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  #376  
Old May 25, 2023, 05:10 PM
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~Christina ~Christina is offline
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Soupe Are you feeling better since your back home ?

Nammu that’s great you made the drive. Glad your able to put a deposit down but I’m sorry it’s not an ideal place l. How’s Sir doing?

Rainbow FANTASTIC news ! Finally catching a long over due break

Scooter I’m glad your coping skills are helpful and happy you got LTD, that’s got to be a huge relief. I take Seroquel IR 50mg a night and it helps me get mostly decent sleep. The XR worked well for me for just over a year but just stopped. That was probably 6-7 years ago.

Rosi how are you?

Samicat. How’s the book coming?

Bluebird hope your doing well !

Sunflower so happy you have the beach trip coming and the pool opening ! Enjoy enjoy enjoy !

~~~~~~

Took my first injection of Stelara last night. Next one in 4 weeks. I’m not holding out much hope that it’s going to work since Rinvoq and Skyrizi did nothing. Hurry up and wait

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  #377  
Old May 25, 2023, 05:12 PM
Brokenfriend Brokenfriend is offline
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Sequel worked for me for over 10 years but I started feeling faint all of the sudden so I decreased it over a period of time down to 175 mgs in the evening. 25mgs at dinnertime and 150mgs before bed. I can tolerate that amount down from 625 mgs in the evening. I took 25mgs at dinner time and 600mgs before bed and I can't tolerate that high dose anymore. BF
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  #378  
Old May 25, 2023, 06:01 PM
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Scooter9 Scooter9 is offline
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Thanks @Brokenfriend and @~Christina for sharing your experience with Seroquel, much appreciated.
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* Dx: Bipolar II (finally, after years at Bipolar NOS)
* Rx: minimal dose of Lamictal

My avatar picture is a photo of the Whirlpool Galaxy I took in April 2023. I dedicated this photo to my sister who passed away in July 2016.
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  #379  
Old May 25, 2023, 06:28 PM
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VerMOZZica VerMOZZica is offline
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Hi Scooter9,

I took Seroquel for years and was on a very high dose. It was great helping me get to sleep. But sometimes I felt overly sedated and had difficulty getting things done. My new pdoc has put me on Seroquel again but at a much lower dose. It still helps me sleep. When I was on a higher dose it did make me crave sugary things a lot.
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  #380  
Old May 25, 2023, 06:28 PM
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Well i am in the rare state of doing pretty well, so i might as well post. Awe! As soon as i wrote this, my MIL (mother in law) tells me her leg is aching from the plane ride. :'( Other than that, it's been a peaceful afternoon. She and H came back from the airport and we had lunch. I had started doing some therapeutic exercises for my knees (we have to drive tomorrow) that i hope will help relieve my knee pains. Really hope they aren't making my knees worse. I THINK i followed directions correctly. (It was something i found online, but seems like they would be safe and effective) hmm, on that note, i will probably not be on this site again after today for about a week. We'll be doing some traveling. Well, can't think of anything else to say at the moment. Kinda just killing time I guess.
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  #381  
Old May 25, 2023, 06:51 PM
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JaneOnceMore JaneOnceMore is offline
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I went in to my drop-in today and it was hardly worth it, it was so disappointing. It's very hit-and-miss there, depending on who is in. I guess it killed time and was a diversion. I didn't stay long. I had a joke to tell when the issue of the Earth being flat came up: The proof that the world is not flat is that cats would have pushed everything off it by now! There was no opportunity to say it and the discussion move on to another topic with my joke unsaid. I felt invisible. It's not such a great experience for me there, being the silent one in a group of talkative people. I might have to reconsider it.

Possible trigger:


@Nammu:

Bravo on the stellar job driving! It really is a challenge. Taking the bus is a hardship in so many ways, but at least i don't have to drive!

@Brentus:

Sorry to hear your IOP is disappointing. I found some of the material specious or silly too.

@Sunflower123:

Glad to hear your pool will be opening soon! I like floating too. It's so therapeutic!

Last edited by JaneOnceMore; May 25, 2023 at 07:13 PM.
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  #382  
Old May 25, 2023, 07:32 PM
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Today I got lots of writing done, for a change. I set new goals yesterday and I surpassed them today.

I am feeling a bit resentful of all the years I spent supporting my husband financially (this was mostly due to his disability although it was also his decision to spend 14 years in university getting a 4-year degree and teaching certificate). Now he is 64 and I am 54, and he retired a few years ago... while I have to train for a new career. We will use up all my pension savings otherwise.

He will get a small pension at 65 but it's not enough for us to live on.
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  #383  
Old May 26, 2023, 12:04 AM
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Im just so sleepy today, other than that i cannot complaiin!
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  #384  
Old May 26, 2023, 08:55 AM
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Thank you @VerMOZZica for sharing your experience with Seroquel.

Looks like lots of people here are on it.
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* Dx: Bipolar II (finally, after years at Bipolar NOS)
* Rx: minimal dose of Lamictal

My avatar picture is a photo of the Whirlpool Galaxy I took in April 2023. I dedicated this photo to my sister who passed away in July 2016.
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  #385  
Old May 26, 2023, 11:12 AM
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Scooter9 Scooter9 is offline
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What a night I had! I was so tired because I had just 4 hours sleep the night before so I was looking forward to getting to bed.

I went to bed at 930pm, and woke up at just midnight. I was able to get back to sleep but woke up again at 1, 130, and 2. At 3i couldn't get back to sleep so I stayed awake until 530 and slept for 2 hours.

This Seroquel is obviously not doing anything yet. I go to 100mg on Saturday night.
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* Dx: Bipolar II (finally, after years at Bipolar NOS)
* Rx: minimal dose of Lamictal

My avatar picture is a photo of the Whirlpool Galaxy I took in April 2023. I dedicated this photo to my sister who passed away in July 2016.
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  #386  
Old May 26, 2023, 11:15 AM
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Mountaindewed Mountaindewed is offline
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I thought after 4 days I'd wake up today feeling fine. But no. This is the worst day I've felt since I got this cold. I'm hoping that is just like a worse before it gets better kinda thing. I am coughing so badly my teeth hurt and I am going through so many kleenexs. I just finished my second box this week. My sister had the nerve to text my mom this morning to ask my mom to watch the kids 3 mornings next week and I said to my mom "are you seriously not seeing what I'm seeing?"

But I'm hoping today is just really bad and then I feel better.
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  #387  
Old May 26, 2023, 11:19 AM
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LadyShadow LadyShadow is online now
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Feeling a little bit drained today. Just feel stifled and don't like where I'm living. I have a really good friend who is absolutely exhausting, often repeating the same resentments to me. I feel claustrophobic today with the world crushing around me. I just want to be in a place of peace not in all this negativity. Saying little prayers at work today so that I can clear my mind of all this chaos.
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  #388  
Old May 26, 2023, 11:24 AM
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Brentus Brentus is online now
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Well, I certainly screwed myself over this time. My clinic can't get me in until the 7th of June. The receptionist told me they can refill my non-controlled substances but the Adderall is at the discretion of the doctor, and I was informed that he will probably say no. It's gonna be rough I'm sure going without, but I put myself in this predicament and I have to pay the price. It's all hitting at an awful time with the fact I run out on Sunday -- my pharmacy is closed on Sundays, Monday is a holiday and they are closed AND I won't be in town as of the 30th. That gives me a VERY limited window to even pick up my meds. I am really kicking myself for putting myself in this position. Normally I'm fighting the system to try to avoid this from happening, but I did this one to myself and I can't blame anyone but me.


At this point, I'm seriously considering just giving it all up and stopping therapy/meds and just try to acclimate. I know it's a stupid thing to consider, but honestly it seems a lot less stressful that way.
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  #389  
Old May 26, 2023, 11:33 AM
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I'm on seroquel too. Take 200mg a day. Then 100mg PRN. Seroquel and I have a love/hate relationship. I love how it makes me sleepy and helps my anxiety and overall mood, but hate the weight gain!

Ugh. My pharmacy are such IDIOTS. Had to go there this morning to get my refills (I get them bubble packed). I called on TUESDAY to let them know I'd be picking them up this morning. The pharmacist was all like, "We only can have your refills ready in late afternoon." WTF! I called on TUESDAY. I don't have a ride to the pharmacy late afternoon on Fridays. I'm out of meds tomorrow. I pick them up the day before I need them. Morons!
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The darkest of nights is followed by the brightest of days. 😊 - anonymous

The night belongs to you. 🌙- sleep token

"What if I can't get up and stand tall,
What if the diamond days are all gone, and
Who will I be when the Empire falls?
Wake up alone and I'll be forgotten." 😢 - sleep token
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  #390  
Old May 26, 2023, 01:13 PM
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Someone worked a miracle somewhere -- the doctor made an exception to see me and I got my meds set to be filled. I pick them up tomorrow. Crisis averted. Also made appointments for the next 3 months so I don't forget.
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  #391  
Old May 26, 2023, 01:26 PM
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Quote:
Originally Posted by Brentus View Post
Someone worked a miracle somewhere -- the doctor made an exception to see me and I got my meds set to be filled. I pick them up tomorrow. Crisis averted. Also made appointments for the next 3 months so I don't forget.
Oh! Way to go!
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…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
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  #392  
Old May 26, 2023, 01:27 PM
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Quote:
Originally Posted by Scooter9 View Post
What a night I had! I was so tired because I had just 4 hours sleep the night before so I was looking forward to getting to bed.

I went to bed at 930pm, and woke up at just midnight. I was able to get back to sleep but woke up again at 1, 130, and 2. At 3i couldn't get back to sleep so I stayed awake until 530 and slept for 2 hours.

This Seroquel is obviously not doing anything yet. I go to 100mg on Saturday night.

I had a "paradoxical" effect from Seroquel where it gave me terrible insomnia. Good luck with it.
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  #393  
Old May 26, 2023, 01:32 PM
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Just minding my own business and watching my game show. Hadn’t put on my hearing aids yet. Had just gotten dressed. When who comes bursting into the house but my sister and bil. I had my time planed out. They upended my schedule and carted a bunch of stuff upstairs and now the living room and family rooms are full of boxes. How many times do I need to say I live here?
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…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
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  #394  
Old May 26, 2023, 03:25 PM
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Mountaindewed Mountaindewed is offline
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So I got the results of my blood test from yesterday. My liapse level is still high so instead of waiting all the way until August for an Endoscopy, they have me schedlued for June 8th now.

Its a relief to get a sooner appointment but also kinda freaky at the same time that just yesterday they were like "we really can't help you until August." And then today they were like "yeah, why don't we move this up."

I think my cold is starting to go away. I still have the cough but thats always the last thing to go I think.
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  #395  
Old May 26, 2023, 03:57 PM
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Scooter9 Scooter9 is offline
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Thank you @raspberrytorte and @Samicat. It looks like Seroquel is not so straightforward.
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* Dx: Bipolar II (finally, after years at Bipolar NOS)
* Rx: minimal dose of Lamictal

My avatar picture is a photo of the Whirlpool Galaxy I took in April 2023. I dedicated this photo to my sister who passed away in July 2016.
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  #396  
Old May 26, 2023, 06:34 PM
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HALLIEBETH87 HALLIEBETH87 is offline
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The little mermaid movie was fun for date night
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haldol, prazosin, risperdal and prn klonopin and helpful cogentin
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  #397  
Old May 27, 2023, 01:40 AM
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Ugh. I even doubled up on my seroquel and still can't sleep!!!! I'm calling my doctor's office on Monday. Good news is that my novel writing is going well. Little over halfway done with it now. My husband told me he can't wait until I'm done writing it so I won't have the mania brewing anymore. Lol.
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The darkest of nights is followed by the brightest of days. 😊 - anonymous

The night belongs to you. 🌙- sleep token

"What if I can't get up and stand tall,
What if the diamond days are all gone, and
Who will I be when the Empire falls?
Wake up alone and I'll be forgotten." 😢 - sleep token
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  #398  
Old May 27, 2023, 09:04 AM
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Blue_Bird Blue_Bird is offline
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I’m sorry I haven’t been keeping up with the thread much recently I just have been busy but I am doing pretty well thanks for asking Christina

I’ve been having a lot of dissociation lately though which sucks. But I’m doing my best to ground myself when it happens.

I’m going to my friends house tomorrow to play some tabletop board games (like dungeons and dragons type stuff) so that should be fun.

At some point this weekend me and my boyfriend are gonna try playing the yugioh card game over video chat. We each have the cards so we’re gonna try playing that way since we are currently long distance. I’m not sure if I mentioned him here before. But we went to the same high school and dated for awhile when I lived in Kentucky when I was 19. We lost touch with each other over the past 10 years but started talking again in the spring. We started dating again this April 8th. He still lives in Kentucky but I have moved back to New York since then so we’re long distance for the time being until we can afford to visit each other again. Things are going well

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  #399  
Old May 27, 2023, 09:31 AM
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Brentus Brentus is online now
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Well, I picked up my medicine and everything is as it should be again. I've had so many bad experiences in the past with pharmacies I always expect the worst and get very nervous when any type of "change" happens-- a holiday hits, a med change, etc. Today didn't go without a hitch, but the pharmacy cared more about ME and making sure I had what I needed than I've ever experienced before. My Vraylar had to be ordered and will be in Tuesday, but to ensure I didn't run out they did some digging and calling around and was able to do it for me. I really have to give it to the small town pharmacy -- they are a world's difference in terms of customer service.

I'll write a little more later -- I plan to study a little German today and maybe go walking. I'm missing out on my favorite season by sitting in the house all day!
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  #400  
Old May 27, 2023, 12:52 PM
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Yi yi yi drove up to the house and the neighbor was on the side of the house picking weeds! Oh, he won’t stay to his house. He’s always just walking in. I keep all the doors locked and double look before I go out on the deck. Yesterday when my sister dropped by he barged in without knocking!

I bought a new recliner for my new apartment. Got $200+ off it will be delivered Tuesday. Love the color a soft grey. Will go well with the two rose chairs. Now I only need a microwave and an AC. That plus the deposit will deplete my savings
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…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
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