[cakeladie]

Kiya please keep us updated regarding your surgery

Christina we miss you and I hope all is well.

I don't know what I would do without you guys. You get me and that means so much. Just got a call from my daughter her boyfriend kicked her out again. I swear I don't need another thing on my plate and hubby doesn't seem like he is in to good of a mood. Oh well hopefully he will mellow out

Take care everyone and if you travel becareful

[lizardlady]

I am having the flare from hades today. The pain kept waking me up during the night. I have a ton of stuff to do before the weekend, but all I want to do is roll in a ball.

[cakeladie]

I hear you Liz

[January]

Liz, I hope you feel better very soon.

Cake, what's the latest on your daughter?

The wonderful thing about this group is that we all "get it". We know we're not whining or complaining, instead, we are sharing and it makes the pain endurable.

I am having trouble walking, rising and sitting because of my knees and ankles, but especially my knees. The only thing extra I can take is tylenol. Tomorrow I need to clean the kitchen, run the sweeper and write to some friends on here. I hope I can manage it.

I'm thinking of each of you and sending you love. Belle sends puppy kisses!

[Kiya]

((((( hugs all ))))) I haven't been in a lot- data issue.
Surgery is 18th and I will be recovering in a facility. Cat will be with mom for probably 3-4 weeks. I turn 40 on the 11th (final period due the 10th; haha :/ I'm very amused).
Have to eat better and bring down inflammation but I thwart my self every time.
Sending care to you all!!
Hugs!
Kiya

[cakeladie]

Kiya keep us posted. You are in my prayers and I am sending you positive vibes from California.

Jan. This has truly been a week from h e l l. With running around to do things for Christmas to having th stomach flu or it could be Fibro issues this just has not been a good week

Has for my daughter. Just when I think things are moving in the right directions he pulls her pack. She has been mean and nasty to me. 2 days in a row I brought her lunch at work. Then she asked for my debit card number on the 3rd day so she could order a pizza for lunch. I did not want to do it but she weighs under 100lbs right now. My husband is done with all of her crap. She has to want to help herself and she's not and she blames everything on me.

Our English bull dog is not doing to well. It's pouring rain here and I have been up since 1:30 am because that is the time hubby left for work today. That through everybody's schedule off.

I need to dust and sweep and wrap some gifts.

I wish I could sleep through Christmas but I can't and my dad would not b happy with my tears but I miss him so much.

Take care everyone be kind to yourself.

Hugs to everyone

[Gus1234U]

i am cozy under my blanket of snow.... shovel , shovel , shovel , sweep
how i wish we could all learn the art of happiness, in spite of all our woes~

may blessings shower down upon you~!

[lizardlady]

Most recent flare is over. Pain is down to the usual background noise.

I'm not going to be around for a few days. Am going out of town to a friend's for Christmas. Looking forward to seeing her and her family, but dreading three hour drive there.

I will be thinking of all of you. Wishing you the best time possible!

++++++++++

edited to add...

I spoke too soon. Am suddenly exhausted and in pain. This sucks!

I really feel for you guys. I deal with chronic back pain but I imagine it's nothing compared to fibro. You all have my greatest sympathies.

[January]

I'm running a fever today and I can't go be with my family. My brother said he would bring me some food after while. I appreciate it.

I gave Belle a little stuffy for Christmas and gave her lots to treats to keep her occupied while I was gone. Well, I made it to the van and back. Now she's in treat heaven while I am here.

I hope my brother and SIL don't want to come in because I've done nothing at all to clean the apartment. I've been too tired. Oh what a mess I'm in! I've got to laugh because crying doesn't help.

I hope you all are having a wonderful day. You are all in my thoughts and prayers. I love you.

[January]

Thank you, Rose. You are so kind. I'm sure you aren't dealing with a Sunday picnic either. I wish you the best and hope you feel better, too.

[January]

Well, my brother and SIL insisted on coming inside and into my kitchen. My SIL, who is a clean freak, was horrified. Yet, they didn't ask me if I need help. They just gave me my food and left. I don't know. I think I expect people to act like I would, and maybe that's not fair.

Belle and I slept really late this morning and I think I see a nap in my future! I took tylenol to try to ease the pain.

I hope you all are having a relaxing day. Love you!

[cakeladie]

Well our Christmas was a mixture of being sick and drama from my daughter. I could no wait for everyone to leave and we would have peace again

[January]

Three days with a virus and no working toilet. I so desperately hope they fix it tomorrow.

[Gus1234U]

oooh Jan~!! no working toilet ?? horrors~ (i've had to flush with buckets, because of no water, but no toilet!!! the mind boggles~!)

[January]

They fixed it! It took almost all day. Belle was frantic. I was trying to remain calm as people carried toilets in and out of my apartment. Christmas has been interesting!

How are the rest of you? Gus, how are you surviving in the snow?

[cakeladie]

Beware this is just venting.

So hubby has a cold and is snoring when he sleeps so I slept on the couch. I had an uneasy feeling all night and I could not wait till hubby got up for work at 3:45am. When he got up I moved into the bedroom and grabbed my iPad. I have not heard from one of my lupus friends. He's older lives alone and has no family. Sometimes he gets mad at us and will not respond to our emails. He usually mellows out and calms down after a couple of weeks.

Well thanksgiving came and went and nothing. We all sent him emails but still nothing. Last night I couldn't sleep so when I got up I googled his name and to my horror his obituary popped up. I freaked out. I was crying and i could not breath.

I sent the obituary to my friends and to the moderator on the lupus forum. I asked him to find out if this was true. He posted it it's true. My heart is breaking and I know my BP is up and I can't stop crying.

He knew what I went through with my dad 2 years ago and he was trying to spare me but he died alone and no one should die alone. It's going to be along night.

The man did a lot to help people with lupus my heart can't take cub more.

Thank you for letting me vent.

[Robinne]

This is my first check in or post. I have been struggling with joint pain in shoulders, elbows, hips and knees. My guy bought me a heated mattress pad for Christmas and it's really helping. I'm all mixed up as I'm working nights this week. Sigh.

[Gus1234U]

ooooh Cake~!

[Gus1234U]

Jan, i had to shovel 4 times to get to the road last week, i have a long driveway, and now it's so cold, i don't dare do that to my lungs~

[childofchaos831]

Pain, pain, pain. And mood is horrid. Really irritable. Ready for the holidays to be over, to get my next ESI, and get back to a semi normal schedule.

[lizardlady]

Am home again.

I have an odd sounding sort of question that you folks will understand. My regular life is work all day, come home , crash, sleep, wake up and repeat. Normally I'm mostly okay with this. Leaving my friend's house yesterday I was almost in tears over the idea of returning home. It was so nice interacting with my friend and her family. I felt like a "normal" person. The idea of going back to work sleep, repeat makes me want to cry. I want more out of life. I want to be able to socialize, hang out with other people. Do any of the rest of you manage it? If you do, how do you do it?

I'm asking here because I know y'all get it that the usual advice isn't doable for fibro folks. Am open to ideas.

[January]

Oh Cake! ((((( Cake ))))) I'm so sorry for the loss of your beloved friend. I'm sorry you hurt.

Welcome Robinne. Welcome to the group. I hope you feel better.

Oh Gus! ((((( Gus ))))) Please be careful! How will you get to the road if you can't shovel a way to it?

Belle and I slept until 1:30 this afternoon! I just keep getting more tired. My goal for tomorrow is to clean the kitchen or the bathroom. There is little needed in both, but I don't think I can do them both on the same day.

Please take care!

[cakeladie]

Hi Liz I am glad you had fun but sad that you are sad to come home. It's nice to come home and have someone to share your day with with.

Before I got to sick to work I work 40-50 and sometimes 60 hours a week plus I was on the PTA board and my daughter did competition cheerleading it was real hard. Oh and I have a sp dial needs child. Always something to do after work or the weekends etc. so what I did was get up extra early and I would have to get ready in stages. I also left for work 1 1/2 early so I could get there and take a nap before I started work. At lunch time I took another nap it was the only way I could get through the day. But look what it got me? I crashed and crashed hard. You don't want that.

Maybe start slow volunteer somewhere or meet up with some friends after work but take a nap at lunch. I had a couple of pillows and a couple of blankets in my truck. It was really comfortable.

Jan thank you. It was a shock that he died and it is a reminder that lupus does still kill people. The sad part is he died alone with only a hospice volunteer with him. He did not want me to worry and he knew I was not well and he knew I would have flowen out to be with him. And he has his pride. He would not want anyone to see him like that. I found out yesterday at 4:30 am California time. Then I had an asthma attack and ken was trying to get my machine hocked up and trying to calm me down. I promised to stay in bed. I feel so drained and sad no one should die alone

Ken is really sick but he will not take anything for it so I have been sleeping on the couch. McGee the cat bit me last night on my toe the little bugger.

Jan if you are sleeping that much it's because your body needs it.

Gus your pictures always bring a smile to my face thank you.

To the new people welcome.

I am very sad and in a weird mood. It's always hard to loose someone and when that person has the same disease you do it hits home a little to close if that makes sense

I hope Christina and kiya are ok. And lord we have not heard from bubbles or sabby in ages.

I am sending positives vibes to everyone

Please excuse any miss words or anything that this does not seem to make sense and very tired and emotionally drained

[Kiya]

Liz- I understand I don't manage it, but I also had such an experience and it brought up emotion- I want to be normal!!

Cake (((((hugs))))) so sorry about your friend

((((All)))) dealing with so much.

I've been trying to get in here for 3 days and kept getting the guest page. I finally wrote as a guest and it showed as me. Strange.

Missed you all!