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#876
May 21, 2022, 04:18 PM
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Love, love, love disco. Used to go on river cruises on disco nights and would win the dancing contests. It’s 91 here. Too hot for my tastes unless the pool is open. My best friend from Michigan doesn’t understand my complaining. It’s in the 50’s there. |
 *Beth*, Nammu
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 ~Christina
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#877
May 21, 2022, 06:11 PM
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Wow, I'm impressed! I never knew posts were numbered until you posted this. I'll bet no one here except you knows that. Guess I learn something new every day 
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| Anonymous 42424
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#878
May 21, 2022, 06:16 PM
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Have you seen the movie Boogie Nights? It's not for everyone, but it's...unforgettable.
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#879
May 21, 2022, 06:25 PM
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Well I vacuumed and steam cleaned half the house ! I’m not going to whine about my pain because it doesn’t help and I’m out of cheese and crackers anyway.
I’m not as weepy as yesterday so that’s a plus. Steve was out using his back pack tanks to spray weeds. There is just so much that we like to keep up like a yard rather than areas we bushhog. I appreciate all the work he does. He’s flat wore out. We have no idea what to do about the oxygen concentrator’s not working. I’m more worried than he is.. Well I’m going to blow my strict diabetic diet and do breaded cauliflower for dinner. Prednisone has me starving 24/7 my numbers are running high anyway but not in a real dangerous level. Meh ! Hope everyone is having a pleasant evening  Sent from my iPhone using Tapatalk
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Helping others gets me out of my own head ~ |
| *Beth*, Anonymous 42424, Nammu, Soupe du jour, wildflowerchild25
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| *Beth*
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#880
May 21, 2022, 07:18 PM
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The prednisone making you hungry is sure a drag. But is it helping your pain level at all? Christina, how do you steam clean the inside of your house? That sounds intriguing to me. I'm glad you're not as weepy
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| ~Christina
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#881
May 21, 2022, 07:23 PM
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I think the new meds I started a couple of weeks ago are starting to work. I have not felt depressed all day long these last couple of weeks I hope it continues to work for me.
Sent from my SM-S901U using Tapatalk |
| *Beth*, Anonymous 42424, bizi, MuddyBoots, Nammu, Soupe du jour, Sunflower123
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| *Beth*, bizi, downandlonely, Soupe du jour, ~Christina
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#882
May 21, 2022, 07:23 PM
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Okay, I am so sedated I think I've been staring at the wall for much of the day. I did the shower, but it's like a dream. I have got to stand up and go clean the bathroom. I have to make myself stand up. Kitty dinner is in an hour and that's an hour that will go by quickly.
OMG, I just wish I had an Indian dugout to crawl into and sleep for days. I'm so tired, and so sad.
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| Anonymous 42424, BeyondtheRainbow, bizi, downandlonely, MuddyBoots, Nammu, Soupe du jour, Sunflower123, Victoria'smom, wildflowerchild25
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| ~Christina
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#883
May 21, 2022, 08:18 PM
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Today was really hot (90) and very humid here. We took my nieces to a thing at a local zoo and it was so hot I was just pouring sweat. We always wear masks indoors still and had to wear them outdoor for part of the event. Several of my meds cause heat intolerance and so I always have water and frozen washclothes in a cooler in my backpack when I do things like this. I didn't bring water because I thought my mom would but that part was fine; I had enough to drink before I was ok until I got water.
But I found my new weird side effect.....Last fall after it wasn't hot anymore I was put on a med called Trospium which is for overactive bladder. I assume this is the cause as I never noticed this before and the pill is the right color....My sweat is yellow. My mask had a ring of yellow around the areas I was most sweaty. I suppose it could be from another med but I've been sweaty in masks before this. Sometimes I wonder if there is anything meds don't do!
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Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
| *Beth*, Anonymous 42424, bizi, downandlonely, MuddyBoots, Nammu, Soupe du jour, Sunflower123, wildflowerchild25
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| *Beth*, bizi, ~Christina
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#884
May 21, 2022, 08:27 PM
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Minipress is a med used for ptsd nightmares, not entirely sure why I was put on it honestly but it helps initiate sleep. Just not enough and to add seroquel, which I must, is just too much! Even just 12.5mg and I’m exhausted! I felt better today without it, more awake anyway. I really wish I could ditch the seroquel but I guess right now that’s just not possible. I do hope you find a sleep solution that doesn’t leave you hungover as well, seroquel is just the worst for that!
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Of course it is happening inside your head. But why on earth should that mean that it is not real? -Albus Dumbledore That’s life. If nothing else, that is life. It’s real. Sometimes it f—-ing hurts. But it’s sort of all we have. -Garden State |
| *Beth*, bizi, MuddyBoots, Nammu, Soupe du jour, Sunflower123
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| *Beth*, bizi, MuddyBoots, ~Christina
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#885
May 21, 2022, 09:49 PM
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 That is such great news!
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| bizi
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| bizi, otroo
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#886
May 21, 2022, 09:53 PM
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Hurray for the $110,000 raised! I have never heard of Minipress before you mentioned it. With all the meds they've thrown at me, no prescriber has ever suggested that one. Hmm, I think I need to ask.
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| bizi
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| bizi, ~Christina
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#887
May 21, 2022, 09:59 PM
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Wow, I was feeling very, very odd - so sleepy, and I thought it was Seroquel hangover. I went to get my mail and felt like I was just all weird. Came back and intended to turn my fan on, but accidentally hit the a/c button. The cold air blew on me and suddenly I felt much better. I realized that I was absolutely overheated. Every summer I forget just how powerfully psych meds can cause overheating. And I drink a lot of water, I love water. Still, I overheated. I'm sure the Seroquel contributed. I'm going to be much more careful. I'm posting this so we're all aware of the psych med/sensitivity to heat thing this summer. (Except for poor Nammu, who is still cold.)
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Last edited by *Beth*; May 21, 2022 at 10:17 PM. |
| bizi, downandlonely, MuddyBoots, Nammu, Soupe du jour, Sunflower123
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| bizi, Nammu, otroo, ~Christina
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#888
May 21, 2022, 10:14 PM
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Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
| *Beth*, bizi
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| *Beth*, bizi, ~Christina
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#889
May 21, 2022, 10:20 PM
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Sent from my SM-S901U using Tapatalk |
| *Beth*, bizi, downandlonely, MuddyBoots, Nammu
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| *Beth*, bizi, MuddyBoots, ~Christina
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#890
May 21, 2022, 10:57 PM
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I am sorry that you are sad. I have not been keeping up with the threads. why are you so sad?(((((((HUGS))))))) bizi 
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lamictal 2x a day haldol 2x a day cogentin 2x a day klonipin , 1mg at night, fish oil coq10 multi vit,, vit c, at noon, tumeric, caffeine Remeron at night, zyprexa, requip2-4mg |
| *Beth*
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| *Beth*, ~Christina
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#891
May 22, 2022, 12:54 AM
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Thank you, bizi.Well, mostly because my therapist has been on medical leave for weeks and I just need her back in my life. But honestly, I believe that the heat was getting to me this afternoon. I felt so odd! The sad feeling may have been in part my body's reaction to being overheated. Nammu is spot on - I'm sure glad I accidentally pushed that a/c button. A moment after I felt the cold air my head cleared and I felt much better. Kinda scary. I love having my windows wide open - but tomorrow the a/c goes on at noon!
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| bizi, downandlonely, Nammu, Sunflower123
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| bizi, Nammu, ~Christina
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#892
May 22, 2022, 07:48 AM
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😱 ahh mum turned the heat on! So I woke up boiling 🥵 and never got back to sleep. She’s so weird that way, turning the heat up at night. I keep explaining that your to turn it down at night but she doesn’t get it. I have a fan on in my room always but it couldn’t compete with the heat. So now I’m going to be tired and in pain for my granddaughter’s recital.
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Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
| *Beth*, bizi, downandlonely
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| bizi, ~Christina
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#893
May 22, 2022, 08:43 AM
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That’s a shame about the unisom… how many mg did you take? Just wondering if it’s the same dose in different countries. Edit I just looked at some on the US Amazon site and it said one 25mg tablet. We take 2 25mg tablets. (Can take 1 or 2 but I always take 2). Not sure if you took 1 or 2 though. I didn’t look at all the instructions just on some. |
| *Beth*, bizi
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| *Beth*
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#894
May 22, 2022, 10:26 AM
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Beth- I was on minipress/prazosin for a while for ptsd nightmares. It doesn't make me tired but it does keep the nightmares away (for me) so if that's why you can't sleep it's certainly something to look into. It's main use is for high blood pressure.
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"I don't know what I'm looking for." "Why not?" "Because...because...I think it might be because if I knew I wouldn't be able to look for them." "What, are you crazy?" "It's a possibility I haven't ruled out yet," |
| *Beth*, bizi
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| *Beth*, bizi, ~Christina
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#895
May 22, 2022, 10:54 AM
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Oh! I had no idea that prazosin was minipress. I was on that years ago for nightmares, yes it works for that but didn’t make me sleepy or help with sleep, only the nightmares. Then as I got a handle on the ptsd I didn’t need it anymore.
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Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
| *Beth*, bizi
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| *Beth*, bizi, ~Christina
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#896
May 22, 2022, 10:55 AM
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I'm not very anxious today. I'm not freaked out or even thinking much about ukraine or monkey pox. Which is a huge improvement since I was stressed nonstop for 2 days about that stuff. I am however very worn out physically and just drained of energy and kinda depressed about my own health issues. I've had a good amount of caffeine which hasn't helped wake me up. My throat pain woke me up around midnight and it was pretty bad. I got back to sleep at 3 for about an hour. Today I've pretty much just shut down and I am listening to a podcast which is doing a good job at distracting me. I did my laundry yesterday. Well halfway. I put one load in the washer and dryer and then my mom put the second load In the washer and put the first load into a laundry basket and then put the second load into the dryer and then into a basket. I got the stuff folded and some of it put away.
I guess today is the first day where I am actually more preoccupied with my own issues vs other stuff and its kinda a lot to think about and getting me down. Plus I do honestly not feel good either.
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"Good morning starshine.... the earth says hello"- Willy Wonka |
| *Beth*, bizi, downandlonely, Sunflower123
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| *Beth*
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#897
May 22, 2022, 12:04 PM
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I was listening to this podcast called Race Chasers and on one episode a guest said "because I know all you chubby goth girls are listening because I'm on this episode" and that just triggered me even though I'm not chubby, a goth, or a girl. I know who he is talking about though.
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"Good morning starshine.... the earth says hello"- Willy Wonka |
| bizi, downandlonely, Sunflower123
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| *Beth*
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#898
May 22, 2022, 12:47 PM
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I haven't done jack this weekend. Too hot & humid. I can't say I haven't done anything though, I went food shopping, went for a walk around the block, and got a new bladder at Walmart. It's 3 liters! I also took a shower today. I've been doing bad at the hygiene thing lately. I have an NP appointment coming up soon. Going to ask to go further down on the zyprexa and up on the invega/switch to invega sustenna. I had depakote levels done too so it'll be interesting to see where I'm at in that respect too. I see My T Friday and then she's out for a bit. When am I starting ACT????
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"I don't know what I'm looking for." "Why not?" "Because...because...I think it might be because if I knew I wouldn't be able to look for them." "What, are you crazy?" "It's a possibility I haven't ruled out yet," |
| *Beth*, bizi, Nammu, Sunflower123
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| ~Christina
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#899
May 22, 2022, 02:06 PM
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Yeah I couldn’t remember the generic name of minipress! I don’t think it really makes me sleepy it’s probably just in combination with everything else. Doesn’t do anything for nightmares for me though, although I don’t have them very often.
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Of course it is happening inside your head. But why on earth should that mean that it is not real? -Albus Dumbledore That’s life. If nothing else, that is life. It’s real. Sometimes it f—-ing hurts. But it’s sort of all we have. -Garden State |
| bizi, Nammu
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| *Beth*, bizi, ~Christina
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#900
May 22, 2022, 03:41 PM
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Ohhhhh ❤️ my granddaughter’s recital was really nice. This was the first year it’s not been limited by covid. It was nice. The first year she was 2 and on near the beginning then to go sit with the parents. This was her third year and she’s 4 almost 5 and was in three dances. 1, jazz, 1, ballet and the grand final. They had one number where about 8-10 dads danced with their daughters, can’t see my son in law doing that though. She’s improved so much. I’m sure it better now that they don’t have to wear masks. Next year my daughter is putting her in gymnastics too. She’s a ball of energy and loves moving around. Chilly but turned into a pretty nice day.
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Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
| *Beth*, bizi, Soupe du jour, Sunflower123, wildflowerchild25
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| *Beth*, bizi, downandlonely, Soupe du jour, Sunflower123, ~Christina
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| Closed Thread |
This is an old thread. You probably should not post your reply to it, as the original poster is unlikely to see it.|
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