[~Christina]

Well Zero sleep last night. I am getting all kinds of angry over my entire pathetic situation so about 520am I decided it was time for a walk.. Off Sirius(my dog) and I go.. I live in the middle of no where so its cool walking around alone , Coyotes typically wont mess with anyone. So I pretty much light jogged 5 miles and I would have gone longer but my dog was getting tired LOL .. yes my pain was sucking before and yes its suvking even more now , but i am just at the point that I really truely do not give a shyt anymore.. Maybe I will just collapse or keep not sleeping and drift off into psychosis, whatever... Bleh .

Everyone take care of yourselves ! gentle hugs

[cakeladie]

I broke down and called my rhemy I had to leave a message but the ribs on my left side are hurting and it's hard to get a breath so I am thinking she is going to say go up on my pred which I don't want to but will I cant keep doing this and I am very sorry to dump this on everyone. I know everyone has their own issues but sometimes it's just so so hard. I think I'll also put on a pain patch and see if that will help. I'm just playing tonight I can sleep.

I hope everyone is doing OK and I am so sorry that I have not been has supportive as I should be.

I will try harder

[~Christina]

Awwww Cake I'm sorry your feeling so bad , I hope you can get some sleep.

**** None of us need to feel bad for moaning and groaning, We are all feeling lousey lately and if we can't word vomit here and unload we would likely implode*****

Give when you can, take when you need. No one keeps score

[January]

What Christina said, Cake. We give when we can and take when we need to do it. It is the way with our illnesses.

[lizardlady]

Cake, others said it - vent to your heart's content hun.

Jan, it's funny you asked about teeth/gums hurting because I was thinking for posting the same question. I think in my case it's because I clench my jaws when I hurt and don't realize I'm doing it.

Christina, be careful of the coyotes, okay? Back before my knees went south I used to go from runs to chill out my brain. It felt good to pound the ground with my feet.

I saw a weather report yesterday that said the current weather pattern is likely to hold for days. I've resigned myself to feeling rotten.

[cakeladie]

Sorry Liz we are heading into a heat wave and high humidity which we usually don't get so I will not be leaving the house.

Christina be careful out at night like that.

Kiya has been quite lately I hope she is ok

Everyone just take it one day at a time (((hugs))) everyone

[Bubbles&Buttercup]

Too early in the morning to have the brain capacity to respond to anything anyone has posted, but will check back later.
Leaving for my rheumy appointment soon. Tired, sore and stressed, but at least I don't have to drive! (Or pay for petrol)

[cakeladie]

Good luck

[Kiya]

busy busy... caring for mom post surgery (after cleaning her house while she was in recovery). Pain, fatigue - a new elevated norm for me now.
and stress because i'm losing my psych nurse
hugs all!
(thanks, Cake)

[~Christina]

I finally dragged myself out of bed a couple hours ago, cried all day. My pain is breathtaking. I am calling my T in the morning so he can remind me why staying alive is a good thing.

[Kiya]

(((((((((Christina, Cake, Liz)))))))))))))))

yes, staying alive is important. Can you think about looking in to acupuncture? It truly is amazing (and I'd avoided it for years and am not at all fond of needles). It realigns the body pain map and revitalizes cells and blood which energizes the body and reduces pain.
It's not "woo woo"; it's one of the oldest healing modalities in the world. I highly recommend it.

[cakeladie]

Christina what about rice packs, biofrezze or a relax wrap? All of those things have helped others on this thread and they are all over the counter stuff. I can make you rice packs that you put in The microwave and heat up they really do help with the pain. A heating pad would do the same thing but with a rice pack or the relax wrap they mold to the area that is hurting the most. If you can't wait for me to make some you can get a sock and put regular rice in it tie a knot and put it into the microwave to heat. It's worth a try don't you think?

I broke down tonight a took the full dosage of my pain meds plus put 2 pain patches on and I am still in pain. The doctor never did call back so I will call her office tomorrow. She more then likely will increase my pred

I did manage to get 5 hours of sleep last night.

Take care and everyone say a quick prayer for bubbles she see this doctor today and if you are not into praying send good vibes her way.

Hugs to all.

Kiya don't over do it cleaning your moms house please remember your not wonder women but if you want to be I can make you a cape

This is the third time I have edited this post. Christina you are important to ALL of us. You don't need your T to remind you that you are special and a very caring person. We would all miss you if something happened to you. And remember you promised .............

[Bubbles&Buttercup]

Will respond to everyone once I'm home!!

But thought I'd let you know that I saw the rheumatologist, he definitely agrees that it's Fibro and has given me a low pain med three times a day plus endep which he will work up to a higher dosage.
Doing blood tests (took two people four goes) and a bone scan (in a few days) to make sure everything evil is cancelled out because one of my liver functions is elevated.
He also told me I have joint hyper mobility. Which explains why I dislocate things and is another cause for my joints hurting so much!

Im exhausted and sore from the car trip and being stabbed but pleased that he seems to know what he's doing and is being thorough.

Hope you're all doing okay!! Will read everyone's comments properly tonight!

[LettinG0]

(((((((((Everyone)))))))))

I'm having some issues with pain.....overdid it Saturday --- sat in bleachers at ball field for several hours in 105 degree heat....

but mildly compared to the horror everyone else seems to be going through at the moment.....Wish I could 'fix' you all.........

[January]

LettinGo, your pain is no less real or important than anyone else's. I'm sorry you are in pain.

Hang on, hang on everybody. Be strong!

[~Christina]

I have tried all the at home stuff hot/cold.. Biofreeze etc nothing is helping at all.. Acupuncture is out of the question right now due to financial issues.

I spoke with my T.... Richard he has made me promise to stay amoung the living until I see him on Wednesday for our normal session. he along with my Pdoc are trying to get my GP to agree to some kind of pain med that i can use only PRN when I get in to a state like this, I do not want to take anything daily.

Hopefully something can be agreed upon, like really really soon.

Oh yeah, I took 2 steps this morning getting outta bed and my back is out and my sciatia is screaming .... Gah .. if I was a horse I would have been put down already.

Gentle hugs to all

[lizardlady]

Originally Posted by ~Christina

Gah .. if I was a horse I would have been put down already.

Nah, if you were a horse you'd be living on my farm and having your every want and need catered to. I tell people that if I'm reincarnated as an animal I want to be an animal on my farm.

[~Christina]

lol Liz ! Thanks

I had some spoiled rotten pasture ornaments not so long ago.

[cakeladie]

How is everyone holding up

[Kiya]

[~Christina]

ditto

[cakeladie]

Not sure I told you guys but I got tired if being a prisoner in my on home due to lupus RA pulmonary fibrous fibro and the list goes on and on.

Anyway it's been hot here and last week I f---k lupus and everything grabbed a floaty toy and a book and went into our pool. I used to swim laps after work before I got to sick. I tested my husband my plans and want in. It felt sooooo good. Once my hubby got home I swam laps it felt really nice. Then the next day I paid the price. Oh well.

Well this week it's been around 100. So we rated till the pool was in shade and I went in. I have been going in every night swimming easy laps. It is so nice to be able to do something so freeing.

But I am very tired. In addition my husband brought home a sick kitten that I have been nursing all week. It's been many many years since I have had to do 3 am feelings.

Not much house work is getting done but oh well.

I hope everyone is ok. Our thread had not had much activity so I hope everyone is ok. When you guys. Have a minute let everyone know how you are feeling because we ALL care

Sending hugs to everyone

[Kiya]

like you, Cake, I kinda said F it (or my alters did) and went RUNNING. Running! Me! Yeah, totally paying the price. But they, too, are doing it nightly. Like it's ONE THING empowering that they can do to get strong and fight back in some form against us caring for my mom after her surgery. OMG i'm sore. soooooo sore. yet they push. I suppose it's better than a lot of things they could be doing. one form of pain instead of another.
I'm walking like I've been on a horse for a day.... but oh well.
hugs all!

[LettinG0]

Hi guys!

Cake -- glad you are enjoying the pool....sorry you have to pay the price for it....

You too, Kiya!

Like Cake, I am curious to know how everyone is holding up since everyone has been struggling so much lately.....

As for me, I am "ok" --- had to start a cholesterol med so I am waiting to see if it affects my leg muscles.....I can't take some of the meds bc of that....anyway....

Also, since I can't afford my Savella (for my fibro), my GP wants me to try Neurontin again. I had terrible side effects the first time I tried it; so, she is starting me out on a really low dose at night only to see if I can build up a tolerance for it....we will see how it goes....

Anyway, love and hugs to everyone!

[January]

LettinG0, I take nuerontin and have had really good benefits from it. I hope so much you can take it.

I tried doing my Physical Therapy exercises at home. Oh my goodness, the pain! The exercises are in my ankle and foot, but my back hurt until I could barely move. I think the exercise tubing they cut for me to use was too short or something. I had to bend over much too far. I couldn't drive or do anything other than sit. I couldn't even lay down. I have to try them again today. Oh my!

I hope you all feel better. I'm sorry you are in pain and love you all.