[~Christina]

Hey everyone, Sorry I haven't been around this thread, I just felt like I was just going to whine and it actually making things worse for myself. So for now I have chosen not to come by this thread often.,,,, but I will keep you all in my thoughts.

Today I had my Lidocaine infusion, the last one for a while until I can pay down the balance, Yeah.. thats not going to happen anytime soon.

So time for me to suck it up and get ready to deal with a constant pain of at least an 8 daily.

I hope everyone is taking good care and being kind to yourselves. Gentle hugs to everyone

[Kiya]

Hi all - putting out a resource; "From Ow to Wow". Woman dealing with the same things we all are who has learned to live better with ouch. Amber Rose Dullea. She's put out one book, and another (same title as above) is hitting the typesetter today. Can be found in FB too.

[Fight2win]

Hi everyone. My name is Mechelle. This is my first time visiting. I figured I would look for support from someone that actually can understand my pain. I've had fibromyalgia for about 6-7 years now (diagnosed). I also have major depressive disorder, anxiety disorder, GERD, IBS, etc the normal stuff that seems to come with it.

I had surgery a few months ago unrelated and my forum support was great. I was just kinda hoping to get the same here. Living with fibromyalgia is a struggle daily. I would never wish this on anyone

[lizardlady]

This is not really fibro related, but I know y'all can appreciate the humor in it.

My IBS/reflux have been acting up this week. My toilet and I have been very close friends all week.

Last night I had to get up to vomit because of the reflux. I'm kneeling on the floor in front of the toilet, barfing my guts up. Vomiting is making me cough which means my nose and eyes are running. Coughing and vomiting lead to pee running down my leg. So there I am kneeling in front of to toilet with "stuff" coming out of almost every orifice and the toilet seat falls and wacks me on the back of the head. I had to laugh.

[cakeladie]

Oh Liz I am so sorry. I thought you were going to say something like when you looked up all your fur baby's were lined up watching.

I have had it really rough. I had an additional pain med to take when the pain gets real bad. But I am only supposed to take it when I have someone with me.

Can't sleep some of it is pain some of it is the cats

My daughter and he jerk of a boyfriend are at it again so I am getting the calls at midnight or 2 am I want to say when you guys fight can you do it at a decent time .

Liz did you know that you IBS and vomiting is also a symptom of fibro. Also constipation.

I think I told you guys about the bone tumors.

I went out for lunch with a friend first time in a very long time it was nice and much needed.

You guys if you need to vent on or cry on this thread that's fine. It will also make you feel better.

Just know you are in my thoughts and prayers.

Positive vibes from California and a lot of hugs to each and everyone of you

[lizardlady]

Cake, you make a good point about digestive "stuff" and fibro. It could be from a flare. I hurt and am exhausted today from a flare.

[cakeladie]

I am so sorry Liz I am having a rough time right now

[January]

I'm sorry I haven't been around. I found out I have kidney problems and now I can't take my Mobic for my fibro except on a dire basis. I hurt more all the time now. The kidney specialist says the Mobic makes the kidney functions worse. I go back to see him on the 1st.

Also I'm having feminine problems and go for tests next week. I'm really scared.

I haven't left the apartment except once this week. I just don't feel up to it. I've got to make myself go to the store today. I'm out of lactose free milk and that's what I take my meds with. I'm sorry if I sound like I'm whining. I don't mean to whine.

I wish I could take away all your pain.

[January]

Well, I didn't make it to the store and am paying a price for it. I plan to go tomorrow though. It's a beautiful, beautiful day here. I hope it's nice where all of you are tonight.

[Kiya]

((((Cake)))) I don't think I knew about the bone tumors I'm sorry - I don't even know what to say I'm scared for you? I care about you. I'm thinking about you and sending hopeful and healing thoughts.

((((Liz)))), yep all those fun symptoms are often a part of fibro or related. I just went through a bunch of tests and that's all they could tell me. "You have a pain problem. See your psych nurse". Gee thanks

((((Jan)))) I wish you'd sent me your "sob story". This is not good. Worried about you, too. Wish I could help I'm not dealing with kidney stuff, but I am dealing with female stuff. I'll be a pocket rider, k? You can do this.

Female stuff - my GYN has me in pt for pain... "before we look at a hysterectomy". Hm. With my abuse history, to say this isn't going well is a bit of an understatement. I go again tomorrow and was already near hospitalization this morning. I ought to cancel. Course, then I'd owe $50. But I'm not sure I can keep this up. They want me there twice a week. Thursday had me in a flashback. I don't care enough about the pain for this. I've lived with it since 1990 or something. Take the uterus or leave it, it's all the same to me - but this pt stuff sux.

I know I don't check in a lot - you are ALL in my thoughts. Don't think you're not!!!

[January]

Oh Kiya, I wish I lived near you so I could help. I hope they get the female issues out of the way. Those tests trigger me, too, and I hope you are ok.

I sent you my sob story. I hope you find it soon.

As for all of you. You were so right about the methotrexate. It's kicking my patootie. I'm going to call the rhuemie today and tell her I can't take it any more. I can't eat without being sick, not even toast. I have sores in my mouth. I'm white as a sheet and sleep for hours and hours and I'm still tired.

Does anyone know how long it takes for it to wear out of a person's system?

I hope you're all doing better.

Love and hugs,

Jan

[cakeladie]

Oh Jan I am so sorry. I never wanted you to go through this. It will more then likely take a month to get put of you system. That's how long it took me. But stop it now before real damage to your organs occur.

Sending you healing vibes and lots if hugs.

[cakeladie]

Kiya in hate the female stuff to. So I just don't go. Yes it's wrong but I have so much wrong with me already

I am also having kidney problems and on top of everything else I am having problems with my pancreas. Just shot me already.

With all my pain meds and already having a slow digestive system I started taking probiotics. They seemed to help for a while and now I can barley eat and am so bloated it's not funny. I told my rhemy and she said it's the probiotics. I can eat a half a sandwich and be stuffed for the day. I should be so skinny but I am not thanks to prednisone .

I am done with doctors and done with meds. I picked up 13 prescriptions from the pharmacy yesterday and that is not all of them. It's not fair.

Liz I feel for you. I have been in your shoes many many times. When I was on mexo I kept a pillow in the bathroom. It was easier they way.

Christina I miss our talks. I haven't been on much I check I. Once a day but just read a lot. Sometimes I am afraid to post.

Also I am getting harnessed on another forum it's my lupus forum. The moderator has been notified but this lady will not leave me alone which drives me nuts. So the moderator just starts deleting posts crazy

Well everyone try to take it easy you are all on my thoughts and prayers.

Hey we have not heard for bubbles in a very long time I hope she is ok

Hugs

Cake

[lizardlady]

There is a thread in the social forum about the meaning of bravery. The folks who post here in the fibro thread were the first to come to mind. I know people tend to equate bravery with things like soldiers in battle, but to me, each and every one of you is brave. You face this evil disorder and carry on with life. THAT is the definition of bravery in my book.

[January]

The rhuemy has offered me Imuran. I have read the material and the downside is horrible! Have any of you taken it? I'm afraid of it. Thanks!

[Gus1234U]

..... {{{{{ Silent, but Supportive~ }}}}} .....

[Septembersrain]

How come all the medications given for other mental illness cause more pain with fibro?!?

I can't take Lyrica, Gabapentin, Amitriptyline, Lexapro... What else are they going to try?

Side effects are horrible in me. Only medication that hasn't increased pain, caused depression, or made me violently ill is Xanax.

Psychotherapy in two weeks, I'm praying for a serious diagnosis and a medication that'll help with the pain too.

I can barely stand the shoulder and back aches. My legs are sore. I'm exhausted.

I'm out of work again. How can I get a semi normal life again?...

Sent from my iPhone SE using Tapatalk.

[lizardlady]

Septembersrain, have you ever tried Cymbalta for depression and fibro? I've heard it works for some folks.

[lizardlady]

I got stung by a wasp this afternoon working in the yard. I'm very allergic. Smeared benadryl cream on it and am doubling my dose of antihistamine. Gawd I hope this does not trigger a flare.

[Septembersrain]

Originally Posted by lizardlady

Septembersrain, have you ever tried Cymbalta for depression and fibro? I've heard it works for some folks.

Not yet. I'm feeling anxious as my reactions to medication seem to be severe. I'll bring it up with my doc when I see him again. =)

Sent from my iPhone SE using Tapatalk.

[lizardlady]

Am having a wicked flare today. Working a 10 hour day with the last two spent on my feet didn't help.

[lizardlady]

Just discovered there is a low pressure area sitting just north of us. That explains the flare. Dang thing is expected to sit there for the next week. Not happy news.

[Fuzzybear]

(If this post is not ok or helpful here I'll ask for it to be deleted..)

I don't have fibro but I do have very severe allergies and eczema on my face....
This increases my depression and anxiety... Also body memories
And exhaustion
(A horrible doctor years ago said I was blowing up my concerns of passing on severe eczema ... but the eczema forums which I don't read are full of horror stories

Another doctor said I'm the most allergic patient he had ever had..

The only med that hasn't caused an extreme reaction is diazepam and temazepam- equivalent of Xanax.

I've had these extreme reactions for 4 years now..

Sorry if I'm not supposed to post here, I have found nobody who relates anywhere,.. Your post is the closest.

Have you tried agomelatine?

Originally Posted by Septembersrain

How come all the medications given for other mental illness cause more pain with fibro?!?

I can't take Lyrica, Gabapentin, Amitriptyline, Lexapro... What else are they going to try?

Side effects are horrible in me. Only medication that hasn't increased pain, caused depression, or made me violently ill is Xanax.

Psychotherapy in two weeks, I'm praying for a serious diagnosis and a medication that'll help with the pain too.

I can barely stand the shoulder and back aches. My legs are sore. I'm exhausted.

I'm out of work again. How can I get a semi normal life again?...

Sent from my iPhone SE using Tapatalk.

[cakeladie]

Fuzzy a lot of us can relate to you because a lot is not known about fibro and finding something to relieve your pain and other stuff is hit and miss. Everyone here reacts differently some meds work for some other not. A lot of times we just suffer in silence

[Septembersrain]

Originally Posted by Fuzzybear

(If this post is not ok or helpful here I'll ask for it to be deleted..)


I don't have fibro but I do have very severe allergies and eczema on my face....

This increases my depression and anxiety... Also body memories

And exhaustion

(A horrible doctor years ago said I was blowing up my concerns of passing on severe eczema ... but the eczema forums which I don't read are full of horror stories


Another doctor said I'm the most allergic patient he had ever had..


The only med that hasn't caused an extreme reaction is diazepam and temazepam- equivalent of Xanax.


I've had these extreme reactions for 4 years now..


Sorry if I'm not supposed to post here, I have found nobody who relates anywhere,.. Your post is the closest.


Have you tried agomelatine?

I hadn't heard of it until now. I'll do some research on it. Sucks that you're so sensitive to medication too. =(

Thank you for writing this!

Sent from my iPhone SE using Tapatalk.