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  #251  
Old Oct 18, 2022, 09:32 PM
*Beth* *Beth* is offline
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I saw on the news that there are snow storms and very cold temperatures back east, all the way up north, and as far down south as Tennessee. I'm thinking of a number of you and hoping you're okay?

Our mornings are chilly. Afternoons & evenings, I'm shaking my head. 90 degrees tomorrow. What can I say.

I'm so-so. I feel scared all of the time. Medication, as in SSRI's basically, are just not doing it anymore. They don't ameliorate that "I'm afraid of everything" feeling anymore, like they used to. Therapy doesn't do much to help me feel safe, either. Some, but meh. My perspective of this forum absolutely had to transition when so many challenges were thrown at me prior to my week off. It seems that I don't have a single night of pleasant dreams. It's always worry, anxiety. I am often afraid to go to bed. Plain and simple, I just cannot seem to find security within myself. That month in which I was extremely sick shook me up & sure didn't help. I guess it'll take some time to bounce back from that.

Oh, I don't know. I'm rambling.

Peace. Easy,
Beth

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  #252  
Old Oct 18, 2022, 09:35 PM
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Nammu Nammu is offline
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Quote:
Originally Posted by *Beth* View Post
I think I've heard that, too @Blue_Bird. About 988, I mean. I sure hope so!

@Nammu I'm lucky because the county I live in has much better than average resources for mental health services. The county I came from was a sorry situation when it came to mental health assistance. Bad.

Anyway, in my county it's slow, but sure- NAMI is pulling together a program that will have either 2 trained volunteers go with 2 cops, or 2 vols go alone (together) to places where there is someone having a mental health crisis.

In a certain way the program reminds me of the work I did with teens back in the '90's. Street outreach. I loved, loved that job. So, when that program gets rolling here I am very interested in volunteering. I already have NAMI's basic training, so I would need to do only the specific training for the new program.
This is what they were doing in Austin Texas before I left. NAMI had a lot of input into that program but here is rural and much poorer.
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  #253  
Old Oct 18, 2022, 11:42 PM
Soupe du jour Soupe du jour is offline
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@Sunflower123, again your descriptions are so lovely! I like how you write.

You are so much busier than me. I can't remember many days in my year that I did as much. Perhaps it's my medication sedation, a little my age and waning physical endurance, to a degree, but mostly my inability to handle so much, psychologically. I used to seem more a Type A personality, but now am closer to Type B. My energy levels also notably waned. I'm not totally lamenting the change, as it's brought some benefits, but yea, sometimes I wish I could handle more. I consider it an aspect of my disability. Do be happy you have so many activities to look forward to. And your nephew sounds so pleasant. Hugs are priceless!
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Psych Medications:
* Tegretol XR (carbamazepine ER) 800 mg
* Lamictal (lamotrigine) 150 mg
* Seroquel XR (quetiapine ER) 500 mg

I also take meds for blood pressure, cholesterol, and tachycardia.

Last edited by Soupe du jour; Oct 19, 2022 at 12:07 AM.
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  #254  
Old Oct 19, 2022, 02:05 AM
Soupe du jour Soupe du jour is offline
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I wrote and then deleted a post yesterday regarding calls to both my brother and sister. Dang, it is complicated! I want to do more to support my brother (and sister), but the options are limited living so far away and with them telling me again and again that I shouldn't come. I suggested to my sister that I could at least order some groceries (on my dime) to be sent to my brother. I do need to have an idea more of what he can and can't eat, given his health situation. I just looked and found a grocery store somewhat near him that delivers. He's been struggling to get out and grocery shop. Heck, grocery shopping can be stressful for many withOUT a major illness! If I do order some, I think my sister should be at his house to receive them.

Today Hubby and I will go to our property again. Unfortunately it takes far longer to get there than expected. So many detours! Why does it always seem when one road is closed, several are? The same seemed true in New Jersey where we lived, but at least there we were very familiar with alternative routes. The drive is otherwise nice, as we pass forests, horse farms, cow farms, and sheep farms. These animals always look happy and extremely well treated, with large green areas to roam and even pretty views to look at. Calves roam happily near their mommies. They have shade when they want, or bask in the sun. I saw two cows kissing each other yesterday, which was sweet. At least something pleasant!

I can't get passed my GI issues! I don't want to be going to doctors if the main cause is just stress. But then not going is worrisome, knowing the occasional risks of ignoring things. When I went to the doctor thinking I had a UTI, to be told I was fine, it made me feel a little embarrassed, in a sense. So often when I finally go to a doctor, the problem has suddenly vanished. I'm delinquent about so many things, though. My hair, the dentist, gynecologist (and mammogram), nephrologist, therapist, soon to be psychiatrist, likely ENT...I rely too much on Hubby to help arrange these and take me to the appointments. Poor guy is overwhelmed! Once I get some set up, I'll take a bus (and tram) to them on my own, if necessary. I'm not yet supposed to drive here and am still not fully used to the road rule differences. Plus, I have a mild driving anxiety, to boot. Always have. Sucks!
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Psych Medications:
* Tegretol XR (carbamazepine ER) 800 mg
* Lamictal (lamotrigine) 150 mg
* Seroquel XR (quetiapine ER) 500 mg

I also take meds for blood pressure, cholesterol, and tachycardia.

Last edited by Soupe du jour; Oct 19, 2022 at 02:21 AM.
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  #255  
Old Oct 19, 2022, 02:08 AM
*Beth* *Beth* is offline
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Quote:
Originally Posted by Nammu View Post
This is what they were doing in Austin Texas before I left. NAMI had a lot of input into that program but here is rural and much poorer.

How was the program in Austin, was it helping?
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  #256  
Old Oct 19, 2022, 02:31 AM
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Fuzzybear Fuzzybear is offline
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Originally Posted by *Beth* View Post


Your examples are excellent ones. I have one example ( from many):

My blood pressure was always great, then I was prescribed an SSRI. I had been at a low weight, but gained some on the SSRI. At the same time my blood pressure increased. Both my pdoc and my GP told me that the cause of the bp increase was the weight gain. That was when I was about 30 years old; I still weighed only about 125lbs.

I remained on an SSRI over the years. My blood pressure continued to increase, so my GP told me I needed to lose weight. I told her that SSRI's cause a rise in bp. Oh, no, she said - it's because you need to lose weight. "Watch those portions!"

And so it went. Not a single doctor, regardless of specialty, ever attributed my high blood pressure to the SSRI's I was taking for nearly thirty years. I was only told to "eat less."

I felt so ashamed of the weight I had gained (from Seroquel!! ) that I stopped saying anything about my high blood pressure.

Over this summer when I was so sick I completely stopped the SSRI I was on (and I will never take one again). Within 3 days my blood pressure had dropped down to where it had been in my 20's. But my weight has not changed. Now, because of having stopped the SSRI, my blood pressure is fine. It is perfectly normal. Clearly, the SSRI's were casuing my bp to spike - it had nothing to do with my weight, my "portions," nor all that misinformation.

I am awaiting the opportunity to apprise both my GP and my med dude of the situation. If they dare to deny reality I will be insistent.

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  #257  
Old Oct 19, 2022, 07:31 AM
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Sunflower123 Sunflower123 is offline
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@Soupe du jour boy, I’ve been trying to respond to you for hours now! I kept falling asleep and the heat is out so it’s 50 inside and it’s hard to type. Haha! What a day for this to happen!

I think you are a wonderful sister! Having groceries delivered is such a brilliant yet practical idea. Very helpful indeed if you decide to do that.

The drive to your new home sounds lovely. I am sorry about the detours and length of time it takes.

Please do think about getting your GI issues checked out. Yes, it could be stress but then again….better safe than sorry. I hope things clear up and you feel better soon.
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  #258  
Old Oct 19, 2022, 07:43 AM
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Sunflower123 Sunflower123 is offline
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Quote:
Originally Posted by Soupe du jour View Post
@Sunflower123, again your descriptions are so lovely! I like how you write.

You are so much busier than me. I can't remember many days in my year that I did as much. Perhaps it's my medication sedation, a little my age and waning physical endurance, to a degree, but mostly my inability to handle so much, psychologically. I used to seem more a Type A personality, but now am closer to Type B. My energy levels also notably waned. I'm not totally lamenting the change, as it's brought some benefits, but yea, sometimes I wish I could handle more. I consider it an aspect of my disability. Do be happy you have so many activities to look forward to. And your nephew sounds so pleasant. Hugs are priceless!
Thank you! I appreciate you saying that.

Someone mentioned my activities and whether they were realistic or even real. I do have a lot of drive and energy, true, but I mostly try to outrun the dreaded depression, SI, and demons if you will that nip at my heels. It works for me to stay really very busy at times and I do that well. I am generally happy to have so many activities to look forward to. My nephew is a true gem and I agree hugs are priceless! There was a period of time after brother died that I spent hour after hour staring at the tv. Staying busy is much better.
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  #259  
Old Oct 19, 2022, 09:19 AM
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HALLIEBETH87 HALLIEBETH87 is offline
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It’s soooooo coooold!!!!!!
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  #260  
Old Oct 19, 2022, 09:31 AM
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Aurelius710 Aurelius710 is offline
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Saw my mom (And dad, but he was on his best behavior.) after work. Her cornea transplant is tomorrow. They leave for the hospital exactly 24 hours from now, so this will most likely be the last I hear from them, her especially, for a couple of days. I really hope it works and works for the long term. Fingers crossed.

One of the reasons I was over, apart from "Hey, hello!" and getting food from them, was an opportunity to play tech guru for a few extra minutes. I demoed alternate ring tones for her, so she can distinguish who she wants to receive calls from versus the multitude of spammers bugging her. Regardless of the outcome, it might be a useful tool to have given the number of spammers she's getting any given day.

Finally gave in and lit the pilot light on my heater. To be fair, it's starting to get cold even for me! (Twenty-five degrees right now!) My cat is still burrowed under the covers for the most part, but she ventures out more.

The gentleman who sideswiped my mailbox made good on his promise to buy another one. Nothing fancy, just a basic mailbox. When it gets a little warmer, I'll put the new one in. Be nice to have a change. Or more accurately to have something that is "my own."

What I mean is something (small or big) that is seperate from my family. Sometimes I'm given an excuse to go on my own, sometime I just do it. The changes of recent months, my bank account, my health care provider, my mailbox, all have explicit ties to family snooping, interference and control. Now, my actions weren't solely for the reason of giving a proverbial middle finger to my dad and cousin (The bank and the hospital chain both did wrong by me.), but the fact that it did doesn't bother me much.

Work was surprisingly slow yesterday. Hardly any sales. Hopefully that'll change today!
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Fear is the mind-killer.
Fear is the little-death that brings total obliteration.
I will face my fear.
I will permit it to pass over me and through me.
And when it has gone past, I will turn the inner eye to see its path.
Where the fear has gone there will be nothing. Only I will remain."
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  #261  
Old Oct 19, 2022, 09:31 AM
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Sunflower123 Sunflower123 is offline
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Quote:
Originally Posted by HALLIEBETH87 View Post
It’s soooooo coooold!!!!!!
It is! Our heat went out sometime yesterday and we woke to a very cold house. It is 38 outside and 50 inside. Sssooo cold. Waiting on the heat and air guy now.
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  #262  
Old Oct 19, 2022, 10:19 AM
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Nammu Nammu is offline
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Quote:
Originally Posted by *Beth* View Post


How was the program in Austin, was it helping?
My experience with it was limited. I called the local help number twice. The first time they sent just one trained cop, he was older and calm and did help. The second time it was a young untrained cop who was nervous and decided I needed to be in the hospital. The mental healthcare over all changed for the better though. They got two more locations, more psychiatrists and had social workers assigned that made home visits. It’s hard to quantify how it changed but their attitude did change. It wasn’t big brother anymore or you will take the pills I give you or be hospitalized. It was more Input from the consumer. Their language ( consumer not ill person or patient) changed and it was more of a partnership.

I had quit the old treatment program and for years had no meds. I was working with a therapist though my new back then Medicare advanced provider, but they had no psychiatrists on it that were accepting new patients. My therapist found a place to prescribe but they put me on AD and I got worse. My therapist agreed with me that ADs were wrong for me. After I had my last really bad depression and that changed into mixed I reached out in desperation and they had changed. They listened to me and agreed no ADs. They also agreed no hospital. It was more a partnership than a dictatorship.
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…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
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Last edited by Nammu; Oct 19, 2022 at 10:31 AM.
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  #263  
Old Oct 19, 2022, 12:01 PM
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Fuzzybear Fuzzybear is offline
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It's cold here!

I much prefer it to the summer heat though....

It reminds me of somewhere I used to live which was incredibly cold.....

Quote:
Originally Posted by HALLIEBETH87 View Post
It’s soooooo coooold!!!!!!
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  #264  
Old Oct 19, 2022, 12:07 PM
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Fuzzybear Fuzzybear is offline
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Hugs and support from a chilly place here (actually it isn't too bad, see post above)

I can relate to feeling scared almost all the time (worse lately again)

It's so hard when our perspective of a place has to transition ... (I've been there myself in a sense, a whole lot of ''stuff'' being thrown at me, quite a long time ago.....) (not this part or even forum)

I was going to write more but must eat (not salmon tonight)

much love

I like your new ''siggy''?

Peace, Easy



Quote:
Originally Posted by *Beth* View Post
I saw on the news that there are snow storms and very cold temperatures back east, all the way up north, and as far down south as Tennessee. I'm thinking of a number of you and hoping you're okay?

Our mornings are chilly. Afternoons & evenings, I'm shaking my head. 90 degrees tomorrow. What can I say.

I'm so-so. I feel scared all of the time. Medication, as in SSRI's basically, are just not doing it anymore. They don't ameliorate that "I'm afraid of everything" feeling anymore, like they used to. Therapy doesn't do much to help me feel safe, either. Some, but meh. My perspective of this forum absolutely had to transition when so many challenges were thrown at me prior to my week off. It seems that I don't have a single night of pleasant dreams. It's always worry, anxiety. I am often afraid to go to bed. Plain and simple, I just cannot seem to find security within myself. That month in which I was extremely sick shook me up & sure didn't help. I guess it'll take some time to bounce back from that.

Oh, I don't know. I'm rambling.

Peace. Easy,
Beth

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  #265  
Old Oct 19, 2022, 12:08 PM
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I hope Bizi is doing ok?

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  #266  
Old Oct 19, 2022, 12:09 PM
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Mountaindewed Mountaindewed is offline
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I saw my therapist. It went good despite the fact I'm feeling bad again today. She told me the new therapist does take my insurance. And that she won't be gone for as long as she originally told me. It was a relief to be reassured. She does seem incredibly concerned and confused the way everyone else is, about me getting covid basically out of nowhere after being so careful for so long. She wants me to keep her updated about my bloodwork and then about my doctors appointment next week. I don't know if she thinks theres something more going on. But she did seem pretty concerned about me. Anyways I don't have any other plans today.

My therapist just sent me an email with the rest of our sessions listed and then a couple appointments with the new therapist set up. They are afternoon ones in December. Afternoons in December don't sound great but I'll have to make it work. She said the times would vary anyways and I can always tell the new one afternoons aren't good for me. But at least thats set up and one less of my many things to worry about.
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Last edited by Mountaindewed; Oct 19, 2022 at 01:19 PM.
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  #267  
Old Oct 19, 2022, 12:13 PM
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Man, I'm so freaking pissed off.

Where did all the flowers go?

not about anyone here.

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  #268  
Old Oct 19, 2022, 12:14 PM
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Fuzzybear Fuzzybear is offline
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And that ''unlucky'' number, I try not to post then.

I'm so late for my meal. Must get my CRAP together.
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  #269  
Old Oct 19, 2022, 02:23 PM
*Beth* *Beth* is offline
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Quote:
Originally Posted by Nammu View Post
My experience with it was limited. I called the local help number twice. The first time they sent just one trained cop, he was older and calm and did help. The second time it was a young untrained cop who was nervous and decided I needed to be in the hospital. The mental healthcare over all changed for the better though. They got two more locations, more psychiatrists and had social workers assigned that made home visits. It’s hard to quantify how it changed but their attitude did change. It wasn’t big brother anymore or you will take the pills I give you or be hospitalized. It was more Input from the consumer. Their language ( consumer not ill person or patient) changed and it was more of a partnership.

I had quit the old treatment program and for years had no meds. I was working with a therapist though my new back then Medicare advanced provider, but they had no psychiatrists on it that were accepting new patients. My therapist found a place to prescribe but they put me on AD and I got worse. My therapist agreed with me that ADs were wrong for me. After I had my last really bad depression and that changed into mixed I reached out in desperation and they had changed. They listened to me and agreed no ADs. They also agreed no hospital. It was more a partnership than a dictatorship.

That sounds very positive, a huge improvement over what we have going on at this time. Encouraging.
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  #270  
Old Oct 19, 2022, 02:36 PM
*Beth* *Beth* is offline
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Ohh, @Fuzzybear, I was watching a show based in the UK and was thinking of you. Such lovely, refreshing drizzle and rain. Beautiful green moss on the stones. And here we are, 32 Celsius today

When I was in Ireland I walked and walked through Dublin (actually, I was talking such a long walk because I was quite lost, trying to find my hostel), it was evening and there was a mist that made the air fresh and clean. I loved taking the pureness into my lungs when I breathed. I loved it and I wanted to stay there, rather than being baked by the sun like I am here. I was enchanted with the old cobblestone streets.
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  #271  
Old Oct 19, 2022, 02:49 PM
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Nammu Nammu is offline
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Originally Posted by *Beth* View Post


That sounds very positive, a huge improvement over what we have going on at this time. Encouraging.
Yes, the new program was such an improvement . I was only with them for about a year and a half before I moved up to Minnesota. But I was very impressed with the changes there were.
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  #272  
Old Oct 19, 2022, 03:17 PM
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Sunflower123 Sunflower123 is offline
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I thought the house was chilly last night but I didn’t check it out. We just bundled up and crawled into bed. We woke up this morning and it was bone chilling cold. I guess for those of you up north 50 in the house might be bearable if a bit uncomfortable. Here in the south - that is just unacceptable. I had a full day planned. One I was looking forward to. It had to be sidelined to wait on an emergency call from the heat and air guy. I’ll probably still be able to make the drum circle. There is that.

I had a lot of down time today while I was waiting. Down time is not good for me - particularly right now. I’d rather stay busy.

For the record, I don’t hold grudges and I am very forgiving. Sometimes that it not in my best interest but that’s how I roll.
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  #273  
Old Oct 19, 2022, 03:26 PM
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Fuzzybear Fuzzybear is offline
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Originally Posted by Sunflower123 View Post
I thought the house was chilly last night but I didn’t check it out. We just bundled up and crawled into bed. We woke up this morning and it was bone chilling cold. I guess for those of you up north 50 in the house might be bearable if a bit uncomfortable. Here in the south - that is just unacceptable. I had a full day planned. One I was looking forward to. It had to be sidelined to wait on an emergency call from the heat and air guy. I’ll probably still be able to make the drum circle. There is that.

I had a lot of down time today while I was waiting. Down time is not good for me - particularly right now. I’d rather stay busy.

For the record, I don’t hold grudges and I am very forgiving. Sometimes that it not in my best interest but that’s how I roll.
Hi Sunflower,
I tend to be very forgiving too. It's sometimes not been in my best interests either. Some family members in particular.

I don't like a lot of down time either. I hate waiting!

We have been clearing our cave... piano tuner is coming tomorrow to tune our piano and there were several bears on the piano (a grizzly, (living nature?) a tatty teddy and some others )
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  #274  
Old Oct 19, 2022, 03:37 PM
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Originally Posted by *Beth* View Post
Ohh, @Fuzzybear, I was watching a show based in the UK and was thinking of you. Such lovely, refreshing drizzle and rain. Beautiful green moss on the stones. And here we are, 32 Celsius today

When I was in Ireland I walked and walked through Dublin (actually, I was talking such a long walk because I was quite lost, trying to find my hostel), it was evening and there was a mist that made the air fresh and clean. I loved taking the pureness into my lungs when I breathed. I loved it and I wanted to stay there, rather than being baked by the sun like I am here. I was enchanted with the old cobblestone streets.
I love the rain, so much kinder than the baking sun. That sucks it's still so hot where you are.

I've never been to Ireland, I'd love to go there. Old cobblestone streets, I feel the same

Papa bear and I were watching an old Dire Straits (Mark Knopfler) concert the other day, I hadn't seen him looking like that before (he's a Geordie)
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  #275  
Old Oct 19, 2022, 08:00 PM
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HALLIEBETH87 HALLIEBETH87 is offline
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Member Since: Oct 2004
Location: usa
Posts: 11,930
Is 32* c hot? I don’t know much about Celsius
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schizoaffective bipolar type
PTSD
generalized anxiety d/o

haldol, prazosin, risperdal and prn klonopin and helpful cogentin
Hugs from:
bizi, Fuzzybear, Soupe du jour, Sunflower123
Thanks for this!
bizi
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attentionThis is an old thread. You probably should not post your reply to it, as the original poster is unlikely to see it.




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