best as Ican, starting in about 1880 or so. It has been fun and she seems to be connecting wiht me a bit. So excited!!! She says she wants to be a surgeon... Uh boy. That's not good...

Anyway, still struggling a bit with bipolar stuff. Can't take Provigil, due to side effects. Not nearly as psychotic as I was a couple of weeks ago, so that is great, but not as able to work now, due to new meds kind of zonking me. Oldest story in the bipolar book, really. Solve one problem, face a new one.

Oh well, onward. Hope everyone is well. Love and hugs to all!!!!!!!!
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Old May 18, 2020, 02:31 PM
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bpcyclist, what a lovely project your daughter gave you. That definitely does help strengthen a connection!
---------------
As for me, I'm still doing one project after another, and there are plenty more on the "To Do" list. I'm trying not to think of them as a whole, but in small batches. Speaking of batches, I used more of my ripe bananas by making our favorite banana nut muffins, most of which I'll freeze. There are only two ripe bananas left. I'm thinking of peeling them and freezing them for future smoothies. Thing is, I already have at least two (or three) frozen from weeks ago. I'd better start making smoothies.

I do NOT want to go to my father's house to clean. It really angers me that I even have to, beyond some regular level cleaning. The house is downright filthy! It needs an industrial strength cleaning crew, which my brother and sister and I am not! It's mostly my brother's fault, though he would never take responsibility for it. Most of the crap in the rooms belongs to my brother. The house is getting rundown. What it needs, neither my sister, brother or even father would think to have done. Painting, new kitchen cabinets, some new living room furniture, a new floor in the bathroom...etc.
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  #492  
Old May 18, 2020, 03:28 PM
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Welp, N3 has gone and done it. He had an interview this morning and got the job- working the overnight shift at a gas station/convenience store. He says its full time, but so what? He is good at his McDonald's job and even made employee of the month! He starts tomorrow morning to train. I don't need any more change! And N3 seems to be behind a lot of it! UGH.


Also, today I didn't get to sleep until 5:30-6:00 this morning. It took extra Seroquel to get me sleepy and then I slept until noon. Otherwise, I laid there for hours upon hours with my eyes closed but still awake. I tried watching tv, but that didn't help. I finally turned the tv off and turned the fan on for white noise. So in some ways, this is better than going back to sleep like I had been and getting up at 4 p.m. like I did yesterday! That's why I couldn't sleep, I'm assuming, but either way, my sleep is all messed up. I'm getting enough sleep over all and sometimes TOO much sleep! Last night was basically because I slept way too much during the day.
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  #493  
Old May 18, 2020, 04:59 PM
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Quote:
Originally Posted by Innerzone View Post
Wishing my T appointment was this week, but alas, it is a week and a half away. There is SO much in my head that it just might explode. I'm not up to talking about it all here.

I'm kind of unsure how I feel about a tele-T-appt.. It's not so much the tele part itself, but that because people are home, I don't have the sense of privacy I would at the office. Do I make a tent of covers?(!) (Kidding? Maybe?) I don't know.

I should probably let rip on paper, just dump it all out, then shred it. It's been a very long time since I've had a T appointment. Like a year and a half I think?(!) Gah. Can it really be that long?!

I'm not sure I like the new situation. The people are fine (I saw them for a short time a few years ago), but the newer insurance sees psychiatry as a short term thing. This of course makes no sense for certain dxs. I don't get it, but there ya have it. It's all well and good when I'm doing well, but...

I'm just kind of babbling. I've got a lot of anxiety going about this situation. I am firm in my mind on one count. The rest is a jumble of contrary emotions.
((((((((((((((((((((((((((((((((((((( IZ ))))))))))))))))))))))))))))))))))))))))

Do whatever YOU need to do to help yourself
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  #494  
Old May 18, 2020, 05:05 PM
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Originally Posted by BirdDancer View Post
bpcyclist, what a lovely project your daughter gave you. That definitely does help strengthen a connection!
---------------
As for me, I'm still doing one project after another, and there are plenty more on the "To Do" list. I'm trying not to think of them as a whole, but in small batches. Speaking of batches, I used more of my ripe bananas by making our favorite banana nut muffins, most of which I'll freeze. There are only two ripe bananas left. I'm thinking of peeling them and freezing them for future smoothies. Thing is, I already have at least two (or three) frozen from weeks ago. I'd better start making smoothies.

I do NOT want to go to my father's house to clean. It really angers me that I even have to, beyond some regular level cleaning. The house is downright filthy! It needs an industrial strength cleaning crew, which my brother and sister and I am not! It's mostly my brother's fault, though he would never take responsibility for it. Most of the crap in the rooms belongs to my brother. The house is getting rundown. What it needs, neither my sister, brother or even father would think to have done. Painting, new kitchen cabinets, some new living room furniture, a new floor in the bathroom...etc.
If you weren't a zillion miles away I would be thrilled to go clean your Dad's place

I get tired of cleaning my stuff
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  #495  
Old May 18, 2020, 05:12 PM
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~Christina ~Christina is offline
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So I jammed my pinky into the dryer door. My nail ripped half way up the nail bed and half way across , lots of blood lots of cursing from me... I think I made up some new words

I need to pick up superglue tomorrow when I get my Xeljanz... Its just throbbing
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Old May 18, 2020, 05:32 PM
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Originally Posted by ~Christina View Post
So I jammed my pinky into the dryer door. My nail ripped half way up the nail bed and half way across , lots of blood lots of cursing from me... I think I made up some new words

I need to pick up superglue tomorrow when I get my Xeljanz... Its just throbbing
Umm... ouch! I hope your finger heals soon!

If anyone judges you for your pinky, just play it off like you're Dr. Evil

Bipolar check-in #46
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Old May 18, 2020, 05:42 PM
yellow_fleurs yellow_fleurs is offline
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Originally Posted by ~Christina View Post
So I jammed my pinky into the dryer door. My nail ripped half way up the nail bed and half way across , lots of blood lots of cursing from me... I think I made up some new words

I need to pick up superglue tomorrow when I get my Xeljanz... Its just throbbing
Yeouch! Done that before and it is not pleasant.
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Old May 18, 2020, 07:40 PM
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~Christina ~Christina is offline
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Originally Posted by bluebicycle View Post
Umm... ouch! I hope your finger heals soon!

If anyone judges you for your pinky, just play it off like you're Dr. Evil

Bipolar check-in #46

HAHHAHAHHAHHAH Thank you for that Pic!!! SO needed a laugh right now
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Old May 19, 2020, 04:24 AM
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HAHHAHAHHAHHAH Thank you for that Pic!!! SO needed a laugh right now
OUCH!!!

I hope you've been able to sleep.
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Old May 19, 2020, 05:21 AM
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Bad dryer! Christina, I would understand if you took a hammer to the lid and gave it a bit of a dent. In any case, I hope your pinky heals soon. I know that fingers are nasty places for injuries.

I understand if you have to back out of your offer to super scrub my dad's house.

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