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  #576  
Old Nov 03, 2016, 04:45 PM
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Gentle hugs to everyone. Just haven't been able to talk/type about my pain lately.

I started methotrexate last week, not even a hiccup. It is already taming down my non stop scratching like a mangy dog.

I hope every one can find some peace as we head into winter.

Gentle hugs to everyone.

Be kind to your self ❤️
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  #577  
Old Nov 03, 2016, 05:05 PM
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Christina please be very careful with that drug. It ruined my lungs and liver
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  #578  
Old Nov 03, 2016, 06:14 PM
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The eye specialist called in a steroid/anti-inflammatory drop for my eye. The drops help. Does anyone know how long you can use steroid drops? I've been on them for a long time now.

I got a little bit of housework done this evening. I hope I have more energy tomorrow. My lack of energy is getting down right scary. Do any of you have any thoughts, ideas or tips about it?

I hope you all sleep well tonight and awaken refreshed and feeling great.
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  #579  
Old Nov 04, 2016, 08:16 PM
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Thanks Cake!

I am taking a small dose. I have to have blood tests every 7-10 days to make sure nothing gets wonky.

My psoriasis caused an infection from non stop constant scratching like a mangy dog something had to be done.

If I do have problems then we will try to get an authorization for a biologic. But insurance requires that I have to try methotrexate first.

Jan, it depends what steroid your taking. I use to work for a ophthalmologist when I was 18 , I'm sure they have been numerous meds available now.

Call your doctor Monday.

My fibromyalgia is on my last nerve. But I have to admit it's partially my fault my husband and I are painting and soon laying down new flooring.... So I keep reminding myself that everything is going to be amazing once we get done , if we both survive it.

Okay back to painting !

Gentle hugs everyone
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  #580  
Old Nov 05, 2016, 12:23 AM
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Quote:
Originally Posted by Gus1234U View Post
The Fibromyalgia check in thread.😀

how you all manage to hang on is more than i can say~
You help, Gus!! 😃😄😬😀
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The Fibromyalgia check in thread.😀alt="Universal Life Church | ULC" border="0">
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  #581  
Old Nov 05, 2016, 12:25 AM
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I saw a chiropractor today and gave me her "gentle treatment" so as not to throw me into a fibromyalgia flare. She was definitely not gentle and guess what? I am now in the fibro flair. Sucky. My very skin hurts and everything feels like it's on fire.
Peace out
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The Fibromyalgia check in thread.😀alt="Universal Life Church | ULC" border="0">
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  #582  
Old Nov 05, 2016, 11:15 AM
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Respiratory thing seems to get better, then worse. I think at this point it's turned into a sinus infection. OTC stuff is not helping anymore. Guess it's time to go see the doc.

I am totally exhausted. I've been falling asleep as early as 7:30 this week. Fibro fog makes me feel like I don't have a single functioning brain cell in my head. Pain level makes me want to roll in a ball and cry.

I absolutely have to start cleaning the house. I have out of town company coming for Turkey Day. Pigs would not want to live in this mess.
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  #583  
Old Nov 05, 2016, 04:15 PM
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Quote:
Originally Posted by Gus1234U View Post
The Fibromyalgia check in thread.😀

how you all manage to hang on is more than i can say~
I'm sending gentle (and respectful) hugs... I can only echo this sentiment

Gus, and everyone, you help me (for what it's worth )
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  #584  
Old Nov 05, 2016, 05:42 PM
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Strength to you, Liz!! May you get some relief for what you need to get done!

Quote:
Originally Posted by lizardlady View Post
Respiratory thing seems to get better, then worse. I think at this point it's turned into a sinus infection. OTC stuff is not helping anymore. Guess it's time to go see the doc.

I am totally exhausted. I've been falling asleep as early as 7:30 this week. Fibro fog makes me feel like I don't have a single functioning brain cell in my head. Pain level makes me want to roll in a ball and cry.

I absolutely have to start cleaning the house. I have out of town company coming for Turkey Day. Pigs would not want to live in this mess.
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The Fibromyalgia check in thread.😀alt="Universal Life Church | ULC" border="0">
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  #585  
Old Nov 09, 2016, 02:19 PM
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There is good news and bad news, but at least there is something good to report. On Thursday, tomorrow, I get my dentures! After a year and a half, it's actually happening. They told me I'll have to learn to speak again, but I can practice reading aloud at home where no one hears me. I am excited!

Today I was to go get the MRI on my back, but I was in so much pain, I couldn't do it. I had two Lortabs hidden back and I was forced to take one to breathe because the shoulder and back pain was so intense. I can't drive like that.

I've got to wait until the Lortab wears off to go to the 7-11 and get a couple things. I have no one to go to the store for me.

My eye is worse. I still have four days worth of drops to take before I call the specialist again. I've been missing my beloved Spirituality chat because I can't see well enough to chat.

I think I will take a nap, or at least rest in the recliner.

I hope all of you are well today and having a good day. I think of you every day.

Also, Gus and Fuzzy, you make me smile when you post, so please keep contributing!

Love and hugs to all!
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I still dream and I still hope, therefore I can take what comes today.
Jan is in Lothlorien reading 'neath a mallorn tree.

My avatar and signature were created for my use only and may not be copied or used by anyone else.
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  #586  
Old Nov 09, 2016, 05:48 PM
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The Fibromyalgia check in thread.😀


we have a hidden self that knows only BLISS... may it reveal itself to you~!

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  #587  
Old Nov 10, 2016, 03:56 AM
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Hi guys...I think this is my first time posting on this thread. I'm new to the thread but not fibromyalgia...been battling it for years. Today it's my IBS acting up and my new med combo is not helping. My stomach will not stop
Churning and gurgling with intense pain. It's more than I can bare right now and nothing is helping. I just needed to rant. (((Gentle Hugs))))
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  #588  
Old Nov 10, 2016, 08:35 PM
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ElsaMars, welcome to the group. Sorry you qualify to join us.

Could your current flare be related to the stress/worry you've mentioned in the Current Events forum?
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  #589  
Old Nov 10, 2016, 09:53 PM
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Methotrexate jacked up my liver.... ATL level it's finallyyyyyy
coming down ....thankfully.

Add that to my "Do not ever take again , ever list of meds"

My pain is hellish , I have asthma attack with bronchitis happening and on steroids so..... Yeah ! This is going to be epic , not

Gentle hugs to all.

Remember be kind to yourself !

I have messages for everyone but I'm laying flooring as I hack away lol sorry I might as well laugh , stupid steroids make me think I am superwoman !

Seriously be kind ❤️
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  #590  
Old Nov 10, 2016, 10:31 PM
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Hi Elsa. Welcome to our group. I'm so sorry you have fibro, but I'm so glad you found us.

Chris, I'm so sorry you couldn't take the methrotrexate. I'm sorry you're so sick. Be careful! Try not to do so much and take care of yourself.

Liz, Kiya, and Cake, how are you doing?

I got my dentures. I don't know who that woman is in the mirror smiling back at me. They taught me how to glue them in, but nobody told me how to get them out of my mouth tonight. Panic City!

I hurt tonight. The temps are supposed to really get down there tonight, so I guess that's what has set the fibro humming.

I wish you all a good night's sleep. Love to you all.

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I still dream and I still hope, therefore I can take what comes today.
Jan is in Lothlorien reading 'neath a mallorn tree.

My avatar and signature were created for my use only and may not be copied or used by anyone else.
Hugs from:
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Thanks for this!
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  #591  
Old Nov 11, 2016, 04:13 AM
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Thank you for the welcome my fellow fibro brothers and sisters. I really appreciate it. I slept on the toilet...almost hit my head on the sink when I'd dose off but couldn't stay off the toilet for more than a minute without rushing back. I'm sure the stress isn't helping matters. Nor is the lack of quality sleep. But I think my meds are all wrong. Geodon has been killing my stomach for months but until the recent increase I could bare it....when the increase occurred I got hit hard with the IBS on a whole nother level....even before recent events made stress high. So it's probably a combo of IBS, Geodon and stress. My doctor gave me Haldol and permission to take a break from Geodon. The worst part is I expect these meds to help with my pain, but they just seem to aggravate it. My stress is going up and down on then up again. This can't be good for pain. The cold isn't helping....my knees are killing no but my hubby bought me a snuggle heated blanket and I'm sitting under it now and it's soothing. (((Hugs to all my fellow sufferers out there)). Thank you for this place and the ability to talk about my pain. People don't understand which is good for them but hard to not be understood. I know all of you get it though so at least I'm not alone. Hoping we all have a good day tomorrow.
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  #592  
Old Nov 11, 2016, 06:19 AM
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Elsa, I have IBS and UC. I am on a really good mix of meds right now that really help. Would you like me to send you the list? Maybe you could ask your gastro if he or she would try you on them. I know change is scary, but they really do help me. I'm so sorry you had to sleep in the bathroom.
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I still dream and I still hope, therefore I can take what comes today.
Jan is in Lothlorien reading 'neath a mallorn tree.

My avatar and signature were created for my use only and may not be copied or used by anyone else.
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  #593  
Old Nov 11, 2016, 07:50 AM
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I am here starting my second round of antibiotics my stomach has been rolling and I have been running to the bathroom way to often. Hubby said he did not think I could move that fast

Yahoo Jan got her new teeth. It's about time. You will have to get adjusted to them and your mouth might be soar for a while (I have another friend going through this )

Liz take care I worry about you.

Christina I am glad you are off mexo. It's nasty.

Kiya are you still having surgery ? I hope you are doing ok I have been going to bed real early very tired not sure if it's the time change or if it's from fibro or lupus etc. I am so over being sick.

Gus and fuzzy thank you for brighting up our thread and welcome ElsaMars I hope I did not miss anyone.

Take care and gentle hugs to all
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  #594  
Old Nov 11, 2016, 04:10 PM
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My gums are so swollen and sore I can't get my dentures in my mouth. Could this be fibro or is this normal? Does anyone know? If you don't want to say it in the thread, could you please p.m. me if you know? Thanks so much.
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I still dream and I still hope, therefore I can take what comes today.
Jan is in Lothlorien reading 'neath a mallorn tree.

My avatar and signature were created for my use only and may not be copied or used by anyone else.
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  #595  
Old Nov 11, 2016, 06:40 PM
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Jan it's what happened to my other friend. She also had to keep going back for adjustments. She has lupus to so does it have something to do with AI's I kinda think it comes with getting dentures but having an AI doesn't help.

Stay with soft food and maybe ice chips. I have been throwing up all day. I hate this disease and I hate lupus
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  #596  
Old Nov 12, 2016, 11:32 AM
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Thank you, Cake. ((((( Cake ))))) I hope you feel better very soon.
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I still dream and I still hope, therefore I can take what comes today.
Jan is in Lothlorien reading 'neath a mallorn tree.

My avatar and signature were created for my use only and may not be copied or used by anyone else.
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  #597  
Old Nov 13, 2016, 12:33 AM
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Hi all,
Yep I too have been in a constant Fibro flare up… Started with seeing the chiropractor and then I'm going with the election and all the stress and constant strife that is now sweeping across my country. I'm one of the few people in my town who actually sleep through the night thanks to my medication. Protesters have been hitting the streets by the thousands and we've made national news, I'm sorry to say. I'm afraid to go out – the stress level here is incredible. I am working hard to stay positive and upbeat and mindful but knowing that huge riots are seven minutes driving time away from me and anarchists are ruining my town is quite scary. There have been fights here on the property,and road rage is much more prevalent – something I was caught up in today. @_@
I can't stay on Facebook or the Internet too much without getting overwhelmed.
My surgery is scheduled for January 18 which is good since I don't know what will happen to Medicare after that 20th date. I am glad that it's going to be done and that is scheduled and hoping for the best with everything that follows.
Thinking of you all and wishing that you could all have some space away from your pain and struggles.
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The Fibromyalgia check in thread.😀alt="Universal Life Church | ULC" border="0">
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  #598  
Old Nov 13, 2016, 11:31 AM
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The Fibromyalgia check in thread.😀

friends never go out of style~
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  #599  
Old Nov 13, 2016, 02:49 PM
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((((( Kiya ))))) I'm so sorry for the unrest where you live. Please be extra careful. I'm glad your surgery is scheduled and that you will be well taken care of during recovery.

I've got my dentures in and have discovered I can't even eat mashed potatoes, which begs the question, what in the world am I to eat?

My shoulders are so sore I can barely stand my clothing to touch my skin and my eye hurts. Maybe I should join Whiners Anon!
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I still dream and I still hope, therefore I can take what comes today.
Jan is in Lothlorien reading 'neath a mallorn tree.

My avatar and signature were created for my use only and may not be copied or used by anyone else.
Hugs from:
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  #600  
Old Nov 13, 2016, 05:27 PM
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Someone dropped off a tiny, very cold and frightened dog. I'm not sure I'm up to taking care of one, but I'm sure not going to leave her outside to fend for herself. She's shaking in my arms while I type this. Poor thing. How could anyone be so cruel?

I thought I was going to get to attend Spirituality Chat today and the dog came along. Maybe she'll be good for me. What do you all think?
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I still dream and I still hope, therefore I can take what comes today.
Jan is in Lothlorien reading 'neath a mallorn tree.

My avatar and signature were created for my use only and may not be copied or used by anyone else.
Hugs from:
Kiya, possum220
Thanks for this!
Gus1234U, Kiya
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