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  #626  
Old Oct 16, 2019, 02:22 PM
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Wild Coyote Wild Coyote is offline
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Quote:
Originally Posted by Scooter9 View Post
It was a storage day today. I was feeling withdrawn in the morning but I had to go to work. So I pushed myself to go and got busy as soon as I arrived.

Things just kept going and I was busy throughout the day but the feeling of being withdrawn persisted. I had meetings, phone calls, emails, and worked on some hard problems.

When I got home I just went on the computer and stayed there until it was time for bed. I didn't say a thing to my wife except for Hello when I walked in.

I guess I was craving the thought of being alone and finally got my chance in the evening in front of the computer.

I don't like days like this because I just force my way through whatever I'm feeling and it takes a lot of mental energy to do that. And in the end I don't feel better at all.

I hope this week is better for everyone.
It's often amazing when we can rally and can push our way through.
I do think most of us end up paying a price for pushing our way through; yet, there are circumstances under which we have not much choice.

It sounds like you push your way through a lot. I have been amazed; yet, I knew you were truly not well and were pushing to the max. You have accomplished a lot, overall. I hope knowing this helps to offset any price you might pay for having pushed through.

I do hope things are going more smoothly at home. You deserve understanding and support.
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  #627  
Old Oct 16, 2019, 02:30 PM
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Originally Posted by Blue_Bird View Post
My appointment with my therapist went well. Got the letter I needed for my college so I can start classes again hopefully in the Spring.

Had a horrible panic attack but was able to get through it

I have plans to have dinner and go to a movie with a friend of mine Friday, looking forward to it!

It's 2am right now, woke up at 1 and can't get back to sleep. Maybe I'll draw

Plan on trying out intermittent fasting to see if I can lose some weight
I am glad you have been cleared for classes.

It can take a lot to get thorugh a panic attack. I used to have them several times a day. It was just horrible. I do not have them very often now. I hope you have relief !

I have had some good results with intermittent fasting. There are many variations now. I am going to try it again, soon. I did much better by increasing my protein, it kept my blood sugar very stable during the fasting hours. I hope you find it works well for you!
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  #628  
Old Oct 16, 2019, 02:34 PM
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Originally Posted by kitties View Post
Doing absolutely horrible with visual vivid hallucinations....

I was in the hospital twice for a spell last month. Physically ill.

The hospital doctors, my PCP, and pdoc said I have an autoimmune disease...probably Multiple Sclerosis, Lupus, or Mixed Connective Tissue disease.

I’m using a walker at home. I’m falling down, severe weakness and fatigue. Horrible rash that worsens daily. Insomnia. A lot of pain. I feel and look like my body is attacking itself.

I am scared and still very sick and so anxious.. I am having a mixed episode with fully blown psychosis....very high stress from this and what my future holds triggered the mixed episode.

Someone tell me I’m not $&#@&#. Medicare fortunately let me enroll in a good PPO early (had a crappy HMO) and there is a treatment team near me and I’ve been accepted as a patient starting Nov 1st. PCP, Rheumatologist, Neurogist, Dermatologist, Podiatrist. Physical therapy. Fortunately all in the same medical group.

This is RainyDay btw. Having an account issue so I messaged admin for help.

Sending positive vibes to those that need it. I am only going to read on PC for now. But I will be thinking of you. This forum is my “home.”

RainyDay
Rainy,
First of all, we could not copy and paste your post (above) and then I could not find it. I eventually found it here. I did copy it into your thread, as you had been trying to move it there. Much Love
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  #629  
Old Oct 16, 2019, 02:47 PM
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Quote:
Originally Posted by childofchaos831 View Post
4:30 here and can't sleep... Having a really rough night.
I really feel for you. You suffer a lot. You rarely get relief.
I have interacted with you on various forums and you are such a great person.

I often read your posts, stop and think if there is anything I can suggest that might be helpful. I have not yet thought of something you have not tried.

I am going to keep thinking though, as I am VERY hopeful for your healing and your for your future.

Much Love
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  #630  
Old Oct 16, 2019, 03:54 PM
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Moose72 Moose72 is online now
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I'm currently sitting in the middle of the mall having a coffee I shouldn't've spent my last 2 cents on. (Well it feels like it!) Its very depressing in here: the lighting- the skylights projecting a dreary sky yet the electric lights in thin "X" shapes are almost too bright. The temperature is a little too cool but I have my coat off. I just wanna crawl into a hole and never come out. Closest I can come is getting in bed with my million pillows and my weighted blanket under my comforter. But the hole would be dark. The mall is boring. Its also big. Im glad there's enough light to go around.
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Last edited by Moose72; Oct 16, 2019 at 04:06 PM.
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  #631  
Old Oct 16, 2019, 03:55 PM
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~Christina ~Christina is offline
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Originally Posted by BirdDancer View Post
My psychiatrist called me back last night. He almost always does within a few hours. I took the higher dose of Seroquel XR. It's odd, I actually slept a little less last night and woke up feeling more capable of getting started. I hope I get back on track quickly.


I have my volunteering this morning. I'm not looking forward to it, but I will go. It's not dread, though. I think that once I get my butt there it won't be so bad. I just hate the drive. I desperately need a shower, but have been resisting lately. I will make myself, as hard as it will be. Update: Showered + self-care done.


Hubby is appearing in court today. We were short-changed some money we deserved, so he's fighting for it. Hopefully it will be resolved in our favor today. We have also been receiving obnoxious emails from this towing agency that overcharged us when our car broke down in NY a few months ago. Our credit card company supported us on it, but the towing agency owner is a greedy you know what. I just wish cheats would leave us alone already. We have enough worries. One good thing is that hubby will get his tooth pulled without the need of a waste of time "consultation". The sad part is that it's not until next Tuesday. Imagine having to wait almost 2 weeks to get an infected painful cracked tooth pulled?


My husband has a friend that is likely as stressed (or maybe more) than we are. She pretty much begged my husband for us to visit her soon. Her cat ran away and her 95 year old mother is dying. I really don't feel up to such a visit, but we will go because she does absolutely need the support. If by chance anyone recalls, she is the friend of my hubby that I ran into at the grocery store a few months back, after cancelling a dinner date with her (I was unwell). There she told me she had talked to her therapist about the pain of people cancelling on her.


Tomorrow is another dreaded trip to Philadelphia for my husband's eye appointment. Again, Philly itself is fine, but the appointments are hell.


I’m glad your feeling even a tiny bit better! I really admire how Proactive you are

Im sorry you are needing to take another trip , especially when your not on totally solid ground. She’s lucky to have you and your husband in her like. I hope she realizes.

I dealt with a cheating tow truck years ago, it’s such a pain , the companies do it because unfortunately most people won’t take them to court. Sad what goes on in our world now.

Please keep taking good care of yourself
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  #632  
Old Oct 16, 2019, 03:56 PM
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~Christina ~Christina is offline
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Quote:
Originally Posted by bluebicycle View Post
I did some cleaning up. Tore up 3 large boxes into small pieces so that I could fit them into my recycling bin bag. Then I put some stuff away in a clear bin on one of my closet’s shelves.


Otherwise, my day was pretty boring, all in all. Did nothing much besides clean and watch YouTube. I feel pathetic for being so lazy, but I'm sure tomorrow will be more productive.


So glad you got some stuff done !!!
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  #633  
Old Oct 16, 2019, 05:26 PM
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Scooter9 Scooter9 is offline
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I worked from home today so I didn't have to interact with anyone other than my son. It was good.

So today was better than yesterday - not as strange because I didn't have to force things as much.

Thanks everyone for your support it's nice to be among people that understand.

I'm feeling mentally tired because work is stressful but I'm managing for now. I'm hoping I can continue to manage the stress because it's not going to get any better for several months.

I'm still feeling depressed but I'm hopeful that the Mirapex will start working in the next couple of weeks.
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  #634  
Old Oct 16, 2019, 05:34 PM
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falcon09 falcon09 is offline
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I slept maybe 5-6 hours today after an all-nighter last night. Hoping I can sleep tonight as I have therapy tomorrow.
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  #635  
Old Oct 16, 2019, 05:45 PM
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Daonnachd Daonnachd is offline
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I met with my T today. It was mostly about what I'm reading, or would like to be reading. We also talked about my recent foray into journalling and how I can use it to identify triggers and process the stressors that come up during the day.
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  #636  
Old Oct 16, 2019, 06:05 PM
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~Christina ~Christina is offline
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Well we had our court date this morning about a hospital bill my husband had from 4 years ago. Pneumonia! He couldn’t work and had no insurance at the time. He had applied for SSDI but we all know how long that can take.

The hospital it’s self requires all balances be paid off fully in 3-4 months.. ummm sorry I don’t have 400 +bucks extra sitting around each month.

So the attorney pushed for 100.00 a month . I’m like we are BOTH on disability.. here’s my husband with his portable oxygen, we have to pay monthly for him to even breath. So he said .. well the lowest I can go is 50.00 if not we will put a lien on your home and the interest will just increase forever.

So we agreed to 50.00 a month and I know that’s probably not a problem for most people but for us it’s just another bill we have to count pennies for.

My husband and I would have never thought in a million years we would both wind up unable to work and have to live off SSDI, it just slams you into a hard poverty. I’m just beyond grateful that we own our home outright. Huge blessing.

I’m just feeling defeated. In the next month I have to see my Pdoc, T Rhuematologist and also see TWO different specialist so there is more medical bills to find a way to pay, I mean.. I need my liver and lungs but damn! Ugh !

We didn’t plan to get so ill I’d love. to be able to go back to working 12 hour shifts 6 days a week in a nursing home.

Once again this bubbles up in me feelings of shame, being a burden, my self worth seems to literally be draining right out of my body as I type this.

We live a quite life, we might grab dinner or lunch out at most twice a month... and we are talking a local diner. Burger and fries with a drink and tip 18.00 And the food is served in a basket not even on a plate ! I don’t go “ shopping “ but I had to buy one decent looking shirt this year and 2 bras because mine literally broke and they were at least 5 years old. I don’t by makeup, my razor is probably 6 months old , I use shampoo that’s a dollar.. we saved for months to buy a dvd set we really really wanted. I drink one soda a day then it’s all water.. we don’t go out to the movies. I plan out our meals with a very strict budget and portion controlled.. We never throw out food. We schedule trips into town to take care of multiple things at once because we just can’t afford to make even one extra trip with our gas budget.

Sorry guys I’m just very discouraged, having a pity party for myself right now...
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  #637  
Old Oct 16, 2019, 06:14 PM
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@~Christina I can relate. We are getting to that point. We need to find food banks, etc. The only thing saving us is my daughter and her job but she's moving out in February so....
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  #638  
Old Oct 16, 2019, 06:17 PM
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~Christina I am so sorry. $50/month is rough.
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  #639  
Old Oct 16, 2019, 07:05 PM
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Christina I am so sorry. I know what it’s like to not have two pennies to rub together, and that’s when both my husband and I were working full time. Unbeknownst to me he was spending all our money on drugs. So I tried very hard to budget, I’d get up early to make him breakfast and lunch, then he would say he ate it all by ten am and was hungry again for lunch...50 withdrawn...why does lunch cost 50...I was so naive.

Anyway this is about YOU, not me. I understand how just one more bill can seem impossible. You are doing the best you can with what you’ve got. Try not to get too discouraged. You may never get to live the high life but you’re getting by with what you’ve got. That’s something to be proud of!
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  #640  
Old Oct 16, 2019, 07:31 PM
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So my grandmother, the saint that she is, said that she will pay for cobra for me until I can get proper insurance from a job. This is because I can’t get coverage for my son through the healthcare.gov for some reason. I might be able to once open enrollment starts but as of right now he’s not covered. So as long as I pay my premium for this month I will have insurance again. So I can finally go to the dr for the diabetes symptoms. I am so annoyed by them. I hate being so hungry all the mother****ing time, having to pee eighty times a day, downing bottle after bottle of water...if it’s not diabetes (which I’m hoping for) I hope we can at least figure out what it is. Now that depression is not masking my appetite, I am gaining weight again because I’m so hungry.

Mood wise I’m doing well. Seem to be on even ground again. Not too happy, not agitated, not depressed. I’m happy the med change worked so quickly. I really needed a break.

I’m looking forward to my job interview on Monday. I think it would be a good job for me. Still low paying but at least it would be full time. Right now as a sub I’m not guaranteed full time employment any time soon. Apparently there’s another person who just lost her one to one who is a full time employee with a contract so they have to give her a position first.

I just booked a hotel for me and RS in the mountains for our one year anniversary in November. I’m really excited about it. I haven’t been on a trip since a year or two before my husband died. So what, five, six years? And we will be kid free! Just us. We will drive there after worn on Friday and cone back Sunday morning. That will give us one full day to have fun. I’m hoping it won’t be TOO cold because I want to visit this monolith park and hike around. I also want to go to the antique market and then hard cider tasting. I’m excited if you can’t tell lol!
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Of course it is happening inside your head. But why on earth should that mean that it is not real?
-Albus Dumbledore

That’s life. If nothing else, that is life. It’s real. Sometimes it
f—-ing hurts. But it’s sort of all we have.
-Garden State
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  #641  
Old Oct 16, 2019, 08:06 PM
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I'm so tired. We cancelled what we could this week. My sister's family is coming over tomorrow. Money is running short this month. I don't know where I ****ed up. Today was nice and relaxed. My dog loves when we're home for most of the day.
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  #642  
Old Oct 16, 2019, 08:17 PM
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Nammu Nammu is offline
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Quote:
Originally Posted by ~Christina View Post
Well we had our court date this morning about a hospital bill my husband had from 4 years ago. Pneumonia! He couldn’t work and had no insurance at the time. He had applied for SSDI but we all know how long that can take.

The hospital it’s self requires all balances be paid off fully in 3-4 months.. ummm sorry I don’t have 400 +bucks extra sitting around each month.

So the attorney pushed for 100.00 a month . I’m like we are BOTH on disability.. here’s my husband with his portable oxygen, we have to pay monthly for him to even breath. So he said .. well the lowest I can go is 50.00 if not we will put a lien on your home and the interest will just increase forever.

So we agreed to 50.00 a month and I know that’s probably not a problem for most people but for us it’s just another bill we have to count pennies for.

My husband and I would have never thought in a million years we would both wind up unable to work and have to live off SSDI, it just slams you into a hard poverty. I’m just beyond grateful that we own our home outright. Huge blessing.

I’m just feeling defeated. In the next month I have to see my Pdoc, T Rhuematologist and also see TWO different specialist so there is more medical bills to find a way to pay, I mean.. I need my liver and lungs but damn! Ugh !

We didn’t plan to get so ill I’d love. to be able to go back to working 12 hour shifts 6 days a week in a nursing home.

Once again this bubbles up in me feelings of shame, being a burden, my self worth seems to literally be draining right out of my body as I type this.

We live a quite life, we might grab dinner or lunch out at most twice a month... and we are talking a local diner. Burger and fries with a drink and tip 18.00 And the food is served in a basket not even on a plate ! I don’t go “ shopping “ but I had to buy one decent looking shirt this year and 2 bras because mine literally broke and they were at least 5 years old. I don’t by makeup, my razor is probably 6 months old , I use shampoo that’s a dollar.. we saved for months to buy a dvd set we really really wanted. I drink one soda a day then it’s all water.. we don’t go out to the movies. I plan out our meals with a very strict budget and portion controlled.. We never throw out food. We schedule trips into town to take care of multiple things at once because we just can’t afford to make even one extra trip with our gas budget.

Sorry guys I’m just very discouraged, having a pity party for myself right now...
Clearly that lawyer has never had to pinch pennies and has no idea how far $50 breaks the budget. Yeah SSDI is poverty living. I'm so sorry they wouldn't just forgive the debt.
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  #643  
Old Oct 16, 2019, 09:18 PM
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Wild Coyote Wild Coyote is offline
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(((((( Christina )))))) :

I do not understand why some must go through so much.

I am more than willing to do whatever I can possibly do to help you through.

Love ya!
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  #644  
Old Oct 16, 2019, 09:31 PM
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BeyondtheRainbow BeyondtheRainbow is offline
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My colonoscopy and endoscopy are scheduled for Monday but I just found out that probably isn't happening.

When I saw the GI we talked about using different drugs to be MAOI safe and he asked me to have my pdoc email him (same hospital system, exactly why I am doing this there). But then they scheduled me with a different GI for the procedures. Fine. It's in my chart we discussed this, all should be well.

I emailed my pdoc the other day to ask about what meds to take the night before so I wouldn't be too sedated to handle the 4 AM prep. I just heard back from her a few hours ago that I had worse issues. Apparently the GI I'm scheduled with doesn't think I should have this done at the regional center and won't arrange for my pdoc to talk to the anesthesiologist prior to the procedures. Nor has the GI contacted me. Apparently she was going to let me do the bowel prep, show up and maybe do the procedure.

My family re-arranged schedules to get this done. My mom cancelled volunteer tutoring. My brother called off work to petsit. My mom has other stuff going on that she just doesn't have time to re-schedule. My brother cancelled a high tip night and she is going to pay him for tips. I had arranged and paid for a nice motel (nice meaning it has a fridge for my bowel prep) that I found cheap online; the last time to cancel was midnight tonight so I had to do that. I'm sure it will be much more expensive if I can get the same place if this somehow works out.

I am so mad. I've been waiting for months and I can't believe GI wasn't going to call me and tell me they aren't comfortable. Which is also somewhat ridiculous as I had surgery last year with less upset. I absolutely can't believe my pdoc is the one to tell me my GI procedure may not happen or that I may want to check into that further.

I sent the GI that I saw a message and will call Friday if I haven't heard from him. I hope I hear tomorrow but they have 3 days to respond and if he doesn't open it he won't respond.

I'm so upset. I need this done and I had myself feeling good about doing it. And now it is just a waste of everything. My mom absolutely doesn't need a whole day blown. She has to be in the city 3 days next week along with my probably botched procedures. It's just not right to mess with people's lives like this.

I just want this over with, not strung along another month. It's my own fault, I should have insisted on the dr I saw. He was so relaxed about it through that I thought my notes in my chart and my pdoc verifying I am ok with the suggested drugs that would be fine.

What a waste.
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  #645  
Old Oct 16, 2019, 09:36 PM
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BeyondtheRainbow BeyondtheRainbow is offline
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Originally Posted by ~Christina View Post
So we agreed to 50.00 a month and I know that’s probably not a problem for most people but for us it’s just another bill we have to count pennies for.

..

Have you ever tried Swagbucks? You do surveys, watch ads, do various little tasks and use their search engine and you can make some money. I've made $25-$50 a month when I was really motivated at it; some people make more. You can cash out for gift cards (including amazon) or paypal. It has helped me when things were rough. It's not exactly fun but it doesn't take too much time unless you want it to.

I hope you find a way to make the $50 less painful. I'm dreading having medical bills if I ever get these scopes done. I've had dental work on carecredit forever but otherwise just was paying my co-pay for my pdoc. Now that will go up. My hospital is more reasonable than yours though. I'm sorry yours don't know they are dealing with humans.
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  #646  
Old Oct 16, 2019, 09:48 PM
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Wild Coyote Wild Coyote is offline
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Originally Posted by Nammu View Post
Clearly that lawyer has never had to pinch pennies and has no idea how far $50 breaks the budget. Yeah SSDI is poverty living. I'm so sorry they wouldn't just forgive the debt.
I so agree with you!

I used to get harassed a lot, between my private disability insurer and my main coverages. In some cases, i've just asked for names . in many cases, I'd asked their names and wrote letters to their supervisors, etc.

I'd often asked hospital staff, investigators and others, "tell me, just how do you sleep at night?"

it's so very stressful!l

My heart goes out!
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  #647  
Old Oct 16, 2019, 09:53 PM
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~Christina ~Christina is offline
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@~Christina I can relate. We are getting to that point. We need to find food banks, etc. The only thing saving us is my daughter and her job but she's moving out in February so....


Thanks I hope you can get something figured out for when she moves out
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  #648  
Old Oct 16, 2019, 10:03 PM
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~Christina ~Christina is offline
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Christina I am so sorry. I know what it’s like to not have two pennies to rub together, and that’s when both my husband and I were working full time. Unbeknownst to me he was spending all our money on drugs. So I tried very hard to budget, I’d get up early to make him breakfast and lunch, then he would say he ate it all by ten am and was hungry again for lunch...50 withdrawn...why does lunch cost 50...I was so naive.


Anyway this is about YOU, not me. I understand how just one more bill can seem impossible. You are doing the best you can with what you’ve got. Try not to get too discouraged. You may never get to live the high life but you’re getting by with what you’ve got. That’s something to be proud of!


Thanks

Yes ... yes we are lucky.. we were able to sell our home in Florida and with my inheritance when my Mom died we decided to just buy our home and acreage outright here , I refused to have a mortgage ever again.
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  #649  
Old Oct 16, 2019, 10:12 PM
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~Christina ~Christina is offline
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Clearly that lawyer has never had to pinch pennies and has no idea how far $50 breaks the budget. Yeah SSDI is poverty living. I'm so sorry they wouldn't just forgive the debt.


Thanks The Lawyer honestly wasn’t a jerk about it .. it was just option 1 or 2

If we didn’t own our home ? The judge would have dismissed the entire balance..
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  #650  
Old Oct 16, 2019, 10:15 PM
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~Christina ~Christina is offline
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(((((( Christina )))))) :


I do not understand why some must go through so much.


I am more than willing to do whatever I can possibly do to help you through.


Love ya!


I dunno how I got so lucky having you in my life
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