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  #451  
Old May 09, 2022, 10:49 PM
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BeyondtheRainbow BeyondtheRainbow is offline
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Nammu hope it goes well for your mum. You are both in my thoughts
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  #452  
Old May 09, 2022, 10:51 PM
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~Christina ~Christina is offline
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Quote:
Originally Posted by otroo View Post
We were supposed to go on a ride but she ended up having to work. I spent my day with my mother inlaw in church and the afternoon with my mom. I cried a lot at church and at home and that was it.

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Glad you had company

My T told me the hardest part of losing someone is the first 12 months all the holidays and celebrations are tough to manage.

Keep being Kind to yourself

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  #453  
Old May 09, 2022, 10:53 PM
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~Christina ~Christina is offline
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Originally Posted by Nammu View Post
Oh horrors. Had an awful dream. I was in an English class and the teacher was trying to sabotage me cause she hated having a Deaf student who had an interpreter and a note taker. Plus in my dream I was on strong meds that made me sleepy. Ilr there were teachers that were uncomfortable with interpreters but none ever tried to sabotage me or took it personally except one art teacher who had a real personality problem. She liked to dominate her class and I didn’t dominate well. I didn’t know it at the time but she was not well liked but the other staff. She took me to a collage version of speaking to the principal. It was her me and my advisor ( who was also deaf) and interpreters. She came out looking rather bad. Thankfully there were only a couple weeks left to the semester.

But in grade school I had a teacher that wanted to fail me. She wanted me locked up in a state school. “Normal” kids shouldn’t have to be in a room with less that perfect kids. All she successfully did was. Insure I hate math and making no longer love school. But only her class. She told mum I belonged in an institution and mum tried to get her removed. She was fired the following year. I had really pissed her off by saying Americans weren’t first. In space. I didn’t understand why that pissed her off so much because it was a fact. The principal had me take tests, the tests I passed with flying colors allowed me to stay in mainstreamed classes. Fortunately I had no idea what was riding on those tests. But that teacher humiliated me whenever she could and isolated me. By 4th grade I thought I was dumb. Fortunately the teachers were better and I did fine after that except for math.

Anyway I think that was the reason for that dream. Interesting though the dream was English class, not math!

Oh that sounds terrible hope you have nice dreams tonight !

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  #454  
Old May 09, 2022, 11:00 PM
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~Christina ~Christina is offline
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Originally Posted by dsmith View Post
Right now I’m at a crossroads: earlier this year I embarked on a very creative endeavor: a podcast, where I interview people about mental health. People who are suffering from the disorder, who have found strategies for managing it, etc.

I feel gripped by the KT Tunstall song “Suddenly I see” – this is what I wanna be. I really enjoy the whole process: the creative element, the technology, the storytelling, the connection. I feel a lot like I did in the late 1990’s, when I taught myself how to build Websites. This is before Facebook / Instagram, when you had to know HTML, JavaScript, CSS, etc. to post something online. Even if you used one of those primitive scary site builders like GeoCities.

The problem is I’m second guessing and doubting myself. Every night I toss and turn. It’s a pet project right now that’s not generating any $$$. “Why are you wasting your time?” “Who cares about what you or any of your guests have to say?” “Wow, must be nice to be the 956,301st podcast about mental health and wellness.”

When I’m preparing for the interviews, speaking with the guests, and editing the recordings I feel so alive. Then I check my email and there’s a million things from my “day job” that have piled up. For the first time in about 17 years I’m doing something I truly enjoy. The last time I started this type of journey – about 25 years ago, it ushered in one of the most productive, rewarding chapters of my life.

I could use any positive affirmations today from this amazing community, to help remind me that I’m using my time wisely. Even though it’s just a hobby right now, I think when passion, purpose, and project (management) are aligned, sky’s the limit.

Thanks all!

Follow and do what makes your heart sings !

My daughter worked for a business doing copy write /editor work and it was a “ job” that paid the bills. In March she said enough and quit to do freelance work. She’s much happier because she’s doing what makes her smile !

We must do things that make us feel good or life is going to suck.

Hugs !

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  #455  
Old May 09, 2022, 11:03 PM
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~Christina ~Christina is offline
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Quote:
Originally Posted by Nammu View Post
Just an emergency note here. I’ll probably not be here. We’re packing to go to Rochester to stay with my sister. Mum is having emergency eye surgery in the morning. My sister doesn’t have internet

Oh no ! Sending prayers and good thoughts

We will be here waiting for you

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  #456  
Old May 09, 2022, 11:21 PM
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Steve had his pulmonologist routine follow up appointment today. Everything is good thankfully.

I am really worried BOTH oxygen concentrator’s stopped working! So he’s got to get one running ! I’m so nervous about him not having oxygen at night. It was so quiet last night I really struggled to sleep. Another quiet night coming up. Ugh

I see Richard Wednesday and I’m looking forward to more IFS work. It’s incredibly interesting. Hopefully it’s a productive session. These first 2 was pretty cool.

Took 70.00 to almost fill up my car today. Like what in the hell ???!? I don’t wanna hear an “excuse “ about the war in Ukraine as gas prices were bad before that ! The government needs to step up and find relief for us all.

I need to go to SS and find out what I can do work wise that won’t mess with my SSDI! We simply couldn’t afford to buy insurance. Amanda is paying just over 300.00 a month for her insurance!!!!!

I am still in a lot of pain ! I see my Rheumatologist next Monday and Blood work will show if my inflammation level is up as that will let me know if Xeljanz really has pooped out.

I’m just beyond stressed over life right now.

Hugs all around

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  #457  
Old May 10, 2022, 12:27 AM
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Sunflower123 Sunflower123 is offline
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Well today is the big 55 birthday for me. It had been bothering me leading up to it but now that it’s here I’m just happy to have survived 100% of my toughest days and to be healthy.

I left a nice message on my med provider’s phone to mark the file to NEVER use Wellbutrin again. I have an appointment with her Thursday for an alternative.

I saw a surgeon today about my tongue. Very professional and thorough. He put me at ease. I’ll probably wait until after Florida to have the growth removed but I feel good about it.

I’m doing well again PTL. I hope it lasts.

I hope everyone has a peaceful day. Hugs to all!
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  #458  
Old May 10, 2022, 05:15 AM
Soupe du jour Soupe du jour is offline
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Originally Posted by *Beth* View Post


Yeah, isn't that the truth about Musk!?

Using the electric car will be such an interesting experience, I think. I'm looking forward to hearing about it.

Which city will you be flying into?
Will do. The electric car gives me a wee bit of anxiety, but also excitement.

We fly to and pick up rental car in Bordeaux in early June, and then return rental car to and fly from Nantes in late June. It's surely the best and most efficient plan, I assume. Luckily both are non-stops from/to Prague. That will save a lot of driving and keep our personal car safe in CZ. We'll likely take the train to/from Prague from our home. We plan to pack lighter than for our US trip. The milder temps will help with that.
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* Lamictal (lamotrigine) 150 mg
* Seroquel XR (quetiapine ER) 500 mg

I also take meds for blood pressure, cholesterol, and tachycardia.
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  #459  
Old May 10, 2022, 06:41 AM
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Mountaindewed Mountaindewed is offline
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Quote:
Originally Posted by Jennifer 1967 View Post
Well today is the big 55 birthday for me. It had been bothering me leading up to it but now that it’s here I’m just happy to have survived 100% of my toughest days and to be healthy.

I left a nice message on my med provider’s phone to mark the file to NEVER use Wellbutrin again. I have an appointment with her Thursday for an alternative.

I saw a surgeon today about my tongue. Very professional and thorough. He put me at ease. I’ll probably wait until after Florida to have the growth removed but I feel good about it.

I’m doing well again PTL. I hope it lasts.

I hope everyone has a peaceful day. Hugs to all!
Happy birthday!
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  #460  
Old May 10, 2022, 07:16 AM
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wildflowerchild25 wildflowerchild25 is offline
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I’m still feeling baseline, this is day 4. I’m so happy. It’s an odd feeling, though, when you’ve been back and forth for so long and suddenly you’re stable! I think the vraylar may have been more trouble than it was worth. I remember it not working when I was put on it back in 2017 either. It did not help my depressed episode at all and in fact that’s when I believed my brain was trying to kill me and forcing me to look up methods. I’m also not as hungry already. Still hungry but I don’t feel like I’m going to be sick and pass out every 2 hours. So brain zaps aside I feel it was worth it to come off. It has a very long half life so it will take 3-4 weeks to get out completely and I hope to continue to recover from the side effects.

The weather is gorgeous after the weekend’s terrible rain, wind, and cold temperatures. We walked a mile yesterday. We’ll walk again this whole week. I signed us up for the NAMI walk and it’s in two weeks. I didn’t know it was a 5k! That’s around 3 miles lol. We’re gonna be tired from that!

My SIL called me last Sunday and I was able to express to my brother the importance of getting our mom out of her house ASAP. Her hoard has increased exponentially since I’ve been over there last. It’s becoming an unsafe situation for her. It’s a fire hazard, if a fire were to start downstairs I’m not sure she would make it out. She’s so isolated and depressed, it’s so sad. She won’t invite anyone over because she knows her house is terrible. *I* don’t even want to go there anymore, and I certainly don’t want my son there.

It’s in terrible shape in terms of maintenance as well, we’re going to have to sell it as a flip house. If someone want to flip it and fixes it up really nice they could make a pretty penny, it’s a 4 bedroom 2 bath house in the best part of town and the kids go to the best school in the district living there.

My mom has wanted to move for ages, she knows she’s unable to maintain the house, but it’s too hard for her to do it on her own. I’m glad my brother is finally on board with helping her out. I know he hasn’t accepted her treatment of him as a child yet but if he can do this he’s taking a step in the right direction.
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  #461  
Old May 10, 2022, 07:41 AM
Soupe du jour Soupe du jour is offline
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Originally Posted by wildflowerchild25 View Post
I’m still feeling baseline, this is day 4. I’m so happy. It’s an odd feeling, though, when you’ve been back and forth for so long and suddenly you’re stable! I think the vraylar may have been more trouble than it was worth. I remember it not working when I was put on it back in 2017 either. It did not help my depressed episode at all and in fact that’s when I believed my brain was trying to kill me and forcing me to look up methods. I’m also not as hungry already. Still hungry but I don’t feel like I’m going to be sick and pass out every 2 hours. So brain zaps aside I feel it was worth it to come off. It has a very long half life so it will take 3-4 weeks to get out completely and I hope to continue to recover from the side effects.

The weather is gorgeous after the weekend’s terrible rain, wind, and cold temperatures. We walked a mile yesterday. We’ll walk again this whole week. I signed us up for the NAMI walk and it’s in two weeks. I didn’t know it was a 5k! That’s around 3 miles lol. We’re gonna be tired from that!

My SIL called me last Sunday and I was able to express to my brother the importance of getting our mom out of her house ASAP. Her hoard has increased exponentially since I’ve been over there last. It’s becoming an unsafe situation for her. It’s a fire hazard, if a fire were to start downstairs I’m not sure she would make it out. She’s so isolated and depressed, it’s so sad. She won’t invite anyone over because she knows her house is terrible. *I* don’t even want to go there anymore, and I certainly don’t want my son there.

It’s in terrible shape in terms of maintenance as well, we’re going to have to sell it as a flip house. If someone want to flip it and fixes it up really nice they could make a pretty penny, it’s a 4 bedroom 2 bath house in the best part of town and the kids go to the best school in the district living there.

My mom has wanted to move for ages, she knows she’s unable to maintain the house, but it’s too hard for her to do it on her own. I’m glad my brother is finally on board with helping her out. I know he hasn’t accepted her treatment of him as a child yet but if he can do this he’s taking a step in the right direction.
It's so nice to read that your mood has stabilized, wildflowerchild! Let's hope it continues for a long while and that your withdrawals ease very quickly. In such situations, I try not to think of when it might change. Just savor the good days. Mine have lasted longer than I would have imagined a while back, and continue.

I feel for you regarding your mom's hoarding. I worry about my sister and brother, too. My sister is not a hoarder, but lives with two who are. She stopped allowing me to visit her house years ago. She does allow my brother, but he has slight hoarding tendencies, too.

That's wonderful that you will participate in the NAMI Walk. I did a few times in the past. As did my sister and late nephew. Though 5 K, the walk is leisurely. I think the excitement of it will make that distance easier than you expect.
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Psych Medications:
* Tegretol XR (carbamazepine ER) 800 mg
* Lamictal (lamotrigine) 150 mg
* Seroquel XR (quetiapine ER) 500 mg

I also take meds for blood pressure, cholesterol, and tachycardia.

Last edited by Soupe du jour; May 10, 2022 at 10:03 AM.
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  #462  
Old May 10, 2022, 08:05 AM
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unlived unlived is offline
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Quote:
Originally Posted by Mountaindewed View Post
Yes that is it.

If you had chest pain, trouble breathing and a positive d dimer they should definitely have done a ct

The leg issues could also be a dvt
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  #463  
Old May 10, 2022, 11:18 AM
dsmith dsmith is offline
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Does anyone here get really angry at their brain? Let me explain: I’m unable to sleep at night. This is usually exacerbated by consumption of alcohol, sugar, social media, negative information and (usually) a combination thereof. I struggle through the day knowing that there are a million things I need to be doing. Even now, writing these thoughts out: I keep wanting to take a break and check Twitter / Instagram / LinkedIn to see if I’ve picked up any more followers / likes / comments. It’s maddening.

This morning I woke up at 5:30, meditated for about 20 minutes, got dressed, got my kids ready for school, took them in, then came home and have been waffling for the past 2 hours. It’s like there’s a million things I need to do that are all piling up, but my brain has no access to them. My brain keeps telling me: “nah man, you’re good. Post that article on Twitter; engage with that random person.” Meanwhile, bills are piling up, deliverables are not getting delivered, and I’m getting more and more stressed out.

I really hope I can turn the tide. I keep wasting my life and eventually it’s all going to catch up to me.
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  #464  
Old May 10, 2022, 11:58 AM
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MuddyBoots MuddyBoots is offline
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I just got home from an AM hike. It was pretty windy at the summit. Gorgeous day. I even got a little bit of a burn!

Hugs to all
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  #465  
Old May 10, 2022, 01:58 PM
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Mountaindewed Mountaindewed is offline
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I saw my doctor. And he was all like "well, the ER doctor didn't seem concerned. But let me send in an order for an ultrasound on your leg." But I had to go home and wait for a bit since I was considered an add on and not scheduled. Then when I got home they called back and said they wanted to do a CT scan with litacaine as well. Luckily this can all be done at the clinic.

So everything went well. My leg is ok. I have no idea why its hurting. They did find a nodule on my thyroid. I guess I kinda knew about it but wasn't paying it much attention. I asked my mom a couple weeks ago if she felt something there and we thought it was transiton related. I know It feels funny when I swallow. It feels all lumpy like. but I thought I was just growing an adams apple even though trans men can't grow adams apples. At least I don't think. I just really want one so it may have been a bit of wishful thinking which is why I didn't look into it anymore. I'm not sure if the nodule is whats causing the shortness of breath or not. The doctor wants to do an ultrasound on it.

But I am tired from all this back and forth all day and the CT scan involved an IV and those always hurt. I've been chugging water all day so it wasn't as bad as they normally are though.
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  #466  
Old May 10, 2022, 02:20 PM
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Scooter9 Scooter9 is offline
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Today is my sister's birthday. She would have been 56.

It's almost hard to believe that she's been gone almost 6 years now. I still miss her. My mother is having a tough day today because she misses her daughter so much too.

I'll write a special entry in my journal today - I'll write to her directly.

I had to take a Klonopin today because my anxiety was really bad yesterday and I wanted a break from it today. I'm only taking 1 about every 5 days now.
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  #467  
Old May 10, 2022, 04:08 PM
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Mountaindewed Mountaindewed is offline
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Originally Posted by *Beth* View Post


I bought one of those fans last summer. They are the best.

I'm so sorry you're feeling like crap. You have the appointment in the morning, right?
Yeah it was in the morning and he was late and then I had to come back 1.5 hours later for a couple tests which took awhile. Then they wanted me to wait at the office for the results. So it was pretty much an all day ordeal. I guess it could have been worse though because for the ultrasound she had me take my shorts off most of the way which I was not expecting and luckily I was wearing dark red Hollister boxers and not my boxers with the cartoon eggplants on them.
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  #468  
Old May 10, 2022, 04:34 PM
*Beth* *Beth* is offline
catches the flowers
 
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Quote:
Originally Posted by ~Christina View Post
...
Keep being good to yourself ! I insist

...

Ha, thank you. You're an angel, Christina
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  #469  
Old May 10, 2022, 04:38 PM
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downandlonely downandlonely is offline
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Originally Posted by dsmith View Post
Does anyone here get really angry at their brain? Let me explain: I’m unable to sleep at night. This is usually exacerbated by consumption of alcohol, sugar, social media, negative information and (usually) a combination thereof. I struggle through the day knowing that there are a million things I need to be doing. Even now, writing these thoughts out: I keep wanting to take a break and check Twitter / Instagram / LinkedIn to see if I’ve picked up any more followers / likes / comments. It’s maddening.

This morning I woke up at 5:30, meditated for about 20 minutes, got dressed, got my kids ready for school, took them in, then came home and have been waffling for the past 2 hours. It’s like there’s a million things I need to do that are all piling up, but my brain has no access to them. My brain keeps telling me: “nah man, you’re good. Post that article on Twitter; engage with that random person.” Meanwhile, bills are piling up, deliverables are not getting delivered, and I’m getting more and more stressed out.

I really hope I can turn the tide. I keep wasting my life and eventually it’s all going to catch up to me.
Just wondering if you've ever been evaluated for ADHD. I don't have that myself, but it seems like you have some of the symptoms.
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  #470  
Old May 10, 2022, 04:51 PM
*Beth* *Beth* is offline
catches the flowers
 
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Quote:
Originally Posted by ~Christina View Post
Steve had his pulmonologist routine follow up appointment today. Everything is good thankfully.

I am really worried BOTH oxygen concentrator’s stopped working! So he’s got to get one running ! I’m so nervous about him not having oxygen at night. It was so quiet last night I really struggled to sleep. Another quiet night coming up. Ugh
I see Richard Wednesday and I’m looking forward to more IFS work. It’s incredibly interesting. Hopefully it’s a productive session. These first 2 was pretty cool.

Took 70.00 to almost fill up my car today. Like what in the hell ???!? I don’t wanna hear an “excuse “ about the war in Ukraine as gas prices were bad before that ! The government needs to step up and find relief for us all.

I need to go to SS and find out what I can do work wise that won’t mess with my SSDI! We simply couldn’t afford to buy insurance. Amanda is paying just over 300.00 a month for her insurance!!!!!

I am still in a lot of pain ! I see my Rheumatologist next Monday and Blood work will show if my inflammation level is up as that will let me know if Xeljanz really has pooped out.

I’m just beyond stressed over life right now.

Hugs all around

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I feel bad that you're having so much stress. Scary about Steve's oxygen. How will he get it running again?

Terrific that you're finding the IFS work so interesting. I forgot to read about it, but was thinking about it last night. So I'll be reading about it.

Ohhh, I'm so sorry you're still in that much pain. Is it your ANA that the blood work shows?

Gas It's unbelievable, isn't it?! I don't know when my poor old car will see a full tank again It would be about $100 to fill it. Pffft. Yeah, right.
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  #471  
Old May 10, 2022, 05:05 PM
*Beth* *Beth* is offline
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I'm behind on reading this thread, but I want to so will be back later.

Horrible sleep, all I can think about is sleeping some more. I'll see my PA tomorrow for a med check, hoping he has an idea for a sleep med. But last night I (not a math person) accidentally gave Sidney a dose of insulin that was a little bit too high. Realized this morning the horribly stupid thing I'd done when her glucose number read quite high. So I stayed up to retest her. Her number had dropped, still high, but better. Now I'm hoping her little body doesn't overcompensate by dropping her glucose too low. I'm watching her carefully. God, what a stupid mistake I made.

My therapist is out all week.I know that her health problems are very real, but it sure interrupts the continuity of therapy when she's out for weeks at a time, so frequently. I don't pay $ to see her though, so I pay in another way. Her absence makes me feel kind-of depressed.

I ordered a bamboo blanket from Amazon and it's gotten lost. I've called twice and no one knows where it is. So weird. I wonder if they do know, but just don't disclose? Like, maybe packages have been stolen and they just don't want to tell customers that. "Lost" Amazon packages happen about 1 in 10.

I guess I'm not having the most fabulous day, haha.
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bizi, ~Christina
  #472  
Old May 10, 2022, 06:25 PM
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Pinny Pinny is offline
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Originally Posted by *Beth* View Post
I'm behind on reading this thread, but I want to so will be back later.

Horrible sleep, all I can think about is sleeping some more. I'll see my PA tomorrow for a med check, hoping he has an idea for a sleep med. But last night I (not a math person) accidentally gave Sidney a dose of insulin that was a little bit too high. Realized this morning the horribly stupid thing I'd done when her glucose number read quite high. So I stayed up to retest her. Her number had dropped, still high, but better. Now I'm hoping her little body doesn't overcompensate by dropping her glucose too low. I'm watching her carefully. God, what a stupid mistake I made.

My therapist is out all week.I know that her health problems are very real, but it sure interrupts the continuity of therapy when she's out for weeks at a time, so frequently. I don't pay $ to see her though, so I pay in another way. Her absence makes me feel kind-of depressed.

I ordered a bamboo blanket from Amazon and it's gotten lost. I've called twice and no one knows where it is. So weird. I wonder if they do know, but just don't disclose? Like, maybe packages have been stolen and they just don't want to tell customers that. "Lost" Amazon packages happen about 1 in 10.

I guess I'm not having the most fabulous day, haha.
Aww Beth I’m so sorry you’re not having a good day sending lots of hugs your way!
I hope you manage to find something to help you sleep! It’s so awful when you don’t get enough sleep!

And please don’t be so hard on yourself, it was just a mistake and Sidney is doing ok, you know what to do, you’ve totally got this!

I’m so sorry that your therapist isn’t in all week, that’s really tough to have a lack of continuity.

I’m sorry about your blanket! What a shame! I remember us all discussing how good they were, I really want to order one too!!
I hope they manage to find it or send another one!

Sending loads of hugs your way
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bizi
Thanks for this!
bizi
  #473  
Old May 10, 2022, 06:38 PM
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Pinny Pinny is offline
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Member Since: Feb 2022
Location: Scotland
Posts: 772
Hi everyone! I hope you are doing as well as possible and if you’re not, I’m sending so many hugs
I got back from my trip away at the weekend. It was just a short few days but it was lovely, I spent a lot of time on the beach. I went straight into twilight shifts which I’ve just finished tonight.
Unfortunately I had to get a new phone (I’m having no luck with technology lately, first my laptop, then my phone).
But I have one! I still need to replace my laptop at some point.

I’m doing ok but feeling very anxious at times for reasons I can’t always identify immediately.
I keep having trembling episodes where I can’t stop my hands from shaking and feeling very nervous.

My doctor messed up my prescriptions so I’m running out of my meds this week unless they sort something. I’m very anxious about that too.

I’m just very anxious in general. The only time I really relax is If I drink alcohol and I can’t exactly do that all the time. Even when I sleep (which is still excessive) I’m tossing and turning and having nightmares/weird stressy dreams.

Here’s hoping things get better for all of us!
Well I hope you all have a lovely evening/ night!
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*Beth*, bizi, downandlonely, Fuzzybear, Nammu, Soupe du jour
Thanks for this!
*Beth*, bizi, Soupe du jour, ~Christina
  #474  
Old May 10, 2022, 09:42 PM
*Beth* *Beth* is offline
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Member Since: Jul 2019
Location: Downtown Vibes, California
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Originally Posted by Jennifer 1967 View Post



*~****Happy Birthday, Jennifer!****~*
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bizi, Sunflower123
  #475  
Old May 10, 2022, 09:45 PM
*Beth* *Beth* is offline
catches the flowers
 
Member Since: Jul 2019
Location: Downtown Vibes, California
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Originally Posted by Soupe du jour View Post
Will do. The electric car gives me a wee bit of anxiety, but also excitement.

We fly to and pick up rental car in Bordeaux in early June, and then return rental car to and fly from Nantes in late June. It's surely the best and most efficient plan, I assume. Luckily both are non-stops from/to Prague. That will save a lot of driving and keep our personal car safe in CZ. We'll likely take the train to/from Prague from our home. We plan to pack lighter than for our US trip. The milder temps will help with that.

That sounds ideal. And what a lovely season to be in France. I greatly enjoy packing light.
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