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  #51  
Old Feb 23, 2014, 03:43 PM
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Originally Posted by Atypical_Disaster View Post
So now I'm coherent, but now the voices and "delusions" are just... not being touched by the geodon at all. I'm getting really fed up with this. It's like ok so that took care of one problem but I'm still a mess.
So this is one thing I've always wondered about...polypharmacy...it's generally frowned upon in the literature so I had a negative opinion of docs who do it but apparently it's a common thing in those who don't respond well to meds...so the general idea is to combine a typical with an atypical....so you can take a strong d2 blocker like haldol and put it with something designed to minimize EPS like say Geodon...and the two actually have a different receptor binding profile than either alone. It hasn't been carefully studied so far as I can tell though.
But the concept is that haldol would bind up 90% of the d2 like it always does but Geodon would barely touch it whole Geodon would have other effects like on serotonin which minimize eps and do other things. I know this is what they were trying with newtus with the risperidone and haldol but that didn't work out due to side effects and that is one possibility just more side effects with little more benefit. Anyway I wonder...might be a possibility to bring up with your doc if Geodon is having a partial effect...
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  #52  
Old Feb 23, 2014, 06:18 PM
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So this is one thing I've always wondered about...polypharmacy...it's generally frowned upon in the literature so I had a negative opinion of docs who do it but apparently it's a common thing in those who don't respond well to meds...so the general idea is to combine a typical with an atypical....so you can take a strong d2 blocker like haldol and put it with something designed to minimize EPS like say Geodon...and the two actually have a different receptor binding profile than either alone. It hasn't been carefully studied so far as I can tell though.
But the concept is that haldol would bind up 90% of the d2 like it always does but Geodon would barely touch it whole Geodon would have other effects like on serotonin which minimize eps and do other things. I know this is what they were trying with newtus with the risperidone and haldol but that didn't work out due to side effects and that is one possibility just more side effects with little more benefit. Anyway I wonder...might be a possibility to bring up with your doc if Geodon is having a partial effect...
This is excellent advice. I'll ask about that in my appointment tomorrow. Thanks SP.
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  #53  
Old Feb 23, 2014, 06:25 PM
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I am so happy and motivated this weekend!! Its all about negative things, and i know that, but i am choosing to not care!!
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  #54  
Old Feb 23, 2014, 08:03 PM
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The voices have quieted down. FINALLY, I can actually focus on all the other **** I need to deal with.
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  #55  
Old Feb 23, 2014, 11:12 PM
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Just saw robocop...wow it was mildly triggering....spoilers ahead...so they save his life but then they sort of selectively edit his brain and finally they actually lower his dopamine so he no longer feels emotion. It really made me think about the way I was treated I mean yes the docs probably saved my life but they didn't hesitate to block my emotions to accomplish it..yes they didn't do anything invasive but it was still a selective editing it's like I lived over two years of my life as another person entirely it's more like who I was was scrapped and I started again until I got off the meds and this is where it gets interesting in the movie the stuff that they did to control his brain he somehow reversed it just by thinking and became himself again...that is what I feel like now that almost despite what was done instead of due to what was done I survived somehow...it's not fair I mean they all really tried to help me ..why do I feel so angry?
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  #56  
Old Feb 23, 2014, 11:58 PM
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  #57  
Old Feb 24, 2014, 07:26 AM
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Originally Posted by Sometimes psychotic View Post
So this is one thing I've always wondered about...polypharmacy...it's generally frowned upon in the literature so I had a negative opinion of docs who do it but apparently it's a common thing in those who don't respond well to meds...so the general idea is to combine a typical with an atypical....so you can take a strong d2 blocker like haldol and put it with something designed to minimize EPS like say Geodon...and the two actually have a different receptor binding profile than either alone. It hasn't been carefully studied so far as I can tell though.
But the concept is that haldol would bind up 90% of the d2 like it always does but Geodon would barely touch it whole Geodon would have other effects like on serotonin which minimize eps and do other things. I know this is what they were trying with newtus with the risperidone and haldol but that didn't work out due to side effects and that is one possibility just more side effects with little more benefit. Anyway I wonder...might be a possibility to bring up with your doc if Geodon is having a partial effect...
Would this be an example of Bean being on Thorazine and Zyprexa at the same time? When the hospital did this for her, it made a huge difference.

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Last edited by punkybrewster6k; Feb 24, 2014 at 07:53 AM.
  #58  
Old Feb 24, 2014, 07:53 AM
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Would this be an example of bean being on Thorazine and Zyprexa at the same time? When the hospital did this for her, it made a huge difference.

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Yes. I've heard of this before but I never considered it for myself until recently. How is she doing on this combination?
  #59  
Old Feb 24, 2014, 08:09 AM
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i dont feel well. ive had a cold for about a week. my dads been working nonstop and ive been forgettig to take my pills already.
i feel some sort of relapse coming on but idk if the weed triggered that. i dont have to start taking my haldol pills til either today or wednesday cause wednesday is when i wouldve gotten my shot.
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  #60  
Old Feb 24, 2014, 08:17 AM
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i dont feel well. ive had a cold for about a week. my dads been working nonstop and ive been forgettig to take my pills already.
i feel some sort of relapse coming on but idk if the weed triggered that. i dont have to start taking my haldol pills til either today or wednesday cause wednesday is when i wouldve gotten my shot.
Set a reminder on your phone so you can't forget! It's not going to work out with the new pdoc if you don't take the pills properly. If you don't want to end up back on injections, you have to be responsible and take them when you're supposed to

And stay away from weed! It clearly isn't good for you.

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  #61  
Old Feb 24, 2014, 08:21 AM
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yes i need to do a reminder on my phone right now.

lol and i better flush the rest of the weed down the toilet cuz i still got some.
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  #62  
Old Feb 24, 2014, 08:21 AM
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Originally Posted by Sometimes psychotic View Post
Just saw robocop...wow it was mildly triggering....spoilers ahead...so they save his life but then they sort of selectively edit his brain and finally they actually lower his dopamine so he no longer feels emotion. It really made me think about the way I was treated I mean yes the docs probably saved my life but they didn't hesitate to block my emotions to accomplish it..yes they didn't do anything invasive but it was still a selective editing it's like I lived over two years of my life as another person entirely it's more like who I was was scrapped and I started again until I got off the meds and this is where it gets interesting in the movie the stuff that they did to control his brain he somehow reversed it just by thinking and became himself again...that is what I feel like now that almost despite what was done instead of due to what was done I survived somehow...it's not fair I mean they all really tried to help me ..why do I feel so angry?
I think anger is a perfectly reasonable response to what happened to you. Yes they helped you, but they also stripped away a vital part of what it is to be human: feeling emotions. I'm still angry at what my parents did to me, even though they saved my life by getting me sectioned

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  #63  
Old Feb 24, 2014, 08:30 AM
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I keep waking up at ridiculously early hours because of the akathisia. I was tossing and turning and then I just got up at 4:30 because I was so frustrated. It's not as bad as it could be(Saphris gave me akathisia from HELL), but it's still not fun. I can't sit still for long, I feel like my insides are turning inside out.
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  #64  
Old Feb 24, 2014, 08:34 AM
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akathisia is no fun. and getting up early like that sucks. tossin and turnin sucks too
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  #65  
Old Feb 24, 2014, 08:40 AM
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akathisia is no fun. and getting up early like that sucks. tossin and turnin sucks too
Yeah it's not fun at all. I hate it. I'm taking cogentin to help with side effects like this but I'm still having it on some level anyway. It's frustrating.
  #66  
Old Feb 24, 2014, 08:49 AM
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Yes. I've heard of this before but I never considered it for myself until recently. How is she doing on this combination?
So far its the best combination she has had. She has some symptoms but manageable. Cogentin is also added for tremors.
Everyone is different. But for her its a good. Although we have to adjust once and a while. She has only been on this combo since the end of October.
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  #67  
Old Feb 24, 2014, 08:51 AM
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More surveillance

'Spy in sky' craft flights to begin
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  #68  
Old Feb 24, 2014, 08:58 AM
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KUREHA! I MISSED YOU!
Glad to see your face again. Really.
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  #69  
Old Feb 24, 2014, 08:58 AM
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I told my nurse that I buy bottles of Jolt, because if the stalkers try anything, it can be used as a weapon, she said it was a good idea, I told the crisis team nurse and she got all serious and put it in my notes.

This wouldn't be a big problem, but I go out with the re-enablement team and they will read it - which means it be don't bring a bottle, so I'll have to bring a knife - not that I tell them.
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  #70  
Old Feb 24, 2014, 08:59 AM
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Thanks

I had just been a bit depressed.
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  #71  
Old Feb 24, 2014, 09:04 AM
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Would this be an example of Bean being on Thorazine and Zyprexa at the same time? When the hospital did this for her, it made a huge difference.

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Yes exactly...
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  #72  
Old Feb 24, 2014, 09:13 AM
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Bean had her hair cut yesterday.
Really short in the back and angled long toward the front. It looks really nice.
She has had it cut this way before because she does not take care of her hair and ends up with knots in the back. In the past she liked it but this time, they cut it a little different and she hates it. I mean she really, really is upset.

So we go and buy some cute headbands that she wants to wear and she starts to like the look and style. I have to say she looks beautiful and the cut really makes her face look thinner.
This morning she is excited to go to school and took a long time getting ready and needed my help with what to wear. She leaves the house happy and excited to go to school.

I have gotten 3 calls from her at school sobbing because kids are making fun of her haircut, her style, her headbands....I mean really sobbing. She want me to come pick her up and bring her home. Now I am crying!
I cant make this better! I cant make them stop!
She really does look nice! her hair is cute so there is no reason for anyone to tease her. So what do I do???? Do I go pick her up and bring her home? Then what? She has school tomorrow to, and the next day.....I told her to hold her head up high. That she is beautiful and that if the kids know she is hurt then they will do it more. I told her to ignore them and in a couple of days when they realize it doesnt bother her, they will stop. But she has MI. Her brain does not work like this. Its hard enough to be in middle school with all this crap but its worse to be in middle school with MI.
She is going to go to the guidance office and talk to the counselor there. Am I doing the right thing by not getting her and bringing her home???
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  #73  
Old Feb 24, 2014, 10:47 AM
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KUREHA i missed you
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  #74  
Old Feb 24, 2014, 10:58 AM
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Punky: What is the school doing about the bullying?
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  #75  
Old Feb 24, 2014, 11:12 AM
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Punky: What is the school doing about the bullying?
I havnt heard back yet. I called Beans's case worker to try to get some advice, trying to get hold of the guidance counselor there......Bean has not called back again yet so I am hoping that is a good thing.
Waiting for call backs from a couple of places....Something has to be done. Find a school where she fits in or find SOMETHING.

I cant sit here and blame the school. Its a public school and there will always be bullying. As far as schools go, the staff at this school is very supportive but they cant be everywhere all the time. She just needs a different place. A different school with kids like her. There is nothing around here though unless her IQ is 70 or below. I kind of wish it were. Then she could get all the necessary assistance she needs.
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